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Fiona Robinson, PhD

@fionarobinsonphd.bsky.social

26 followers 48 following 79 posts

Consultant, Medical Writing and Editing ETK: Empowerment Through Knowledge Areas of specialisation: inheritable bleeding disorders, education and research that centres lived experience experts Based in Montréal, Québec, Canada

Posts Replies Media

Fiona Robinson, PhD @fionarobinsonphd.bsky.social · 30/09/2026

Mark #FactorX Deficiency Day with me, 3 days early!😃 Oct 7, 2PM ET In this NBDF Wednesday Webinar Medical and Lived Experience Experts will discuss symptoms, management, and a family's journey with this #UltraRare #BleedingDisorder Don't miss the live Q&A! Pre-register (FREE): bleeding.org/events

Upcoming Events for the Bleeding Disorders Community | NBDF

Discover in-person and virtual events to connect with the bleeding disorders community. Stay informed about upcoming gatherings, workshops, and conferences.

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Fiona Robinson, PhD @fionarobinsonphd.bsky.social · 30/09/2026

TODAY! 2PM ET Pre-register (FREE): bleeding.orge/events

Fiona Robinson, PhD @fionarobinsonphd.bsky.social · 28/09/2026

Explore the journey to a once-weekly treatment for people with hemophilia A and their outcomes through a review of real-world patient cases in this week's NBDF Wednesday Webinar, sponsored by Sanofi. Sept 30, 2PM ET bleeding.org/events #RealWorldData #Hemophilia #Altuviiio

Upcoming Events for the Bleeding Disorders Community | NBDF

Discover in-person and virtual events to connect with the bleeding disorders community. Stay informed about upcoming gatherings, workshops, and conferences.

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Fiona Robinson, PhD @fionarobinsonphd.bsky.social · 23/09/2026

TODAY!! 2PM ET

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Fiona Robinson, PhD @fionarobinsonphd.bsky.social · 16/09/2026

In the Sept 23, 2PM ET NBDF Wednesday Webinar Dr. Tammuella Chrisentery-Singleton will provide practical information to help people with hemophilia and inhibitors and their caregivers feel more informed and prepared when navigating breakthrough bleeds. Pre-register (FREE): Bleeding.org/events

Upcoming Events for the Bleeding Disorders Community | NBDF

Discover in-person and virtual events to connect with the bleeding disorders community. Stay informed about upcoming gatherings, workshops, and conferences.

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Fiona Robinson, PhD @fionarobinsonphd.bsky.social · 09/09/2026

TODAY!! 2PM ET Pre-register (FREE): bleeding.org/events

Upcoming Events for the Bleeding Disorders Community | NBDF

Discover in-person and virtual events to connect with the bleeding disorders community. Stay informed about upcoming gatherings, workshops, and conferences.

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Fiona Robinson, PhD @fionarobinsonphd.bsky.social · 07/09/2026

In this week's NBDF Wednesday Webinar: a whole panel of experts will help us navigate the big changes to #Medicaid coming in January. Learn what the #BleedingDisorders #community needs to do to prepare! Live Q&A Sept 9 2PM ET Pre-register (FREE): bleeding.org/events

Upcoming Events for the Bleeding Disorders Community | NBDF

Discover in-person and virtual events to connect with the bleeding disorders community. Stay informed about upcoming gatherings, workshops, and conferences.

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Fiona Robinson, PhD @fionarobinsonphd.bsky.social · 26/08/2026

TODAY!! 2PM ET bleeding.org/events

Upcoming Events for the Bleeding Disorders Community | NBDF

Discover in-person and virtual events to connect with the bleeding disorders community. Stay informed about upcoming gatherings, workshops, and conferences.

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Fiona Robinson, PhD @fionarobinsonphd.bsky.social · 24/08/2026

Many of us (think we) know factor VIII and factor IX deficiencies, but what about #FactorX? In the Aug 26 NBDF Wednesday Webinar Dr Meera Chitlur explains the symptoms, testing, burden, and management of hereditary factor X deficiency (HFXD). 2PM ET Live Q&A! bleeding.org/events Sponsored by Kedrion

Upcoming Events for the Bleeding Disorders Community | NBDF

Discover in-person and virtual events to connect with the bleeding disorders community. Stay informed about upcoming gatherings, workshops, and conferences.

