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International Kidney Cancer Coalition @ikccorg.bsky.social · 20h

By addressing both awareness and the emotional impact of kidney cancer, the project aims to help patients and families feel better informed, supported and less alone. #IKCCGrants #KidneyCancer #KidneyCancerAwareness #CancerSupport

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International Kidney Cancer Coalition @ikccorg.bsky.social · 20h

Their project, Strong Kidney, Strong Hope, will combine kidney cancer awareness with emotional wellbeing and psychosocial support for patients and families affected by kidney cancer.

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International Kidney Cancer Coalition @ikccorg.bsky.social · 20h

🌱 IKCC Grants 2026: Meet our Seed & Grow Grant recipient We’re pleased to recognise the Feliciana Mshanga Memorial Cancer Foundation (Tanzania) as a 2026 Seed & Grow Grant recipient.

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International Kidney Cancer Coalition @ikccorg.bsky.social · 05/10/2026

These priorities underline the need for a stronger focus on prevention, research, equity and access to treatment across Europe. 📄 Read the full white paper for the scientific evidence and policy insights: buff.ly/u3aNnAx What do you think the EU should prioritise?

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International Kidney Cancer Coalition @ikccorg.bsky.social · 05/10/2026

• Strengthen prevention, with more than 40% of kidney cancer cases potentially preventable • Address inequalities in access to treatment and outcomes, including socio-economic inequalities • Improve access to care and ensure patients can access appropriate treatment options wherever they live

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International Kidney Cancer Coalition @ikccorg.bsky.social · 05/10/2026

📢 What should Europe do to tackle the burden of kidney cancer? Experts at the European Parliament have highlighted key priorities for kidney cancer policy across Europe: • Invest in research to address areas where patients’ needs may not align with commercial interests.

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International Kidney Cancer Coalition @ikccorg.bsky.social · 02/10/2026

🔎 Why participate in the Global Patient Survey on #kidneycancer? The information gathered helps create education, support and advocacy programs that respond to the needs of people affected by kidney cancer. 🌍 Take part: buff.ly/7mCplWI

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International Kidney Cancer Coalition @ikccorg.bsky.social · 30/09/2026

📅 1 October 2026 🕛 12:00–13:15 📍 European Parliament, Brussels Hosted by MEP Tilly Metz and MEP Romana Jerkovic. #KidneyCancer #EUHealth #CancerPolicy #EUCancerPlan #EuropeanParliament

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International Kidney Cancer Coalition @ikccorg.bsky.social · 30/09/2026

🏛️ Tomorrow: Kidney cancer takes centre stage at the European Parliament On 1 October, IKCC, represented by Olivier Exertier, will join experts in Brussels to discuss kidney cancer prevention, the impact of EU investment, and where research and innovation can make the biggest difference.

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International Kidney Cancer Coalition @ikccorg.bsky.social · 29/09/2026

Thank you to everyone who contributed to this important conversation about making cancer care more patient-centred. 💙 #WorldCancerCongress

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International Kidney Cancer Coalition @ikccorg.bsky.social · 29/09/2026

Shared decision-making is about more than simply sharing information. It means bringing patients and healthcare professionals together to discuss options and make decisions that reflect the patient’s needs, preferences and values.

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International Kidney Cancer Coalition @ikccorg.bsky.social · 29/09/2026

Chaired by Margaret Hickey, the session brought together voices from across the cancer community: 💬 Michael Jewett, IKCC Past-Chair 💬 Olivier Exertier, Executive Director, IKCC 💬 Alex Filicevas, Executive Director, World Bladder Cancer Patient Coalition 💬 Siew Chin Lui, Lymphoma Coalition

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International Kidney Cancer Coalition @ikccorg.bsky.social · 29/09/2026

🤝 Putting patients at the heart of cancer care At the #WorldCancerCongress in Hong Kong, IKCC organised a session exploring “Promoting Shared Decision Making in Cancer Care”, highlighting the importance of giving patients an active role in decisions about their care.

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International Kidney Cancer Coalition @ikccorg.bsky.social · 24/09/2026

💙 Your experience matters. Share your voice and help shape the future of kidney cancer care. The survey takes around 15 minutes to complete: bit.ly/IKCC_Kidney_... #KidneyCancer #KidneyCancerResearch #GlobalPatientSurvey #PatientVoice #CancerResearch

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International Kidney Cancer Coalition @ikccorg.bsky.social · 24/09/2026

The survey identifies geographic differences in patients’ experiences to highlight best practices and unmet needs related to patients’ access to care, assess quality of life, determine the prevalence of shared decision-making, and measure involvement in clinical trials.

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International Kidney Cancer Coalition @ikccorg.bsky.social · 24/09/2026

This marks 10 years of collecting data specific to the experiences of people living with kidney cancer, providing a decade of data. It will be possible to track positive and negative trends, demonstrate changes over time, and use patient insights to guide future advocacy, education, and support.

