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Helen Meehan BEM

@helencmeehan.bsky.social
189 followers 231 following 1 posts

#hellomynameis Helen - Retired Lead Nurse Palliative & End of Life Care in the south west and now honoured to be a compassionate companion volunteer 🦋

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Reposted by Helen Meehan BEM
Prof Katherine Sleeman @katherinesleeman.bsky.social · 29/11/2025
The Health and Social Care Committee’s evaluation of palliative care in England was published yesterday. It’s hugely important, not least in the context of the assisted dying bill. It’s had almost no media coverage. committees.parliament.uk/publications...
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Dr Rachel Clarke @drrachelclarke.com · 28/11/2025
🧵/ Today a damning parliamentary report on the state of palliative care services in England was published. Services are patchy, underfunded & “ill-equipped” to address end-of-life needs. Bereavement support is “frequently inaccessible. The palliative care workforce is in a “critical” situation”.
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Prof Katherine Sleeman @katherinesleeman.bsky.social · 31/07/2025
Our report for the UK Covid Inquiry on palliative and end of life care during the pandemic has been published. We include 15 recommendations to strengthen palliative and end of life care so it is fit for the future, including future pandemics. covid19.public-inquiry.uk/documents/in...
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Dr Kathryn Mannix @drkathrynmannix.bsky.social · 31/07/2025
Telling our birth & death stories matters. It helps us understand what happened. It enables others to know more. It normalises these important life events. It moves emotionally profound experiences to the safe storage of autobiographical memory. We can help by listening. @virtualhospice.bsky.social
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The Guardian @theguardian.com · 20/07/2025
Ministers urged to guarantee NHS jobs for new midwives amid understaffing
theguardian.com
Ministers urged to guarantee NHS jobs for new midwives amid understaffing
Student midwives working thousands of hours unpaid in NHS fear lack of vacancies despite staff shortages A student midwife who fears she will be unable to get a job after completing 2,300 hours of unpaid placement work in the NHS is calling for guaranteed posts for newly qualified midwives who otherwise will be forced to abandon the profession before their careers begin. Aimee Peach, 43, is due to complete her training next summer, but says the promise of a job at the end of her three-year degree course has “collapsed”, despite severe shortages of midwives across the country. Continue reading...
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David Oliver @mancunianmedic.bsky.social · 30/06/2025
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Donna Wakefield @donnawakefield.bsky.social · 30/05/2025
📣 New #OpenAccess paper: “Bereavement Training in the Workplace, Can it Help Bridge the Grief Support Gap? A Qualitative Evaluation of Employers’ and Employees’ Views” journals.sagepub.com/doi/10.1177/... Supported by @arcnenc.bsky.social #Bereavement #Qualitative #Research #PalliativeCare
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Donna Wakefield @donnawakefield.bsky.social · 31/05/2025
Great thought provoking Q&A session …. highlighting that we can write reports to policy makers telling them again & again that #Inequities persist- but we need to be proposing potential *solutions* + if policies are implemented we can’t assume that they will work, they need evaluating #EAPC2025
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Donna Wakefield @donnawakefield.bsky.social · 31/05/2025
Followed by Dr Sarah Mitchell describing the complex policy landscape and opportunities for researchers to influence policy making at different healthcare system levels. Very relevant to my work on tackling #Inequalities in #PalliativeCare #EAPC2025 Day 3
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Donna Wakefield @donnawakefield.bsky.social · 31/05/2025
“Policy makers are not going to be knocking at our door looking for evidence” @katherinesleeman.bsky.social on bridging the evidence-policy gap and the 3Ps: ⭐️ Perspective ⭐️ People ⭐️ Perseverance With examples of evidence-informed policy making An area I need to learn more about…. #EAPC2025 Day 3
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Prof Katherine Sleeman @katherinesleeman.bsky.social · 20/05/2025
Very happy that our final paper from the OPTIMAL-Care study is out in BMC Medicine! This multi-method study, brilliantly led by Matthew Allsop, examines the optimal development, implementation & evaluation of digital advance care plans (EPaCCS). bmcmedicine.biomedcentral.com/articles/10....
