iiinova — where your digital self keeps evolving

Reposted by Iain Liddle

Iain Liddle @iainliddle.com · 26/07/2026

Some end-of-week thoughts about finding peace and mental clarity wherever you can find them. newsletter.iainliddle.com/p/parkinsons... #parkinsons #yopd #cricket

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Iain Liddle @iainliddle.com · 26/07/2026

Some end-of-week thoughts about finding peace and mental clarity wherever you can find them. newsletter.iainliddle.com/p/parkinsons... #parkinsons #yopd #cricket

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Iain Liddle @iainliddle.com · 04/06/2026

Today marks two years of living with Parkinson's. I've written a few thoughts about it. Sending positive vibes to anyone who sees this and can relate. newsletter.iainliddle.com/p/parkinsons-two-years-and-looking #parkinsons #yopd

newsletter.iainliddle.com

Parkinson's, two years, and looking like you have Parkinson's

Happy anniversary!

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Reposted by Iain Liddle

The Grumbler @thegrumbler.bsky.social · 14/05/2026

🏏 New County Cricket newsletter. Pls share and enjoy 🟣 Championship previews 🟠 Celebrate County Cricket Day on Sat 🟢 Liam Dawson's shock retirement 🔴 The uncivil war at Lancs 🔵 First debut hat-trick in 120 years 🟡 Frank Zappa at the Oval

countycricket.substack.com

No 184, May 14: The Grumbler's County Cricket Newsletter

🟣 Championship previews 🟠 Celebrate County Cricket Day on Sat 🟢 Liam Dawson's shock retirement 🔴 The uncivil war at Lancs 🔵 First debut hat-trick in 120 years 🟡 Frank Zappa at the Oval

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Iain Liddle @iainliddle.com · 15/05/2026

@miketanier.bsky.social hi Mike, I was only ever a free subscriber on Substack. I just received your first email from Ghost. Just let you know in case I should not have and there is something wrong.

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Reposted by Iain Liddle

Iain Liddle @iainliddle.com · 09/12/2025

Hello. I’ve written something new. Where I try to articulate the thoughts I’ve been having about the things I’ve been trying to say. Read it here: open.substack.com/pub/iainlidd... #Parkinsons #YOPD

open.substack.com

Parkinson's and talking about issues with communication

What happens when the traditional means of interaction become more difficult

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Iain Liddle @iainliddle.com · 09/12/2025

That’s why they say Parkinson’s makes the world smaller, I suppose. It chips away at your resilience and your ambitions. Have a look at the YOPD tea break link in the blog post if you want to find a likeminded group who will listen and engage ✊ (And thanks for reading!)

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Iain Liddle @iainliddle.com · 09/12/2025

open.substack.com

Parkinson's and talking about issues with communication

What happens when the traditional means of interaction become more difficult

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Iain Liddle @iainliddle.com · 12/08/2025

Looking forward to joining the first of these #YOPD teabreaks (YOPTea?!) tomorrow morning with @parkinsons.org.uk. Details on the link below if you want to get involved or join the mailing list. Maybe see some of you there. localsupport.parkinsons.org.uk/activity/you...

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Iain Liddle @iainliddle.com · 29/06/2025

Half of life with #Parkinsons is undoing the full stops from accidentally double tapping the space bar.

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Iain Liddle @iainliddle.com · 10/06/2025

"I am blessed to still lead a wonderful active life filled with family and friends and work and travel and so, so much hope. "I have #Parkinsons. But, by God, it doesn’t have me." Recommended reading: www.latimes.com/sports/story...

latimes.com

Commentary: I'm fighting Parkinson’s one punch at a time

Times columnist Bill Plaschke writes about his experience taking a boxing class to help fight Parkinson's disease symptoms.

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Iain Liddle @iainliddle.com · 10/05/2025

I'm about nine months late with this, but I just did my first PD Warrior workout. Surprisingly difficult, but definitely targeted the right areas. Does anyone else use this program regularly? #YOPD #Parkinsons

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Iain Liddle @iainliddle.com · 11/04/2025

Was a great and uplifting occasion. Thanks to you and the team for all the legwork to make it happen.

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Iain Liddle @iainliddle.com · 11/04/2025

Hope you’re having a good day

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Reposted by Iain Liddle

Rory Cellan-Jones @rorycj.bsky.social · 11/04/2025

On my way to Westminster for our #WorldParkinsonsDay event the Big Sing and my local station has this Quote of the Day

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Iain Liddle @iainliddle.com · 11/04/2025

A pleasure to be there in person and thanks to everyone who helped to organise it. #WorldParkinsonsDay

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Reposted by Iain Liddle

Cure Parkinson's @cureparkinsons.org.uk · 11/04/2025

This #WorldParkinsonsDay, we’re proud to be supporting the Movers & Shakers in presenting their ‘Parky Charter’ at Downing Street and in lending our voices at their Big Sing event 🎶. Don’t forget to sign the petition if you haven’t already and help us get to 100,000 signatures! buff.ly/iaDooff

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Iain Liddle @iainliddle.com · 11/04/2025

Happy #WorldParkinsonsDay to those who participate in it. Hope everyone on here finds some joy or comfort in it at some point. It’s my first. Here’s what I’ll be doing and trying to figure out today. open.substack.com/pub/iainlidd... #Parkinsons #YOPD

open.substack.com

What is the point of World Parkinson's Day?