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Fiona Robinson, PhD @fionarobinsonphd.bsky.social · 21/08/2026

In the Aug 26 NBDF Wednesday Webinar we will learn all about the #UltraRare #BleedingDisorder hereditary #FactorX deficiency from Dr Meera Chitlur! Sponsored by Kedrion. Bring your questions for the live Q&A! Pre-register (FREE): bleeding.org/events

Upcoming Events for the Bleeding Disorders Community | NBDF

Discover in-person and virtual events to connect with the bleeding disorders community. Stay informed about upcoming gatherings, workshops, and conferences.

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Fiona Robinson, PhD @fionarobinsonphd.bsky.social · 05/08/2026

TODAY!! 2PM ET

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Fiona Robinson, PhD @fionarobinsonphd.bsky.social · 30/07/2026

In the Aug 5 NBDF Wednesday Webinar, sponsored by Genentech, we will learn about their latest #hemophilia A #research with updates on investigational #treatments currently in development! Aug 5, 2PM ET Pre-register (FREE): bleeding.org/events

Upcoming Events for the Bleeding Disorders Community | NBDF

Discover in-person and virtual events to connect with the bleeding disorders community. Stay informed about upcoming gatherings, workshops, and conferences.

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Fiona Robinson, PhD @fionarobinsonphd.bsky.social · 29/07/2026

TODAY! 2PM ET Bring your questions about iron deficiency and anemia for our Lived Experience and Medical Experts! Pre-register (FREE): hemophilia-org.zoom.us/webinar/regi...

hemophilia-org.zoom.us

Welcome! You are invited to join a webinar series: NBDF Wednesday Webinars 2025. After registering, you will receive a confirmation email about joining the webinar.

Welcome to the National Bleeding Disorders Foundation Wednesday Webinars: a series of free educational hour-long webinars (40 min live presentation, followed by 20 min moderated Q&A) that aims to brin...

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Fiona Robinson, PhD @fionarobinsonphd.bsky.social · 27/07/2026

#LowIron impacts many people with #BleedingDisorders. In this week's NBDF Wednesday Webinar we will hear from #LivedExperience and medical experts about new MASAC screening recommendations to address this issue. July 29, 2PM ET Live Q&A! Pre-register (FREE): hemophilia-org.zoom.us/webinar/regi...

hemophilia-org.zoom.us

Welcome! You are invited to join a webinar series: NBDF Wednesday Webinars 2025. After registering, you will receive a confirmation email about joining the webinar.

Welcome to the National Bleeding Disorders Foundation Wednesday Webinars: a series of free educational hour-long webinars (40 min live presentation, followed by 20 min moderated Q&A) that aims to brin...

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Fiona Robinson, PhD @fionarobinsonphd.bsky.social · 22/07/2026

TODAY! 2PM ET Bring your questions for the live Q&A! bleeding.org/events

Upcoming Events for the Bleeding Disorders Community | NBDF

Discover in-person and virtual events to connect with the bleeding disorders community. Stay informed about upcoming gatherings, workshops, and conferences.

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Fiona Robinson, PhD @fionarobinsonphd.bsky.social · 20/07/2026

We know #AI is being used in #healthcare, but is it affecting your care? How? Jul 22, 2PM ET In the NBDF Wednesday Webinar #PatientExperience and #Innovation expert Spencer Morrissey, MS, will explain how AI is being used, and what we should know. Register (free): bleeding.org/events Live Q&A!

Upcoming Events for the Bleeding Disorders Community | NBDF

Discover in-person and virtual events to connect with the bleeding disorders community. Stay informed about upcoming gatherings, workshops, and conferences.

