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ERN eUROGEN

@erneurogen.bsky.social
197 followers 49 following 306 posts

The European Reference Network for Rare Urogenital Diseases and Complex Conditions - eurogen-ern.eu

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ERN eUROGEN @erneurogen.bsky.social · 7h
Join our ERN eUROGEN Webinar: "Risks in Pregnancy after CAKUT" 👥 Birgit Pfaller & Christa Gernhold 📅 7 Oct | 18:00 CEST 🔗 Register: tinyurl.com/eurogen07oct26 #EUfunded #EU4Health #ERNs @ec.europa.eu @jardinjointaction.bsky.social @espu.bsky.social @eupsaofficial.bsky.social
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ERN eUROGEN @erneurogen.bsky.social · 02/10/2026
🇺🇦 Paediatric Urology Webinar Series for Ukraine: Anorectal Malformations (Part 1) 🗓 8 October ⏰ 18:00 CEST / 19:00 EEST 🎙 Prof. Dr. Martin Lacher 🔗 Register: tinyurl.com/eurogen08oct26 #EUfunded #EU4Health #HealthUnion #RareDisease #PedUro #ARM
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ERN eUROGEN @erneurogen.bsky.social · 02/10/2026
🇺🇦 Серія вебінарів з дитячої урології для України: Аноректальні вади розвитку (Частина 1) 🗓 8 жовтня 🕕 18:00 CEST / 19:00 EEST 🎙 Проф. д-р Мартін Лахер 🔗 Реєстрація tinyurl.com/eurogen08oct26 #EUfunded #EU4Health #RareDisease #PedUro #ARM
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ERN eUROGEN @erneurogen.bsky.social · 01/10/2026
Join our ERN eUROGEN Webinar: "Risks in Pregnancy after CAKUT" 👥 Birgit Pfaller & Christa Gernhold 📅 7 Oct | 18:00 CEST 🔗 Register: tinyurl.com/eurogen07oct26 #EUfunded #EU4Health #ERNs @ec.europa.eu @jardinjointaction.bsky.social @espu.bsky.social @eupsaofficial.bsky.social
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ERN eUROGEN @erneurogen.bsky.social · 30/09/2026
What could the future of hereditary kidney cancer care look like? 🤔 The VITRUVIA consortium has proposed building “virtual twins” for patients, bringing together clinical centres across Europe. 🔗 Read more: eurogen-ern.eu/urology-week...
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ERN eUROGEN @erneurogen.bsky.social · 30/09/2026
Join our next ERN eUROGEN Webinar: 🖥️ Long-Term Outcomes of Hypospadias from a Patient Perspective 👥 Prof. Magdalena Fossum and A. Prof. Niklas Pakkasjärvi 📅 30 Sept | 18:00–19:00 CEST 👉 tinyurl.com/eurogen30sep26
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ERN eUROGEN @erneurogen.bsky.social · 29/09/2026
🧬 The HLRCC Alliance brings together patients, clinicians, and scientists across Europe, the USA, Canada, Asia, and Australia to tackle rare, hereditary kidney cancer, with support from ERN eUROGEN, ERKNet, ERN GENTURIS, the IKCC, and others. 🔗 eurogen-ern.eu/urology-week...
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ERN eUROGEN @erneurogen.bsky.social · 28/09/2026
Five ERNs, one consensus. 💙 ERN eUROGEN, ERKNet, ERN-EYE, Endo ERN, & ERN GENTURIS are developing shared guidance for treating VHL-associated #KidneyCancer with Belzutifan: 🔗 Read more: eurogen-ern.eu/urology-week...
