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SYNTHEMA

@synthemaeu.bsky.social
236 followers 501 following 162 posts

A cross-border hub to develop & validate #AI techniques for anonymization & synthetic data generation in rare hematological diseases 🔬🩸🇪🇺 #HorizonEU project 👉 synthema.eu

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SYNTHEMA @synthemaeu.bsky.social · 01/10/2026
Subscribe to the SYNTHEMA newsletter to receive key project updates and announcements about important activities, all in one place. Clear, relevant, and focused on what matters. Choose the format: 📩 by email: f981d420.sibforms.com/serve/MUIEAH... 💼 on LinkedIn: linkedin.com/newsletters/...
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SYNTHEMA @synthemaeu.bsky.social · 29/09/2026
“We designed in data protection considerations at the very beginning of the project, from day zero.” Nathan Lea from i~HD explains why privacy, ethics and GDPR compliance were built into SYNTHEMA from the start, especially when working with small rare disease cohorts. youtu.be/DCWf6Ig4O6k
youtu.be
Responsible AI in Healthcare: Privacy, Ethics and GDPR in SYNTHEMA
YouTube video by SYNTHEMA
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SYNTHEMA @synthemaeu.bsky.social · 22/09/2026
Synthetic data is only useful if it can be trusted, validated and reused. In the latest SYNTHEMA: The Final Stretch feature, Vicomtech reflects on the technical advances developed in the project and how they could extend beyond rare haematology. Read more: synthema.eu/2026/09/16/p...
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SYNTHEMA @synthemaeu.bsky.social · 17/09/2026
Synthetic data can improve data access, AI development and privacy-preserving research in healthcare. The BDVA white paper Synthetic Data in Healthcare, co-edited by SYNTHEMA’s Sofia Tsekeridou (Netcompany), looks at the opportunities, gaps and next steps. 📄 zenodo.org/records/2279...
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SYNTHEMA @synthemaeu.bsky.social · 15/09/2026
“Sickle cell disease presents every challenge in rare diseases.” In the next SYNTHEMA | The Final Stretch interview, Maria del Mar Mañú Pereira from Vall d’Hebron explains why Sickle Cell Disease was selected as a clinical use case. Watch the interview to hear more: youtu.be/Kcj1kAw97rU
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SYNTHEMA @synthemaeu.bsky.social · 08/09/2026
How is SYNTHEMA protecting patient confidentiality while ensuring synthetic data remains suitable for scientific use? Rudolf Mayer and Daniela Martinez-Duarte from SBA Research explain the approach.
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SYNTHEMA @synthemaeu.bsky.social · 03/09/2026
Save the date: 3 November 2026. Our partner UNIPD is organising a SYNTHEMA Symposium in Padua on real-world data, federated learning, synthetic data and data-driven medicine. 📍 Palazzo della Salute – MUSME More details soon
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SYNTHEMA @synthemaeu.bsky.social · 01/09/2026
Access our complete four-part training series on synthetic data in rare haematology. Technical and clinical experts share hands-on approaches covering EU AI Act compliance, OMOP standardisation, and clinical use cases in SCD and AML. 👉 Free access: www.youtube.com/playlist?lis...
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SYNTHEMA @synthemaeu.bsky.social · 24/08/2026
Subscribe to the SYNTHEMA newsletter to receive key project updates and announcements about important activities, all in one place. Clear, relevant, and focused on what matters. Choose the format: 📩 by email: f981d420.sibforms.com/serve/MUIEAH... 💼 on LinkedIn: www.linkedin.com/newsletters/...
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SYNTHEMA @synthemaeu.bsky.social · 17/08/2026
How does synthetic data perform in actual clinical practice? Session 4 examines real-world applications in haematology, showing how synthetic cohorts predict kidney injury in Sickle Cell Disease and replicate survival curves in Acute Myeloid Leukaemia. 👉 youtu.be/cGzTBoTFmD4
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Session 4: Opportunities of Synthetic Data Generation in Rare Haematological Diseases
YouTube video by SYNTHEMA
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SYNTHEMA @synthemaeu.bsky.social · 13/08/2026
SYNTHEMA deliverable D1.2 defines how SCD and AML data are mapped to the OMOP Common Data Model, creating a common structure for data integration, synthetic data generation and federated AI training. 👉 synthema.eu/public-deliv...
