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Reposted by ERN EuroBloodNet

SYNTHEMA @synthemaeu.bsky.social · 20/04/2026

Artificial intelligence is already being applied in rare haematological diseases. The #SYNTHEMA and @erneurobloodnet.bsky.social training programme, led by experts from the field, covers synthetic data, federated learning, regulation and clinical use cases. Register: synthema.eu/training/

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ERN EuroBloodNet @erneurobloodnet.bsky.social · 16/04/2026

🚀 Ready to explore Artificial Intelligence #AI in hematology? Join the SYNTHEMA & ERN-EuroBloodNet Educational Program and be part of this cutting-edge learning experience! 📅Starting May 8th | Every Friday in May eurobloodnet.eu/education-2/... #ERNs #ERNeu #hematology

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Reposted by ERN EuroBloodNet

SYNTHEMA @synthemaeu.bsky.social · 14/04/2026

How will synthetic data be applied in real research? This final session will present use cases in Sickle Cell Disease and Acute Myeloid Leukaemia as part of the joint #SYNTHEMA and @erneurobloodnet.bsky.social training programme. 👉 Register: synthema.eu/training/

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ERN EuroBloodNet @erneurobloodnet.bsky.social · 14/04/2026

🚨Last chance to register for the upcoming session of the Focus on Genetic Therapy for people living with #SCD! Tomorrow at 17:00, don’t miss the fourth session: "Genome Editing: CRISPR/Cas9 Advanced Tools and SCD – Using New Methods." eurobloodnet.eu/education-2/...

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ERN EuroBloodNet @erneurobloodnet.bsky.social · 10/04/2026

👉 Group Discussions at #ECRD 2026! All those planning to attend ECRD 2026 in-person are invited to submit proposals for small-group discussion topics. 🗓️ Deadline: 17 April 2026 🔗 www.rare-diseases.eu/groupdiscuss... #ERNs #ERNeu #ECRD #RareDiseases #ShareCareCure

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ERN EuroBloodNet @erneurobloodnet.bsky.social · 09/04/2026

📢 Fresh news! The ERN-EuroBloodNet monthly newsletter is out now! Stay up to date with the latest news and updates on rare haematological diseases and don’t miss any upcoming events and opportunities. 👉 Subscribe now: eurobloodnet.eu/newsletter/ #ERNs #ERNeu #ShareCareCure #hematology

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ERN EuroBloodNet @erneurobloodnet.bsky.social · 31/03/2026

🚨Only two weeks left until the 4th webinar session of the EDITSCD & ERN-EuroBloodNet program on Genetic Therapy for People Living with Sickle Cell Disease! Register now! eurobloodnet.eu/education-2/... 🎞️Missed the previous sessions? www.youtube.com/playlist?lis...

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Reposted by ERN EuroBloodNet

SYNTHEMA @synthemaeu.bsky.social · 31/03/2026

If you're interested in regulation and ethics in AI for healthcare, don’t miss this session on MDR, the EU AI Act and privacy-preserving federated learning as part of the joint #SYNTHEMA and @erneurobloodnet.bsky.social training programme. 👉 Register: synthema.eu/training/

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Reposted by ERN EuroBloodNet

SYNTHEMA @synthemaeu.bsky.social · 24/03/2026

Join the first #SYNTHEMA webinar in our training series! 8 May 2026 | 12:30 CEST Explore the @erneurobloodnet.bsky.social infrastructure for synthetic data: governance, strategy & architecture. Open to patients & health professionals. 👉 synthema.eu/training/ Don’t miss it & share!

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ERN EuroBloodNet @erneurobloodnet.bsky.social · 23/03/2026

🚀Are you ready to explore the cutting-edge world of Artificial Intelligence in hematology? ERN-EuroBloodNet and @synthemaeu.bsky.social are proud to launch a joint educational program on #AI, designed for both the public-at-large and expert audiences. eurobloodnet.eu/education-2/...