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Prof Katherine Sleeman @katherinesleeman.bsky.social · 19/05/2025
One certainty on assisted dying: this is an awful way to introduce it www.thetimes.com/article/2693...
thetimes.com
One certainty on assisted dying: this is an awful way to introduce it
A private member’s bill is not the right mechanism for such a difficult issue and MPs risk creating a process that does as much to cause pain as to prevent it
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Prof Katherine Sleeman @katherinesleeman.bsky.social · 19/05/2025
Globally, only 14% of people who need palliative care actually receive it. A decade after the WHA Resolution, what progress had been made? New paper in BMJ Global Health: Confronting global inequities in palliative care gh.bmj.com/content/10/5...
gh.bmj.com
Confronting global inequities in palliative care
The number of people dying with preventable, serious health-related suffering is rapidly increasing, and international calls for the expansion of palliative care services have been made, such as the W...
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Dr Ben Bowers @drbenbowers.bsky.social · 18/05/2025
Community nurses based in the UK? Please help us evidence how much of your work involves end of life care. Take part in our 10-min max survey study here: cambridge.eu.qualtrics.com/jfe/form/SV_... @theqicn.bsky.social @crystaloldman.bsky.social @johnunsworth10.bsky.social @rosyroo.bsky.social
cambridge.eu.qualtrics.com
NOTICE Survey
NOTICE Survey
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The BMJ @bmj.com · 16/05/2025
Public misunderstanding, myths, and misinformation can hamper good end-of-life care. We need a better conversation to help support better deaths and overcome barriers, whether or not there’s a change in the law on assisted dying, @mancunianmedic.bsky.social www.bmj.com/content/389/...
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Gemma Allen (she/her) @gemmaallen.bsky.social · 09/05/2025
A fabulous Friday! Thank you @drkathrynmannix.bsky.social for insightful, thoughtful & honest conversations, plus adding your wise words to our hospice wisdom tree 🌲 Also a big thank you to @jedjerwood.bsky.social & @sharonhudson.bsky.social #palliativecare #hospice #DyingMattersAwarenessWeek
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Charlotte Fry @charlottefry.bsky.social · 06/05/2025
Read Sean’s blog here: qicn.org.uk/51302-2
qicn.org.uk
My transformative six week placement in social care - The Queen's Institute of Community Nursing
My six-week placement in a social care setting has offered me valuable insights into providing care from a social care perspective
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Dr Ben Bowers @drbenbowers.bsky.social · 04/05/2025
Community nurses - how much of your work involves end of life care? Does any of this work have to go deferred? Please help with our short anonymous survey & share widely with colleagues 🙂 Take part here: cambridge.eu.qualtrics.com/jfe/form/SV_... @crystaloldman.bsky.social @theqicn.bsky.social
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Centre for Academic Primary Care (CAPC), Bristol @capcbristol.bsky.social · 24/04/2025
The Grief Centre will deliver its first in-person public engagement event during Dying Matters Awareness Week (5-11 May): Dying for Beginners: An interview with @drkathrynmannix.bsky.social on Friday 9 May 2025 from 12-1pm at 11 Woodland Road, Bristol BS8 1TB. Register to attend: bit.ly/4jFZi7i
bit.ly
Dying for Beginners: An Interview with Kathryn Mannix - Good Grief
IN PERSON at 11 Woodland Road, Bristol, BS8 1TB Dying is a bodily process, like pregnancy and birth. Yet, we often find it hard to discuss. In this special lunchtime session at the University of Brist...
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⭐️Sonia Sparkles ⭐️ @soniasparkles.bsky.social · 10/04/2025
The building blocks to quality improvement that form the roots of most projects. While the tools and techniques on top of them may vary depending on the context, these foundational elements are essential to successful and sustainable improvement:
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Marie Curie UK @mariecurieuk.bsky.social · 01/04/2025
#AprilFools Of course our daffodil isn’t going anywhere, but palliative and end of life care is a prickly subject right now. Services are overstretched, underfunded and overlooked. Visit: campaigns.mariecurie.org.uk/page/163063/... to see how you can support.
