iiinova — where your digital self keeps evolving

Children's Hyperinsulinism Charity UK and Ireland @chcharityuk.bsky.social · 01/10/2026

✍️Poetry and Hyperinsulinism For National Poetry Day, Katie, one of our young adult HI volunteers, has created a beautiful visual, choosing two poems that capture the resilience and determination so often shown within our HI community. #NationalPoetryDay

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Children's Hyperinsulinism Charity UK and Ireland @chcharityuk.bsky.social · 30/09/2026

🎙️ Happy Podcast Day! 🎙️ Did you know we have our very own HI podcast? HypoHugs is a space for HI families to share experiences, ask questions, and hear from people who understand life with Hyperinsulinism. 🎧 Catch up with HypoHugs wherever you get your podcasts. #PodcastDay #CHCharityUK

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Children's Hyperinsulinism Charity UK and Ireland @chcharityuk.bsky.social · 29/09/2026

Over the next few months, we will invite HI families to be part of our newly diagnosed project, sharing their experiences and helping us understand what matters, what is needed, and what would have helped during those first months. #NICUAwarenessMonth

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Children's Hyperinsulinism Charity UK and Ireland @chcharityuk.bsky.social · 27/09/2026

🥳 To help make genetics easier to understand, the Exeter Genetics Team and The Children’s Hyperinsulinism Charity have created a new series of family information guides. hyperinsulinismgenes.org/resources-… 🧬More resources coming soon!

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Children's Hyperinsulinism Charity UK and Ireland @chcharityuk.bsky.social · 26/09/2026

🌞We are proud to partner with Medic Alert UK to bring Hyperinsulinism families Medic Alert membership & ID ⬇️ under 10 'Early Start Programme' = free membership & ID. ⬆️older kids/adults = 20% off 1st-year membership & Medic Alert ID hyperinsulinism.co.uk/alert-cards-a…

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Children's Hyperinsulinism Charity UK and Ireland @chcharityuk.bsky.social · 25/09/2026

On #WorldPharmacyDay we say thank you to the pharmacists who play a vital role in supporting Hyperinsulinism families. 👩‍⚕️👨‍⚕️From managing complex prescriptions, answering questions & working closely with specialist teams, pharmacists are an essential part of HI Heroes' care.

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Children's Hyperinsulinism Charity UK and Ireland @chcharityuk.bsky.social · 23/09/2026

Behind every child with Hyperinsulinism is a family managing the 24/7 care, the planning, the organising, the advocating, and the constant keeping‑on‑top of everything that HI demands. Keeping HI children safe means taking on roles that can be vital, exhausting and relentless. We are here for you💖

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Children's Hyperinsulinism Charity UK and Ireland @chcharityuk.bsky.social · 21/09/2026

You are looking after your baby. But who is looking after you? Recovering from birth. Living in hospital. Trying to sleep. Trying to keep everything together. While worrying about your baby. Your family. Your future. #NICUAwarenessMonth #CHCharityUK

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Children's Hyperinsulinism Charity UK and Ireland @chcharityuk.bsky.social · 20/09/2026

🏃‍♀️👏 GOOD LUCK, AMELIA! Amelia is running the Swansea Bay 10K for CHC, inspired by her own Hyperinsulinism journey. “Running this 10K is my way of celebrating how far I’ve come and giving back.” 💖 Thank you, Amelia. Wishing you lots of luck today. To donate: ow.ly/eS8j50ZPoHw #SwanseaBay10K

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Children's Hyperinsulinism Charity UK and Ireland @chcharityuk.bsky.social · 19/09/2026

📝With the mobile phone ban now in place, we’ve created a document for schools explaining why children and young adults with Hyperinsulinism must have access to their phones for glucose monitoring and safety alerts. hyperinsulinism.co.uk/support-for-f…

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Children's Hyperinsulinism Charity UK and Ireland @chcharityuk.bsky.social · 18/09/2026

This week, we went to Parliament for the Rare4Schools Call to Action event! We are working with Rare4Schools to call for a framework that supports schools to understand and include children with rare diseases. Find out more: www.rare4schools.org #rare4schools #hyperinsulinism

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Children's Hyperinsulinism Charity UK and Ireland @chcharityuk.bsky.social · 18/09/2026

🚨 This week is Hypo Awareness Week Would you know what a hypo could look like in a baby? These are the top 7 signs and symptoms reported by Hyperinsulinism families in their babies. Please share and help us raise awareness of hypoglycaemia in babies with Hyperinsulinism. #HypoAwarenessWeek

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Children's Hyperinsulinism Charity UK and Ireland @chcharityuk.bsky.social · 16/09/2026

