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Luise

@flodderluise.bsky.social
202 followers 238 following 644 posts

in Ruhe, gesund und zufrieden vor mich hinleben - ist das zu viel verlangt? #ms #multipleSklerose #meningeom #morbusCrohn #covidIsNotOver #wirSindMehr

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Reposted by Luise
dribavet @dribavet.bsky.social · 13/07/2026
Wenn du mit Maske im Wartezimmer sitzt und sich neu Hinzugekommene lieber in die Ecke zu dem Mädchen mit der Kotztüte setzen, dann weißt du, dass du in Deutschland bist. 🥰 #TeamVorsicht #CleanAir #MaskUp
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Florian Aigner @florianaigner.at · 13/07/2026
Für alle, die jetzt sagen "aber diese Hitzetoten, das sind doch nur Leute, die ohnehin gestorben wären", habe ich eine ganz bittere Nachricht: Alle Menschen sind Leute, die ohnehin gestorben wären, immer.
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🌈Dana Maresa 🇺🇦 @danamaresa.bsky.social · 11/07/2026
Liebe ärztliche Kolleg*innen.. Ich habe das Gefühl, dass es an der Zeit wäre mobil zu machen gegen eine Regierung, die das Gesundheitssystem aushöhlen wird. Ich weiß, wie wenig Zeit neben Diensten und dem allgemeinen Leben bleibt, aber bekommen wir vielleicht eine Fotokampagne hin, die viral geht?
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Dr. Karen v. Mücke @vmuecke.bsky.social · 11/07/2026
Das GKV Spargesetz schadet den Patienten und belastet besonders die niedergelassenen Ärzte, Psychotherapeuten und Apotheken. Das sind diejenigen im Gesundheitswesen, die vor Ort die medizinische Versorgung der Bevölkerung gewährleisten. ⬇️
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DER SPIEGEL @spiegel.de · 11/07/2026
Mit dem schwarz-roten Heizungsgesetz steuert Deutschland in weitere Wirren und Verzögerungen beim Klimaschutz. Eine neue Studie zeigt, wie Empörung fern der Fakten in die öffentliche Debatte geriet.
spiegel.de
Heizungsgesetz: Desinformation wirkt
Mit dem schwarz-roten Heizungsgesetz steuert Deutschland in weitere Wirren und Verzögerungen beim Klimaschutz. Eine neue Studie zeigt, wie Empörung fern der Fakten in die öffentliche Debatte geriet.
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Reposted by Luise
Claas Gefroi @claasgefroi.bsky.social · 10/07/2026
"Bis zu 720 Euro weniger pro Monat müssen Hinterbliebene dann verkraften. Die Rentenkommission verkauft das als moderne Partnerschaft. Tatsächlich trifft es vor allem Frauen, die wegen Kindern oder Pflege weniger gearbeitet haben."
merkur.de
Witwenrente fällt weg: Bis zu 720 Euro weniger im Monat – was Ehepaare jetzt wissen müssen
Die Rentenkommission will die Witwenrente durch Rentensplitting ersetzen. Klingt fair, kostet Hinterbliebene aber bis zu 720 Euro monatlich.
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Frau Nora @fraunora.bsky.social · 10/07/2026
Damit ist klar: Besser nicht krank werden. Besser nicht arm sein. Besser nicht chronisch krank sein. Besser keine Behinderungen haben. Besser nicht alt werden. Was für ein Armutszeugnis für eine so reiche Gesellschaft wie unsere.
tagesschau.de
Bundestag stimmt für Krankenkassen-Sparpaket
Der Bundestag hat für Einsparungen bei der gesetzlichen Krankenversicherung gestimmt. Das Gesetz mit Ausgabenbremsen und höheren Zuzahlungen soll neue Beitragserhöhungen verhindern. Noch heute wird au...
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Reposted by Luise
4linblue GG-Ultra @4linblue.bsky.social · 10/07/2026
Also kein TAVI mehr beim asymptomatischen 90jährigen? Keine WS-Versteifungen bei exzessiven Bierbäuchen? Kein Kniegelenksersatz beim ersten „Aua“? Prima.
