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Helen Goss

@helen-goss.bsky.social
231 followers 179 following 26 posts

❤️‍🔥Parent/carer #LongCovidKids 😻x 6 🪐Space nerd 🌪️Chronically persistent force of nature

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Reposted by Helen Goss
Long Covid Kids @longcovidkids.bsky.social · 02/03/2026
#Scotland Link to contact MSP's at Holyrood here: longcovidkids.eaction.org.uk/awarenessday... @helen-goss.bsky.social @longcovidscot.bsky.social @longcovidsupport.bsky.social @longcovidphysio.bsky.social @longcovidsos.bsky.social #LongCovidAwareness
longcovidkids.eaction.org.uk
Email your MSP about Long Covid Awareness Day in Scotland
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Sammie McFarland @sammiemc.bsky.social · 05/10/2025
Anna's powerful #artwork made us all weep when we first saw it. I support @helen-goss.bsky.social request to the Scottish Health Sec. Children too sick to attend #education are loosing their childhood behind closed doors, the devastating situation must be seen - CYP need support now. #Childhood
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Reposted by Helen Goss
MJ Nabuurs @mjnabuurs.bsky.social · 21/06/2025
Thx @helen-goss.bsky.social for sharing this very vulnerable & utterly exhausting reality of being a caregiver while battling your own health issues & the incompetence of the healthcare system (and others): helenmmgoss.substack.com/p/long-covid... @coopspeak.bsky.social @theresisters.bsky.social
helenmmgoss.substack.com
Long Covid Carer Burnout, But Make It Bureaucratic!
If I had a pound for every time a system failed us, I could fund all long covid research and cure it immediately.
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Helen Goss @helen-goss.bsky.social · 06/01/2025
@georgemonbiot.bsky.social definitely worth a read. Quite the scandal North of the wall 🏴󠁧󠁢󠁳󠁣󠁴󠁿🙏🏼
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Conor Browne @brownecfm.bsky.social · 28/11/2024
Outstanding piece on Long Covid in the UK. Since we know vaccination reduces the risk of developing Long Covid, the UK government really should be massively widening access to vaccines. www.telegraph.co.uk/global-healt...
telegraph.co.uk
Four years on from the pandemic and long Covid’s inequalities have only worsened
Fatigue, cognitive difficulties, and breathlessness are still a daily reality for many. It is particularly acute in poorer communities
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Helen Goss @helen-goss.bsky.social · 27/11/2024
Sigh. www.reddit.com/r/UKParentin... #covid19 #longcovid #longcovidkids #winter #illness #cleantheair
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Reposted by Helen Goss
Danilo Buonsenso @buonsenso.bsky.social · 21/11/2024
this was the beginning of my slides on how and why we provide off label therapies to the most severe patients with #longcovid before providing my filled one, would love to know - what you do - what you would like to do - as patients, what would you like to receive
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Long Covid Kids @longcovidkids.bsky.social · 20/11/2024
"Prof @putrinolab.bsky.social , Mount Sinai, believes that there are at least 10 different plausible explanations for why people develop #PEM, ranging from sleep disruption to hormonal impairments & inflammation of the lining of blood vessels" www.bbc.com/future/artic... #LongCovid #LongCovidKids
bbc.com
Long Fatigue: The exhaustion that lingers after an infection
Before long Covid there was post-viral fatigue – a mysterious set of illnesses caused by other infections. Now scientists are starting to unravel its secrets.
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Reposted by Helen Goss
Putrino Lab @putrinolab.bsky.social · 20/11/2024
Feels like a good time for a thread about all things exercise for people living with infection (and exposure)-associated complex chronic illnesses (IACCs) such as #MECFS, #LongCOVID and chronic #Lyme /tick- and vector-borne illness. Let’s start with a trip down memory lane. 1/
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Ceri Turner 💚 😷 @ceri-turns.bsky.social · 21/11/2024
A really excellent article on post viral fatigue, though I see 2 errors: 1. There is no uncertainty that SARS-CoV-2 causes mircoclots. 2. "pacing" is defined as = graded exercise therapy. Its not, & confusing them is harmful. #ME #CFS #MECFS #IACC #LongCovid #LongLyme www.bbc.com/future/artic...
bbc.com
Long Fatigue: The exhaustion that lingers after an infection
Before long Covid there was post-viral fatigue – a mysterious set of illnesses caused by other infections. Now scientists are starting to unravel its secrets.
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Helen Goss @helen-goss.bsky.social · 21/11/2024
Best thing about Scottish winter is seeing the gritter map back in action! traffic.gov.scot/gritter-tracker No one can be annoyed at being stuck behind "You're a Blizzard, Harry" or "Spready Mercury" 😂 Gritter names: google.com/amp/s/www.huff… #scotland #winter #snow #uksnow
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Reposted by Helen Goss
Binita Kane @binitakane.bsky.social · 15/11/2024
The EM images of microclots from @resiapretorius.bsky.social group are something else.
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Binita Kane @binitakane.bsky.social · 16/11/2024
Working in the Long Covid/ME space in the UK is a lonely place. As I reflect in taxi home on the last 48 hrs, I don’t regret a single moment. I genuinely believe that the group of people I was with yesterday can change the world for kids with these illnesses. There’s power in global collaboration.