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Reposted by ERN EuroBloodNet

SYNTHEMA @synthemaeu.bsky.social · 18/03/2026

Registration is open for the SYNTHEMA & @erneurobloodnet.bsky.social in haematology webinar series. Join all 4 sessions in May 2026 or register for individual webinars. Synthetic data, federated learning, regulation and clinical use cases in AML and SCD. Register: synthema.eu/training/

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ERN EuroBloodNet @erneurobloodnet.bsky.social · 23/03/2026

📣Register now for the fourth webinar of the program “EDITSCD & ERN-EuroBloodNet: Focus on Genetic Therapy for People Living with Sickle Cell Disease.” Join us eurobloodnet.eu/education-2/... Missed the previous sessions? Watch them all on our YouTube channel: www.youtube.com/playlist?lis...

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ERN EuroBloodNet @erneurobloodnet.bsky.social · 17/03/2026

🗣️Patients’ rights in cross-border healthcare and the European Reference Networks #ERNs María del Mar Mañú Pereira, Scientific Coordinator of ERN-EuroBloodNet, will contribute to Session 3 of the program in her role as Vice-Chair of the TRIO of the 24 ERNs. eurobloodnet.eu/news/716/hig...

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ERN EuroBloodNet @erneurobloodnet.bsky.social · 17/03/2026

🚀Register now for the Session 6 of the ERN-EuroBloodNet Topic on Focus on Inherited Platelet Function Disorders! This accredited educational program is designed for healthcare professionals. Register now and don't miss it! eurobloodnet.eu/education/to... #ERNs #ERNeu #hematology

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ERN EuroBloodNet @erneurobloodnet.bsky.social · 12/03/2026

📢Not registered yet? Don’t miss today’s session of our Thursday Webinar Series! Join us for a session on von Willebrand factor and von Willebrand disease in ageing: mechanisms, evolving phenotypes and clinical implications. 👉Register now! eurobloodnet.eu/education/th... #ERNs #ERNeu #VWD

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ERN EuroBloodNet @erneurobloodnet.bsky.social · 02/03/2026

📢Register now for the second session of the "EHC-ERN-EuroBloodNet Topic on Focus: Ageing with a Bleeding Disorder"! It brings together clinicians, researchers & patient advocates to encourage shared learning and knowledge exchange across Europe. https://bit.ly/3PbLAPq

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Reposted by ERN EuroBloodNet

SYNTHEMA @synthemaeu.bsky.social · 11/02/2026

Scientific progress depends on who gets to take part. In #SYNTHEMA, women contribute as researchers, clinicians and data specialists across all stages of the work. This day draws attention to how scientific careers are accessed: synthema.eu/2025/02/11/b...

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ERN EuroBloodNet @erneurobloodnet.bsky.social · 10/02/2026

Register now for the 5th session of the "ERN-EuroBloodNet Topic in Focus: Inherited Platelet Function Disorders"! 🔗More info & registrations: eurobloodnet.eu/education/to... #ERNeu #ERNs #HealthUnion #EU4Health #ShareCareCure

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ERN EuroBloodNet @erneurobloodnet.bsky.social · 03/02/2026

ERN-EuroBloodNet team was present at the RealiseD General Assembly Meeting 2026!🤝 Dr María del Mar Mañú Pereira, ERN-EuroBloodNet Scientific Coordinator, contributes to one of the use cases focused on MDS/MPN, in collaboration with Humanitas University. 🔗 eurobloodnet.eu/research/rea...

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ERN EuroBloodNet @erneurobloodnet.bsky.social · 03/02/2026

🚨Not registered yet? Tomorrow is the 4th session of the "ERN-EuroBloodNet Topic in Focus: Inherited Platelet Function Disorders". Don’t miss it! 🎯An accredited European online educational program targeting health professionals. 🔗Register now: eurobloodnet.eu/education/to...