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International Kidney Cancer Coalition @ikccorg.bsky.social · 24/09/2026

📢 Today, on World Cancer Research Day, the 5th IKCC Global Patient Survey on Kidney Cancer is now open! People who have been diagnosed with kidney cancer and carers are invited to share patient experiences and insights in the online survey:https://bit.ly/IKCC_Kidney_Cancer_Global_Survey

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International Kidney Cancer Coalition @ikccorg.bsky.social · 24/09/2026

On first day of the #WorldCancerCongress in Hong Kong, Michael Jewett Past Chair of IKCC board, made a presentation about « Gaps in Kidney Cancer Care in Low- and Middle Income vs. High Income Countries: IKCC Global Patient Survey Results ».

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International Kidney Cancer Coalition @ikccorg.bsky.social · 23/09/2026

Join us at the European Parliament, with MEP Tilly Metz and MEP Romana Jerkovic, for the official launch and a discussion on how Europe can turn these recommendations into action. 📅 1 October 2026 🕛 12:00–13:15 📍 European Parliament, Brussels

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International Kidney Cancer Coalition @ikccorg.bsky.social · 23/09/2026

The report highlights a stark reality: kidney cancer receives disproportionately low funding relative to its burden. We are proud to have co-authored this scientific and policy briefing, which sets out concrete policy recommendations to change this.

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International Kidney Cancer Coalition @ikccorg.bsky.social · 23/09/2026

Next week, on 1 October, Olivier Exertier will be at the #EuropeanParliament to officially launch the new EAU Kidney Cancer White Paper: Closing the Gap to Better Outcomes in Europe.

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International Kidney Cancer Coalition @ikccorg.bsky.social · 22/09/2026

Our September newsletter is here! 🌍 Discover the latest from the global kidney cancer community, including the launch of the 5th Global Patient Survey, research updates, global collaborations and more. Read it here: buff.ly/8SEi5gE #KidneyCancer #IKCC

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International Kidney Cancer Coalition @ikccorg.bsky.social · 22/09/2026

Learn more about the campaign and join us in raising awareness for kidney health worldwide: buff.ly/Yto6JVe #WorldKidneyDay #KidneyHealthMatters

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International Kidney Cancer Coalition @ikccorg.bsky.social · 22/09/2026

The campaign calls for kidney health to be considered as part of routine cardiovascular and metabolic health assessments. 📅 Save the date: World Kidney Day is 11 March 2027.

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International Kidney Cancer Coalition @ikccorg.bsky.social · 22/09/2026

🌍 The World Kidney Day 2027 campaign has launched! As a World Kidney Day partner, IKCC is pleased to support the campaign and its theme, “Kidneys, Heart and Metabolism: The Core of Your Health”, highlighting the close connection between kidney, cardiovascular and metabolic health.

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International Kidney Cancer Coalition @ikccorg.bsky.social · 16/09/2026

His presentation, "Gaps in Kidney Cancer Care in Low- and Middle-Income vs. High-Income Countries", will be part of the Rapid Fire Session on Access, Prevention Policy and Medicines. We hope you can join us! #WorldCancerCongress #WCC2026

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International Kidney Cancer Coalition @ikccorg.bsky.social · 16/09/2026

We’re pleased to see Dr. Michael Jewett, IKCC Board Past Chair, presenting findings from the 2025 IKCC Global Patient Survey at the upcoming World Cancer Congress 2026 in Hong Kong. 📅 Thursday, 24 September 2026 🕐️ 12:20–13:20

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International Kidney Cancer Coalition @ikccorg.bsky.social · 15/09/2026

📅 1 October 2026 🕛 12:00–13:15 📍 European Parliament, Brussels Seats are limited, register here: buff.ly/D6QbkCR #KidneyCancer #EUHealth #CancerPolicy #IKCC

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International Kidney Cancer Coalition @ikccorg.bsky.social · 15/09/2026

We will discuss what the evidence says about who suffers and pays from a lack of EU investment in kidney cancer, how modifiable risk factors can change the course, and where EU investment in research and innovation should be targeted to make the biggest impact.

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International Kidney Cancer Coalition @ikccorg.bsky.social · 15/09/2026

Almost half of all kidney cancers could be prevented if smoking were eliminated and healthy body weight maintained. IKCC, represented by Olivier Exertier, will be joining experts at the #EuropeanParliament, hosted by MEP Tilly Metz and MEP Romana Jerkovic.

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International Kidney Cancer Coalition @ikccorg.bsky.social · 10/09/2026

We’re pleased to welcome Kidney Research UK to the IKCC global network.💙 Together, we’re strengthening collaboration and the global voice for people affected by kidney cancer. Explore our global kidney cancer community: ikcc.org/about-ikcc/o... #IKCC #KidneyResearchUK

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International Kidney Cancer Coalition @ikccorg.bsky.social · 09/09/2026

The session will explore the importance of shared decision making in cancer care. We hope you can join us! #WorldCancerCongress #WCC2026

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International Kidney Cancer Coalition @ikccorg.bsky.social · 09/09/2026

We’re pleased to see Olivier Exertier from IKCC joining the panel session “Promoting Shared Decision Making in Cancer Care” at the upcoming World Cancer Congress 2026 in Hong Kong. 📅 Friday, 25 September 2026 🕐 16:40–17:40