❤️We love celebrating everything our HI Heroes achieve But we also know just how much can go on behind the scenes to make it possible. Blood glucose checks. Treatments. Feeding schedules. Hospital stays.. and ALWAYS being prepared for that unexpected hypo. #HypoAwarenessWeek #CHCharityUK

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Children's Hyperinsulinism Charity UK and Ireland @chcharityuk.bsky.social · 14/09/2026

Sometimes, families notice something isn't right before anyone else does. These are real experiences shared by HI families. For a baby with Hyperinsulinism, recognising hypoglycaemia can save lives and help prevent neurological harm. #HypoAwarenessWeek #CHCharityUK

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Children's Hyperinsulinism Charity UK and Ireland @chcharityuk.bsky.social · 10/09/2026

You are recovering from giving birth; your baby is seriously ill in the NICU, and you are trying to understand blood glucose and Hyperinsulinism - a condition you have never heard of before. You are frightened. You are overwhelmed. You are exhausted. #NICUAwarenessMonth

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Children's Hyperinsulinism Charity UK and Ireland @chcharityuk.bsky.social · 09/09/2026

🥾💖On Sunday Lewis and Hayley will be taking on the Kiltwalk Big Stroll, an amazing 11.2 miles from Musselburgh to Murrayfield, to raise funds for The Children's Hyperinsulinism Charity. 🥾 ow.ly/HWtX50ZHoEc Good luck, Lewis and Hayley 👏🥰 #Kiltwalk #CHCharityUK

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Children's Hyperinsulinism Charity UK and Ireland @chcharityuk.bsky.social · 07/09/2026

Our Summer HI Lights competition is one of the ways we keep our HI Heroes and Super Siblings connected - a chance to have fun, share what they’ve been up to, and celebrate their amazing achievements, talents, and skills. 🥰We love this photo of our competition winner, Carter, receiving his prize!

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Children's Hyperinsulinism Charity UK and Ireland @chcharityuk.bsky.social · 06/09/2026

Through a fun rhyming story, follow Chloe the Rabbit as she learns about life with HI, from checking her blood sugar & dealing with hypoglycaemia to her visit to the hospital. 🐰 Helps young children with HI understand their condition 📚 amzn.eu/d/034vddK3 #ReadABookDay

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Children's Hyperinsulinism Charity UK and Ireland @chcharityuk.bsky.social · 03/09/2026

Within hours or days of birth, your baby is seriously unwell. They need intensive and invasive treatment; you are being transferred to a specialist hospital miles away, and you are suddenly hearing about Hyperinsulinism, a rare condition you have never heard of. #NICUAwarenessMonth #CHCharityUK

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Children's Hyperinsulinism Charity UK and Ireland @chcharityuk.bsky.social · 01/09/2026

A HUGE congratulations to Imogen, who has been selected for TEAM ENGLAND “So unbelievably proud of Imogen. All the extra workouts, tumble practice, determination and hard work have paid off, and she gets to live her dream of representing her country in the sport she loves!!” ❤️Kirsty, Imogen’s Mum

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Children's Hyperinsulinism Charity UK and Ireland @chcharityuk.bsky.social · 01/09/2026

Wishing HI Heroes & Super Siblings a great start to the new academic year. Whether you are excited, nervous, or somewhere in between, we are right behind you. If you need information, videos or school packs head to our website: hyperinsulinism.co.uk/support-for-f…

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Children's Hyperinsulinism Charity UK and Ireland @chcharityuk.bsky.social · 31/08/2026

Imagine being a child and having to explain your condition to the people around you. “I have Hyperinsulinism.” “It’s not diabetes.” “My blood sugar can drop dangerously low.” Again. And again. They shouldn’t have to. Hyperinsulinism. Too much insulin. We just wish you knew.

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Children's Hyperinsulinism Charity UK and Ireland @chcharityuk.bsky.social · 29/08/2026

@CHCharityUK is a member of Hidden Disabilities Sunflower, with a specially designed card to help Hyperinsulinism Heroes like Daisy access support🌻 📩 Order: enquiries@hyperinsulinism.co.uk 🔗 Learn more: youtu.be/4iMjQWXKndc #BeSeenWithSunflower #HyperinsulinismUK

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Children's Hyperinsulinism Charity UK and Ireland @chcharityuk.bsky.social · 27/08/2026

Hyperinsulinism and… For many families, HI is only one part of the story. HI + Autism HI + Epilepsy HI + Feeding Difficulties HI + ADHD HI + sensory needs, motor delays, genetic conditions, medical needs… We are determined that 🐝Every HI journey will be understood

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Children's Hyperinsulinism Charity UK and Ireland @chcharityuk.bsky.social · 26/08/2026

