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EHDN News @ehdn-news.bsky.social · 26/08/2026

📢 EHDN/MDS (ES) Fellowship 2027 Applications Open in One Week! Supports early-career HD clinicians/researchers with a 6-week placement at a leading multidisciplinary HD clinic in Europe. Further information: ehdn.org/hd-clinician... Questions? ✉️ fellowship@ehdn.org #HuntingtonsDisease

EHDN News @ehdn-news.bsky.social · 26/08/2026

Upcoming EHDN Platform Meeting: Peter McColgan (Roche) will present GENERATION HD2 results & key learnings - the Phase 2 tominersen trial in #HuntingtonDisease. 📅 29 Sept, 16:00–17:30 CEST 📍 Zoom Further information & registration link to follow - stay tuned

EHDN News @ehdn-news.bsky.social · 18/08/2026

📢 EHDN/MDS (ES) Fellowship 2027 Applications open 1 Sept! Supports early-career HD clinicians/researchers with a 6-week placement at a leading multidisciplinary HD clinic in Europe. Further information: ehdn.org/hd-clinician... Questions? ✉️ fellowship@ehdn.org #HuntingtonsDisease #Training

fellowship programme – European Huntington's Disease Network

EHDN News @ehdn-news.bsky.social · 18/08/2026

🚨 FUNDING ALERT! 🚨 Applications are open for the Gossweiler Foundation Neurology Research Grant - funding non-pharmacological research into Parkinson's & movement disorder symptoms, based in/related to Switzerland. Deadline: 30 Sept 📅 🔗 www.jggf.ch/en/neurology... #ClinicalResearch #Funding

jggf.ch

Neurology

EHDN News @ehdn-news.bsky.social · 10/08/2026

Registration for the EHDN Clinical Research Congress 2026 closes 14 August – we would love to see you there! Register here: na.eventscloud.com/ereg/index.p... #HuntingtonsDisease #HDCommunity #Advocacy #ClinicalResearch

EHDN News @ehdn-news.bsky.social · 10/08/2026

Some August viewing 🎬 The latest Postcard from Palm Springs is online - a quick, non-scientist-friendly roundup of highlights from the 21st Annual CHDI HD Therapeutics Conference (Feb 2026). 🔗 chdifoundation.org/postcard-fro... #HuntingtonsDisease #HDResearch

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EHDN News @ehdn-news.bsky.social · 04/08/2026

🧬 WHAT IS EHDN ENDORSEMENT? More than a stamp of approval – it's a recognised quality marker for HD clinical studies, strengthening research through expert review before it reaches participants. 📰 Read more: ehdn.org/wp-content/u... #HuntingtonsDisease #ClinicalResearch #DrugDevelopment

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EHDN News @ehdn-news.bsky.social · 27/07/2026

Meet Charlotte Spearing – HD advocate, caregiver & EHDN's first young adult Exec Committee rep, changing how we talk about HD. 📖 Read her story in the latest EHDN News: ehdn.org/wp-content/u... #HuntingtonsDisease #RareDisease

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EHDN News @ehdn-news.bsky.social · 20/07/2026

📢 EHDN's Occupational Therapy WG has published updated Clinical Tips for Huntington's Disease – Seating and Lying, plus is developing new Community Mobility Tips (inc. driving) — bringing them to the EHDN Clinical Research Congress in Krakow, 22-24 Oct. Get involved: ehdn.org/occupational...

EHDN News @ehdn-news.bsky.social · 16/07/2026

📢 Invite: HEATED Task Force meeting at EHDN Clinical Research Congress (Kraków, 22-24 Oct). All welcome - people with HD, families, researchers, industry & more. More info: ehdn.org/ehdn-heated-... Congress: ehdn.org/ehdn2026/ Registration closes 31 July! #HuntingtonsDisease

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EHDN News @ehdn-news.bsky.social · 14/07/2026

Jenny Townhill (EHDN & Cardiff University) presented on current clinical trials in Huntington's disease at the East Midlands HD Network event in Leicester, 11 July. The network is led by Sarah Gunn, Flaviano Giorgini & Reza Gianni (University of Leicester). #HuntingtonsDisease #ClinicalResearch

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EHDN News @ehdn-news.bsky.social · 14/07/2026

EHDN's Executive Committee has issued a statement on Roche's discontinuation of GENERATION HD2 and POINT-HD. Disappointing news, but tominersen proved huntingtin lowering is achievable - and other approaches remain in development. Full statement: ehdn.org/wp-content/u... #HuntingtonsDisease

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EHDN News @ehdn-news.bsky.social · 07/07/2026