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ERN eUROGEN @erneurogen.bsky.social · 28/09/2026
Join our next ERN eUROGEN Webinar: 🖥️ Long-Term Outcomes of Hypospadias from a Patient Perspective 👥 Prof. Magdalena Fossum and A. Prof. Niklas Pakkasjärvi 📅 30 Sept | 18:00–19:00 CEST 👉 tinyurl.com/eurogen30sep26
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ERN eUROGEN @erneurogen.bsky.social · 24/09/2026
Join our next ERN eUROGEN Webinar: 🖥️ Long-Term Outcomes of Hypospadias from a Patient Perspective 👥 Prof. Magdalena Fossum and A. Prof. Niklas Pakkasjärvi 📅 30 Sept | 18:00–19:00 CEST 👉 tinyurl.com/eurogen30sep26
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ERN eUROGEN @erneurogen.bsky.social · 24/09/2026
🇺🇦 Серія вебінарів з дитячої урології для України: Якість життя, пов'язана зі здоров'ям, при spina bifida 🗓 24 вересня 🕕 19:00 EEST 🔗 tinyurl.com/eurogen24sep26 🎙 Проф. Кейт Абрахамссон, Доц. проф. Міхаела Делленмарк-Блом, Др. Марі Андерссон, Шарлотта Левен Андреассон #EUfunded #SpinaBifida
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ERN eUROGEN @erneurogen.bsky.social · 24/09/2026
🇺🇦 Paediatric Urology Webinar Series for Ukraine: Health-Related Quality of Life in Spina Bifida 🗓 24 September ⏰ 18:00 CEST 🔗 tinyurl.com/eurogen24sep26 🎙 Prof. Kate Abrahamsson, Assoc. Prof. Michaela Dellenmark-Blom, Dr. Marie Andersson, Charlotta Levén Andréasson #EUfunded #SpinaBifida
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ERN eUROGEN @erneurogen.bsky.social · 23/09/2026
🔎 Could ultrasound reduce the need for radiation when monitoring bowel management? Join our webinar on clinician USS in children with colorectal conditions. 📅 23 Sept | 18:00–19:00 CEST 👉 tinyurl.com/eurogen23sep26 #EUfunded #RareDisease #ERNs #PedUro #SoMe4PedSurg
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ERN eUROGEN @erneurogen.bsky.social · 22/09/2026
🇺🇦 Paediatric Urology Webinar Series for Ukraine: Health-Related Quality of Life in Spina Bifida 🗓 24 September ⏰ 18:00 CEST 🔗 tinyurl.com/eurogen24sep26 🎙 Prof. Kate Abrahamsson, Assoc. Prof. Michaela Dellenmark-Blom, Dr. Marie Andersson, Charlotta Levén Andréasson #EUfunded #SpinaBifida
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ERN eUROGEN @erneurogen.bsky.social · 22/09/2026
🇺🇦 Серія вебінарів з дитячої урології для України: Якість життя, пов'язана зі здоров'ям, при spina bifida 🗓 24 вересня 🕕 19:00 EEST 🔗 tinyurl.com/eurogen24sep26 🎙 Проф. Кейт Абрахамссон, Доц. проф. Міхаела Делленмарк-Блом, Др. Марі Андерссон, Шарлотта Левен Андреассон #EUfunded #SpinaBifida
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ERN eUROGEN @erneurogen.bsky.social · 21/09/2026
🔎 Could ultrasound reduce the need for radiation when monitoring bowel management? Join our webinar on clinician USS in children with colorectal conditions. 📅 23 Sept | 18:00–19:00 CEST 👉 tinyurl.com/eurogen23sep26 #EUfunded #RareDisease #ERNs #PedUro #SoMe4PedSurg
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ERN eUROGEN @erneurogen.bsky.social · 18/09/2026
🔎 Could ultrasound reduce the need for radiation when monitoring bowel management? Join our webinar on clinician USS in children with colorectal conditions. 📅 23 Sept | 18:00–19:00 CEST 👉 tinyurl.com/eurogen23sep26 #EUfunded #RareDisease #ERNs #PedUro #SoMe4PedSurg