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International Kidney Cancer Coalition @ikccorg.bsky.social · 08/09/2026

Olivier Exertier will represent the IKCC, bringing the voice of the kidney cancer community to this important discussion. IKCC is committed to supporting the kidney cancer community and making sure the needs and experiences of people affected by kidney cancer are heard. #KidneyCancer #EUHealth

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International Kidney Cancer Coalition @ikccorg.bsky.social · 08/09/2026

Despite how common it is, investment in primary prevention such as tobacco, as well as research, and access to care sits well below the need. Join us on October 1 st at 12pm, hosted by MEP Tilly Metz and MEP Romana Jerkovic. Seats are limited, register here: buff.ly/D6QbkCR

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International Kidney Cancer Coalition @ikccorg.bsky.social · 08/09/2026

Kidney cancer is the 5th (men) and 10th (women) most common cancer. Yet is falling through the cracks of Europe’s cancer response. We are taking the issue to the #EuropeanParliament, to ask: How should the EU tackle inequalities through prevention and treatment for kidney cancer?

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International Kidney Cancer Coalition @ikccorg.bsky.social · 07/09/2026

Improving health literacy can help people feel more informed and empowered in decisions about their care. However, there are still gaps to address. Explore more: buff.ly/CuldoiH #IKCC #KidneyCancer

ikcc.org

https://ikcc.org/wp-content/uploads/2025/05/2025_GPS_Highlights_Reports_IKCC_A4_interactive.pdf

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International Kidney Cancer Coalition @ikccorg.bsky.social · 07/09/2026

🔎 Understanding your kidney cancer diagnosis The 4th IKCC Global Patient Survey found encouraging improvements in patients’ knowledge and understanding. In 2024, fewer people reported that important aspects of their diagnosis were not explained in a way they could understand.

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International Kidney Cancer Coalition @ikccorg.bsky.social · 04/09/2026

👏 Congratulations, Omogbeminiyi, and thank you for your contribution to improving cancer care! #KidneyCancer #PatientSupport #IKCC #ScholarshipAward

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International Kidney Cancer Coalition @ikccorg.bsky.social · 04/09/2026

Omogbeminiyi is being recognised for her work strengthening cancer care through patient navigation and the establishment of a satellite phlebotomy station at the National Hospital Abuja.

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International Kidney Cancer Coalition @ikccorg.bsky.social · 04/09/2026

🏆 Congratulations to Omogbeminiyi Ojole (NG), one of the recipients of the 2026 IKCC Allied Healthcare Professional Scholarship Award!

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International Kidney Cancer Coalition @ikccorg.bsky.social · 02/09/2026

The programme covers clinical knowledge, treatment options, emotional coping, quality of life and communication with healthcare professionals. 👏 Congratulations, Helena, and thank you for your continued work to empower the kidney cancer community! #KidneyCancer #PatientEmpowerment #PatientAdvocacy

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International Kidney Cancer Coalition @ikccorg.bsky.social · 02/09/2026

Her awarded project, “Cruciales” (Expert Patient in Kidney Cancer), is an innovative programme designed to equip patients with the knowledge and confidence to better understand their disease, actively engage in their care and support others.

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International Kidney Cancer Coalition @ikccorg.bsky.social · 02/09/2026

🏆 Congratulations to Dr Helena Garcia-Llana (SP), recipient of the 2026 IKCC Allied Healthcare Professional Scholarship Award! Dr Garcia-Llana is being recognised for her contribution to the empowerment of kidney cancer patients and the development of patient-centred initiatives.

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International Kidney Cancer Coalition @ikccorg.bsky.social · 01/09/2026

We’re pleased to see Margie Hickey from IKCC moderating the panel session "Promoting Shared Decision Making in Cancer Care" at the upcoming #WorldCancerCongress 2026 in Hong Kong. 📅 Friday, 25 September 2026 🕓️ 16:40–17:40 We hope you can join us! #WCC2026

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International Kidney Cancer Coalition @ikccorg.bsky.social · 01/09/2026

The CANCERSurvey is live. Pan-European. 15 languages. Anonymous. Independent. If you have been through cancer in Europe - or cared for someone who has - your experience is what this study needs. wecanadvocate.eu/projects-and... #CANCERSurvey #PatientVoice

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International Kidney Cancer Coalition @ikccorg.bsky.social · 27/08/2026

📅 23–27 October 2026 📍 Madrid, Spain Our IKCC representatives: • Steve Pointon • Julia Black • Dr. Eric Jonasch • Olivier Exertier We look forward to connecting, sharing insights and contributing to conversations that can help improve kidney cancer care worldwide. #ESMO26

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International Kidney Cancer Coalition @ikccorg.bsky.social · 27/08/2026

IKCC at ESMO Congress 2026 🇪🇸 IKCC will be participating in the upcoming ESMO Congress 2026, a leading global oncology meeting bringing together clinicians, researchers, patient advocates, journalists and healthcare industry representatives from around the world.

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