Fiona Robinson, PhD @fionarobinsonphd.bsky.social · 16/07/2026

#AI in #Healthcare is Here! But what does that mean for you? In the next NBDF Wednesday Webinar, Spencer Morrissey, MS from the National Health Council takes us on a deep dive into AI tools and how they are being used in care. Don't miss the live Q&A! Jul 22, 2PM ET Pre-register: bleeding.org/events

Upcoming Events for the Bleeding Disorders Community | NBDF

Discover in-person and virtual events to connect with the bleeding disorders community. Stay informed about upcoming gatherings, workshops, and conferences.

Fiona Robinson, PhD @fionarobinsonphd.bsky.social · 15/07/2026

TODAY! 2PM ET NBDF @htrstoday.bsky.social webinar: #Multidisciplinary care for inheritable #BleedingDisorders just makes sense, right? YES, but there is also an #EvidenceBase supporting this approach. Join #LivedExperience and clinical experts to discuss. Pre-register (FREE): bleeding.org/events

Upcoming Events for the Bleeding Disorders Community | NBDF

Discover in-person and virtual events to connect with the bleeding disorders community. Stay informed about upcoming gatherings, workshops, and conferences.

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Reposted by Fiona Robinson, PhD

Shematologist, MD @shematologist.medsky.social · 13/07/2026

So proud of this work. #ISTH2026 @thelancet.com @isth.org @btsamuelsonmd.bsky.social

Lancet Haematology Women’s commission physical journal

Fiona Robinson, PhD @fionarobinsonphd.bsky.social · 10/07/2026

The #multidisciplinary care model is the heart of #BleedingDisorders treatment and care. In this joint NBDF @htrstoday.bsky.social Wednesday Webinar we will hear from #LivedExperience and clinical experts about the evidence for its value. July 15 2PM ET Pre-register (FREE): bleeding.org/events

Upcoming Events for the Bleeding Disorders Community | NBDF

Discover in-person and virtual events to connect with the bleeding disorders community. Stay informed about upcoming gatherings, workshops, and conferences.

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Fiona Robinson, PhD @fionarobinsonphd.bsky.social · 08/07/2026

TODAY!! 2PM ET Bring your questions for the live Q&A

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Fiona Robinson, PhD @fionarobinsonphd.bsky.social · 06/07/2026

What's it like, living with #GlanzmannThrombasthenia? It's an #ultrarare #BleedingDisorder most of us don't know much about. In the July 8 NBDF Wednesday Webinar we will learn more directly from lived experience, medical, and research experts! Pre-register (FREE) bleeding.org/events 2PM ET Live Q&A

Upcoming Events for the Bleeding Disorders Community | NBDF

Discover in-person and virtual events to connect with the bleeding disorders community. Stay informed about upcoming gatherings, workshops, and conferences.

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Fiona Robinson, PhD @fionarobinsonphd.bsky.social · 30/06/2026

Next week's NBDF Wednesday Webinar will be an #UltraRare treat! Living with #GlanzmannThrombasthenia: Findings from Patient-focused #Research with @katekhair.bsky.social @abookclubof1.bsky.social (Simon Fletcher) & Peter Zdziarski. July 8, 2PM ET Pre-register (FREE): bleeding.org/events Live Q&A!

Upcoming Events for the Bleeding Disorders Community | NBDF

Discover in-person and virtual events to connect with the bleeding disorders community. Stay informed about upcoming gatherings, workshops, and conferences.

Fiona Robinson, PhD @fionarobinsonphd.bsky.social · 24/06/2026

TODAY! 2PM ET Join us on zoom to contribute your questions to the live Q&A!

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Fiona Robinson, PhD @fionarobinsonphd.bsky.social · 22/06/2026

In this week's NBDF Pfizer-sponsored Wednesday Webinar a person with hemophilia, a healthcare provider, and a scientist who helped develop HYMPAVZI® (marstacimab-hncq) will share their conversation with us. June 24 2PM ET Pre-register: bleeding.org/events

Upcoming Events for the Bleeding Disorders Community | NBDF

Discover in-person and virtual events to connect with the bleeding disorders community. Stay informed about upcoming gatherings, workshops, and conferences.