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SYNTHEMA @synthemaeu.bsky.social · 10/08/2026
Data fragmentation halts collaborative medical research before it even starts.Session 3 explores how mapping clinical records to the OMOP common data model and leveraging 3D image synthesis unlock true interoperability across multi-centre networks. 👉Watch today or keep it saved youtu.be/Ep4juTDnLb4
youtu.be
Session 3: Data Quality, Standardisation, Data Generation, Anonymization and Interoperability
YouTube video by SYNTHEMA
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SYNTHEMA @synthemaeu.bsky.social · 06/08/2026
SYNTHEMA deliverable D1.3 documents how multimodal data for SCD and AML were collected, pseudonymised, harmonised and mapped to OMOP, creating GDPR-compliant datasets for synthetic data generation and federated AI validation. 👉 synthema.eu/public-deliv...
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SYNTHEMA @synthemaeu.bsky.social · 03/08/2026
Building AI for digital health? Compliance cannot be an afterthought. Session 2 breaks down EU AI Act high-risk classifications, GDPR requirements, and how tools like Differential Privacy keep patient records safe. 👉Watch now or save for later: www.youtube.com/watch?v=RZbz...
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Session 2: Regulatory on Medical Devices, AI Act, Privacy-Preserving and Ethical Considerations
YouTube video by SYNTHEMA
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SYNTHEMA @synthemaeu.bsky.social · 30/07/2026
How should source and synthetic health data be protected, managed and reused? SYNTHEMA deliverable D5.4 updates our Data Management Plan, covering FAIR principles, security, privacy risks, ethics, interoperability and sustainability. 👉 synthema.eu/public-deliv...
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SYNTHEMA @synthemaeu.bsky.social · 27/07/2026
How do you train healthcare AI when patient data cannot leave local hospital servers? In this session we demonstrate how federated learning and synthetic data generation create secure, privacy-compliant pipelines for rare disease research. 👉 Watch now: www.youtube.com/watch?v=S9-S...
youtube.com
Session 1: SYNTHEMA – Infrastructure for SDG in ERN-EuroBloodNet
YouTube video by SYNTHEMA
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SYNTHEMA @synthemaeu.bsky.social · 23/07/2026
Cancer research often works with limited data, while many synthetic data models need thousands of samples. This paper explores how transfer learning and meta-learning can improve synthetic tabular data generation in low-data medical scenarios. Access it via SYNTHEMA: synthema.eu/publications/
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SYNTHEMA @synthemaeu.bsky.social · 20/07/2026
🔬How do we safely validate synthetic data for clinical research? Our new deliverable (D4.1) outlines a rigorous three-tiered framework—testing VAEs, GANs, and diffusion models on leukaemia and sickle cell disease datasets. 👉Access the full report: synthema.eu/public-deliv...
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SYNTHEMA @synthemaeu.bsky.social · 16/07/2026
In the latest issue of our newsletter, we have compiled the outcomes and resources of our complete training programme on synthetic data in haematology into one accessible guide. Access the full material and webinar recordings here: 👉 zenodo.org/records/2139...
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SYNTHEMA @synthemaeu.bsky.social · 14/07/2026
Cybersecurity risk assessment gets harder when assets, threats and consequences are deeply connected. This paper presents an automated, knowledge-based approach for cyber-physical systems, implemented through the open-source Spyderisk project. 👉 synthema.eu/publications/
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SYNTHEMA @synthemaeu.bsky.social · 07/07/2026
Healthcare data cannot always be centralised, but treatment effects still need to be estimated. A paper by Alejandro Almodovar, Juan Parras and Santiago Zazo explores federated learning for causal inference using deep generative disentangled models. Access the paper: synthema.eu/publications/
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SYNTHEMA @synthemaeu.bsky.social · 08/06/2026
What does it really mean for synthetic data to be private? This systematic review digs into 105 studies to map how privacy in SDG is defined, evaluated & applied, spotlighting differential privacy, GANs & healthcare use. 👉Available at: synthema.eu/publications/
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SYNTHEMA @synthemaeu.bsky.social · 05/06/2026
#SYNTHEMA is building the foundations for a future where synthetic, privacy-preserving data supports progress in rare diseases. Beyond its two use cases, its flexible design can benefit other rare and underrepresented conditions. More 👉 synthema.eu
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SYNTHEMA @synthemaeu.bsky.social · 29/05/2026
