iiinova — where your digital self keeps evolving

ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · 02/10/2026

Thank you to the Specialist Kidney Cancer Centre at the @NHS Royal Free Hospital team for raising awareness of #kidneycancer today. People attending the information stall were engaged and keen to talk to the team about early signs and symptoms of kidney cancer to look out for. #StrongerTogether

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ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · 30/09/2026

Please help #kidneycancer patients, the IKCC patient survey is now open. Take 15minutes to complete the survey, your experiences will help shape kidney cancer care for the next decade. For more info and complete the survey please follow the link: actionkidneycancer.org/get-involved...

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ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · 29/09/2026

If you or a family member have been diagnosed with #kidneycancer our Patient support forum is a place where you can share your experience and concerns with other people who understand the emotional and physical effects of kidney cancer. Find out more: actionkidneycancer.org/hel.../patie...

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ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · 28/09/2026

Set yourself a challenge in 2027, take advantage of Ultra Challenges early bird deal which includes: * 3 New events * Sign up for just £5 * Free tech T shirt * Free Virtual challenge * Multi deal split payments This deal closes on the 30th September 2026. actionkidneycancer.org/.../ultra-ch...

actionkidneycancer.org

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ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · 24/09/2026

Our colleague @Pointonsupport has released the latest episode of the Living with and beyond Cancer podcast. This weeks guest is Jemma Falloon, who was diagnosed with #KidneyCancer & Thyroid Cancer on the same day. Listen to Jemma's inspirational story: actionkidneycancer.org/.../patient-...

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ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · 24/09/2026

We are delighted to be working with @ikccorg.bsky.social on the 5th IKCC Global Patient Survey. Please help us by taking the 15 minute survey, your experiences will make a difference to other kidney cancer patients. For info please follow the link: actionkidneycancer.org/get-involved...

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ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · 22/09/2026

There is still time to sign up for Stoptober, the NHS annual mass participation stop smoking campaign. No need to go it alone, with the free NHS tools, advice and support, quitting may be easier than you think. Take the first step by following the link below: actionkidneycancer.org/stoptober-is...

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Reposted by ACTION KIDNEY CANCER

Patient Information Forum @pifonline.bsky.social · 02/09/2026

@actionkidneycancer.bsky.social Well done on getting certified with the PIF TICK! The PIF TICK is the only independently assessed trust mark for health information. It means health information is: - Evidence-based - Up-to-date - Easy to use and understand. piftick.org.uk/health-topics/

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ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · 18/06/2026

A great way to stay connected and involved with us and hear about kidney cancer news is to subscribe to our quarterly newsletter. To do this, follow the link below: actionkidneycancer.org/kidney-cance... #kidneycancer #bypatientsforpatients #StrongerTogether #wkcd26

actionkidneycancer.org

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ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · 18/06/2026

We are delighted that @NHS Gloucestershire Urology raised awareness of #kidneycancer today as part of @ikccorg.bsky.social #wkcd26 They had a display in their outpatient department where they shared the emotional wellness questionnaire, along with advising how patients can access support.

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ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · 18/06/2026

We are delighted to share with you a new #kidneycancer patient video. Catherine shares with us her experience and what helps her look after her emotional health. It is appropriate to share her video today on #wkcd26 Follow the link below and scroll down: actionkidneycancer.org/.../patient-...

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ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · 18/06/2026

The 3 Counties Kidney Cancer Group are delighted to support @ikccorg.bsky.social #wkcd26 They offer friendship to families affected by #kidneycancer in Northwest Surrey, Northeast Hampshire and Southwest Berkshire. To find out more about their group: actionkidneycancer.org/help-support...

