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GRACE Project @grace-project-uk.bsky.social · 10/07/2026

🧬 You’re Invited: The Generation Study Community Talk Join us for an informative session to learn about The Generation Study and why South Asian participation in genetic research is so important. Sunday, 19 July 2026 DREAMSAI, Milton Keynes, MK10 0BA 🔗 Register here: www.dreamsai.org/event-list

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GRACE Project @grace-project-uk.bsky.social · 03/07/2026

A little peek behind the scenes! 🎙️ Here's what it looked like while we were recording our latest podcast episode. We can't wait for you to hear what's coming. Stay tuned—the new episode drops soon!

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GRACE Project @grace-project-uk.bsky.social · 29/06/2026

The GRACE team had a fantastic time at the MK Ghanaian Community meet-and-greet at Christ the Vine Church encouraging greater participation in genetics research. Thank you to the Mayor of MK for championing diversity and meeting the King from Ghana made the day even more special!

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GRACE Project @grace-project-uk.bsky.social · 18/06/2026

Delighted to be invited to this and looking forward to hearing some great talks!

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GRACE Project @grace-project-uk.bsky.social · 15/06/2026

A fantastic meeting organised by the Gadangme Association, where the GRACE team discussed The Generation Study and broader UK genetics research, with a focus on the importance of increasing participation and representation among minority ethnic groups.

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GRACE Project @grace-project-uk.bsky.social · 12/06/2026

Delighted to be invited to Milton Keynes College to discuss careers in genetics with students!

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GRACE Project @grace-project-uk.bsky.social · 09/06/2026

The GRACE team had a brilliant time at the Glasgow Science Festival engaging with people and emphasising the importance of increasing representation in genetics. From the Ceilidh outside to the organ recital inside, Glasgow did not disappoint in hospitality and warmth! @openuniversity.bsky.social

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GRACE Project @grace-project-uk.bsky.social · 03/06/2026

Catch our staff representing The Grace Project from The Open University on 6 and 7th June. 📅 📷 To see the full programme and to book your tickets, visit: gla.ac.uk/events/scien...

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GRACE Project @grace-project-uk.bsky.social · 01/06/2026

A festive day celebrating Eid at Eid Fest organised by Halal Chicken at Katherine Warington School in Harpenden, Luton and creating awareness about The Generation Study.

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GRACE Project @grace-project-uk.bsky.social · 01/06/2026

A very enjoyable day attending the Bondhon Event at Milton Keynes Community Centre to talk about The Generation Study.

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GRACE Project @grace-project-uk.bsky.social · 01/06/2026

It was a real pleasure attending Bengali New Year Celebrations organised by Milton Keynes Ananda Club to talk about The Generation Study.

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GRACE Project @grace-project-uk.bsky.social · 01/06/2026

The GRACE team have been busy talking about The Generation Study. Here we are at Coffeehall Mosque.

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GRACE Project @grace-project-uk.bsky.social · 07/04/2026

The GRACE project immsensely enjoyed Easter Monday at Queensway Methodist Church raising awareness about The Generation Study in Milton Keynes. In addition to this, the team enjoyed great food and some fun dancing! 😁

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Emily Darlington MP @emily4mk.bsky.social · 13/03/2026

It was a real pleasure to collaborate with the Open University on the GRACE Project. Their mission is to increase diversity in genetics research so that it is more reflective of our society – more ethical, inclusive and community-driven.

A screenshot from the Grace Project UK video which features Emily.

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GRACE Project @grace-project-uk.bsky.social · 12/03/2026

Delighted to have been invited by the South Asian Health Action to promote genetics research at the Community Health Screening and Wellbeing Event in Leicester.

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GRACE Project @grace-project-uk.bsky.social · 04/03/2026

GRACE project was delighted to be invited to Rare Disease Westminster Reception 2026.

