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@forseps.bsky.social
152 followers 360 following 373 posts

⚠️ #MultipleSclerosis has #NoCure #SmoulderingMS #SEP #ScléroseEnPlaques / #HERVs / Human endogenous retrovirus HERV-W in #MS NoDM #QuitX 01/20/2025 ✅

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forSEPs @forseps.bsky.social · 02/08/2025
www.sciencedaily.com/releases/202...
sciencedaily.com
Fatigue, anxiety, pain? They might be MS in disguise
New research suggests that multiple sclerosis (MS) may quietly begin affecting the body up to 15 years before the first obvious neurological symptoms appear. Researchers found a steady increase in hea...
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The MS Wire @themswire.bsky.social · 25/07/2025
A new study to measure MS fatigue using an app is looking for participants, and - get this - the upper age limit is 89! I wish other researchers would include multiples clerosis seniors. www.nationalmssociety.org/how-you-can-... #MS #disability #multiplesclerosis
nationalmssociety.org
Empowering people affected by MS to live their best lives
The National Multiple Sclerosis Society exists because there are people with MS. Our vision is a world free of MS.
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forSEPs @forseps.bsky.social · 02/07/2025
www.biopharmadive.com/news/fda-app... 👇
biopharmadive.com
5 FDA decisions to watch in the third quarter of 2025
The agency is set to decide by September on new therapies from Capricor Therapeutics, Scholar Rock and Ionis, among others.
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brandon-beaber.bsky.social @brandon-beaber.bsky.social · 29/06/2025
You had MS even before you had symptoms. This study found increased absenteeism from work 6 years prior to diagnosis. jnnp.bmj.com/content/earl...
jnnp.bmj.com
Prodromal phase of multiple sclerosis: evidence from sickness absence patterns before disease onset – a matched cohort study
Background We aimed to investigate the prodromal phase of multiple sclerosis (MS) by investigating annual sickness absence rates before MS onset. Methods A retrospective cohort study was conducted us...
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Prof G @gavingiovannoni.bsky.social · 27/06/2025
#BrainHealth – #TimeMatters: Multiple Sclerosis, NMOSD, MOGAD, and Related Conditions. 2024 report Changing the management and outcome of MS and related disorders, one policy at a time. Please download, read, copy, distribute, and act now. buff.ly/LNAFNp0
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forSEPs @forseps.bsky.social · 19/06/2025
✅️
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forSEPs @forseps.bsky.social · 18/06/2025
⚠️ Dog Nearly Dies from Ingesting #MultipleSclerosis Medication www.prnewswire.com/news-release...
prnewswire.com
Dog Nearly Dies from Ingesting Multiple Sclerosis Medication
/PRNewswire/ -- When people with multiple pets get home to find something unexpected, missing or destroyed, they often don't know which furry family member to...
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UC San Diego Health Sciences @ucsdhealthsci.bsky.social · 09/06/2025
Despite appearing outwardly healthy, children with #MS showed DNA patterns indicating they were biologically older than their peers #EpigeneticAging #MultipleSclerosis buff.ly/lXRELoP
buff.ly
UC San Diego Researchers Find Evidence of Accelerated Aging in Children with Multiple Sclerosis
The study focused on children and teenagers not yet impacted by the processes of normal aging and age-related illnesses like hypertension and diabetes. Despite appearing outwardly healthy, children…
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forSEPs @forseps.bsky.social · 04/06/2025
Bad news, #MultipleSclerosis has no cure & the prevalence worldwide is rising according to several publications. FYI @italoromeno.bsky.social let's hope that they can sell their technology soon, we need a DMT to neutralize the pHERV-w env, & tackle the neurodegeneration in #MS. Otherwise 😰
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forSEPs @forseps.bsky.social · 04/06/2025
😤 bad news "...Lead author Dr Natalia Boven, a postdoctoral fellow from the University’s COMPASS Research Centre, says the study found the MS prevalence rate had climbed to 96.6 per 100,000 people as of June 2022, an increase from 72.4 per 100,000 in 2006. 👇 auckland.scoop.co.nz/2025/06/mult...