⭐Meet Cillian. Full of energy & joy, but behind the fun, he faces a constant, hidden battle with Hyperinsulinism. Every day means constant care: blood glucose monitoring, urgent treatment of lows, medications & overnight feeds. 💓We are proud to support & be there for HI families #CHCharityUK

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Children's Hyperinsulinism Charity UK and Ireland @chcharityuk.bsky.social · 25/08/2026

What does "Congenital Hyperinsulinism" actually mean? 🤔 The name gives us some important clues. Our visual breaks down each part of the condition's name and explains why Hyperinsulinism causes dangerous hypoglycaemia. Find out more: hyperinsulinism.co.uk/what-is-hyper…

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Children's Hyperinsulinism Charity UK and Ireland @chcharityuk.bsky.social · 24/08/2026

The Children's Hyperinsulinism Charity proudly supports children, young adults & their families 🥰 Find out more: 👩‍👩‍👧‍👦family support group: www.facebook.com/groups/CHCharityUK 🔗Linktree: linktr.ee/chcharityuk

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Children's Hyperinsulinism Charity UK and Ireland @chcharityuk.bsky.social · 23/08/2026

🎨 Summer Art Competition! Carter has been getting into drawing, and look at this brilliant picture he’s created! 🎨💛 This is a drawing of his Mum🥰 We LOVE it, Carter! What a fantastic picture - we can’t wait to see what you draw next! 🖌️ Well done, Carter, for entering our Art Competition! 👏

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Children's Hyperinsulinism Charity UK and Ireland @chcharityuk.bsky.social · 23/08/2026

Huge congratulations to Mohammedzayn, who has officially enrolled at college! 🎉👏 Mohammedzayn, what a fantastic achievement! We are so excited for this new chapter and can’t wait to see what comes next for you! 🤩 🌞Well done, Mohammedzayn; we wish you lots of happiness and success in college.

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Children's Hyperinsulinism Charity UK and Ireland @chcharityuk.bsky.social · 22/08/2026

Hyperinsulinism can cause severe and dangerous hypoglycaemia, where blood glucose levels fall dangerously low and urgent treatment is needed to help prevent neurological harm. The Children’s Hyperinsulinism Charity is calling for greater awareness, improved treatments and more research.

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Children's Hyperinsulinism Charity UK and Ireland @chcharityuk.bsky.social · 21/08/2026

🎓🌞 Huge congratulations to Mohammedzubair on his GCSE results! 🎉👏 We are so proud of you and all that you have achieved! We love celebrating our HI siblings, who do so much to support their families. Well done, Mohammedzubair - what a fantastic Summer HI Light!🎓🌞

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Children's Hyperinsulinism Charity UK and Ireland @chcharityuk.bsky.social · 20/08/2026

🌟 Wishing all our HI Heroes the very best of luck with their GCSE results! We’re cheering on every HI young person receiving their results today - and any siblings celebrating theirs too. #CHCharityUK #HyperinsulinismUK

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Children's Hyperinsulinism Charity UK and Ireland @chcharityuk.bsky.social · 19/08/2026

🌞🧬 We hope you've enjoyed exploring our new family information leaflets on the genetics of congenital hyperinsulinism! 🔗 hyperinsulinismgenes.org/resources-… Thank you to the Exeter Genetics Team for developing these fantastic resources. Sarah Flanagan #HIGenes

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Children's Hyperinsulinism Charity UK and Ireland @chcharityuk.bsky.social · 18/08/2026

🧬 Our new leaflet explains why a genetic cause isn't always found and what happens next. 📖Developed by the Exeter Genetics Team in collaboration with The Children's Hyperinsulinism Charity. 🔗 hyperinsulinismgenes.org/resources-… Sarah Flanagan #HIGenes

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Children's Hyperinsulinism Charity UK and Ireland @chcharityuk.bsky.social · 17/08/2026

🧬Our new family leaflet explains what a Variant of Unknown Significance is and what it could mean your family. 📖 Developed by the Exeter Genetics Team in collaboration with The Children's Hyperinsulinism Charity. 🔗 hyperinsulinismgenes.org/resources-… Sarah Flanagan #HIGenes

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Children's Hyperinsulinism Charity UK and Ireland @chcharityuk.bsky.social · 15/08/2026

🌞 A little summer reminder… CHC is here for the HI community! From support & resources to research, awareness & connecting families, we are working every day to help families living with Hyperinsulinism feel supported, connected & never alone. 🥰Help families who need us find CHC this summer.

