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Ali Kay

@genomics-ali.bsky.social
288 followers 163 following 52 posts

Health experiences researcher at University of Oxford and Centre for Personalised Medicine, Oxford. Volunteer for Muscular Dystrophy UK. Reading, running or hiking.

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Ali Kay @genomics-ali.bsky.social · 26/03/2026
Always a highlight of our year to see the creative thinking and artistic expression of young people engaging with personalised medicine. Well done Frida and all our prize winners 👏🏻 and kudos to everyone who took on the challenge. 💡
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Ali Kay @genomics-ali.bsky.social · 17/02/2026
My youngest son has a rare type of muscular dystrophy (progressive muscle weakness condition). His body will not work for him and he is getting weaker. I‘m taking on the #TCsLondonMarathon2026 for Muscular Dystrophy UK @MDUK_News to support research. Grateful for donations 🏃‍♀️1/2
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Ali Kay @genomics-ali.bsky.social · 08/12/2025
Unwrapping my St.Anne’s College Secret Santa. All Fours by Miranda July. It’s going to be an excellent read! Thank you @stanneslibrary.bsky.social for organising! #readingcommunity #booksky #books
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Ali Kay @genomics-ali.bsky.social · 15/07/2025
Challenge of the best kind. Many thanks to my co-lead Dr Minna Jeffery & fellow grant holders @agoriely.bsky.social @lisahinton.bsky.social and our integral co-production panel: Marysia Price-Nowak, Arti Patel, Francesca Wicks, Jon Wells, Dr Shwetha Ramachandrappa, Alexa Gummow & others who helped!
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Ali Kay @genomics-ali.bsky.social · 15/07/2025
Definitely me.
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Ali Kay @genomics-ali.bsky.social · 12/07/2025
“I thought it triggered a new understanding in my heart.” Very proud of our co-production project - using #theatre to engage the public with genetics research | TORCH | The Oxford Research Centre in the Humanities #PPIE #Genetics #Genomics #Pregnancy torch.ox.ac.uk/article/maki...
torch.ox.ac.uk
Making it Personal – using theatre to engage the public with genetics research
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Goriely Lab @gorielylab.bsky.social · 25/06/2025
Fantastic time at WIMM day 2025! Our "We Are All Mutants" team won 2nd place in the Public Engagement Awards for our high school genetics workshops. @sciencehans.bsky.social @genomics-ali.bsky.social @doublehelixdale.bsky.social
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Ali Kay @genomics-ali.bsky.social · 08/06/2025
Went up a hill or two in training for my August challenge. It was incredibly wet with the paths like streams but also a fabulous day all round.
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Centre for Personalised Medicine @cpmoxford.bsky.social · 12/05/2025
We're looking forward to this public engagement theatre event which is taking place from 2pm on Saturday 17th May @StAnnesCollege. www.oxfordmail.co.uk/news/2514127... We still have a few places available if you'd like to join us, all of the details can be found here: cpm.ox.ac.uk/event/making...
oxfordmail.co.uk
New play to explore choice faced by parents of child with serious condition
A new play will tackle one of the most personal and difficult decisions many parents face.
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Sarah Briggs @sarahbriggs.bsky.social · 01/05/2025
We’re looking for 2 new Junior Research Fellows to join the @cpmoxford.bsky.social team from September. If you’re an early career academic (incl Dphils) interested in supporting the development of equitable and effective personalised medicine check out the advert. Deadline 16th May.
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Centre for Personalised Medicine @cpmoxford.bsky.social · 07/05/2025
In February we held an event discussing #NewbornScreening and the opportunities and challenges of bringing #genomics into the #screening process. We’re pleased to share the event report – please do pass on to anyone who might be interested. More details in thread. cpm.ox.ac.uk/wp-content/u...