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ERN eUROGEN @erneurogen.bsky.social · 17/09/2026
🇺🇦 Paediatric Urology Webinar Series for Ukraine: Health-Related Quality of Life in Spina Bifida 🗓 24 September ⏰ 18:00 CEST 🔗 tinyurl.com/eurogen24sep26 🎙 Prof. Kate Abrahamsson, Assoc. Prof. Michaela Dellenmark-Blom, Dr. Marie Andersson, Charlotta Levén Andréasson #EUfunded #SpinaBifida
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ERN eUROGEN @erneurogen.bsky.social · 17/09/2026
🇺🇦 Серія вебінарів з дитячої урології для України: Якість життя, пов'язана зі здоров'ям, при spina bifida 🗓 24 вересня 🕕 19:00 EEST 🔗 tinyurl.com/eurogen24sep26 🎙 Проф. Кейт Абрахамссон, Доц. проф. Міхаела Делленмарк-Блом, Др. Марі Андерссон, Шарлотта Левен Андреассон #EUfunded #SpinaBifida
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ERN eUROGEN @erneurogen.bsky.social · 16/09/2026
🚨 TONIGHT! 🔵 Preventing UTIs in neurogenic bladder: webinar with José Medina-Polo exploring the evidence on optimal UTI prevention, incl non-antibiotic approaches. 📅 16 Sept 🕕 18:00 CEST 🎓 EACCME accredited 🔗 tinyurl.com/eurogen16sep26 #EUfunded #EU4Health #HealthUnion #RareDisease #ERNs #Urology
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ERN eUROGEN @erneurogen.bsky.social · 14/09/2026
🔵 Preventing UTIs in neurogenic bladder: join our webinar with José Medina-Polo to explore the evidence on optimal UTI prevention, incl non-antibiotic approaches. 📅 16 Sept 🕕 18:00 CEST 🎓 EACCME accredited 🔗 tinyurl.com/eurogen16sep26 #EUfunded #EU4Health #HealthUnion #RareDisease #ERNs #Urology
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ERN eUROGEN @erneurogen.bsky.social · 10/09/2026
🇺🇦 Серія вебінарів з дитячої урології для України: Рідкісні урологічні камені 🗓 10 вересня 🕕 18:00 CEST / 19:00 EEST 🎙 Доктор Анна Буйонс Тур 🔗 tinyurl.com/eurogen10sep26 #EUfunded #EU4Health #RareDisease #ERNs #PedUro #SoMe4PedSurg
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ERN eUROGEN @erneurogen.bsky.social · 10/09/2026
🇺🇦 Paediatric Urology Webinar Series for Ukraine: Rare Urological Stones 🗓 10 September ⏰ 18:00 CEST / 19:00 EEST 🎙 Dr. Anna Bujons Tur 🔗 tinyurl.com/eurogen10sep26 #EUfunded #EU4Health #HealthUnion #RareDisease #ERNs #PedUro #SoMe4PedSurg
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ERN eUROGEN @erneurogen.bsky.social · 09/09/2026
🔵 Preventing UTIs in neurogenic bladder: join our webinar with José Medina-Polo to explore the evidence on optimal UTI prevention, incl non-antibiotic approaches. 📅 16 Sept 🕕 18:00 CEST 🎓 EACCME accredited 🔗 tinyurl.com/eurogen16sep26 #EUfunded #EU4Health #HealthUnion #RareDisease #ERNs #Urology
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ERN eUROGEN @erneurogen.bsky.social · 08/09/2026
🇺🇦 Paediatric Urology Webinar Series for Ukraine: Rare Urological Stones 🗓 10 September ⏰ 18:00 CEST / 19:00 EEST 🎙 Dr. Anna Bujons Tur 🔗 tinyurl.com/eurogen10sep26 #EUfunded #EU4Health #HealthUnion #RareDisease #ERNs #PedUro #SoMe4PedSurg
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ERN eUROGEN @erneurogen.bsky.social · 08/09/2026