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ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · 18/06/2026

We have updated on our website our counselling help sheet, for anyone who feels they made need some support this help sheet provides information on where to access accurate, good help. actionkidneycancer.org/help-support... #kidneycancer #bypatientsforpatients #StrongerTogether #wkcd26

actionkidneycancer.org

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ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · 18/06/2026

The @ikccorg.bsky.social Patient Survey found that 84% of #kidneycancer patients in the UK faced challenges related to emotional wellbeing. 50% found online patient support the most helpful support resource. To join our patient support forum: actionkidneycancer.org/help-support... #wkcd26

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ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · 18/06/2026

Please join us today with @ikccorg.bsky.social and other #kidneycancer patients, carers and health care professionals where we will be sharing how to manage your emotional wellbeing. To register: actionkidneycancer.org/get-involved...

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ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · 18/06/2026

Today is @ikccorg.bsky.social #wkcd26 please register to join the Global Symposium today at 1pm BST. Visit our website to take an emotional health check and raise awareness of #kidneycancer by creating a twibbon to share on your social media. actionkidneycancer.org/.../world-ki... #wkcd26

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ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · 16/06/2026

We hope you will get involved with us and @ikccorg.bsky.social World Kidney Cancer Day onThursday the 18th June. Please visit our webpage where you will find out all the information. actionkidneycancer.org/.../world-ki... #kidneycancer #bypatientsforpatients #StrongerTogether #wkcd2026

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ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · 28/05/2026

Please join us at the @ikccorg.bsky.social World Kidney Cancer Symposium on the 18th June at 1.00pmm BST. It could not be easier to register, simply follow the link below: actionkidneycancer.org/get-involved... #kidneycancer #bypatientsforpatients #StrongerTogether #WKCD2026 #ShareYourWeather

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ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · 21/05/2026

We are really delighted that friends Karolina and Karmen will run the Edinburgh half marathon 2026 for us and to raise awareness of #kidneycancer on May 24th, they are joining us from sweden. Please read their story and support their efforts: www.gofundme.com/f/action-kid...

gofundme.com

Donate to Action Kidney Cancer, organized by Karmen Kodia

We will run the Edinburgh half marathon 2026 for the people fighting kidney cancer! Every mile we ru… Karmen Kodia needs your support for Action Kidney Cancer

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ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · 21/05/2026

We are delighted that Aoife Murray is running in The Edinburgh Marathon on Sunday the 24th May, the second one in a month. Please take the time to read why she set herself this challenge, you may wish to donate to her fundraising by following the link below: www.justgiving.com/fundraising/...

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ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · 21/05/2026

We are absolutely delighted to have four runners in this years Edinburgh Marathon.Cara Hope is doing the double, she ran in the London marathon earlier this month in memory of her dad David. To read more about Cara and her why: www.justgiving.com/team/cara-ho... #kidneycancer

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ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · 20/05/2026

Save the date of 18th June 2026 for @ikccorg.bsky.social World Kidney Cancer. This years theme is 'Kidney Cancer and Emotional Wellbeing' To find out how to be involved please follow the link: actionkidneycancer.org/get-involved... #WKCD #kidneycancer #bypatientsforpatients #StrongerTogether

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ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · 20/05/2026

Long-term results from two studies (FASTRACK and FASTRACK II) suggest that a treatment called SABR, a highly targeted form of radiotherapy, may be a good treatment option for some people with #kidneycancer who cannot have surgery safely. Read more information: actionkidneycancer.org/long-term-ou...

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ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · 11/05/2026

Steve Pointon has just added a new episode to his Living With and Beyond Cancer podcast, Steve talks with Richard Barker about his journey with #kidneycancer, including his experience as a caregiver, post-operative recovery, and life changes. to listen: podcasts.apple.com/.../episode-....

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ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · 11/05/2026

We really appreciate our fundraisers who are often patients or family members. This year we have 4 runners in the Edinburgh Marathon which is wonderful. To register for next year please follow the link: actionkidneycancer.org/.../edinburg... #kidneycancer #bypatientsforpatients #StrongerTogether

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ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · 06/05/2026

We hosted a #kidneycancer Patient Information day in Edinburgh with the support from the CNSs from the Edinburgh Cancer Centre on May 1st. The day was a great success with a full agenda of relevant topics and much more... To find out about these days: actionkidneycancer.org/.../patient-...