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Sharon Hudson she/her/they @sharonhudson.bsky.social · 20/03/2025
Key actions for public partnership ❤️Step back from the hamster wheel, connect and see hope ❤️Don't forget you a part of your own community- share your gifts ❤️Put a pin in the map for your service and search your community around them- engage, hear get involved ❤️Be PROUDLY PALLIATIVE #PCC2025
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Miriam Ní Challaráin @miriamcolleran2.bsky.social · 20/03/2025
‘A form doesn’t help you think’ @tuffrey-wijne.com & Amanda #pcc2025 Let’s talk about funerals www.victoriaandstuart.com @roisincomms.bsky.social
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Sharon Hudson she/her/they @sharonhudson.bsky.social · 20/03/2025
Dr Kerrie Noonan @keznoo.bsky.social Urges us not to event plan and invite people in but instead actively show up within existing community, see and value the strengths, be curious and I would add be humble #PCC2025 #DeathLiteracy
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Sharon Hudson she/her/they @sharonhudson.bsky.social · 20/03/2025
The awesome @drjrubenstein.bsky.social discusses the need to improve health care workers understanding of Palliative Care - without that public involvement hits a dead end His animations give voice to the behaviours and fear and around Palliative Care #PCC2025 youtu.be/BbNi_-wYXJE?...
youtu.be
Palliative Care PSA - We’re the fire department, not the fire.
YouTube video by Jared Rubenstein
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Sharon Hudson she/her/they @sharonhudson.bsky.social · 20/03/2025
Dr Kirsty Boyd challenges us in the assumption that care at home is preferred or right and we should look at the reality of this in our planning and decision making #PCC2025
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Sharon Hudson she/her/they @sharonhudson.bsky.social · 20/03/2025
Dr Kirsty Boyd talks to us about 'Care for People who are Dying' instead of End of Life Care for people with multiple needs. Noting the increase in cause of death not just in dementia but renal and heart disease #PCC2025
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Dr Ben Bowers @drbenbowers.bsky.social · 01/03/2025
I’m presenting at the Dorothy House Palliative Care Research Conference on 5 June, discussing the timely, effective and safe use of injectable end-of-life medications. Bringing together our brand new research for the first time! Tickets can be purchased via: www.dorothyhouse.org.uk/palliative-c...
dorothyhouse.org.uk
Palliative Care Research Conference
Our Palliative Care Research Conference aims to support researchers and practitioners to establish research opportunities in their hospice.
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Dr Rachel Clarke @drrachelclarke.com · 01/03/2025
If you are reeling from Trump & Vance's disgusting performance towards Zelensky last night, might you consider donating to www.hospiceukraine.com, the tiny charity I set up with Henry Marsh to support local Ukrainian palliative care teams? We delivered this Land Rover to a rural hospice in Dec...
Drs Rachel Clarke & Olena Parichuk standing in front of the Hospice Ukraine Land Rover
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MarieCurieEOLC @mariecurieeolc.bsky.social · 13/02/2025
We’re excited to announce the launch of new research priorities for palliative and end of life care! These have been created in a project with the JLA and other partner organisations, including co-funders the ESRC and @mndassoc.bsky.social, and guided by people affected by a life limiting illness.
The top 10 new priorities for palliative and end of life care research are:

How do people with dementia experience end of life? How can palliative and end of life care better meet their needs and those of their carers, friends and families?
How can NHS, social services and charities work more collaboratively to provide joined-up care that better meets the needs of people with a serious life-limiting illness and their carers, friends and families?
What kinds of palliative and end of life care and support need to be in place to enable people to die well at home? What skills do staff need? What helps or hinders the delivery of care at home?
What are the best ways to provide personalised palliative and end of life care that meets all the physical, mental, practical, social and spiritual needs of a person with a serious life-limiting illness?
How can palliative and end of life care better meet the complex needs of people with multiple health conditions?
How can communication and care co-ordination be improved across the teams of health and social care professionals caring for people with any serious life-limiting illness?
What skills, training and information do carers, friends and family members need to be able to care for someone who is dying at home (e.g. giving medicines safely by injection, managing incontinence, moving people)? What is the impact (pros and cons) of upskilling the people giving care?
How can the quality of palliative and end of life care in hospital be improved? What helps or hinders improvement?
What are the best ways to provide palliative and end of life care, support and advice at all hours (24/7 or out of hours)?