🇺🇦 Серія вебінарів з дитячої урології для України: Рідкісні урологічні камені 🗓 10 вересня 🕕 18:00 CEST / 19:00 EEST 🎙 Доктор Анна Буйонс Тур 🔗 tinyurl.com/eurogen10sep26 #EUfunded #EU4Health #RareDisease #ERNs #PedUro #SoMe4PedSurg
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ERN eUROGEN @erneurogen.bsky.social · 03/09/2026
🇺🇦 Серія вебінарів з дитячої урології для України: Рідкісні урологічні камені 🗓 10 вересня 🕕 18:00 CEST / 19:00 EEST 🎙 Доктор Анна Буйонс Тур 🔗 tinyurl.com/eurogen10sep26 #EUfunded #EU4Health #RareDisease #ERNs #PedUro #SoMe4PedSurg
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ERN eUROGEN @erneurogen.bsky.social · 03/09/2026
🇺🇦 Paediatric Urology Webinar Series for Ukraine: Rare Urological Stones 🗓 10 September ⏰ 18:00 CEST / 19:00 EEST 🎙 Dr. Anna Bujons Tur 🔗 tinyurl.com/eurogen10sep26 #EUfunded #EU4Health #HealthUnion #RareDisease #ERNs #PedUro #SoMe4PedSurg
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ERN eUROGEN @erneurogen.bsky.social · 29/07/2026
New from ERN eUROGEN: guidance on paediatric-to-adult transition care for individuals with rare uro-recto-genital conditions, developed by clinicians & patient representatives. Seven recommendations + condition-specific multidisciplinary team requirements. 🔗 eurogen-ern.eu/transition-g...
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ERN eUROGEN @erneurogen.bsky.social · 28/07/2026
📢 New funding opportunity for #raredisease #research! Anthropic has launched a grant program for academic researchers and small biotechs exploring AI to accelerate discovery, patient data analysis & preclinical innovation. 👉 Learn more: www.anthropic.com/news/rare-di...
anthropic.com
Apply for Anthropic’s AI for Science rare disease research grants
Anthropic is sharing a focused call for AI for Science applications centered specifically on rare genetic diseases. Accepted applicants will receive up to $50,000 in Claude credits over six months, wi...
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ERN eUROGEN @erneurogen.bsky.social · 24/06/2026
🔵 Long-term continence issues in #HirschsprungsDisease Join the next ERN eUROGEN & ERN ERNICA colorectal webinar, supported by @eupsaofficial.bsky.social and ARM-Net. 📅 24 June 2026, 18:00 CEST 🔗 tinyurl.com/eurogen24Jun26 #EUfunded #EU4Health #RareDisease #ERNs #PedUro #SoMe4PedSurg
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ERN eUROGEN @erneurogen.bsky.social · 22/06/2026
🔵 Long-term continence issues in #HirschsprungsDisease Join the next ERN eUROGEN & ERN ERNICA colorectal webinar, supported by @eupsaofficial.bsky.social and ARM-Net. 📅 24 June 2026, 18:00 CEST 🔗 tinyurl.com/eurogen24Jun26 #EUfunded #EU4Health #RareDisease #ERNs #PedUro #SoMe4PedSurg
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ERN eUROGEN @erneurogen.bsky.social · 17/06/2026
🔵 Long-term continence issues in #HirschsprungsDisease Join the next ERN eUROGEN & ERN ERNICA colorectal webinar, supported by @eupsaofficial.bsky.social and ARM-Net. 📅 24 June 2026, 18:00 CEST 🔗 tinyurl.com/eurogen24Jun26 #EUfunded #EU4Health #RareDisease #ERNs #PedUro #SoMe4PedSurg
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ERN eUROGEN @erneurogen.bsky.social · 28/05/2026
🇺🇦 Серія вебінарів з дитячої урології для України: Гіпоспадія 🗓 28 травня 🕕 18:00 CEST / 19:00 EEST 🎙 Проф. Магдалена Фоссум, Доц. проф. Алессандро Морлакко 🔗 tinyurl.com/eurogen28may26 #EUfunded #EU4Health #RareDisease #ERNs #PedUro #SoMe4PedSurg