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Reposted by ERN EuroBloodNet

European Haemophilia Consortium @ehc-news.bsky.social · 01/02/2026

📢 On European #VonWillebrandDisease Awareness Day 2026, we amplify the voices of patients across Europe sharing their experiences & challenges.❤️ Thank you to everyone who made the invisible visible! #VWDay #beVWDaware #VWDunited #VWDtogethere

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ERN EuroBloodNet @erneurobloodnet.bsky.social · 28/01/2026

🔔 Don’t miss tomorrow’s ERN-EuroBloodNet Thursdays Webinar! Join us for an insightful session on Newborn Screening for Sickle Cell Disease #SCD with prof Gulbis Béatrice. 👉 Register now and secure your spot: eurobloodnet.eu/education/th... #ERNs #ERNeu #hematology #SCD #SickleCellDisease #EU

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Reposted by ERN EuroBloodNet

EURORDIS-Rare Diseases Europe @eurordis.bsky.social · 12/12/2025

🚨 Registrations are OPEN for #ECRD2026 2026 marks a defining moment for rare disease policy in Europe. Five years after #Rare2030 and midway to the WHO 2028 target, #ECRD gathers the community to support the co-development of an EU Action Plan. 👉 Register now: www.rare-diseases.eu/register

Two professionals engaged in conversation at a conference with a banner announcing registrations now open for the 13th European Conference in Prague and online, June 2026.

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Reposted by ERN EuroBloodNet

ERN eUROGEN @erneurogen.bsky.social · 12/01/2026

Join @erneurogen.bsky.social & ERNs across Europe for a crucial webinar: 🛠️ Medical Device Shortages & Regulatory Constraints 🗓️ Wed 21 Jan @ 18:00 CET 🎙️ With clinicians, regulators & industry experts 🔗 Register: events.zoom.us/ev/AvVY1AZbs... #EUfunded #HealthUnion #RareDisease #ERNs

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ERN EuroBloodNet @erneurobloodnet.bsky.social · 05/01/2026

📋#New Publication! "HELIOS Action: Advancing research, education, and equity in hemoglobinopathies across Europe and beyond" The article was recently published in HemaSphere Journal, the official open-access journal of the European Hematology Association (EHA). eurobloodnet.eu/news/699/new...

eurobloodnet.eu

New Publication:

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ERN EuroBloodNet @erneurobloodnet.bsky.social · 05/01/2026

📣Registrations are open for #ECRD2026, taking place on 3–4 June 2026 in Prague and online. Join the rare disease community in discussions shaping future priorities for rare diseases in Europe. 📝Secure your place with early-bird registration: eurobloodnet.eu/news/698/reg... #ERNs #ERNeu

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ERN EuroBloodNet @erneurobloodnet.bsky.social · 29/12/2025

📢Register now for the first session of the "EHC-ERN-EuroBloodNet Topic on Focus: Ageing with a Bleeding Disorder"! The program is coordinated by ERN-EuroBloodNet together with the umbrella patient organisation @EHC_Haemophilia 📝Registrations: bit.ly/4phwowL

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ERN EuroBloodNet @erneurobloodnet.bsky.social · 23/12/2025

🌟Happy holiday season & best wishes for 2026! 2025 has been a very active year for ERN-EuroBloodNet, with key achievements in education, clinical care, research, data and health policy across Europe. We’re proud of the collective work of our network. eurobloodnet.eu/news/694/hap...

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Reposted by ERN EuroBloodNet

Servicio de Evaluación del Servicio Canario de la Salud - SESCS @sescs.bsky.social · 16/12/2025

El trabajo, liderado por investigadores @sescs.bsky.social , sintetizó la evidencia científica disponible sobre los factores pronósticos en este tipo de linfoma con el objetivo de informar una guía de práctica clínica sobre el linfoma de #Burkitt impulsada por la red @erneurobloodnet.bsky.social.

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ERN EuroBloodNet @erneurobloodnet.bsky.social · 15/12/2025

🚀New educational program for patients and their families! ERN-EuroBloodNet, in collaboration with the @EHC_Haemophilia , is launching a new #webinar series dedicated to patients with bleeding disorders and their families. Register now for the full program! eurobloodnet.eu/education-2/...