Tulip emojis at the ready 🌷🌷🌷

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Iain Liddle @iainliddle.com · 10/03/2025

...and thank you for sharing :)

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Reposted by Iain Liddle

Iain Liddle @iainliddle.com · 09/03/2025

New post: #Parkinsons, and a metaphor involving a bear made of ice. Reads, shares, feedback are welcomed as always. #YOPD newsletter.iainliddle.com/p/parkinsons...

newsletter.iainliddle.com

Parkinson's, and a metaphor involving a bear made of ice

Read on to find out about why it's fine to stop reading at all

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Iain Liddle @iainliddle.com · 09/03/2025

New post: #Parkinsons, and a metaphor involving a bear made of ice. Reads, shares, feedback are welcomed as always. #YOPD newsletter.iainliddle.com/p/parkinsons...

newsletter.iainliddle.com

Parkinson's, and a metaphor involving a bear made of ice

Read on to find out about why it's fine to stop reading at all

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Reposted by Iain Liddle

Michael Okun @michaelokun.bsky.social · 08/03/2025

Parkinson's, in my opinion, is the most complex disease in clinical medicine. Though it is nice to see these evidence-based reviews, we should keep our eye on the 'ball.' The ball is dynamic, and in Parkinson's will fluctuate over time, and especially with disease progression. Listen to the person.

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Iain Liddle @iainliddle.com · 07/03/2025

that's amazing re the fundraising! That's where I was going with the question - who is the day for, and why? Is it for PWPs to come together as a reciprocal support network? Is it to highlight progress made over the past year? Is it to raise awareness and empathy? Probably a bit of everything!

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Iain Liddle @iainliddle.com · 07/03/2025

that's kind of my question as well - what is the desired outcome? What are we ultimately trying to achieve, and how can one targeted day accelerate progress towards those aims? You're right though. Even if it's just one day in the year when everyone comes together, that's good enough!

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Iain Liddle @iainliddle.com · 07/03/2025

I'm inclined to agree, Ali. My gut feeling is that these designated days don't create a year-round legacy in the vast majority of cases, but it's interesting to hear different people's opinions on here.

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Iain Liddle @iainliddle.com · 07/03/2025

interesting perspective. Thanks, James. With regard to the social media posting, what do you want this to achieve? Fully agree on the importance of citizen campaigning and citizen journalism in this modern media age.

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Iain Liddle @iainliddle.com · 06/03/2025

World #Parkinsons Day - April 11 - is just over a month away. I’m interested in how people mark it, it at all. - What are your plans or ideas? - Is there something you do every year? - Does the day carry any meaning or significance to you? #YOPD

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Iain Liddle @iainliddle.com · 19/02/2025

Two new accounts to be aware of on here: - @cureparkinsons.org.uk - @rcnneuro.bsky.social I've added both to my #PDcommunity list, which you can pin for easy access --> bsky.app/profile/did:... #Parkinsons #YOPD

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Iain Liddle @iainliddle.com · 13/02/2025

Sending my first post from @surf.social! I’ve been excited to try this out and learn more about the potential of the fediverse. (I appreciate this reads like a hacked post / as though I’m typing this at gunpoint)

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Iain Liddle @iainliddle.com · 10/02/2025

Thanks for reading and replying, Sean. Appreciated. Stay well.

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Reposted by Iain Liddle

Iain Liddle @iainliddle.com · 09/02/2025

Sorry, it’s been a while… New post: #Parkinsons, the end of the honeymoon phase and storytelling. #YOPD newsletter.iainliddle.com/p/parkinsons...

newsletter.iainliddle.com

Parkinson's, the end of the honeymoon phase and storytelling

It has been a while, and here are some of the reasons why...

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Iain Liddle @iainliddle.com · 09/02/2025

Ah, thanks James! Much appreciated

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Iain Liddle @iainliddle.com · 08/02/2025

For the first time in too long, I'm sitting down to write again. It feels good.

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Iain Liddle @iainliddle.com · 26/01/2025

Yeah you’re right it’s the full combo of health required isn’t it. Exercise on its own isn’t enough.

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Iain Liddle @iainliddle.com · 26/01/2025

Interesting on electrolytes! Makes total sense.

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Iain Liddle @iainliddle.com · 26/01/2025

Interesting. Does that include strength / weights work?

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Iain Liddle @iainliddle.com · 26/01/2025

Hope so, too! I’ve noticed it the last two times I worked out, but both were also after a poor night of sleep and no breakfast. Probably need to do better at fuelling generally.

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Iain Liddle @iainliddle.com · 26/01/2025

This makes complete sense. Will look into that supplement. Thanks for replying!

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Iain Liddle @iainliddle.com · 26/01/2025

Question for fellow Parkys, I know movement is medicine and high-intensity exercise makes us all feel a bit better, but does anyone else find their symptoms (shaking/imbalance etc) are more pronounced while actually doing it? #YOPD #Parkinsons

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Iain Liddle @iainliddle.com · 23/01/2025

Being on Bluesky has (mostly) been a breath of fresh air these last few months. Good read here on why the success or otherwise of this platform is almost a test case for sustainable social networking in the future. www.404media.co/decentralize... by @jasonkoebler.bsky.social @404media.co

404media.co

Decentralized Social Media Is the Only Alternative to the Tech Oligarchy

The TikTok ban and Donald Trump's rise to power show how fragile our social media accounts are. We must normalize and invest in decentralized social media.

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Iain Liddle @iainliddle.com · 13/01/2025

@carolinerassell.bsky.social thanks for the follow, Caroline. Great to see you on here!

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