iiinova — where your digital self keeps evolving

I still get often restless legs in the evening but it's just general discomfort & a need to keep shifting them rather than spasms jerking my knee upwards. Probably more annoying for my husband tbh 🤣

I’ve been taking a triple blend if biglycinate, malate & aspartate. Tbh I forget all the details of what each was meant to be good for 🤣 I’ve had the citrate too which similarly helped with muscles but not sleep.

We loved the goodies growing up. It was essential viewing! Just the daftness of it was perfect.

I find it helps muscle spasms but does nothing for my sleep.

Clare Hadley @feltwright.bsky.social · 18/09/2026

Thanks, I'd just clicked on the image & hadn't realised there was more to it. I really should look more thoroughly before commenting!

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Clare Hadley @feltwright.bsky.social · 18/09/2026

Do we know where this snippet came from? I'm anti fascist & pro RNLI but I'm wary of accepting everything I see on social media, especially just a bit of text like this. I haven't seen anything in the press about the more extreme examples?

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Clare Hadley @feltwright.bsky.social · 12/09/2026

I thought donations might drop if the wheels were falling off. Obviously not…

Clare Hadley @feltwright.bsky.social · 10/09/2026

Definitely Christchurch, often used to visit a friend in that building

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Clare Hadley @feltwright.bsky.social · 07/09/2026

Could I be taken off please? I retired over 2 years ago & don’t post anything radiotherapy related nowadays. People are welcome to follow me for a bit of pottery though!

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Clare Hadley @feltwright.bsky.social · 04/09/2026

Sorry to hearing you’re going through this. It sounds like a big flare & I had similar a few years ago. I’m now so much better & none of it was permanent. Mine was triggered by stress. Don’t rush back to work too quickly, I always used to make that mistake!

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Clare Hadley @feltwright.bsky.social · 29/08/2026

That's the difficult bit - any friends at work who could help? Or union rep? I didn't realise at the time how much I needed someone who could be on top of things & help me through it. Line manager was supportive but I needed someone independent really. Good luck with it!

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Clare Hadley @feltwright.bsky.social · 29/08/2026

I found the process hard to go through, I was mid-flare so not the best time to deal with everything. In retrospect I really should have asked for more help navigating the whole thing, instead I had to coordinate occy health, pensions, HR etc. Worth seeing if someone can act as an advocate for you.

Clare Hadley @feltwright.bsky.social · 28/08/2026

Sounds like you definitely need a rest! Worth working out all the finances for ill health retirement etc. I was in the NHS & there was compensation for leaving early. Can you move to something more suitable?

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Clare Hadley @feltwright.bsky.social · 28/08/2026

If you can retire early or at least get into a less stressful role/work pattern then do it! I had to retire early at 59 & it made such a difference to my health.

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Clare Hadley @feltwright.bsky.social · 24/08/2026

I had a smart TV that went out of date but the Roku device means I can still use it. Only cost £30 & just plugs into one of the HDMI sockets.

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Clare Hadley @feltwright.bsky.social · 24/08/2026

I looked at this a while ago - there’s a replacement service called Freely that you get over broadband, but you have to have a set top box or a tv that receives it. I use a roku device - worth looking at if you don’t have a smart tv. Lets you watch bbc/itv/c4 etc via apps on the tv.

Oh no, sorry to hear that. I only get fairly mild intermittent symptoms from that relapse now but the pain was dreadful at the time, especially at night.

I've found it so useful to be able to talk to other MSers, it makes such a difference

It does sound MSsy. My GP was trying everything including sending me for a biopsy for temporal arteritis. The surgeon dissuaded me from signing the consent form for it & wrote to my GP recommending a referral to neurology. It all went away but finally made sense after my MS diagnosis.

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I had similar before diagnosis. First toothache, & earache, then temporal area & side of head. Neck was stiff & sore too. Eventually sent to neuro & dx with occipital neuralgia. Another relapse 2 years later led to MS Dx. Hope yours settles soon.

It should have just been a university matter. If he’d been a more conventional appointment it would never have hit the national headlines. It’s like they were determined to take him down

So sad to read this. I hadn’t even heard of him before the recent newspaper stories but whatever the facts of his appointment he should never have been hounded like this.

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We jumped & were then just annoyed! I can’t believe people aren’t aware of this. Is this Andy Burnham’s token action on climate change?

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6 years next month for me, also Dx mid 50s. Retirement, kesimpta & OMS have helped make life very manageable even tho not quite normal!