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Fiona Robinson, PhD @fionarobinsonphd.bsky.social · 17/06/2026

TODAY!! 2pm ET Live on Zoom: bleeding.org/events

Upcoming Events for the Bleeding Disorders Community | NBDF

Discover in-person and virtual events to connect with the bleeding disorders community. Stay informed about upcoming gatherings, workshops, and conferences.

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Fiona Robinson, PhD @fionarobinsonphd.bsky.social · 16/06/2026

How can you speak to young people with bleeding disorders about their hopes and fears? In this week's NBDF @genentech.bsky.social sponsored Wednesday Webinar we explore the graphic novel: "Stellar Guardians," designed for exactly this! Wed Jun 17 2PM ET Pre-register (free): bleeding.org/events

Upcoming Events for the Bleeding Disorders Community | NBDF

Discover in-person and virtual events to connect with the bleeding disorders community. Stay informed about upcoming gatherings, workshops, and conferences.

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Fiona Robinson, PhD @fionarobinsonphd.bsky.social · 10/06/2026

TODAY! 2PM ET Come hear why YOU should attend this year's National Bleeding Disorders Foundation Bleeding Disorders Conference from members of the Planning Committee who designed the program for you! Bring your questions for the live Q&A 😀

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Fiona Robinson, PhD @fionarobinsonphd.bsky.social · 08/06/2026

Why should people with inheritable bleeding disorders, family members, and caregivers attend the 2026 NBDF Bleeding Disorders Conference? Join me and the Planning Committee to find out! Tues Jun 10 2PMET Bring your questions for the live Q&A! Register bleeding.org/events #Hemophilia #VWD #Education

Upcoming Events for the Bleeding Disorders Community | NBDF

Discover in-person and virtual events to connect with the bleeding disorders community. Stay informed about upcoming gatherings, workshops, and conferences.

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Fiona Robinson, PhD @fionarobinsonphd.bsky.social · 03/06/2026

TODAY! 2PM ET Hear medical, research, and lived experience experts explain how rebalancing agents now feature in their shared decision-making choosing the best options to meet unique needs in the management of inheritable bleeding disorders. Bring your questions for the live Q&A! #NovelTherapies

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Fiona Robinson, PhD @fionarobinsonphd.bsky.social · 27/05/2026

In the next National Bleeding Disorders Foundation Wednesday Webinar hear how medical, research, and lived experience experts consider rebalancing agents in shared decision-making to choose the best options for unique needs. June 3, 2PM ET Live Q&A Pre-register (FREE): bleeding.org/events

Upcoming Events for the Bleeding Disorders Community | NBDF

Discover in-person and virtual events to connect with the bleeding disorders community. Stay informed about upcoming gatherings, workshops, and conferences.

Fiona Robinson, PhD @fionarobinsonphd.bsky.social · 13/05/2026

TODAY!! 2PM ET Pre-register (free): bleeding.org/events

Upcoming Events for the Bleeding Disorders Community | NBDF

Discover in-person and virtual events to connect with the bleeding disorders community. Stay informed about upcoming gatherings, workshops, and conferences.

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Fiona Robinson, PhD @fionarobinsonphd.bsky.social · 11/05/2026

The needs of the bleeding disorders care team are evolving. In this week's National Bleeding Disorders Foundation Wednesday Webinar we look at how the upcoming Bleeding Disorders Conference program supports the needs of providers. Wednesday, May 13, 2PM ET Pre-register (FREE): Bleeding.org/events

Upcoming Events for the Bleeding Disorders Community | NBDF

Discover in-person and virtual events to connect with the bleeding disorders community. Stay informed about upcoming gatherings, workshops, and conferences.

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Fiona Robinson, PhD @fionarobinsonphd.bsky.social · 06/05/2026

TODAY!! 2PM ET

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Fiona Robinson, PhD @fionarobinsonphd.bsky.social · 04/05/2026

This week's NBDF Wednesday Webinar features Dr Benjamin Kim of Star Therapeutics and their once-monthly subcutaneous #VWD therapy currently in #ClinicalTrials, including trial eligibility and participation. Bring your questions for the live Q&A!! 🕑 May 6 2PM ET 🔗 Pre-register (FREE): bit.ly/3HfpkAe

Welcome! You are invited to join a webinar series: NBDF Wednesday Webinars 2025. After registering, you will receive a confirmation email about joining the webinar.