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ERN EuroBloodNet @erneurobloodnet.bsky.social · 12/12/2025

🚀Register now for the 3rd session of the ERN-EuroBloodNet Topic on Focus on Inherited Platelet Function Disorders! 🗣️Speaker: Paolo Gresele 🕓 17/12/2025 at 17:00 ℹ️More details and registrations: eurobloodnet.eu/education/to... #ERNeu #ERNs #HealthUnion #EU4Health #ShareCareCure

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Reposted by ERN EuroBloodNet

JARDIN Joint Action @jardinjointaction.bsky.social · 07/12/2025

📅❄️ Day 7 of #JARDIN's Advent Calendar ✨@erneurobloodnet.bsky.social improves care for rare and complex hematological diseases across Europe. It covers 450+ rare hematological disorders, uniting 90 members across 18 Member States, 7 affiliated partners in 6 MS and 11 ePAGs. 🔗https://eurobloodnet.eu

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ERN EuroBloodNet @erneurobloodnet.bsky.social · 01/12/2025

📤Are you ready for the last webinars of 2025? The EDU Blood Academy Newsletter is out now! Discover the webinars scheduled for December and stay up to date with the latest news. Subscribe to our Newsletter here: eurobloodnet.eu/edu-blood-ac... #ERNeu #ERNs #HealthUnion

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ERN EuroBloodNet @erneurobloodnet.bsky.social · 01/12/2025

📢Register now for the next edition of the ERN-EuroBloodNet Thursdays Webinar! The #ThursdaysWebinars series is an accredited European online educational program, certified by EBAH. 🎙️Speaker: Olivier Hermine 👉Don’t miss it, secure your spot today! eurobloodnet.eu/education/th...

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Reposted by ERN EuroBloodNet

Rare Disease Day Official @rarediseaseday.bsky.social · 20/11/2025

The 100-day countdown to #RareDiseaseDay begins! Meet Mak, Linges, Micah, Ayça & Burak, our heroes showing what life is like for the 300M people living with a rare disease. Full video 🎥 youtu.be/7J1oTfoIOGw Let’s bring about equity in more ways than even we can imagine! #ShareYourColours

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ERN EuroBloodNet @erneurobloodnet.bsky.social · 14/11/2025

📢 Join us for the 2nd Session of the EDITSCD & ERN-EuroBloodNet webinar series! We are pleased to announce the second webinar of the program “EDITSCD & ERN-EuroBloodNet: Focus on Genetic Therapy for People Living with Sickle Cell Disease.” 👉Register now! eurobloodnet.eu/education-2/...

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Reposted by ERN EuroBloodNet

JARDIN Joint Action @jardinjointaction.bsky.social · 06/11/2025

The European Reference Networks (#ERNs) connect experts across Europe so people living with #RareDiseases can access the care they need. 24 ERNs help share knowledge, improve diagnosis & treatment, and strengthen healthcare systems. Learn more jardin-ern.eu/european-ref... #EU4Health #HealthUnion

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Reposted by ERN EuroBloodNet

American Society of Hematology @ash.hematology.org · 03/11/2025

The wait is over! Abstracts selected for #ASH25 are now live: ow.ly/h53J50XlPNr Congrats to all presenters! Don't miss these presentations in person or virtually — register now! #HemeSky #MedSky

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Reposted by ERN EuroBloodNet

SYNTHEMA @synthemaeu.bsky.social · 06/11/2025

Two productive days in San Sebastian for the #SYNTHEMA consortium have come to an end. Lively discussions, clear goals for the final year: a recap publication on synthetic data in haematology, joint training with @erneurobloodnet.bsky.social, new papers, and the SYNTHEMA platform launch synthema.eu

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ERN EuroBloodNet @erneurobloodnet.bsky.social · 05/11/2025

🚨 Register now for the upcoming ERN-EuroBloodNet Thursdays Webinars! The #ThursdaysWebinars are an accredited European online educational program, certified by the European Board for Accreditation in Hematology 👉Don’t miss it, secure your spot today! eurobloodnet.eu/education/th...

