Reposted by Snow
How many young people suffer Ehlers-Danlos Syndrome (EDS) or associated vascular compression syndromes? No treatment in Aotearoa NZ and little understanding by doctors. Story tells of 2 families fundraising for overseas treatment. I know others. Why no NZ help?
#NZpol
www.stuff.co.nz/society/3607...
stuff.co.nz
Teen was told the crippling stomach pain she suffered was in her head - it wasn’t
A leading vascular surgeon is angry and frustrated that patients like Amelia Turner are told their symptoms are eating disorders before a correct diagnosis is made.