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Laserbrille 💚 @laserbrille.bsky.social · 28/06/2026
Na super #ARD #Tagesthemen 🥳 Die häufigsten Wörter sind Hitze & Rekord - aber die Wörter Klima & Klimawandel kommen exakt NULL mal vor. 🤔
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Chronic Illness Humor @chronicillness.bsky.social · 05/06/2026
@hervoiceproject - My body is like a cheap IKEA shelf: everything’s wobbly, one wrong move and the whole fucking thing collapses
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brandon-beaber.bsky.social @brandon-beaber.bsky.social · 30/05/2026
People with lower levels of NCS1 (Neuronal Calcium Sensor 1), expressed in neurons with effects on synaptic transmission and plasticity, have a greater risk of multiple sclerosis decades later. (data from United Kingdom Biobank) onlinelibrary.wiley.com/doi/10.1002/...
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brandon-beaber.bsky.social @brandon-beaber.bsky.social · 30/05/2026
Disability progression in children with MS who initiate high-efficacy disease modifying therapy as children (blue) vs. waiting until adulthood (Red). Mean difference in EDSS increase 0.53. (Data from MSBase; observational study, not a randomized trial) www.neurology.org/doi/10.1212/...
neurology.org
Use of High-Efficacy Therapy in Children With Multiple Sclerosis to Prevent Long-Term Disability | Neurology
Background and ObjectivesChildren with multiple sclerosis (MS) are increasingly treated with high-efficacy monoclonal antibody therapies; however, treatment approaches vary widely, largely because of ...
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brandon-beaber.bsky.social @brandon-beaber.bsky.social · 30/05/2026
Children who underwent tonsillectomy "had a 63% increased odds of MS (adjusted odds ratio (OR) = 1.63, 95% confidence interval (CI) = 1.01-2.64, p = 0.046)." Case control study; senior author Dr. Emmanuelle Waubant (UCSF) pubmed.ncbi.nlm.nih.gov/42212792/
pubmed.ncbi.nlm.nih.gov
Adenotonsillectomy is associated with increased risk and disease activity in pediatric-onset multiple sclerosis - PubMed
Prior adenotonsillectomy was associated with increased risk of MS and greater relapse rate in pediatric patients, suggesting a potential interplay between EBV, immune regulation, and MS pathogenesis.
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brandon-beaber.bsky.social @brandon-beaber.bsky.social · 30/05/2026
The ORATORIO-HAND study, a randomized trial in ocrevus vs. placebo in primary progressive multiple sclerosis, including older patients and those with more advanced disease, is now PUBLISHED. pubmed.ncbi.nlm.nih.gov/42208561/
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brandon-beaber.bsky.social @brandon-beaber.bsky.social · 30/05/2026
A 58-year-old woman taking rituximab had an MRI consistent with multiple sclerosis (A), but upon worsening symptoms, a new MRI revealed a large enhancing lesion (b/c). Diagnosis? Hint: you and ChatGPT will fail to guess this one.
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Katharina Kanzan @kathakritzelt.bsky.social · 31/05/2026
Forschende der Universität Rochester haben ein solarthermisches System entwickelt, das Meerwasser ohne Chemie entsalzt, sich selbst reinigt und dabei Lithium für Batterien gewinnt. 💧💧💧 Es gibt zu viele negative News, deswegen poste ich jeden Tag eine #guteNewsdesTages.
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brandon-beaber.bsky.social @brandon-beaber.bsky.social · 28/05/2026
Italy is accusing biogen of trying to block Sandoz's Tyruko, a biosimilar version of Tysabri, by limiting access to the anti-JCV Stratify test to Tysabri Users. The JC virus antibody test assesses the risk of PML, a rare brain infection with these drugs. www.reuters.com/legal/litiga...
reuters.com
Italy probes Biogen for allegedly hindering sales of rival's MS drug
Italy's antitrust authority (AGCM) said on Wednesday it had opened an investigation ​into Biogen Italia and its U.S. parent Biogen over ‌allegedly trying to prevent rival drugmaker Sandoz from offerin...
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brandon-beaber.bsky.social @brandon-beaber.bsky.social · 29/05/2026
In this analysis of 10,499 people in the French MS Registry, stronger MS disease modifying therapies were NOT more effective in preventing progression independent of both relapses and MRI activity (PIRMA) compared to modestly effective therapies. academic.oup.com/brain/advanc...
academic.oup.com
High-efficacy therapy and progression independent of relapse and MRI activity in multiple sclerosis
This scientific commentary refers to ‘Progression independent of relapse and MRI activity and treatment strategies in multiple sclerosis’ by Rollot et al.