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Goriely Lab @gorielylab.bsky.social · 03/03/2025
A fantastic trip to King George V college in Southport for #RareDiseaseDay for our "We are all Mutants" workshop! Students discussed the criteria for inclusion of diseases in the newborn screening program & assessed the ethical dilemmas with whole genome sequencing. #Genomics @cpmoxford.bsky.social
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MRC Weatherall Institute of Molecular Medicine @imm.ox.ac.uk · 20/03/2025
Last month, a team of researchers from @gorielylab.bsky.social led an interactive educational workshop titled “We Are All Mutants” for two biology classes at King George V College in Southport. Find out more in our latest blog post - www.imm.ox.ac.uk/about/blog/w...
imm.ox.ac.uk
"We Are All Mutants"
Researchers from the Goriely Lab and Centre for Personalised Medicine reflect on their experience of exploring genomics and ethics with A Level students in Southport.
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Centre for Research in Autism and Education @craeioe.bsky.social · 13/03/2025
“I did what I could to earn some money and be of use”: A qualitative exploration of autistic people’s journeys to career success and fulfilment #CRAEresearchSummaries crae.ioe.ac.uk/i-did...
Graphic titled 'Social Connections in the Workplace' with UCL logo, a quote saying 'That's what's kept me there... the fact that people are so nice,' and a simplified icon of two people embracing.
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Ali Kay @genomics-ali.bsky.social · 03/03/2025
Really enjoyed working with such engaged students from KGV in #Southport.
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Centre for Personalised Medicine @cpmoxford.bsky.social · 19/02/2025
If you missed last week's brilliant annual lecture from @philipcball.bsky.social, you can now watch it here: youtu.be/fzVZZcxERwU
youtu.be
How life works: Dealing with biology’s changing narrative
YouTube video by CPM Oxford
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Ali Kay @genomics-ali.bsky.social · 08/02/2025
Went to the garden centre and came back with books. That’s how I roll 😂 #booksky
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Ali Kay @genomics-ali.bsky.social · 02/02/2025
Choose 20 books that have stayed with you. One book per day. No explanations, no reviews, just covers. #booksky Day 20
Book cover for The Namesake by Jhumpa Lahiri.
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Ali Kay @genomics-ali.bsky.social · 01/02/2025
Choose 20 books that have stayed with you. One book per day. No explanations, no reviews, just covers. #booksky Day 19
Book cover for The Glass Hotel by Emily St. John Mandel
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Ali Kay @genomics-ali.bsky.social · 31/01/2025
Choose 20 books that have stayed with you. One book per day. No explanations, no reviews, just covers. #booksky Day 18 [lost track]
Book cover for The Last Resort by Jan Carson
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Ali Kay @genomics-ali.bsky.social · 31/01/2025
Red January Days 30 and 31. Last walk of Red January 2025. I’ve been taking part for several years now and I never regret it. I’ve added running, biking and yoga but the daily walk is still my favourite way to manage January. #redjanuary
Gateway to Chinatown in Liverpool, UKIt’s late afternoon in the last day ofJanuary and the low sun provides a golden backdrop to a pedestrian walkway.
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Ali Kay @genomics-ali.bsky.social · 30/01/2025
Choose 20 books that have stayed with you. One book per day. No explanations, no reviews, just covers. #booksky Day 15
Book cover of The Five by Hallie Rubenhold
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EMBL @embl.org · 27/01/2025
Recruitment for the EMBL International PhD Programme is officially open! 🔊 At EMBL, we train young scientists to become skilled and creative future leaders in academia, industry & other sectors. Start your career in the life sciences with us! www.embl.org/about/info/e... 🧪 #AcademicSky #careers
EMBL International PhD Programme Summer Recruitment Applications open. Applications close 10 March 2025.
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Ali Kay @genomics-ali.bsky.social · 29/01/2025
Choose 20 books that have stayed with you. One book per day. No explanations, no reviews, just covers. #booksky Day 14 [A bit behind!]
Book cover for Summer Water by Sarah Moss.