auckland.scoop.co.nz
Auckland.Scoop » Multiple Sclerosis Prevalence On The Sharp Increase: Study
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Tina Meyer 🕊🫂#resist🇺🇦 4 democracy @tinameyer.bsky.social · 02/06/2025
Oui la #SEP c'est de la m. Et ça peut tuer jeune, ça me fout en colère qu'on ne pousse pas la et recherche, quel gâchis 😡😡 👇 www.dailymail.co.uk/sport/footba...
dailymail.co.uk
Former footballer dies aged 45 after 11-year battle with MS
Tom Youngs passed away on Sunday evening at a hospice in Bury St Edmunds. He played for Cambridge United, Northampton Town, Leyton Orient, and Bury.
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Prof G @gavingiovannoni.bsky.social · 02/06/2025
NOBEL SYMPOSIUM™ Multiple Sclerosis: Past, Present and Future Treatments What do you think of the programme? Have your say => buff.ly/s2JRZbq
gavingiovannoni.substack.com
NOBEL SYMPOSIUM™ Multiple Sclerosis: Past, Present and Future Treatments
2nd-5th of June 2025 | Jacob Berzelius lecture hall | Stockholm, Sweden
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brandon-beaber.bsky.social @brandon-beaber.bsky.social · 30/05/2025
Accelerated approval of neurology drugs is under scrutiny such as controversial FDA approvals of aducanumab (Aduhelm) and eteplirsen (Exondys 51). Do you favor accelerated approval or a strict requirement of class Ia evidence? journals.lww.com/neurotodayon...
journals.lww.com
FDA Accelerated Approvals Are Under Scrutiny: Neurology... : Neurology Today
An abstract is unavailable.
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Tina Meyer 🕊🫂#resist🇺🇦 4 democracy @tinameyer.bsky.social · 30/05/2025
Accessoirement les « lourdauds » du clip, je ne les compte plus… Hier soir, me suis fait aboyer par deux petits chiens, que ma 🩼 dérangeait, selon leur propriétaire. Rien dit mais pensé très fort: 🤬🤬 🤬🤬
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Tina Meyer 🕊🫂#resist🇺🇦 4 democracy @tinameyer.bsky.social · 30/05/2025
Regardez ce clip de la campagne de sensibilisation 2025 fait pae la Société Suisse de la Sclérose En Plaques Je ne peux toujours pas voir ça sans avoir envie de hurler ma révolte face aux handicaps inévitables et à l'aggravation constante de cette maladie de m. youtu.be/o-auua3V76o?...
youtu.be
Journée Mondiale de la SEP 2025 – rendre visible l’invisible
YouTube video by Société suisse de la sclérose en plaques
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Sabela DeScience @sabeladescience.bsky.social · 30/05/2025
🧠Today is World MS Day 💙 Re-sharing one of my first infographics to raise awareness of multiple sclerosis and its many invisible symptoms. #WorldMSDay #MultipleSclerosis #MSAwareness
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Tina Meyer 🕊🫂#resist🇺🇦 4 democracy @tinameyer.bsky.social · 30/05/2025
"Aujourd'hui, c'est la Journée mondiale de la sclérose en plaques Je partage à nouveau l'une de mes premières infographies (pour sensibiliser le public à la sclérose en plaques et à ses nombreux symptômes invisibles) :" #SEP #ScléroseEnPlaques #Journée Mondiale SEP 2025 #Handicap #Incurable 👇👇
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forSEPs @forseps.bsky.social · 28/05/2025
multiplesclerosisnewstoday.com/news-posts/2... Bad news
multiplesclerosisnewstoday.com
Antihistamine clemastine may worsen MS disease progression
Clemastine fumarate, an antihistamine, boosted disease progression by more than five times in adults with progressive MS, per a study.