In 1 hour, we are starting the final session of the SYNTHEMA and @erneurobloodnet.bsky.social training programme. Today’s session will explore how synthetic data can support research in Sickle Cell Disease and Acute Myeloid Leukaemia. 👉 Register, it’s free: synthema.eu/training/
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SYNTHEMA @synthemaeu.bsky.social · 25/05/2026
New publication from the SYNTHEMA project 👇 Researchers developed a two-stage framework to assess privacy risks in Federated Learning and generative AI, showing when client updates remain detectable and can be linked to private data. Access the paper: synthema.eu/publications/
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SYNTHEMA @synthemaeu.bsky.social · 22/05/2026
In 1 hour, we are starting the third SYNTHEMA and @erneurobloodnet.bsky.social session. Today’s discussion will focus on interoperability, synthetic data and how health data can be standardised, shared and reused across systems. 👉 Register, it’s free: synthema.eu/training/
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SYNTHEMA @synthemaeu.bsky.social · 18/05/2026
Interested in synthetic data and AI-powered breakthroughs in hematology? Visit SYNTHEMA’s publications section to explore the latest advancements by our team in data privacy, federated learning, AI for rare blood diseases, and more. 👉Start reading: synthema.eu/publications #SYNTHEMA #SyntheticData
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SYNTHEMA @synthemaeu.bsky.social · 15/05/2026
Starting in 1 hour! Today’s SYNTHEMA and @erneurobloodnet.bsky.social session will focus on the regulatory and ethical context for AI in healthcare, including MDR, the EU AI Act and privacy-preserving federated learning. 👉 Register, it’s free: synthema.eu/training/
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SYNTHEMA @synthemaeu.bsky.social · 13/05/2026
The SYNTHEMA M42 meeting in Rome wrapped up after two productive days of collaboration. Partners aligned on the final phase of the project, including the white paper, webinars, and sustainability of results. Thanks to Datawizard for hosting us 🫶 synthema.eu
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SYNTHEMA @synthemaeu.bsky.social · 12/05/2026
Saluti da Roma! 🇮🇹 The SYNTHEMA consortium is in Rome this week for the project’s M42 meeting, hosted by Datawizard. Over the next two days, partners will coordinate the final phase of the project as SYNTHEMA enters its last six months. More about our work: synthema.eu
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SYNTHEMA @synthemaeu.bsky.social · 09/05/2026
Today is Europe Day 🇪🇺 #SYNTHEMA brings together partners across Europe to advance AI-powered anonymisation and synthetic data generation for research on rare haematological diseases. 👉https://synthema.eu/ #EuropeDay #HealthInnovation
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SYNTHEMA @synthemaeu.bsky.social · 04/05/2026
The #SYNTHEMA and @erneurobloodnet.bsky.social training programme starts this week. The first session is taking place this Friday, 8 May at 12:30 CEST, focusing on infrastructure for synthetic data generation. If you have not registered yet, now is the time. 👉 synthema.eu/training/
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SYNTHEMA @synthemaeu.bsky.social · 29/04/2026
Ever heard of synthetic data? It helps protect privacy, improve healthcare innovation, and still relies on real patient data. Your voice matters. Take part in the European survey on synthetic data in healthcare (12–15 minutes), find out more: bit.ly/4c7if0o #SYNTHIA
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SYNTHEMA @synthemaeu.bsky.social · 23/04/2026
SYNTHEMA is part of the #HealthData4EU cluster, working to make health data more accessible, secure and interoperable. Its work focuses on synthetic data, federated learning and privacy-preserving technologies. Interested in synthetic data? 👉 Join the webinar series: synthema.eu/training/
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SYNTHEMA @synthemaeu.bsky.social · 20/04/2026
Artificial intelligence is already being applied in rare haematological diseases. The #SYNTHEMA and @erneurobloodnet.bsky.social training programme, led by experts from the field, covers synthetic data, federated learning, regulation and clinical use cases. Register: synthema.eu/training/
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SYNTHEMA @synthemaeu.bsky.social · 17/04/2026
Sickle Cell Disease is a rare, life-threatening blood disorder with limited treatment options. In SYNTHEMA’s Use Case 2, AI generates synthetic data from 1,000+ patients to study genetic factors & predict brain vascular events, while protecting privacy. 👉 synthema.eu/use-cases/
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SYNTHEMA @synthemaeu.bsky.social · 14/04/2026
How will synthetic data be applied in real research? This final session will present use cases in Sickle Cell Disease and Acute Myeloid Leukaemia as part of the joint #SYNTHEMA and @erneurobloodnet.bsky.social training programme. 👉 Register: synthema.eu/training/