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brandon-beaber.bsky.social @brandon-beaber.bsky.social · 29/05/2026
Multiple sclerosis tends to lead to a decrease in future income years after diagnosis, even in people who are still able to work (Data from Norway) onlinelibrary.wiley.com/doi/10.1111/...
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brandon-beaber.bsky.social @brandon-beaber.bsky.social · 29/05/2026
Kappa Free Light Chains Explained! youtube.com/shorts/vNXBJ...
youtube.com
Kappa Free Light Chains Explained!
YouTube video by Dr. Brandon Beaber
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brandon-beaber.bsky.social @brandon-beaber.bsky.social · 27/04/2026
7 Tesla MRI of the spinal cord in multiple sclerosis reveals lesions which were invisible on 3 Tesla MRI. pubmed.ncbi.nlm.nih.gov/42031644/
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brandon-beaber.bsky.social @brandon-beaber.bsky.social · 28/04/2026
Dr Chu-Yueh Guo summarized some of the clinical trials data in multiple sclerosis presented at the #AANAM 2026 meeting. Tolebrutinib, fenebrutinib, gilenya, and ocrevus. www.medscape.com/viewarticle/...
medscape.com
AAN 2026: Key RRMS Clinical Trial Updates
Dr Chu-Yueh Guo discusses promising MS trial results, including a study of fenebrutinib and positive safety data for ocrelizumab in pregnancy and pediatric patients.
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brandon-beaber.bsky.social @brandon-beaber.bsky.social · 29/04/2026
Dr. Aaron Boster is Right About This youtu.be/F8Yne4_Vpi4?...
youtu.be
Dr. Aaron Boster is Right About This
YouTube video by Dr. Brandon Beaber
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Prof G @gavingiovannoni.bsky.social · 30/04/2026
#MS_Selfie Q&A 161: How to make someone with MS eligible for tolebrutinib Welcome to the farce we call MS clinical practice => buff.ly/rEoAb3z
gavingiovannoni.substack.com
Q&A 161: how to make someone with MS eligible for tolebrutinib
Welcome to the farce we call MS clinical practice.
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brandon-beaber.bsky.social @brandon-beaber.bsky.social · 30/04/2026
How many people with multiple sclerosis are taking GLP1 drugs (i.e. ozempic and wegovy)? According to the NARCOMS Registry, only about 5.5%, but nearly 40% have a condition they treat (i.e. obesity or type 2 diabetes) journals.sagepub.com/doi/10.1177/...
journals.sagepub.com
Sage Journals: Discover world-class research
Subscription and open access journals from Sage, the world's leading independent academic publisher.
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brandon-beaber.bsky.social @brandon-beaber.bsky.social · 30/04/2026
Risk of Progression independent of relapse and MRI activity (PIRMA) in people with MS on low/moderate efficacy vs. highly effective disease modifying therapy. pubmed.ncbi.nlm.nih.gov/42057337/
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brandon-beaber.bsky.social @brandon-beaber.bsky.social · 01/05/2026
The OLYMPUS trial (rituximab vs. placebo in primary progressive multiple sclerosis). Rituximab appeared to be most effective in younger people with active lesions (bottom right corner, data is proportion with disability progression). pubmed.ncbi.nlm.nih.gov/19847908/
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brandon-beaber.bsky.social @brandon-beaber.bsky.social · 01/05/2026
Georgia softball pitcher Addisen Fisher reveals that she has multiple sclerosis. proofpointisolation.com/browser?url=...
proofpointisolation.com
Proofpoint Isolation Login
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brandon-beaber.bsky.social @brandon-beaber.bsky.social · 01/05/2026
Balo's concentric sclerosis (a multiple sclerosis variant). www.youtube.com/shorts/K_Ibc...
youtube.com
Balo's Concentric Sclerosis
YouTube video by Dr. Brandon Beaber
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brandon-beaber.bsky.social @brandon-beaber.bsky.social · 03/05/2026
Dairy consumption has previously been linked to multiple sclerosis, but this Iranian study looked at late onset MS (mean age 61) vs. prior dairy consumption during adolescence, and those in the top third of dairy consumption had 79% lower risk. pubmed.ncbi.nlm.nih.gov/42070054/
pubmed.ncbi.nlm.nih.gov
The influence of adolescent diet on the occurrence of late-onset multiple sclerosis: a population-based case-control study - PubMed
This research highlights the advantageous impact of dairy products, seafood, nuts, fruits, and vegetables in lowering the LOMS odds. Hence, advocating for nutrition role in development of LOMS could r...