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forSEPs @forseps.bsky.social · 27/05/2025
multiplesclerosisnewstoday.com/news-posts/2...
multiplesclerosisnewstoday.com
Walk in New York opens to aid access to advanced mobility devices...
Wandercraft's Walk in New York offers sessions with rehabilitation therapists and walking sessions with its robotic exoskeleton Atalante X.
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forSEPs @forseps.bsky.social · 27/05/2025
"Catch-up on the Progressive #MS Alliance webcasts" 👇👇 www.msif.org/internationa...
msif.org
Sign up to the next Progressive MS Alliance webcast % %
Don’t miss this breaking news webcast on progressive MS research live from the International Progressive MS Alliance Scientific Congress in Vienna, Austria. Hear the results from 17 innovative researc...
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forSEPs @forseps.bsky.social · 27/05/2025
"How many children and adolescents are living with MS across the world?" 👇 www.msif.org/news/2025/02...
msif.org
How many children and adolescents are living with MS across the world? - MS International Federation
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forSEPs @forseps.bsky.social · 27/05/2025
"World MS Day: How Breakthroughs in Diagnostics Are Shaping MS Treatment" www.metropolisindia.com/blog/prevent...
metropolisindia.com
World MS Day: Theme, Importance & Success Stories
Discover how early MS diagnosis is transforming lives. This World MS Day, learn about the breakthroughs giving hope to millions living with multiple sclerosis.
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brandon-beaber.bsky.social @brandon-beaber.bsky.social · 26/05/2025
Are doctors missing early signs of pediatric multiple sclerosis. In this study, children subsequently diagnosed with MS had years of increased medical care utilization. pubmed.ncbi.nlm.nih.gov/40407117/
pubmed.ncbi.nlm.nih.gov
Health care use preceding pediatric multiple sclerosis: A population-based study from Ontario, Canada - PubMed
Youth with pediatric-onset MS exhibit increased health care use from birth. Early life may be a risk period for MS. A prodromal phase may emerge 6 years before the onset of typical MS symptoms.
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forSEPs @forseps.bsky.social · 26/05/2025
"Journée mondiale de la Sclérose en Plaques 2025 : date, thème 120 000 personnes ont la sclérose en plaques en France, 75% sont des femmes.(...)" sante.journaldesfemmes.fr/fiches-sante...
sante.journaldesfemmes.fr
Journée mondiale de la Sclérose en Plaques 2025 : date, thème
120 000 personnes ont la sclérose en plaques en France, 75% sont des femmes.
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forSEPs @forseps.bsky.social · 26/05/2025
www.multiplesklerose.ch/fr/engagemen...
multiplesklerose.ch
Journée Mondiale de la SEP
#enSEmblePlusforts | Ensemble contre les préjugés même en 2025
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forSEPs @forseps.bsky.social · 26/05/2025
www.independent.co.uk/news/health/...
independent.co.uk
MS patient says her life is ‘crumbling’ after switch to cheaper drug
Julie Cowdrill said the switch to Tyruko was like having ‘the rug pulled from under my feet’ as she suffered a dramatic setback in her condition
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forSEPs @forseps.bsky.social · 26/05/2025
www.thewhig.com/news/kingsto...
thewhig.com
Kingston and Belleville come together at Lake Ontario Park for annual MS Walk
MS Canada’s MS Walk for Kingston and Belleville took place at Kingston's Lake Ontario Park on Sunday. Over a hundred people attended.
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forSEPs @forseps.bsky.social · 26/05/2025
www.cbsnews.com/colorado/new...
cbsnews.com
Colorado woman runs 189 miles to raise awareness about multiple sclerosis
While a lot of people are relaxing on Memorial Day weekend, one Colorado woman is spending her week raising awareness about multiple sclerosis by running further than some people will run in their liv...