How can palliative and end of life care better meet the needs of people who live alone, or are socially isolated?
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Primary Care Unit, University of Cambridge @pcucambridge.bsky.social · 12/02/2025
The Marie Curie Research into Practice Conference 2025 is taking place this week. 🗓️ Feb 11-14, 2025 (Free & Online) ➡️ Register now (it's not too late to join for the remaining days of the conference): mariecurie.ivent-pro.com/events/resea...
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Nursing Times @nursingtimes.bsky.social · 12/02/2025
Protect ‘nurse’ bill gets support in parliament A bill that would prevent misuse of the job title ‘nurse’ has passed its first reading in parliament. #nursing #nurse #nurses #protectedtitle #legislation #parliament #health #healthcare #government #policy www.nursingtimes.net/policies-and...
nursingtimes.net
Protect ‘nurse’ bill gets support in parliament
A bill that would prevent misuse of the job title ‘nurse’ has passed its first reading in parlia...
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OxCERPC - Sobell House @oxcerpc.bsky.social · 07/02/2025
We have had excellent feedback from delegates at our Dorothy House Masterclass in January Delegates found this course: "stimulating", "well-taught", "informative", "inspiring", "supportive", "well-taught", "relevant", "evidence-based", and "useful in everyday practice" @strathcarron.bsky.social
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OxCERPC - Sobell House @oxcerpc.bsky.social · 07/02/2025
Join our Masterclass in Palliative Care, featuring topics from Oxford’s Advanced Course 2024, with new updates and case-based learning. Held at Strathcarron Hospice in Fankerton, Scotland - near Falkirk. 5th March, £250, 5CPD. Book on our website: sobelleducation.org.uk/product/mast...
09:00 Coffee and Registration
09:15 Introduction
09:25 End of life care for patients with Parkinson's Disease
10:10 Hydration at the end of life
10:40 Coffee Break
11:10 Benzodiazepines: An update
11:45 Thinking ahead: making Future Care Planning accessible
12:45 Lunch
13:45 Breathlessness
14:30 Break
14:45 The care of children when their important adult is dying
16:15 Final remarks
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Hospice UK @hospiceuk.bsky.social · 07/02/2025
A new report from @mariecurieuk.bsky.social shows the UK spends £11.7bn on end of life care, largely on hospital care, even though most people would rather die at home or in a hospice. Read more ➡️ www.mariecurie.org.uk/document/pub...
Hospices are experts in providing holistic, compassionate care, yet the report shows only 4% of health expenditure for people in the last year of life is spent on hospice care. Palliative and end of life care funding, including for hospices, must be overhauled in the 10-year-plan. We only get one chance to get it right at the end of someone's life - quote by Katie Reade, Head of Policy and Public Affairs at Hospice UK.
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Hospice UK @hospiceuk.bsky.social · 07/02/2025
"This report shows that the way we look at care at the end of someone’s life is not working, for dying people, their families or the public purse." - Katie Reade, Head of Policy and Public Affairs, Hospice UK. Read more on The Guardian ⬇️ www.theguardian.com/society/2025...
theguardian.com
End of life care ‘not working’ for dying people or their families, say campaigners
Report shows UK spends £11.7bn on hospital care for terminal patients who would rather die at home or in a hospice
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Hospice UK @hospiceuk.bsky.social · 07/02/2025
🧡 Keech Hospice Care's new programme advocates for greater outreach of end-of-life and palliative care in homeless communities - part of the Masonic Charitable Foundation's partnership with us. Read how Mark is changing lives for those experiencing homelessness: www.hospiceuk.org/latest-from-...
hospiceuk.org
“1 in 64”: the challenge facing one UK hospice
Find out how Keech Hospice Care is helping to bring hospice services to people experiencing homelessness with a grant from the Masonic Charitable Foundation.
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Prof Katherine Sleeman @katherinesleeman.bsky.social · 07/02/2025
Our new Editorial in BMJ Supportive and Palliative Care on inequity and inequality in palliative and end of life care, and smarter use of routine data to measure and monitor inequalities, and to inform decision-making. 👇👇👇
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MarieCurieEOLC @mariecurieeolc.bsky.social · 07/02/2025
🚨Our Research into Practice Conference platform is now live🚨 Log in or register now to explore the posters, booths, full programme and to edit your profile. Join us for the first session on Tuesday 11, 10am, which explores public spend and system pressures for palliative and end of life care.