Clare Hadley @feltwright.bsky.social · 12/08/2026

I'm looking forward to that bit 🤣 Currently sitting out on the edge of an iron age hill fort waiting for the big event - along with half the local population by the looks of it!

Clare Hadley @feltwright.bsky.social · 05/08/2026

Getting hooked on Anthropeum - wordle meets art history! Anthropeum.com · Aug 5 2026 🟩🟩🟩🟦🟨🟩🟦🟨🟨🟦 74,317 · top 10% of players today!

anthropeum.com

Anthropeum

A daily game that challenges our understanding of human cultures. Ten objects. 5,000 years of human history. Guess where and when each artifact was made. See how you rank.

Clare Hadley @feltwright.bsky.social · 29/07/2026

Nice one - Worth getting new a mount for it, it deserves to be shown off!

Clare Hadley @feltwright.bsky.social · 14/07/2026

I read an article about sunlight helping regulate your immune system & improving autoimmune conditions. I’m definitely better in summer months

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Clare Hadley @feltwright.bsky.social · 14/07/2026

I walked up the garden at 6.30 & it felt positively chilly!

brandon-beaber.bsky.social @brandon-beaber.bsky.social · 13/07/2026

Reposted by Clare Hadley

The Best Explanation of Multiple Sclerosis I've Ever Seen by @aaronbostermd.bsky.social explaining the "pool" model by Dr. Steven Krieger. youtu.be/if4hRio1HeU?...

youtu.be

The Best Explanation of Multiple Sclerosis I've Ever Seen.

YouTube video by Aaron Boster MD

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Clare Hadley @feltwright.bsky.social · 10/07/2026

Definitely. It feels like it’s largely preaching to the converted at the moment but it’s being picked up & shown in a lot of different settings. They encourage watching in groups & having discussions afterwards.

Clare Hadley @feltwright.bsky.social · 10/07/2026

I saw this film last night. Unsettling & thought provoking.

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Clare Hadley @feltwright.bsky.social · 10/07/2026

I saw it last night - very thought provoking. We really need government & big business to take action

Led By Donkeys @ledbydonkeys.org · 27/10/2025

Reposted by Clare Hadley

Farage: epic grifter

25386744717

Clare Hadley @feltwright.bsky.social · 07/07/2026

Yes, Farage's downfall would be particularly delicious!

Clare Hadley @feltwright.bsky.social · 07/07/2026

I’d love to see Binface in parliament!

Clare Hadley @feltwright.bsky.social · 01/07/2026

My sister did the same so I think it's fair to say you & she won it for them!

Clare Hadley @feltwright.bsky.social · 28/05/2026

Ralph Fiennes in a restaurant in Tuscany when he was filming the English Patient. I knew him when I was at school with his sister in Salisbury so we had a good chat.

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Clare Hadley @feltwright.bsky.social · 22/05/2026

On this #MSFriday I've totally ignored advice to rest. I was up early painting my new pottery studio & I even fitted in a quick swim! I may regret this tomorrow....

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Clare Hadley @feltwright.bsky.social · 19/05/2026

I didn't come out strongly on anything, more of a wishy washy liberal (with a small L)

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Clare Hadley @feltwright.bsky.social · 19/05/2026

That was interesting, I came out social democrat, & close to democratic socialist. Not sure what the difference is between those! Economic: collectivist Social: progressive Sovereignty: cosmopolitan Military: centrist Authority: leaning libertarian Constitutional: leaning reformist

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Clare Hadley @feltwright.bsky.social · 19/05/2026

Dom absolutely nails it! I always think I’ve just tried to pack too much in to a day, but there’s so much more to it.

Clare Hadley @feltwright.bsky.social · 02/05/2026

It looks similar to the planet series, but they don’t have it in the book

Clare Hadley @feltwright.bsky.social · 02/05/2026

There must still be a market for Poole pottery. I haven’t seen that design before - just got my Poole pottery book out & there’s plenty about him in there. Does it still have its presentation box & certificate?

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Clare Hadley @feltwright.bsky.social · 22/04/2026

I do like the idea of a spinner's pub tho, can you take your wheel along? Maybe they could invite the weavers in too.

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Clare Hadley @feltwright.bsky.social · 22/04/2026

I'm a spinner & I do indeed rest so I'd just go with that!

Clare Hadley @feltwright.bsky.social · 08/04/2026

I got my last one back in 3 weeks. The previous year it was 3 months & then only with me chasing it!