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forSEPs @forseps.bsky.social · 26/05/2025
ici.radio-canada.ca/nouvelle/216...
ici.radio-canada.ca
Marche contre la sclérose en plaques à Winnipeg
La marche a débuté dimanche vers midi au parc Kildonan et a rassemblé plus de 700 personnes.
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forSEPs @forseps.bsky.social · 26/05/2025
telanganatoday.com/world-ms-day...
telanganatoday.com
World MS Day: Hyderabad unites for multiple sclerosis awareness
The event brought together persons with MS, their families, and supporters in a lively and meaningful gathering.
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Tina Meyer 🕊🫂#resist🇺🇦 4 democracy @tinameyer.bsky.social · 20/05/2025
"FDA sets stricter approval standards for COVID vaccines Commissioner Martin Makary and top vaccine official Vinay Prasad say the agency will require more rigorous testing before clearing new shots for healthy children and adults 65 and under.(...)" 👇👇
biopharmadive.com
FDA sets stricter approval standards for COVID vaccines
The agency will now require randomized, controlled data before approving new COVID shots for healthy children and adults, Commissioner Martin Makary and top vaccine official Vinay Prasad wrote in NEJM...
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forSEPs @forseps.bsky.social · 20/05/2025
Anyone here tried it? #MultipleSclerosis #Gait "...Shepherd Center’s Dr. Deborah Backus to Showcase Final Results of PoNSTEP Study, Providing New Insight into Maximizing Impact of Neuromodulation to Improve Gait in People with #MS (...)" 👇👇
globenewswire.com
Helius to Spotlight Study Confirming Improved Long-Term Outcomes from Adherence to PoNS Therapy® at CMSC Annual Meeting
Shepherd Center’s Dr. Deborah Backus to Showcase Final Results of PoNSTEP Study, Providing New Insight into Maximizing Impact of Neuromodulation to Improve...
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Healthcare in Europe @healthcare-europe.bsky.social · 12/05/2025
A new #biomarker for #MultipleSclerosis: a team led by 🇫🇮 @utu.fi, with 🇩🇪 University Hospital Münster and 🇳🇱 @nin-knaw.bsky.social has found the inflammatory cell rim from microglial cells surrounding #brain lesions to directly correlate with the severity and speed of disease progression.
healthcare-in-europe.com
Broad rim lesions predict multiple sclerosis progression
Researchers at the University of Turku have discovered a new biomarker that can predict the progression of multiple sclerosis (MS).
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Tina Meyer 🕊🫂#resist🇺🇦 4 democracy @tinameyer.bsky.social · 12/05/2025
"Readers’ Forum: Congress must restore funding to the #MultipleSclerosis Research Program" ⚠️⚠️ #MS has 🅾️ CURE & is so unpredictable Is this normal, being young, 👩‍🦽 and later 🛌 ??? There could be a far better quality of life if #MS could be stopped.
deseret.com
Readers’ Forum: Congress must restore funding to the Multiple Sclerosis Research Program
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Max-Planck-Gesellschaft @maxplanck.de · 13/05/2025
In a twin study, Max Planck researchers successfully characterized gut bacteria involved in #MultipleSclerosis and provided evidence of their pathogenicity. www.mpg.de/24685137/050... @mpiforbi.bsky.social
mpg.de
Multiple sclerosis: Triggers in the gut flora
Study of twins detects bacteria in the small intestine that play a role in the development of MS
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brandon-beaber.bsky.social @brandon-beaber.bsky.social · 07/05/2025
CAR-T Therapy for Multiple Sclerosis Explained by Neurologist youtu.be/xxwE-KzP7H0?...
youtu.be
CAR-T Therapy for Multiple Sclerosis Explained by Neurologist
YouTube video by Dr. Brandon Beaber
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brandon-beaber.bsky.social @brandon-beaber.bsky.social · 08/05/2025
Data on tolebrutinib in the HECULES trial for progressive MS. There was a modest benefit in reducing disability progression and increasing disability improvement and improvement of walking speed. There was no benefit in hand function as measured by the 9 hole peg test.