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GRACE Project @grace-project-uk.bsky.social · 04/03/2026

The GRACE project in Fishermead mosque discussing The Generation Study

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GRACE Project @grace-project-uk.bsky.social · 05/02/2026

The GRACE project really enjoyed talking about careers in science at Milton Keynes College. The rain and cold didn't stop us! ⚛️👨‍🔬🧬

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GRACE Project @grace-project-uk.bsky.social · 04/02/2026

The GRACE project has been working hard tackling underrepresentation in genetics research. We are happy to share an endorsement by our MP for Milton Keynes Central, Emily Darlington. @openuniversity.bsky.social @emily4mk.bsky.social www.youtube.com/shorts/qAyN8...

youtube.com

Introducing The GRACE project – Emily Darlington, MP

YouTube video by OpenLearn from The Open University

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GRACE Project @grace-project-uk.bsky.social · 04/12/2025

Our team brings together expertise from a wide variety of scientific disciplines. 🙃

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GRACE Project @grace-project-uk.bsky.social · 14/11/2025

Delighted to be invited to attend the diverse data showcase initiative by Genomics England and learning about various initiatives working hard to tackle under representation in genetics research @genomicsengland.bsky.social

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GRACE Project @grace-project-uk.bsky.social · 14/11/2025

Find out how to access free #genetic testing for personalised healthcare through the #NHS, what the process involves, and how your results can support diagnosis and treatment, in this new animation - part of our GRACE Project series... www.open.edu/openlearn/sc...

open.edu

Accessing genetic testing through the NHS

Find out how to access free genetic testing for personalised healthcare through the NHS, what the process involves, and how your results can support diagnosis and treatment.

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Children's Hyperinsulinism Charity UK and Ireland @chcharityuk.bsky.social · 13/11/2025

On #WorldKindnessDay, we want to give a special shout-out to these kind and amazing people! Our fantastic Hyperinsulinism Community, friends and supporters, wonderful volunteers, and amazing fundraisers! Thank you 🥰 hyperinsulinism.co.uk/dedicated-fun…

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GRACE Project @grace-project-uk.bsky.social · 06/11/2025

Fantastic talks @camraredisease on inclusive and equitable genetics healthcare and research for all!

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Kaustubh Adhikari @kaustubhad.bsky.social · 05/11/2025

I'm attending the Cambridge Rare Summit #RAREsummit25 tomorrow on behalf of @grace-project-uk.bsky.social, with our partners Breaking Down Barriers & Alström Syndrome UK. Please stop by our desk if you are there! www.camraredisease.org/raresummit25/

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Children's Hyperinsulinism Charity UK and Ireland @chcharityuk.bsky.social · 27/10/2025

🎉 Excited to be a showcase charity at Cambridge Rare Disease Network 10th Anniversary Summit! Our patient-led neurology project on HI explores family questions & aims to improve early screening, follow-up & support. Visit us at our stand, we would love you to get involved! ow.ly/OjyI50Xi0HM

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CamRARE (Cambridge Rare Disease Network) @camrare.bsky.social · 04/11/2025

📣 DON'T MISS OUT! We’re going global, with a virtual option to attend #RAREsummit25 this Thurs 6 Nov! Tickets give access to the auditorium talks, you'll be able to join interactive polls & Q&As with Slido Check out the programme & ticket link here: camraredisease.org/raresummit25

Graphic including a computer monitor showing a still image from rare summit 2019. Text reads: join us wherever you are in the world. Live stream.

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Children's Hyperinsulinism Charity UK and Ireland @chcharityuk.bsky.social · 31/10/2025

🎃👻 This Halloween, let’s raise awareness for Congenital Hyperinsulinism (CHI). Too much insulin = severe hypoglycemia, depriving the brain of glucose and leading to neurological harm. Follow @CHCharityUK to learn more #CongenitalHyperinsulinism #HyperinsulinismUK

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GRACE Project @grace-project-uk.bsky.social · 31/10/2025

Some BTS photos of Emily Darlington, MP of Milton Keynes Central filming a video for The Generation Study, in partnership with @genomicsengland.bsky.social. 🎥🧬 @emily4mk.bsky.social @openuniversity.bsky.social @gensocuk.bsky.social @kaustubhad.bsky.social

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GRACE Project @grace-project-uk.bsky.social · 28/10/2025

An interesting riddle for those curious to know about consanguinity in 15th century. 🙃 The GRACE project is also involved in creating awareness about genetics and genetic conditions in families with consanguineous marriages in the UK.

