iiinova — where your digital self keeps evolving

Holly Schofield @hollscho.bsky.social · 30/04/2026

On Monday, the fantastic Jo Welsman and I delivered a grant writing seminar for NIHR Research Support Service (RSS) on Working with People and Communities in the development of research funding applications. You can watch the recording here: www.youtube.com/watch?v=cgsj...

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NIHR Research Support Service (RSS) @nihr-rss.bsky.social · 15/12/2025

✨️ Join us as we countdown 10 days to Christmas, sharing gifts of research support & top tips from NIHR RSS experts 🎁 Day 1️⃣ Find out ‘What makes a great PPI Lead’ with our online booklet, co-developed with our public members: bit.ly/ppilead #10days #researchsupport #PPI #publicinvolvement

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Holly Schofield @hollscho.bsky.social · 04/04/2025

I'll be speaking at this event on what makes a good Chief Investigator, focusing on the role of meaningful PPI and embedding EDI from the start. Looking forward to it! 🌟

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Leeds CTRU @leedsctru.bsky.social · 25/03/2025

PhD Student, Ella Howes, has just released the latest episode of the Trials Methodology podcast with our very own @willjcragg.bsky.social , covering all things to do with the 'how' of trials methodology💡 Give it a listen here (or on Apple podcasts if you prefer): open.spotify.com/episode/04JZ...

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Louca-Mai Brady @louca-mai.bsky.social · 11/03/2025

Following on from our very popular December webinar on 'the invisible labour of #PublicInvolvement' registrations are now open for the second webinar in the series, on Emotions in #PPI, led by colleagues from @penarc.bsky.social. Come join us! @arceastofengland.bsky.social @elspethma.bsky.social

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Holly Schofield @hollscho.bsky.social · 12/03/2025

I had an enjoyable time presenting at the RadResearch Conference in Leeds today, hosted by RadResearch and the NIHR-supported Incubator for Diagnostic and Therapeutic Radiographers. I really hope my presentation inspired attendees to embed #PPIE #PublicInvolvement into their research plans 🌟

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Chris Graham @chrisgrahamuk.bsky.social · 21/11/2024

There's already one at bsky.app/profile/did:... - @brynphd.com kindly directed me to this yesterday

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Holly Schofield @hollscho.bsky.social · 21/11/2024

I tried to create a #PPI / #PPIE feed, but found it a bit confusing. If anyone else want to have a go - please do. Otherwise I'll try again another day 😅

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Amy M. Russell @amymrussell.bsky.social · 19/11/2024

Only today in an ARC sesssion on #evaluatingPPI we were talking about invisible work and emotional labour in #PPI and #co-production. Great to see @louca-mai.bsky.social will be speaking about this next month. It’s labour that is not recognised, costed or valued - yet it’s essential

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Amy M. Russell @amymrussell.bsky.social · 21/11/2024

So pleased to see this adapted version of the #EQ5D for people with a #LearningDisability we began this work in 2014 & @johnodwyer.bsky.social made it happen. If research is going to be inclusive we need to think about #Inclusion at every step, design, process, recruitment, measures rdcu.be/d0YUL

rdcu.be

Adapting the EQ-5D-3L for adults with mild to moderate learning disabilities | Health and Quality of Life Outcomes

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Prof. Pam Birtill @diervilla.bsky.social · 21/11/2024

I've started a second University of Leeds starterpack! go.bsky.app/HUKJ7bK

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Open Research Leeds @openresleeds.bsky.social · 19/11/2024

go.bsky.app/HHa3CL6

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Holly Schofield @hollscho.bsky.social · 20/11/2024

Just a few autumn pics to brighten up your feed 🍂

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Mick Schofield @confluxcoldwell.bsky.social · 15/11/2024

First post on Bluesky. I’ve made a film. It’s going to be screened @leedsunimedia.bsky.social in December. #aicinema

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Sarah O'Brien @sarahobrien.bsky.social · 14/11/2024

Over 200k people waiting (on NHS waiting lists) for an autism, surely this is the point at which something has to change. The current models have never been sustainable and are only becoming less so.

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Holly Schofield @hollscho.bsky.social · 06/11/2024

Great to get so many new follows from health researchers here on Bluesky! But I hope you’ve actually left X—because if you still have an account, you're supporting Elon Musk, who continues to back Trump. We all have a moral duty to choose platforms that reflect our values 🌍💙 #LeaveX #HealthResearch

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Louca-Mai Brady @louca-mai.bsky.social · 01/11/2024

New blogpost on the 'invisible labour' of #PublicInvolvement for @nihrarcs.bsky.social based on a recent paper by me and Stan Papoulias: arc-sl.nihr.ac.uk/news-insight...

Screenshot of title and outline of blog post: Text reads: "‘Conjuring PPI’ - the unseen labour of patient and public involvement
In this blog Dr Stan Papoulias and Dr Louca-Mai Brady discuss the invisible labour of patient and public involvement (PPI) and how institutional systems can exclude public contributors".

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UCL Innovative Clinical Trials Unit @innovative-ctu.bsky.social · 24/10/2024

Do you know what happens at the end of a clinical trial? Once we've collected all the info we need, we analyse this data. This allows us to find out: 📈 How effective a treatment is 🚨 How safe it is 🤢 If there are side effects ⚖️ Whether it is better than the current treatment or placebo

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Holly Schofield @hollscho.bsky.social · 08/10/2024

Last Thursday wrapped up the ICTMC conference in Edinburgh. I had the opportunity to present two posters on PPIE, which sparked some great conversations and meaningful discussions. #ICTMC2024 #ICTMC #Edinburgh #PPIE #ClinicalTrials

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Beatriz Goulão @beatrizgoulao.bsky.social · 02/10/2024

Jama summit : is the clinical trial enterprise broken? #ictmc2024 lots of food for thought. We need to conduct better and more impactful research. Efficient designs, core outcome sets, patient and staff involvement, implementation science - all discussed as solutions.

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Thinking Person's Guide to Autism @thinkingautism.com · 23/09/2024

“The [autism is a] superpower myth is damaging because it overlooks the humanity of neurodivergent individuals. We are not mutant X-Men somehow endowed with special powers. Like everyone, we deserve empathy, humanity and understanding." -Rebecca Brenner Graham: www.salon.com/2024/09/22/a...

salon.com

Autistic people are tired of fetishization

Stereotypes about autism, whether positive or negative, take their toll on people

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Andi Skilton @andiskilton.bsky.social · 22/09/2024

Important blog post from @nihr.bsky.social on the continuing underreporting of #PPI in #research publications. Thanks to @bmj.com who asked us to expand on the PPI in our last publication! We must report the learnings when PPI works and when it doesn't! www.linkedin.com/pulse/report...

linkedin.com

Reporting PPI in research publications is the exception and not the rule

Kevin J Munro is Programme Director of NIHR's Research for Patient Benefit Programme (RfPB), Dr Jennie Hejdenberg is Assistant Director of RfPB. Dominique Capostagno is a Senior Programme Analyst at N...

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