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brandon-beaber.bsky.social @brandon-beaber.bsky.social · 03/05/2026
What foods consumed by teenagers predict lower future risk of late onset multiple sclerosis? Dairy (HR 0.21), seafood (HR 0.32), nuts (HR 0.37), fruits (HR 0.22, and vegetables (HR 0.26) [Data from Iran] pubmed.ncbi.nlm.nih.gov/42070054/
pubmed.ncbi.nlm.nih.gov
The influence of adolescent diet on the occurrence of late-onset multiple sclerosis: a population-based case-control study - PubMed
This research highlights the advantageous impact of dairy products, seafood, nuts, fruits, and vegetables in lowering the LOMS odds. Hence, advocating for nutrition role in development of LOMS could r...
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brandon-beaber.bsky.social @brandon-beaber.bsky.social · 04/05/2026
How @aaronbostermd.bsky.social uses the Octave MS Blood Test (Real Cases) youtu.be/TBEIW6ByM1U?...
youtu.be
How I Actually Use the Octave MS Blood Test (Real Cases)
YouTube video by Aaron Boster MD
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brandon-beaber.bsky.social @brandon-beaber.bsky.social · 06/05/2026
Fenebrutinib Deaths. An explanation of the 15 deaths in people taking fenebrutinib, and investigational BTK inhibitor, in multiple sclerosis clinical trials. youtu.be/TxP2ZjwSTXQ?...
youtu.be
Fenebrutinib Deaths
YouTube video by Dr. Brandon Beaber
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brandon-beaber.bsky.social @brandon-beaber.bsky.social · 06/05/2026
Low back pain and arachnoiditis (clumping of the nerve roots) causing low back pain as a complication of Intrathecal Mesenchymal Stem Cell injection as an experimental Progressive Multiple Sclerosis treatment which was ineffective in this randomized trial pubmed.ncbi.nlm.nih.gov/42081777/
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brandon-beaber.bsky.social @brandon-beaber.bsky.social · 08/05/2026
a nice description of different forms of fatigue in multiple sclerosis courtesy of ChatGPT. SDMT is "symbol digit modalities test," a measure of processing speed.
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brandon-beaber.bsky.social @brandon-beaber.bsky.social · 08/05/2026
The mechanism of action of medications for multiple sclerosis fatigue. From ChatGPT
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brandon-beaber.bsky.social @brandon-beaber.bsky.social · 08/05/2026
CLIPPERS Chronic lymphocytic inflammation w/ pontine perivascular enhancement responsive to steroids youtube.com/shorts/4xn4W...
youtube.com
CLIPPERS Chronic lymphocytic inflammation w/ pontine perivascular enhancement responsive to steroids
YouTube video by Dr. Brandon Beaber
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brandon-beaber.bsky.social @brandon-beaber.bsky.social · 10/05/2026
The FDA approves ocrevus for pediatric multiple sclerosis www.neurologylive.com/view/fda-app...
neurologylive.com
FDA Approves Ocrelizumab for Pediatric Patients With Relapsing-Remitting Multiple Sclerosis | NeurologyLive - Clinical Neurology News and Neurology Expert Insights
The FDA approval of ocrelizumab for pediatric RRMS expands access to a high-efficacy anti-CD20 therapy for children and adolescents with historically limited treatment options.
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brandon-beaber.bsky.social @brandon-beaber.bsky.social · 12/05/2026
In MS research, there is a strong correlation between preventing relapses and preventing disability progression, but these authors argue tolebrutinib is unique in that it prevents progression out of proportion to its ability to prevent relapses www.neurology.org/doi/10.1212/...
neurology.org
Uncoupling Relapse Reduction and Disability Progression | Neurology Clinical Practice
ObjectivesThe aim of this study was to evaluate whether the treatment effects of tolebrutinib on confirmed disability worsening (CDW) diverge from its effects on relapse prevention compared with other...
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brandon-beaber.bsky.social @brandon-beaber.bsky.social · 12/05/2026
Incidence of multiple sclerosis in men and women at different ages (Data from Switzerland) www.msard-journal.com/article/S221...
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brandon-beaber.bsky.social @brandon-beaber.bsky.social · 12/05/2026
A case report of Enteroviral encephalitis in a 37 year old woman taking kesimpta for multiple sclerosis. IgG was normal and IgM was low. MRI brain (image) shows symmetrical lesions in the thalamus. She improved but with ongoing neuropsychiatric symptoms journals.sagepub.com/doi/10.1177/...