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GRACE Project @grace-project-uk.bsky.social · 28/10/2025

Kindness is the seed of true inclusion—when we lead with empathy, we create space for every voice, every background, and every identity to be seen, heard, and valued across all corners of society.

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Genomics England @genomicsengland.bsky.social · 20/06/2025

New research led by Genomics England highlights the need for greater diversity in genetic research to make genomics’ use in cancer care and screening more accurate and reliable for all. Find out more: ow.ly/LOUj50Wcg2q

ow.ly

Greater genetic diversity needed to widen genomics benefits in cancer…

Find the contact, social media, service desk, and other important information for Genomics England.

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GRACE Project @grace-project-uk.bsky.social · 26/10/2025

We are looking forward to this meeting! If you are going, come and say hello!

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GRACE Project @grace-project-uk.bsky.social · 26/10/2025

Fantastic meeting full of fabulous talks and discussions on population genomic screening! And an @openuniversity.bsky.social staff reunion is always delightful!

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Nuffield Foundation @nuffieldfoundation.org · 22/10/2025

Delighted to see NELI, the Nuffield Early Language Intervention programme, described as an ‘education silver bullet’ by @beckyfrancis.bsky.social in @schoolsweek.bsky.social. NELI is a programme for reception pupils in England who need extra support with speech & language development. bit.ly/47CEtq3

bit.ly

‘I dream the curriculum every night’: Becky Francis profile

Becky Francis reflects on control, compromise, and finding the balance between ‘firebrand’ and 'technocrat'

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UK Biobank @ukbiobank.ac.uk · 23/10/2025

💨 Data from over 300,000 UK Biobank participants show that air pollution can raise older people’s risk of a condition causing unbearably itchy skin. Almost 16% of late-life eczema cases could be prevented by cutting air pollution in the worst-affected areas researchers estimate.

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Genomics England @genomicsengland.bsky.social · 17/10/2025

4 weeks after being born, Freddie was diagnosed with a rare form of eye cancer. He is one of numerous babies born with rare conditions who are receiving earlier diagnoses and treatment as a result of the Generation Study. Read the full story: ow.ly/YJ7850XcTNk

Text saying 'The Generation Study is looking for more than 200 rare conditions which usually appear in the first few years of life, can be improved if caught early, and can be treated in the NHS.', with a green, a yellow and a pink circle below on a light green background.

Text saying 'Four weeks after being born and having his genome sequenced, Freddie was diagnosed with hereditary retinoblastoma, a rare and aggressive form of eye cancer usually diagnosed in very young children.', and a photo of Freddie on a pink background.

Text saying 'Very shortly after his diagnosis, Freddie was able to start treatment at Birmingham Children's Hospital.
This gives doctors the best chance to minimise the impact on his vision.' and a photo of Freddie, his parents and sibling on a blue, yellow and pink background.

Quote from Dr Rich Scott, Chief Executive Officer of Genomics England on a pink and white background saying “We believe genomics can transform healthcare in this country and be used to get ahead of serious illness. It’s been incredibly moving to see the lifechanging impact the Generation Study is having for families like Freddie’s, who have been able to access treatment that makes a world of difference soon after being born.”.

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Emily Darlington MP @emily4mk.bsky.social · 15/10/2025

It was great to speak with Dr Zoe Williams about the importance of regularly self-checking, it takes two minutes, once a month – if you notice something unusual speak to your GP. Self-checking not on your to-do list this month? Make sure you set a reminder!

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Mental Health UK @mhealthuk.bsky.social · 10/10/2025

We’re thinking of you this #WorldMentalHealthDay. Whether you're asking for help, supporting someone else, or simply getting through today, we’re here for you every step of the way.