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Centre for Personalised Medicine @cpmoxford.bsky.social · 28/01/2025
#january Day 28 The possibility of giving more #personalised information about the chance of a #genetic condition occurring again in a family brings benefits and challenges- this paper from our JRF @genomics-ali.bsky.social tells us more:
buff.ly
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Ali Kay @genomics-ali.bsky.social · 29/01/2025
Finally some sunshine and a chance to get out at lunchtime. #Redjanuary
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Centre for Personalised Medicine @cpmoxford.bsky.social · 23/01/2025
#january Day 23 One of our highlights of 2024 was #SongsofGenomics: a musical exploration of #genomics in healthcare developed in collaboration with @_johndarcy and part of the ESRC Festival of Social Science. More details here: buff.ly/4axXzxG #ExperiencesOfPersonalisedMedicine
buff.ly
Songs of Genomics - cpm
On Saturday 2nd November 2024, in collaboration with HIVE Choir, a vocal ensemble based in Belfast, we hosted Songs of Genomics at Pegasus Theatre. Together with HIVE Choir we transformed our…
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Ali Kay @genomics-ali.bsky.social · 23/01/2025
Really thrilled to have the opportunity to put this idea into practice. Many thanks to the University of Oxford PCER Fund (Public and Community Engagement with Research) and also the @CPMOxford for supporting #PublicEngagement with #genomics
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Ali Kay @genomics-ali.bsky.social · 17/01/2025
Bit behind. Day 15 #redjanuary was slightly spooky.
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Centre for Personalised Medicine @cpmoxford.bsky.social · 14/01/2025
#january Day 14 How might #NewbornScreening affect babies and families? We asked young people in Years 7-9 to create #art inspired by this question in our 23-24 #YouthArtCompetition and here are the beautiful and thought-provoking winning entries:
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Centre for Personalised Medicine Art Competition 2023-24 - cpm
In the second year of the competition, we looked at screening newborn babies for disease. All babies born in the UK are offered tests shortly after birth to check for health issues: Currently, the…
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Centre for Personalised Medicine @cpmoxford.bsky.social · 15/01/2025
#january Day 15 What does it mean to provide increasingly #personalised information about the chance of a #genetic condition happening again in a future pregnancy? Watch this video to learn more:
buff.ly
Can it happen again? Informing pregnancy decisions using personalised risk information - cpm
Professor Anne Goriely and Dr Alison Kay | 14 March 2024
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Ali Kay @genomics-ali.bsky.social · 17/01/2025
Choose 20 books that have stayed with you. One book per day. No explanations, no reviews, just covers. #booksky Day 15
Book on a fluffy cushion. My mess is a bit of a life by Georgie Pritchett.
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Ali Kay @genomics-ali.bsky.social · 14/01/2025
Choose 20 books that have stayed with you. One book per day. No explanations, no reviews, just covers. #booksky Day 14
Book cover for Small Pleasures by Clare Chambers.
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Ali Kay @genomics-ali.bsky.social · 14/01/2025
Day 14 of #Redjanuary Making sure I’m active each day in January.
A large tree extends its branches over a pathway in a park.
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Ali Kay @genomics-ali.bsky.social · 13/01/2025
Choose 20 books that have stayed with you. One book per day. No explanations, no reviews, just covers. #booksky Day 13
Book Cover for When All is Said by Anne Griffin.
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Centre for Personalised Medicine @cpmoxford.bsky.social · 12/01/2025
#january Day 12 #PrecisionMedicine impacts our #environment and we need to be talking more about it– this paper from Gabby Samuel and CPM director @alucassen.bsky.social explains why:
buff.ly
The environmental impact of data-driven precision medicine initiatives | Cambridge Prisms: Precision Medicine | Cambridge Core
The environmental impact of data-driven precision medicine initiatives - Volume 1
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Centre for Personalised Medicine @cpmoxford.bsky.social · 13/01/2025
#january Day 13 1 month to go until @philipcball.bsky.social gives this year’s CPM annual lecture! We’re so excited to hear his talk ‘How life works: dealing with biology’s changing narrative’ Please share the details and sign up here:
buff.ly
CPM Annual Lecture 2025 - cpm
How life works: Dealing with biology’s changing narrative We are excited that the 2025 CPM Annual Lecture will be given by Philip Ball. Philip Ball is a freelance writer and broadcaster, and was an…
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Mary Dixon-Woods @marydixonwoods.bsky.social · 13/01/2025
Looking for a great overview of the evidence on scale-up and sustainability of innovation and improvement in healthcare? Here you go - part of the open access @thisinstitute.bsky.social series and authored by the mighty @trishgreenhalgh.bsky.social and team. www.cambridge.org/core/element...
cambridge.org
Approaches to Spread, Scale-Up, and Sustainability
Cambridge Core - Medicine: General Interest - Approaches to Spread, Scale-Up, and Sustainability
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Ali Kay @genomics-ali.bsky.social · 13/01/2025
Day 13 of #REDJanuary Keeping active every day in January.