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ERN eUROGEN @erneurogen.bsky.social · 28/05/2026
🇺🇦 Paediatric Urology Webinar Series for Ukraine: Hypospadias 🗓 28 May 2026 ⏰ 18:00 CEST / 19:00 EEST 🎙 Prof. Magdalena Fossum, Assoc. Prof. Alessandro Morlacco 🔗 tinyurl.com/eurogen28may26 #EUfunded #EU4Health #HealthUnion #RareDisease #ERNs #PedUro #SoMe4PedSurg
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ERN eUROGEN @erneurogen.bsky.social · 26/05/2026
🇺🇦 Paediatric Urology Webinar Series for Ukraine: Hypospadias 🗓 28 May 2026 ⏰ 18:00 CEST / 19:00 EEST 🎙 Prof. Magdalena Fossum, Assoc. Prof. Alessandro Morlacco 🔗 tinyurl.com/eurogen28may26 #EUfunded #EU4Health #HealthUnion #RareDisease #ERNs #PedUro #SoMe4PedSurg
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ERN eUROGEN @erneurogen.bsky.social · 26/05/2026
🇺🇦 Серія вебінарів з дитячої урології для України: Гіпоспадія 🗓 28 травня 🕕 18:00 CEST / 19:00 EEST 🎙 Проф. Магдалена Фоссум, Доц. проф. Алессандро Морлакко 🔗 tinyurl.com/eurogen28may26 #EUfunded #EU4Health #RareDisease #ERNs #PedUro #SoMe4PedSurg
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ERN eUROGEN @erneurogen.bsky.social · 22/05/2026
🇺🇦 Серія вебінарів з дитячої урології для України: Гіпоспадія 🗓 28 травня 🕕 18:00 CEST / 19:00 EEST 🎙 Проф. Магдалена Фоссум, Доц. проф. Алессандро Морлакко 🔗 tinyurl.com/eurogen28may26 #EUfunded #EU4Health #RareDisease #ERNs #PedUro #SoMe4PedSurg
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ERN eUROGEN @erneurogen.bsky.social · 22/05/2026
🇺🇦 Paediatric Urology Webinar Series for Ukraine: Hypospadias 🗓 28 May 2026 ⏰ 18:00 CEST / 19:00 EEST 🎙 Prof. Magdalena Fossum, Assoc. Prof. Alessandro Morlacco 🔗 tinyurl.com/eurogen28may26 #EUfunded #EU4Health #HealthUnion #RareDisease #ERNs #PedUro #SoMe4PedSurg
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ERN eUROGEN @erneurogen.bsky.social · 20/05/2026
🚨 TONIGHT! ERN eUROGEN webinar on Female Urethral Strictures with Dr Beatriz Martinez Gonzalez & Dr Adela Navarro Martínez. 🗓️ 20 May 2026 ⏰ 18:00–19:00 CEST 🔗 Register: tinyurl.com/eurogen20May26 #EUfunded #EU4Health #RareDisease #ERNs #FPMRS #Urology @ec.europa.eu @jardinjointaction.bsky.social
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ERN eUROGEN @erneurogen.bsky.social · 18/05/2026
📢 Join an ERN eUROGEN webinar on Female Urethral Strictures with Dr Beatriz Martinez Gonzalez & Dr Adela Navarro Martínez. 🗓️ 20 May 2026 ⏰ 18:00–19:00 CEST 🔗 Register: tinyurl.com/eurogen20May26 #EUfunded #EU4Health #RareDisease #ERNs #FPMRS #Urology @ec.europa.eu @jardinjointaction.bsky.social
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ERN eUROGEN @erneurogen.bsky.social · 13/05/2026
📢 Join an ERN eUROGEN webinar on Female Urethral Strictures with Dr Beatriz Martinez Gonzalez & Dr Adela Navarro Martínez. 🗓️ 20 May 2026 ⏰ 18:00–19:00 CEST 🔗 Register: tinyurl.com/eurogen20May26 #EUfunded #EU4Health #RareDisease #ERNs #FPMRS #Urology @ec.europa.eu @jardinjointaction.bsky.social
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ERN eUROGEN @erneurogen.bsky.social · 06/05/2026