Graphic titled "This World Mental Health Day, we're thinking of anyone who…" with eight illustrated icons. The icons represent experiencing trauma, being on a waiting list for support, navigating treatment, is facing stigma, or judgement, supporting a loved one's mental health, struggling to express feelings, needing better mental health support, and just trying to get through the day. Each concept is visually symbolised by simple, colourful icons such as an eye with a tear, a clock, confused question marks, speech bubbles around an ear, supportive hands, a pen on a notebook, a signpost, and an hourglass.

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CamRARE (Cambridge Rare Disease Network) @camrare.bsky.social · 09/10/2025

The #RAREsummit25 agenda is live! Packed with diverse voices, patient-driven insights & bold innovation. www.camraredisease.org/raresummit25... Grab your ticket to join us on 6 Nov to be part of the conversation & on't forget to book your dinner spot! What are you most looking forward to?

An abstract image formed of an array of triangles in the shape of a forward facing arrow. Some of the triangles contain pictures from the previous summits, illustrating the talks, exhibitions and conversations. Text: Thurs 6 November at Hinxton Hall, Wellcome Genome Campus.

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GRACE Project @grace-project-uk.bsky.social · 08/10/2025

The GRACE project was delighted to be part of this vibrant festival celebrating the diversity of Milton Keynes. We're excited to continue fostering greater participation from diverse communities in genetic research.

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Manchester University NHS Foundation Trust - EDI Team @mft-edi.bsky.social · 02/10/2025

Black History Month — a time to honour legacy, celebrate brilliance, and amplify Black voices. Throughout the month, we’ll be hosting events that shine a light on Black history, culture, and creativity. Stay tuned, get involved, and let’s make this month meaningful. #BlackHistoryMonth #BHM2025

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GRACE Project @grace-project-uk.bsky.social · 27/09/2025

A great opportunity to discuss genetics as well as the generation study through various activities with the wonderful students of Milton Keynes College. @openuniversity.bsky.social @genomicsengland.bsky.social @gensocuk.bsky.social

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Genomics England @genomicsengland.bsky.social · 23/09/2025

Our research seminar this month will focus on the Generation Study, a landmark UK initiative exploring the feasibility, impact, and ethics of using whole-genome sequencing in newborn screening. 30 September, 14:00 - 15:00. Our seminars are open to everyone. Register for free: ow.ly/eoEt50WYb46

ow.ly

Research Seminar: Harriet Etheredge, Dalia Kasperaviciute & Joanna…

Genomics England's monthly, free-to-attend talks presented by Research Network members on the latest research.

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UK Research and Innovation @ukri.org · 03/09/2025

Almost 50% of lab workers identify as neurodiverse. So what difference could it make for research organisations to fully embrace neurodiversity in their workplace culture? We supported the John Innes Centre to implement a project aiming to do just that 👇

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RSS Celebrating Diversity @rssdiversity.bsky.social · 04/09/2025

📚 It's story time at #RSS2025Conf! Join us for the *Hidden Figures in Statistics* session to hear interesting stories about historic data professionals from diverse backgrounds 🧍🏼‍♀️🧍🏾👨🏽‍🦽🧕🏽🧓🏿🤱🏻 🕞 15:30-16:50 📍 Lowther #StatSky #RSSConf2025

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GRACE Project @grace-project-uk.bsky.social · 04/09/2025

A wonderful meeting with @emily4mk.bsky.social of Milton Keynes Central @openuniversity.bsky.social. We are looking forward to our future collaborations on increasing representation of all groups in genetic research. @kaustubhad.bsky.social

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RSS Celebrating Diversity @rssdiversity.bsky.social · 04/09/2025

Have you considered how your #AI could be more socially responsible? Join our #RSSConf2025 session today: ⚖️ *Socially responsible AI & Inclusion* 🕜 13:40-15:00 📍Sidlaw TLDR: Speakers consider different aspects of inclusion within the wider context of AI & SR #StatSky #SRAI #RSS2025Conf

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