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Prof Mark Taubert @profmarktaubert.bsky.social · 02/02/2025
Assisted Dying: am reading a lot of “I am for it in principle, but not this Bill” over last few days. My Radio 4 Today head-to-head and my concerns about some of the safety aspects on patients self-administering lethal drugs. From 52:33 onwards: www.bbc.co.uk/sounds/play/...
bbc.co.uk
Today - 01/02/2025 - BBC Sounds
Including Sports Desk, Weather and Thought for the Day.
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Dr Rachel Clarke @drrachelclarke.com · 02/02/2025
Assisted Dying: If the aim of the Committee stage is - as has been repeatedly claimed - to ensure that the UK ends up with the safest possible legislation, then how is the bias inherent in this witness list possibly conducive to that end?
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Dr Natasha Wiggins @drnwiggins.bsky.social · 01/02/2025
Brilliant piece reflecting on the role of palliative care and societal coersion by Janice Turner in the Times today #assisteddying
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Alison Leary @alisonleary1.bsky.social · 31/01/2025
➡️Want to avoid being in hospital? ➡️What to live well with multiple long term conditions? ➡️Want to recover from being acutely ill in hospital in your own home? ➡️Want to have good end of life care at home? ✅️Invest in District Nursing.
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Palliative Care Congress @pccongress.bsky.social · 31/01/2025
LAST CHANCE to benefit from the Early Bird Discount Early Bird Closing (TODAY) 31 January at 5pm Get your tickets pccongress.org.uk/registration/ Full Programme available via the website Day 1 - pccongress.org.uk/day-1-progra... Day 2 - pccongress.org.uk/day-2-progra... #PalliativeCare #Event
media.tenor.com
a cartoon of homer simpson talking to marge simpson with the words hurry up below him
ALT: a cartoon of homer simpson talking to marge simpson with the words hurry up below him
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Dr Liz O’Riordan @lizoriordan.bsky.social · 30/01/2025
My new book ‘The Cancer Roadmap’ was launched today It’s for anyone affected by cancer It tells you what is it, what causes it, how it’s treated, who to trust, how to understand risk + spot red flags on social media when it comes to alternative cures. Get yours here lnk.to/TheCancerRoa...
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OxCERPC - Sobell House @oxcerpc.bsky.social · 30/01/2025
Just getting ready for our 2 day course 'General Medicine for Palliative Care Physicians'. If you've missed the date, you can still purchase the recordings to watch over the next 3 months..https://www.sobelleducation.org.uk/product/gen-med-2025/.
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Dementia Community @dementiacommunity.bsky.social · 29/01/2025
Thank you so much to Vic Lyons of Dementia UK for her fascinating webinar yesterday - Ask an Admiral Nurse. We learnt so much! If you weren't able to attend, it's now on our YouTube channel! Here's the link: buff.ly/4jM46ZQ @dementiauk.bsky.social
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Trisha Elliott @trishaelliott.bsky.social · 04/01/2025
An important fact: “Between 75% and 90% of home based care at the end of life is provided by unpaid carers, often family members.” And when that’s 24 hours around the clock, that’s really hard, especially when it’s just one or two people trying to do it. #EOLC #EndOfLifeCare #PalliativeCare
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Dr Sarah Russell RN @learnpeolc.bsky.social · 22/01/2025
25th March 2025 @rowcrofthospice.bsky.social Dementia and Palliative Care Conference rowcrofthospice.org.uk/dementiaconf...
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Lucy Selman @lucyselman.bsky.social · 17/01/2025
Our blog on findings from the OSCAR study is now online @ukkidney.org education.ukkidney.org/blog/oscar Full paper: bmcnephrol.biomedcentral.com/articles/10.... @peolcsw.bsky.social @capcbristol.bsky.social @flissmurtagh.bsky.social @wolfsonpallcare.bsky.social @cacenotes.bsky.social
Blog post : How do clinicians communicate about treatment options to older patients with advanced kidney disease – and what difference does it make?
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