🚨 TONIGHT! Join the next ERN eUROGEN webinar on "Lichen Sclerosus in Men" with Prof. Dr. med. Oliver Muensterer. 🗓️ 6 May 2026 ⏰ 18:00–19:00 CEST 🔗 Register: tinyurl.com/eurogen6May26 #EUfunded #EU4Health #HealthUnion #RareDisease #ERNs #Urology @ec.europa.eu @jardinjointaction.bsky.social
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ERN eUROGEN @erneurogen.bsky.social · 04/05/2026
📢 Join the next ERN eUROGEN webinar on "Lichen Sclerosus in Men" with Prof. Dr. med. Oliver Muensterer. 🗓️ 6 May 2026 ⏰ 18:00–19:00 CEST 🔗 Register: tinyurl.com/eurogen6May26 #EUfunded #EU4Health #HealthUnion #RareDisease #ERNs #Urology @ec.europa.eu @jardinjointaction.bsky.social
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ERN eUROGEN @erneurogen.bsky.social · 29/04/2026
📢 Join the next ERN eUROGEN webinar on "Lichen Sclerosus in Men" with Prof. Dr. med. Oliver Muensterer. 🗓️ 6 May 2026 ⏰ 18:00–19:00 CEST 🔗 Register: tinyurl.com/eurogen6May26 #EUfunded #EU4Health #HealthUnion #RareDisease #ERNs #Urology @ec.europa.eu @jardinjointaction.bsky.social
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ERN eUROGEN @erneurogen.bsky.social · 23/04/2026
🚀 New publication highlights ERNs as a flagship EU initiative improving care for rare diseases. Collaboration across borders is transforming lives. 🔗 eurogen-ern.eu/new-publicat... @ec.europa.eu @jardinjointaction.bsky.social #EUfunded #EU4Health #HealthUnion #RareDisease #ERNs
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ERN eUROGEN @erneurogen.bsky.social · 26/03/2026
ERN eUROGEN at #EAU26 in London 🎉 — Thematic Session, ePAG presentations, roundtables, and a proud moment as Rob Cornes received the EAU Patient Advocacy Medal of Excellence 🏅 Full report: eurogen-ern.eu/ern-eurogen-... #EUfunded #EU4Health @jardinjointaction.bsky.social @uroweb.org
eurogen-ern.eu
ERN eUROGEN at EAU26: Bringing Rare Disease Expertise to London - ERN eUROGEN
The annual European Association of Urology (EAU) congress held this year in London from 13 to 16 March provided ERN eUROGEN with an outstanding platform to share our work, connect with the wider urolo...
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ERN eUROGEN @erneurogen.bsky.social · 24/03/2026
ERN eUROGEN supports the Declaration on a European Innovation and Care Ecosystem for Rare and Complex Diseases 🧬 Add your voice for better care, research, and sustainable ERN funding. ✍️ Sign here: wppsign.eu2.adobesign.com/public/esign... Please enter ERN eUROGEN as your associated ERN 💙
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ERN eUROGEN @erneurogen.bsky.social · 20/03/2026
🌍 It's the first-ever World Anorectal Malformations Day! 14 countries are officially recognising (ARM) today for the first time. ERN eUROGEN is proud to mark the day by highlighting our ARM resources. 👉 eurogen-ern.eu #WorldARMDay #AnorectalMalformation #RareDisease
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ERN eUROGEN @erneurogen.bsky.social · 19/03/2026
🇺🇦 Paediatric Urology Webinar Series for Ukraine: Bladder Exstrophy 🗓 19 March ⏰ 18:00 CET / 19:00 EET 🎙 Prof. Alaa El-Ghoneimi, Prof. Marc-David Leclair, Assoc. Prof. Gundela Holmndahl 🔗 events.zoom.us/ev/AlnMBiNyx... #EUfunded #EU4Health #HealthUnion #RareDisease #ERNs #PedUro #SoMe4PedSurg
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