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ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · 05/05/2026

Thank you and well done to Claire Evans for completing the IOW Challenge on Sat the 2nd May for us, we think you are AMAZING! Thank you to all of your supporters who've been very generous with their donations and raised a fantastic £1928. Claire's challenge: www.justgiving.com/page/claire-...

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ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · 05/05/2026

A new rapid one-minute immunotherapy injection is now available on the NHS for patients with more than a dozen types of cancer, offering significant benefits to tens of thousands of individuals. Read more on our website here: actionkidneycancer.org/injectable-f...

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ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · 02/05/2026

On the 29th April the Tobacco and Vapes Bill became law. This is great news for future generations, who are set to benefit from reduced risks associated with smoking. The govt is also investing in support for the UK’s smokers who want to stop. Read more: actionkidneycancer.org/tobacco-and-...?

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ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · 02/05/2026

We are thinking of Claire today as she walks 106km around the Isle Of White to complete the last leg of her massive challenge to walk 550 miles. Claire is raising awareness and funds to help us continue to support families affected by #kidneycancer Read her story: www.justgiving.com/page/claire-...

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ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · 28/04/2026

Would you or a family member like a challenge to raise funds for us? The 2026 Ultra Challenge Series is offering a discount 50% OFF full charity sponsorship participant registration fees on their Sept events.The promotion runs from 25/4/26 – 31/5/26. For info: actionkidneycancer.org/.../ultra-ch...

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ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · 24/04/2026

Thank you Lynne Ewart for sharing your story with us, Lynne was diagnosed with #kidneycancer 20 years ago and her story will inspire many. Please take the time to read about her experience and the impact this diagnosis had on her life. Read Lynne's story: actionkidneycancer.org/stories/lynne/

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ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · 23/04/2026

We are asked where to find travel insurance at a reasonable cost following a diagnosis of #kidneycancer. Visit our webpage and scroll down for an informative help sheet listing insurance companies that may provide travel insurance for people with cancer. actionkidneycancer.org/help-support...

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ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · 16/04/2026

Yesterday our colleague represented us at the House of Lords for an evaluation of the Safe Sick pay campaign. There is still more to do and we will continue to offer our support to help cancer patients receive good sick pay and employment rights. Read more: actionkidneycancer.org/safe-sick-pa...

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ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · 10/04/2026

Spring is definitely in the air, with this in mind maybe you would like to help us by doing some fundraising, or maybe a family member would like to do this on your behalf. Please take a look at our fundraising section for inspiration: actionkidneycancer.org/get-involved... #kidneycancer

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ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · 30/03/2026

Thank you Benefact Group, and to our supporters, without your votes this would not have been possible. We have won £1000 this will help us continue to provide our Clinical trials database which allows patients and families to search for new and innovative treatments that may be available to them.

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ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · 16/03/2026

We sent a speaker to the EAU conference held in London. Our colleague Steve Pointon joined the panel who discussed the importance of shared decision making for patients. The panel included top professionals in #kidneycancer we contributed by ensuring they understood the patient perspective.

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ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · 25/02/2026

C is for Cancer podcasts We appreciate podcasts are a popular way people learn and find reliable information. To help we have identified and added some to the Help and support area of our website. actionkidneycancer.org/.../patient-... #kidneycancer #bypatientsforpatients #StrongerTogether

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ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · 24/02/2026

Final results from the COSMIC-313 study have been published. A triple combination as a first treatment for advanced #kidneycancer helped people by keeping their cancer under control for longer compared to just the two immunotherapy drugs. Find out more: actionkidneycancer.org/cabozantinib...

actionkidneycancer.org

Cabozantinib plus nivolumab and ipilimumab in advanced kidney cancer - Action Kidney Cancer

The COSMIC-313 study is the first to try using cabozantinib together with two immunotherapy drugs, nivolumab and ipilimumab to treat people with advanced kidney cancer that is considered intermediate-...