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SYNTHEMA @synthemaeu.bsky.social · 09/04/2026
#AML is the most common acute leukemia in adults – fast-progressing but treatable. In SYNTHEMA’s Use Case 1, AI creates synthetic data from 2,500+ AML patients to predict survival & treatment responses, while protecting privacy. 👉Learn more about our approach: synthema.eu
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SYNTHEMA @synthemaeu.bsky.social · 07/04/2026
How can synthetic health data be standardised, shared and reused across systems? Don’t miss this session on interoperability and synthetic data as part of the joint #SYNTHEMA and @erneurobloodnet.bsky.social training programme. 👉 Register: synthema.eu/training/
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SYNTHEMA @synthemaeu.bsky.social · 02/04/2026
#SYNTHEMA enables research on diseases like leukaemia and sickle cell without exposing patient data, using AI-generated synthetic datasets. Our models create realistic clinical, genetic, and imaging data, supporting safe and privacy-first research. 👉 synthema.eu #AIInMedicine
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SYNTHEMA @synthemaeu.bsky.social · 31/03/2026
If you're interested in regulation and ethics in AI for healthcare, don’t miss this session on MDR, the EU AI Act and privacy-preserving federated learning as part of the joint #SYNTHEMA and @erneurobloodnet.bsky.social training programme. 👉 Register: synthema.eu/training/
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SYNTHEMA @synthemaeu.bsky.social · 26/03/2026
Missed it? The BDVA Healthcare Task Force white paper on synthetic data features #SYNTHEMA, led by Netcompany, alongside AISym4MED and SECURED. It shows how synthetic data can expand access, improve AI and enable more inclusive research. Access the paper: synthema.eu/publications/
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SYNTHEMA @synthemaeu.bsky.social · 24/03/2026
Join the first #SYNTHEMA webinar in our training series! 8 May 2026 | 12:30 CEST Explore the @erneurobloodnet.bsky.social infrastructure for synthetic data: governance, strategy & architecture. Open to patients & health professionals. 👉 synthema.eu/training/ Don’t miss it & share!
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Reposted by SYNTHEMA
ERN EuroBloodNet @erneurobloodnet.bsky.social · 23/03/2026
🚀​Are you ready to explore the cutting-edge world of Artificial Intelligence in hematology? ERN-EuroBloodNet and @synthemaeu.bsky.social are proud to launch a joint educational program on #AI, designed for both the public-at-large and expert audiences. eurobloodnet.eu/education-2/...
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SYNTHEMA @synthemaeu.bsky.social · 18/03/2026
Registration is open for the SYNTHEMA & @erneurobloodnet.bsky.social in haematology webinar series. Join all 4 sessions in May 2026 or register for individual webinars. Synthetic data, federated learning, regulation and clinical use cases in AML and SCD. Register: synthema.eu/training/
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SYNTHEMA @synthemaeu.bsky.social · 17/03/2026
Good data is not just collected, it is built with care. In #SYNTHEMA, clinical teams across Europe are creating high-quality, privacy-compliant datasets to power synthetic data and AI research in rare blood disorders. 👉Read more: synthema.eu/2025/09/23/d...
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SYNTHEMA @synthemaeu.bsky.social · 11/03/2026
Netcompany has published the SYNTHEMA SMPC federated learning app on the Flower Hub. It enables secure aggregation of model updates while keeping data private. 👉 Explore the app: flower.ai/apps/synthem...
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SYNTHEMA @synthemaeu.bsky.social · 08/03/2026
Research on rare hematological diseases depends on people committed to complex challenges. Within SYNTHEMA, women contribute across clinical research, data science, technology and project work. Today, on March 8, we spotlight their contributions and give them the recognition they deserve.
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SYNTHEMA @synthemaeu.bsky.social · 26/02/2026
At #SYNTHEMA we use AI to fill data gaps & improve care for rare blood disorders. Focusing on Sickle Cell Disease & Acute Myeloid Leukaemia, we integrate clinical, genetic & imaging data for improved patient outcomes. 👉 synthema.eu #RareDiseases #Haematology
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SYNTHEMA @synthemaeu.bsky.social · 24/02/2026
28/02 is Rare Disease Day. It is about connection across countries, disciplines and communities. Progress in rare diseases depends on visibility, collaboration and responsible data use. At SYNTHEMA, we support cross-border research in rare hematological diseases synthema.eu
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