Welcome to the National Bleeding Disorders Foundation Wednesday Webinars: a series of free educational hour-long webinars (40 min live presentation, followed by 20 min moderated Q&A) that aims to brin...

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Fiona Robinson, PhD @fionarobinsonphd.bsky.social · 29/04/2026

In next week's NBDF Wednesday Webinar Dr Benjamin Kim from Star Therapeutics will share insights into a once-monthly subcutaneous therapy currently in development for von Willebrand disease (#VWD)! 🕑 Wed May 6 2 PM ET 🔗 Pre-register (FREE): bit.ly/3HfpkAe #vonWillebranddisease #ClinicalTrial

Welcome! You are invited to join a webinar series: NBDF Wednesday Webinars 2025. After registering, you will receive a confirmation email about joining the webinar.

Welcome to the National Bleeding Disorders Foundation Wednesday Webinars: a series of free educational hour-long webinars (40 min live presentation, followed by 20 min moderated Q&A) that aims to brin...

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Fiona Robinson, PhD @fionarobinsonphd.bsky.social · 22/04/2026

TODAY!! 2PM ET @samelsonjones.bsky.social

Fiona Robinson, PhD @fionarobinsonphd.bsky.social · 20/04/2026

In this week's NBDF Wednesday Webinar we will hear from a Lived Experience and a research expert about a potential approach to improving gene therapy for hemophilia A. Bring your questions for our live Q&A! Wed April 22, 2PM ET Pre-register (free!): 🔗 bit.ly/3HfpkAe

Welcome! You are invited to join a webinar series: NBDF Wednesday Webinars 2025. After registering, you will receive a confirmation email about joining the webinar.

Welcome to the National Bleeding Disorders Foundation Wednesday Webinars: a series of free educational hour-long webinars (40 min live presentation, followed by 20 min moderated Q&A) that aims to brin...

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Fiona Robinson, PhD @fionarobinsonphd.bsky.social · 16/04/2026

What's up with #GeneTherapy for #hemophilia A? In next week's National Bleeding Disorders Foundation Wednesday Webinar we here from #LivedExperience and #research experts about a new approach to help keep FVIII levels higher for longer. Apr 22, 2PM ET Pre-register (free): bleeding.org/events

Upcoming Events for the Bleeding Disorders Community | NBDF

Discover in-person and virtual events to connect with the bleeding disorders community. Stay informed about upcoming gatherings, workshops, and conferences.

Fiona Robinson, PhD @fionarobinsonphd.bsky.social · 04/03/2026

In next week's NBDF Wednesday Webinar we will learn about Be Biopharma's exciting work with a new platform of medicines, B cell medicines (BCMs), and how they can be used for people with hemophilia B. Mar 11, 2PM ET Live Q&A Register now (Free) www.bleeding.org/events/gene-...

Gene Editing B Lymphocytes: B Cell Medicine for the Treatment of Hemophilia B | NBDF

Speakers: Michael Wang, MD; Michael Recht, MD, PhD, MBA Join us for a webinar focusing on a new platform of medicines, B cell medicines (BCMs), and how they can be used for people with hemophilia B.

Fiona Robinson, PhD @fionarobinsonphd.bsky.social · 25/02/2026

TODAY!! 2PM ET Contribute to the conversation in our live Q&A.

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Fiona Robinson, PhD @fionarobinsonphd.bsky.social · 24/02/2026

Join me for tomorrow's Wednesday Webinar "Women Bleed Too" exploring what NBDF has learned about women's bleeding symptoms, diagnostic journey, additional health issues, and heavy menstrual bleeding from CVR participants. Register (free): 🔗 bit.ly/4mSA5cr 🗓 Wednesday, February 25 🕑 Time: 2:00 PM ET

Welcome! You are invited to join a webinar series: NBDF Wednesday Webinars 2025. After registering, you will receive a confirmation email about joining the webinar.