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brandon-beaber.bsky.social @brandon-beaber.bsky.social · 13/05/2026
Ocrevus in Advanced Progressive Multiple Sclerosis youtu.be/ALSLMzpPw3E?...
youtu.be
Ocrevus in Advanced Progressive Multiple Sclerosis
YouTube video by Dr. Brandon Beaber
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brandon-beaber.bsky.social @brandon-beaber.bsky.social · 13/05/2026
A new AI-powered tool called multiplexed MRI (MRx) may potentially be used to assess active multiple sclerosis plaques, removing the need to use gadolinium based contrast agents. www.nature.com/articles/s41...
nature.com
Multiplexed magnetic resonance imaging - Nature
A new approach to magnetic resonance imaging, ‘multiplexed magnetic resonance imaging’, is reported, which enables high-resolution simultaneous multiparametric mapping of multiple molecules in standar...
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brandon-beaber.bsky.social @brandon-beaber.bsky.social · 13/05/2026
Potential mechanisms of action of Bruton's Tyrosine Kinase Inhibitors (i.e. tolebrutinib, fenebrutinib, evobrutinib) in Multiple Sclerosis pubmed.ncbi.nlm.nih.gov/42126690/
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brandon-beaber.bsky.social @brandon-beaber.bsky.social · 15/05/2026
A 12-year-old Italian girl was diagnosed with "radiologically isolated syndrome" (MS plaques without symptoms) after an equipment-test-scan. She was treated with tysabri, and 18 years later, she is stable and works as a geriatric medicine doctor. EDSS=0 pubmed.ncbi.nlm.nih.gov/42133273/
pubmed.ncbi.nlm.nih.gov
Pediatric Radiologically Isolated Syndrome (RIS): A Case with Active Disease 18 Years Later - PubMed
In this case of pediatric RIS, early intervention of a high-efficacy DMT prevented clinical conversion to MS, despite aggressive radiological activity in the pre-treatment phase. The patient remained ...
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brandon-beaber.bsky.social @brandon-beaber.bsky.social · 15/05/2026
Fenebrutinib & Liver Enzyme Elevation youtube.com/shorts/-Z7Ks...
youtube.com
Fenebrutinib & Liver Enzyme Elevation
YouTube video by Dr. Brandon Beaber
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brandon-beaber.bsky.social @brandon-beaber.bsky.social · 18/05/2026
Why I Don’t Always Dose Every 6 Months (MS Explained) by @aaronbostermd.bsky.social He proposes IgG and absolutely lymphocyte count of 600 as a useful marker of safety for b cell depleters (ocrevus/kesimpta/briumvi/rituximab) youtu.be/tAbwmaI4XJ4?...
youtu.be
Why I Don’t Always Dose Every 6 Months (MS Explained)
YouTube video by Aaron Boster MD
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brandon-beaber.bsky.social @brandon-beaber.bsky.social · 18/05/2026
Wealth causes multiple sclerosis? Prevalence of MS in child bearing age women vs. socio-demographic index. pubmed.ncbi.nlm.nih.gov/42148124/
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brandon-beaber.bsky.social @brandon-beaber.bsky.social · 18/05/2026
In Ecuador, multiple sclerosis is very rare with a prevalence of only about 1 in 25,000 www.frontiersin.org/journals/neu...
frontiersin.org
Frontiers | The quality of life in Ecuadorian patients with multiple sclerosis and neuromyelitis optica spectrum disorder and their association with anxiety, depression, fatigue, and disability
BackgroundMS and NMOSD are chronic demyelinating diseases related to demyelinating attacks on the central nervous system which limit quality of life and pred...
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brandon-beaber.bsky.social @brandon-beaber.bsky.social · 19/05/2026
Comedian John Poveromo will host a live 24 hours show on Twitch starting May 27, starting at 8 p.m. ET to support the @mssociety including cast members from popular TV shows “That ’70s Show” and “Sabrina the Teenage Witch.” multiplesclerosisnewstoday.com/news-posts/2...
multiplesclerosisnewstoday.com
'That '70s Show' stars to join livestream to raise funds for MS care
A 24-hour Twitch livestream, Dystopia Tonight, will feature TV, music, and comedy entertainers to raise funds for the National MS Society.
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