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forSEPs @forseps.bsky.social · 13/05/2025
" #MultipleSclerosis Drugs Market Size, Share and Trends 2025 to 2034" 👇
precedenceresearch.com
Multiple Sclerosis Drugs Market Size to Hit USD 45.90 Bn by 2034
The global multiple sclerosis drugs market size is estimated to hit around USD 45.90 billion by 2034 increasing from USD 21.26 billion in 2024, with a CAGR of 8.00%.
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MS Sucks 🎗 @itreallydoes.com · 08/05/2025
Predicting progression of #MS www.eurekalert.org/news-release...
eurekalert.org
New biomarker for predicting progression of multiple sclerosis identified
Researchers at the University of Turku, Finland, have discovered a new biomarker that can predict the progression of multiple sclerosis (MS).
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MS Sucks 🎗 @itreallydoes.com · 07/05/2025
What is #MS
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theMSguide.com @themsguide.com · 01/05/2025
THE FIRST PERSON WITH MS TO CYCLE ACROSS CANADA ON A RECUMBENT TRIKE With NO CREW youtube.com/shorts/9Ity2...
youtube.com
THE FIRST PERSON WITH MS TO CYCLE ACROSS CANADA ON A RECUMBENT TRIKE With NO CREW
YouTube video by theMSguide | Riding Canada 4 MS
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Tina Meyer 🕊🫂#resist🇺🇦 4 democracy @tinameyer.bsky.social · 05/05/2025
Au milieu de toutes ces actus 😫, en voici une 🆙️ 😄 Ce gars , #SEP depuis 33 ans , a commencé le 1.5.25 sa traversée, seul, du 🇨🇦 en vélo Tryke pour récolter des fonds pour la recherche SEP. 🟢🟢 Pourquoi on ne parle pas plus de lui ici ??? Suivez-le c'est juste un exploit incroyable ... GO Dom ✌️👊👏
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forSEPs @forseps.bsky.social · 02/05/2025
Worth a read : 👇
medscape.com
What Not to Say to Patients With Serious Illnesses
Here’s what clinicians should avoid saying to patients facing serious illness.
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forSEPs @forseps.bsky.social · 02/05/2025
« In patients with #multiplesclerosis (MS), higher disability scores were associated with lower levels of vitamin B6; however, #endurance #exercise resulted in an increase in levels of vitamins B6 and B2 in patients with greater disability, a secondary analysis of a new trial showed.(…) » 👇👇
medscape.com
Vitamins B6, B2 Rise After Exercise in Severe MS
The severity of multiple sclerosis is associated with lower levels of vitamin B6, but exercise may boost levels of vitamins B6 and B2 in patients with more severe disease, a study finds.
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StockTitan @stocktitan.net · 30/04/2025
#IMUX Immunic Announces Vidofludimus Calcium Reduced Risk of Disability Worsening by 30% in Primary Progressive Multiple Sclerosis Patients from Phase 2 CALLIPER Trial www.stocktitan.net/news/IMUX/immuni…
stocktitan.net
Breakthrough in Primary Progressive MS: Clinical Trial Shows 30% Reduced Disability Risk
Phase 2 CALLIPER trial reveals promising neuroprotective effects in MS patients. Vidofludimus calcium shows strong efficacy in disability prevention. See full data.
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themsblog.bsky.social @themsblog.bsky.social · 27/04/2025
New post: Antibiotics as the Cure for MS multiple-sclerosis-research.org/202…
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thebuddoc.bsky.social @thebuddoc.bsky.social · 23/04/2025
Im still Not buying Tesla. Im not buying stock in Tesla. Im not reactivating my twitter account. #TeslaTakeDown #MakeMuskPoor
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forSEPs @forseps.bsky.social · 22/04/2025
Pple with #MultipleSclerosis or others, please 💙🩵 share this video, answers are needed from #Fedex 👇👇
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