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Children's Hyperinsulinism Charity UK and Ireland @chcharityuk.bsky.social · 13/08/2026

🌟 Wishing any HI Heroes - and siblings waiting on their A‑Level results the very best of luck. We know sitting exams comes with extra challenges when you’re managing Hyperinsulinism, and we are always so proud of your achievements, today and every day. #CHCharityUK #HyperinsulinismUK

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Children's Hyperinsulinism Charity UK and Ireland @chcharityuk.bsky.social · 12/08/2026

🌞🧬 Our new genetics leaflets, created with the Exeter Genetics Team, are designed to help families understand the genetics behind congenital hyperinsulinism. 🔗 ow.ly/sE9450Zy1nz YouTube video - why genetics matters in HI. 🎥 ow.ly/YNo150Zy1nA Sarah Flanagan #Hyperinsulinism

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Children's Hyperinsulinism Charity UK and Ireland @chcharityuk.bsky.social · 11/08/2026

🧬Explore our new genetics resources created by the Exeter Genetics Team in collaboration with The Children’s Hyperinsulinism Charity. Today’s focus is on Recessive Inheritance of Congenital Hyperinsulinism. hyperinsulinismgenes.org/resources-… Sarah Flanagan #Hyperinsulinism

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Children's Hyperinsulinism Charity UK and Ireland @chcharityuk.bsky.social · 10/08/2026

🧬Check out our new family genetics resources! Created by Exeter Genetics Team in collaboration with The Children’s Hyperinsulinism Charity. Starting with Dominant Inheritance of Congenital Hyperinsulinism hyperinsulinismgenes.org/resources-… Sarah Flanagan #Hyperinsulinism

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Children's Hyperinsulinism Charity UK and Ireland @chcharityuk.bsky.social · 09/08/2026

🌞This summer, why not explore our YouTube channel? 📹 It’s packed with helpful hyperinsulinism videos covering development, genetics, feeding, psychology, well-being, money matters, and much more. www.youtube.com/@childrenshyperinsu… #HyperinsulinismUK #SummerHILights

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Children's Hyperinsulinism Charity UK and Ireland @chcharityuk.bsky.social · 08/08/2026

💓 Through our support group, families connect with others who understand, share experiences, and build lifelong friendships, because no family should have to face Hyperinsulinism alone. 👨‍👩‍👧‍👦 Support Group:https://www.facebook.com/groups/CHCharityUK

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Children's Hyperinsulinism Charity UK and Ireland @chcharityuk.bsky.social · 07/08/2026

🌞 Key Facts About Hyperinsulinism! Help raise awareness of Congenital Hyperinsulinism (HI), the leading cause of severe, persistent hypoglycaemia in newborns. See the visual for key facts! 🌐 www.hyperinsulinism.co.uk 🎥 www.youtube.com/@childrenshyperinsu…

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Children's Hyperinsulinism Charity UK and Ireland @chcharityuk.bsky.social · 06/08/2026

🌞**Who helps keep you safe?** Living with Hyperinsulinism is a team effort, and helping children recognise the people they can turn to is an important part of building trust and confidence. 🥰 Every child's support team is unique. ⭐ Who's in YOUR team? #SummerHILights #HyperinsulinismUK

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Children's Hyperinsulinism Charity UK and Ireland @chcharityuk.bsky.social · 05/08/2026

🎒 What's in your Hypo Hero Backpack? Being prepared is an important part of living with Hyperinsulinism. As children grow, learning about the items that keep them safe can build confidence, encourage independence & create opportunities for important conversations with parents, carers & teachers.

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Children's Hyperinsulinism Charity UK and Ireland @chcharityuk.bsky.social · 03/08/2026

🌞 How does your hypo feel ? Helping children recognise and talk about *their own* hypo clues is an important part of understanding Hyperinsulinism. It can help them begin to recognise when something doesn't feel right & give them the confidence to describe how they're feeling. #HyperinsulinismUK

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Children's Hyperinsulinism Charity UK and Ireland @chcharityuk.bsky.social · 02/08/2026

Breathing difficulties, seizures, jitteriness or unresponsiveness can all be signs of dangerously low blood glucose. Please share this post. Early recognition and prompt action can make all the difference.💓 #ThinkHypoglycaemia #ThinkHyperinsulinism

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Children's Hyperinsulinism Charity UK and Ireland @chcharityuk.bsky.social · 01/08/2026

🌐 Today is World Wide Web Day! Our Hyperinsulinism web is built through friendship, support, shared experiences, and families helping families. It helps us find answers, discover new ideas, make connections, and remind us that we're never alone. #HyperinsulinismUK #WorldWideWebDay

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Children's Hyperinsulinism Charity UK and Ireland @chcharityuk.bsky.social · 28/07/2026

There’s no better way to celebrate our 10th Birthday than with our incredible HI Heroes and their families. And as if it couldn’t get any more special… we also celebrated these amazing twins turning 2! A double celebration with Leonard the Lion joining in the fun.

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