Welcome to the National Bleeding Disorders Foundation Wednesday Webinars: a series of free weekly educational hourlong webinars (40 min live presentation, followed by 20 min moderated Q&A) that aims t...

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Fiona Robinson, PhD @fionarobinsonphd.bsky.social · 11/02/2026

TODAY! Be sure to join us via Zoom: hemophilia-org.zoom.us/webinar/regi...

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Fiona Robinson, PhD @fionarobinsonphd.bsky.social · 04/02/2026

The next National Bleeding Disorders Foundation Wednesday Webinar will feature: An Interactive VONVENDI Patient Story with Dr Hilda Ding, sponsored by Takeda February 11 2PM ET Pre-register (free): www.bleeding.org/events/inter... #VWD #LivedExperienceExpert #Treatment #PatientEducation

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Fiona Robinson, PhD @fionarobinsonphd.bsky.social · 28/01/2026

TODAY!!! 2PM ET National Bleeding Disorders Foundation Wednesday Webinar in SPANISH: "Avanzando el cuidado de la hemofilia A y B" www.bleeding.org/events/avanz... Pre-register, it's free :)

Avanzando el cuidado de la hemofilia A y B | NBDF

Oradora: Daisy Cortes, MDEsta terapia de reequilibrio ofrece un tratamiento subcutáneo para personas que viven con hemofilia A o B. Sanofi le invita a participar en una presentación educativa, donde u...

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Fiona Robinson, PhD @fionarobinsonphd.bsky.social · 23/01/2026

Special treat: NBDF Wednesday Webinar IN SPANISH!!! Join guest host Karina Lopez and medical expert Dr Daisy Cortes for the Sanofi sponsored "Avanzando el cuidado de la hemofilia A y B" Wed Jan 28 2PM ET pre-register (FREE): www.bleeding.org/events/avanz... Live Q&A also in Spanish!

Avanzando el cuidado de la hemofilia A y B | NBDF

Oradora: Daisy Cortes, MDEsta terapia de reequilibrio ofrece un tratamiento subcutáneo para personas que viven con hemofilia A o B. Sanofi le invita a participar en una presentación educativa, donde u...

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Fiona Robinson, PhD @fionarobinsonphd.bsky.social · 14/01/2026

TODAY!!

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Fiona Robinson, PhD @fionarobinsonphd.bsky.social · 13/01/2026

Did you know that NBDF has #research #grants? Tmrw, in the first 2026 Wednesday Webinar we will explore what NBDF #funds, how to apply, and how NBDF can support you in the process! Bring your questions for the live Q&A Jan 14 2pm ET Don't forget to pre-register: www.bleeding.org/events/from-...

From Idea to Impact: NBDF's Research Grants | NBDF

Speakers: Louise M. Baca, MSN, RN; CC Cook CSW, MPH; Halli Benasutti, PhDJoin us as we look into NBDF's research grant process: what we fund, how to apply, and how NBDF can support you through the pro...

Fiona Robinson, PhD @fionarobinsonphd.bsky.social · 07/01/2026

We're starting 2026 off right with a National Bleeding Disorders Foundation Wednesday Webinar all about the #research #grants! How to apply, what NBDF funds, and how NBDF can support you through the process. Jan 14, 2PM ET Bring your questions for the live Q&A!

Fiona Robinson, PhD @fionarobinsonphd.bsky.social · 04/12/2025

Join me and a panel of lived experience, medical, and research experts for the final 2025 NBDF Wednesday Webinar discussing pregnancy, hemophilia A, and inhibitors. Dec 10 2PM ET Pre-register (FREE): www.bleeding.org/events/hemop... Bring your questions for the live Q&A!

Hemophilia A, pregnancy, and inhibitors – where we’ve been and where we are going | NBDF

This webinar will talk about what we know about bleeding in moms and inhibitor formation in babies, and highlight the Hemophilia A Research Program (HARP) that is running a new study of moms and babie...

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