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ERN EuroBloodNet @erneurobloodnet.bsky.social · 30/10/2025

🎧Discover the latest episode of the European Hematology Association (EHA) Unplugged podcast, “Point-of-care Tests for Neonatal Screening of Sickle Cell Disease”, featuring Prof. Gulbis Béatrice, Co-Coordinator of ERN-EuroBloodNet. 🎙️Listen to the full episode here: www.youtube.com/watch?v=OwIe...

youtube.com

Point-of-care Tests for Neonatal Screening of Sickle Cell Disease (with Prof Béatrice Gulbis)

YouTube video by European Hematology Association

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Reposted by ERN EuroBloodNet

SYNTHEMA @synthemaeu.bsky.social · 28/10/2025

SYNTHEMA builds on strong ethical and collaborative foundations: 🩺 @erneurobloodnet.bsky.social – Europe’s rare haematology network 📊Contributions to ENROL, EU RD Platform, and @radeep.bsky.social 🤝Partnership with Flower - open-source federated learning for privacy-preserving AI

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ERN EuroBloodNet @erneurobloodnet.bsky.social · 28/10/2025

🎥New video! Building bridges for better transitions in Sickle Cell Disease How can we ensure that young people living with rare diseases move safely from paediatric to adult care without losing access, confidence, or hope? 🎬Watch now: youtu.be/POEBC0YEMgM?... #ERNs #ERNeu

youtu.be

The Charter for optimal care transitions from paediatric to adult care in sickle cell disease

YouTube video by ERN-EuroBloodNet's EDU

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ERN EuroBloodNet @erneurobloodnet.bsky.social · 27/10/2025

📢Not yet registered? Don't miss the next Thursday webinar in three days! The #ThursdayWebinars are an accredited European online educational program, certified by the European Board for Accreditation in Hematology (EBAH). 👉 Register here: lnkd.in/dFCJVT2R #ERNeu #ERNs #hematology

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ERN EuroBloodNet @erneurobloodnet.bsky.social · 24/10/2025

Presenting the Charter for Optimal Transitions in #SCD at the European Parliament🌍 A collective policy framework developed with clinicians, patients, and experts across Europe to strengthen continuity of care between pediatric and adult services. 🔗https://bit.ly/4qk0npD

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ERN EuroBloodNet @erneurobloodnet.bsky.social · 24/10/2025

🌍Members, Affiliated Partners & Patient Organisations: Get ready for the 7th ERN-EuroBloodNet Progress Meeting! 🗓 Thursday, 6th November | 💻 Online Take a look at the provisional agenda and register here: eurobloodnet.eu/news/678/ern... #ERNeu #ERNs #HealthUnion #EU4Health

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Reposted by ERN EuroBloodNet

RADeep Network @radeep.bsky.social · 26/09/2025

📣#Hiring alert at @vhir.bsky.social ! Your role: ✅Ensure smooth communication across teams and stakeholders; ✅Oversee documentation and data management; ✅Act as a bridge between the RADeep coordinating team, data providers, and external collaborators. 🔗 jobs.vhir.org/jobs/6487424...

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ERN EuroBloodNet @erneurobloodnet.bsky.social · 03/10/2025

✅ Day 1 | ERN-EuroBloodNet & @radeep.bsky.social – #SCD Patients Session at #ASCAT2025 ! Sexual Health Program for Patients with Sickle Cell Disease 🔹Today’s focus: Understanding the impact of Sickle Cell Disease on Sexual Health #ERNs #hematology #RADeep #ERNeu #ASCAT2025

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ERN EuroBloodNet @erneurobloodnet.bsky.social · 22/09/2025

🚀EURORDIS has recently launched a new global survey exploring what helps people live with a rare or undiagnosed condition, as well as their families. Make your voice heard and take the survey before 16 November! 🔗https://www.sphinxonline.com/surveyserver/s/EURORDIS75/MH_interface/questionnaire.htm

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