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Helen Goss @helen-goss.bsky.social · 17/11/2024
Light dusting of snow. First of the season 🌨️❄️☃️ #Aberdeenshire #snow #winter
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Helen Goss @helen-goss.bsky.social · 17/11/2024
This was not on my Christmas list. #H5N1
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Reposted by Helen Goss
Mark Faghy @profmarkfaghy.bsky.social · 15/11/2024
First Bluesky Post!! 🤩 Couldn’t resist a photo with the #longcovid research hero’s at @buonsenso.bsky.social ‘s international meeting on Long COVID in Rome 🇮🇹 Excited to engage in discussions on #research and #collaboration
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Helen Goss @helen-goss.bsky.social · 15/11/2024
So proud of @sammiemc.bsky.social flying the LCK flag 🥹 Well done and thank you for the monumental effort 👏🏼🎉👏🏼 #LongCovidKids #LongCovid
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Helen Goss @helen-goss.bsky.social · 15/11/2024
A catch up thread on the UK Covid Inquiry as relates to #LongCovid & #LongCovidKids in Scotland. Yesterday, Caroline Lamb, NHS Scotland and Director General of Health and Social Care gave testimony. Thread... 1. Scottish Government funding £2.5m for Long Covid (no paed research)
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Living Safely With Covid @covidsafenz.bsky.social · 14/11/2024
“The evidence suggests the more times you get Covid, the higher the chance there is of you getting long Covid.” @drclairetaylor.bsky.social The number of adults in the UK with #longCovid was estimated to be around 2 million in 2022. But in 2024, there was a rise of 300,000, with long Covid.
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Michiel @murtoz.bsky.social · 14/11/2024
I can personally confirm Dr Taylor is amazing! Wish we could clone her or put her in charge of NHS ME/LC/PoTS care.
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Helen Goss @helen-goss.bsky.social · 14/11/2024
If you have become invalid, validate yourself 🎉 If only life was that simple 😅 #invalidhandle
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Helen Goss @helen-goss.bsky.social · 14/11/2024
Dr Taylor estimates she has seen around 2000 people and is now receiving around 300 messages a week looking for care. www.thecourier.co.uk/fp/lifestyle... Meet the Perthshire GP long Covid sufferers turn to when no one else can help… @drclairetaylor.bsky.social #longcovid #longcovidkids
thecourier.co.uk
Meet the Perthshire GP long Covid sufferers turn to when no one else can help
Dr Claire Taylor - who set up Scotland's first private long Covid clinic in 2022 - gets around 300 emails from people asking for appointments each week.
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Reposted by Helen Goss
0wl @callme0wl.bsky.social · 10/11/2024
Reply to the post you want to save with the 📌 emoji and follow this feed: bsky.app/profile/did:... All of your "pinned" posts will be saved there 😊
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Reposted by Helen Goss
Megastar27 @megastar27.bsky.social · 14/11/2024
More covid infections = more long covid " ... the more times you get Covid, the higher the chance there is of you getting long Covid ... the number of adults in the UK with long Covid was estimated to be around 2 million in 2022 ... in 2024, there was a rise of 300,000, with long Covid." 😰😰😰
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Helen Goss @helen-goss.bsky.social · 14/11/2024
Dr Taylor estimates she has seen around 2000 people and is now receiving around 300 messages a week looking for care. www.thecourier.co.uk/fp/lifestyle... Meet the Perthshire GP long Covid sufferers turn to when no one else can help… @drclairetaylor.bsky.social #longcovid #longcovidkids
thecourier.co.uk
Meet the Perthshire GP long Covid sufferers turn to when no one else can help
Dr Claire Taylor - who set up Scotland's first private long Covid clinic in 2022 - gets around 300 emails from people asking for appointments each week.
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Helen Goss @helen-goss.bsky.social · 13/11/2024
Just realised that on the desktop version of Bluesky, it looks just like twitter 😐 makes it much easier to switch! Have some northern lights from earlier this year, because, why not.
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Reposted by Helen Goss
Long Covid Kids @longcovidkids.bsky.social · 12/11/2024
If you attending the international conference in #Rome this week come say Hi 👋. Our founder and CEO will be there and is looking forward to connecting. #LongCovidKids #LongCovid #LongSky
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Sammie McFarland @sammiemc.bsky.social · 12/11/2024
I was honoured to be asked to present at the conference this week and join leading experts driving change & awareness for paediatric #LongCovid 🌍🦸🏻‍♀️🦸🏽🦸‍♂️🦸🏾‍♀️ #Pacing started Sunday ready for the trip…l’m excited. #LongCovidKids
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Reposted by Helen Goss
Danielle Beckman @daniellebeckman.bsky.social · 10/11/2024
Danilo @buonsenso.bsky.social is a pediatrician doing a fantastic job investigating #LongCovidKids and #LongCovid. Please follow him and check his work if you are interested in the topic! www.thelancet.com/journals/ecl...
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Helen Goss @helen-goss.bsky.social · 13/11/2024
Room for one more Twitter refugee? 🫡 I was told there would be infinite cats here...
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