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Ali Kay @genomics-ali.bsky.social · 10/01/2025
This was such an engaging talk!
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Ali Kay @genomics-ali.bsky.social · 10/01/2025
Choose 20 books that have stayed with you. One book per day. No explanations, no reviews, just covers. #booksky Day 12
Book cover for Tessa Hadley’s After the Funeral.
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Dr Chris Whitaker @christheowl.bsky.social · 09/01/2025
I’m entering the final stages of data collection on research I’m doing into disability employment. If you have a physical disability and are UK based, I’d be especially grateful to hear from you. The survey is at: cambridge.eu.qualtrics.com/jfe/form/SV_... #AcademicSky #Disability
cambridge.eu.qualtrics.com
Qualtrics Survey | Qualtrics Experience Management
The most powerful, simple and trusted way to gather experience data. Start your journey to experience management and try a free account today.
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Centre for Personalised Medicine @cpmoxford.bsky.social · 08/01/2025
#january Day 8 How might #NewbornGenomeScreening change a baby’s story? Check out this @bmj.com article by @rachel-horton.bsky.social, @alucassen.bsky.social & others exploring some of the challenges raised:
bmj.com
Challenges of using whole genome sequencing in population newborn screening
Rachel Horton and colleagues argue that making sense of genomic variation in newborn babies is difficult, so the UK Generation Study will analyse only a tiny proportion of the genome. Why then is it…
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Ali Kay @genomics-ali.bsky.social · 09/01/2025
Choose 20 books that have stayed with you. One book per day. No explanations, no reviews, just covers. #booksky Day 11
Book cover for Claire Keegan’s Walk the Blue Fields.
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Ali Kay @genomics-ali.bsky.social · 09/01/2025
Days 7, 8 & 9 of #REDJanuary Getting out and being active every day in January.
Liverpool waterfront. It is quiet. Midday but low sun. The path is wet and slippy. The sun illuminates the River Mersey. A footpath and road, inclining upwards and to the left. It is tree lined and empty. The sun is setting and the horizon is orange.A treelined street on a cold winter day. The sky is blue. A few white houses can be seen.
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Centre for Personalised Medicine @cpmoxford.bsky.social · 07/01/2025
#january Day 7 Less than a month to go until this year’s CPM #ResearchShowcase, with a theme of #PersonalisedPrevention! More details and sign up here, it’s going to be a great day:
cpm.ox.ac.uk
Research Showcase - cpm
Personalised prevention aims to tailor preventative health strategies to individual characteristics, for example, genetic, lifestyle or environmental factors. The aim is to prevent or delay the onset…
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Ali Kay @genomics-ali.bsky.social · 07/01/2025
Choose 20 books that have stayed with you. One book per day. No explanations, no reviews, just covers. #booksky Day 10
Book cover for The Four Winds by Kristin Hannah
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Centre for Personalised Medicine @cpmoxford.bsky.social · 06/01/2025
#january Day 6 As some of us take down decorations today, take a look at this EJHG article from @rachel-horton.bsky.social, Leah Boyle, @drsusieweller.bsky.social & @alucassen.bsky.social about how you can still find the sparkle in pictures of #DNA!:
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Glowing gels and pipettes aplenty: how do commercial stock image banks portray genetic tests? - European Journal of Human Genetics
European Journal of Human Genetics - Glowing gels and pipettes aplenty: how do commercial stock image banks portray genetic tests?
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Ali Kay @genomics-ali.bsky.social · 06/01/2025
Days 5 & 6 of #REDJanuary
Street with snow.Street in golden sun.
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