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ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · 16/02/2026

Our latest Ask the expert video explains how Immunotherapy works and explores why immunotherapy can be effective for some people with #kidneycancer, but cause severe side effects or fail to work in others. To watch the video: actionkidneycancer.org/help-support... #StrongerTogether

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ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · 13/02/2026

Last week the Government published the National Cancer Plan for England. We welcome the plan and are committed to working together to ensure it delivers for people affected by cancer. #kidneycancer #OneCancerVoice #bypatientsforpatients #StrongerTogether

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ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · 04/02/2026

The new National Cancer Plan for England,has a particular focus on rare and less common cancers like #kidneycancer We welcome the plan’s specific commitments to improve diagnosis, focus on research, and improve access to specialist care. To read more: actionkidneycancer.org/new-national...

actionkidneycancer.org

New National Cancer Plan for England good for rare and less common cancers - Action Kidney Cancer

The new National Cancer Plan for England, launched today, World Cancer Day, has a particular focus on rare and less common cancers.

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ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · 04/02/2026

World Cancer Day theme this year is United by Unique. We know this through the people we have helped, supported and made friends with along the way. Please follow the link to read their individual stories. actionkidneycancer.org/help-support... #UnitedByUnique #StrongerTogether

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ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · 29/01/2026

A is for .. Ask the expert, we have added a new video. In this video/slide presentation Lindsey Allan, highlights the importance of good nutrition, a healthy gut microbiome, and a balanced diet for people undergoing treatment for #kidneycancer To watch actionkidneycancer.org/help-support...

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ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · 15/01/2026

The National Cancer Patient Experience Survey is now open for people who have recently been treated for cancer in England. For more information and to complete the survey: actionkidneycancer.org/national-can...

actionkidneycancer.org

National Cancer Patient Experience Survey now open - Action Kidney Cancer

The National Cancer Patient Experience Survey is now open

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ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · 23/12/2025

Warm wishes for the festive season to all of the patients and families whose lives we have touched and those we have yet to meet, our fundraisers, supporters and everyone we have worked with throughout the year. If you need help/support: actionkidneycancer.org #kidneycancer

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ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · 17/12/2025

A new approach to diagnosing #kidneycancer, called the Cambridge kidney One-Stop Mass Investigation Clinic, was trialled at Addenbrooke’s Hospital in Cambridge halving the time from biopsy to treatment decision. Read more about the trial here: actionkidneycancer.org/cambridge-ki...

actionkidneycancer.org

Cambridge kidney One-Stop Mass Investigation Clinic (CkOSMIC) - Action Kidney Cancer

A new approach to diagnosing kidney cancer, called the Cambridge kidney One-Stop Mass Investigation Clinic (CkOSMIC), was trialled at Addenbrooke’s Hospital in Cambridge.

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ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · 17/12/2025

There is still time to order one of our timeless glass hearts, green ribbon pins or one of our charity wristbands, as a gesture to family and friends who have helped make a difference. To find out more: actionkidneycancer.org/.../greeting... #kidneycancer #bypatientsforpatients

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ACTION KIDNEY CANCER @actionkidneycancer.bsky.social · 12/12/2025

Smoking is one of the risk factors for the development of many cancers including #kidneycancer The NHS is launching a Quit smoking campaign this New Year, including an app with a free personal quit plan to help people make healthier choices. Read more: actionkidneycancer.org/quit-smoking...

actionkidneycancer.org

Quit smoking this New Year for a healthier you! - Action Kidney Cancer

Smoking is one of the risk factors for the development of kidney cancer, and many other cancers. To help people make healthier choices and to save cash this New Year, the NHS is launching a Quit Smoki...

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