Congratulations to Prof. Jean-Marc Burgunder, honoured with a European Academy of Neurology Lifetime Fellowship at #EAN2026 in Geneva! A former EHDN Chair & valued Think Tank member, he's dedicated his career to neurogenetics and compassionate care for families impacted by HD. #HuntingtonsDisease

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EHDN News @ehdn-news.bsky.social · 04/07/2026

🎆 Happy Independence Day to our American friends & colleagues! Today, we celebrate not just a nation’s independence but the spirit of collaboration that unites the global HD community across the Atlantic. #HuntingtonsDisease @hdfcures.bsky.social @hdsanational.bsky.social

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EHDN News @ehdn-news.bsky.social · 01/07/2026

📢 FALCON-HD: 12-Month Data – Composite Unified Huntington's Disease Rating Scale Subcomponents Read the 1 June (lnkd.in/ekUDnyAf) and 30 June (lnkd.in/e9t4Uuvt) press releases and the HDBuzz commentary: lnkd.in/gAAb2Wjj. For details of all ongoing/completed EHDN-endorsed studies: lnkd.in/eDwx3kBz

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EHDN News @ehdn-news.bsky.social · 01/07/2026

📰 EHDN News – July (Issue 58) is now online! Highlights: the 100th Lesley Jones Seed Fund awarded (€3M+ in research funding since launch), the Seed Fund Impact Study, an interview with Charlotte Spearing, plus EHDN Elections 2026 news. Read here: ehdn.org/ehdn-newslet... #HuntingtonsDisease #EHDN

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EHDN News @ehdn-news.bsky.social · 27/06/2026

The 12th Congress of the European Academy of Neurology takes place 27-30 June. EHDN is at Booth N35 in the Neurohood area - find out about our mission to advance research, facilitate clinical trials, and improve clinical care to enhance quality of life for people impacted by #HuntingtonsDisease.

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EHDN News @ehdn-news.bsky.social · 26/06/2026

🧠 Heading to Geneva this week for the 12th @EAN_Neurology Congress! The European Huntington's Disease Network will be at Booth N35 in the Neurohood area - come and find us to hear about the latest in HD research and collaboration. #EAN2026 #Neurology #HuntingtonsDisease #EHDN

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EHDN News @ehdn-news.bsky.social · 16/06/2026

**Bring your research to Kraków!** The call for abstracts is open for the EHDN Clinical Research Congress, Kraków, 22–24 October 2026. 🗓️ Submit 1–30 June 2026: na.eventscloud.com/eSites/87596... Questions: krakow2026@ehdn.org #HuntingtonsDisease #EHDN2026 #ClinicalResearch #HDCommunity

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EHDN News @ehdn-news.bsky.social · 16/06/2026

FALCON-HD, sponsored by Skyhawk Therapeutics, Inc., has been endorsed by EHDN. Clinical trial registration: clinicaltrials.gov/study/NCT073... Study webpage: www.falcon-hd.com/study-inform... For details about all ongoing and completed EHDN-endorsed studies: ehdn.org/previous-ong...

Research & Publications – European Huntington's Disease Network

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EHDN News @ehdn-news.bsky.social · 16/06/2026

DEVISE-HD: Developing EVIdence for AntidepreSsant ChoicE to Treat Depression in Huntington’s Disease, sponsored by Cardiff University (UK), endorsed by EHDN: www.cardiff.ac.uk/centre-for-t... For details about all ongoing and completed EHDN-endorsed studies: ehdn.org/previous-ong...

cardiff.ac.uk

DEVISE-HD

Developing EVIdence for AntidepreSsant ChoicE to Treat Depression in Huntington’s Disease.

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EHDN News @ehdn-news.bsky.social · 20/05/2026

EHDN's Occupational Therapy Working Group (ehdn.org/occupational...) has published updated and expanded Occupational Therapy Clinical Tips for Huntington's disease - Seating and Lying: www.hda.org.uk/seecmsfile/?... Find out about EHDN working groups here: ehdn.org/about-ehdn/e...

Occupational Therapy WG – European Huntington's Disease Network

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Reposted by EHDN News

SocialHDLancos @socialhdlancos.bsky.social · 12/05/2026

In the spirit of HD Awareness Month, the Leicester team showed up to their team meeting in beautiful blue to help raise awareness of Huntington’s Disease! Some staff members are also taking part in HDWalk26. Go Leicester! #HDAwarenessMonth #HuntingtonsDisease

The Barker Lab @thebarkerlabgroup.bsky.social · 15/05/2026

Reposted by EHDN News

Today, on International Huntington’s Disease Awareness Day, our team is wearing purple for Juvenile HD and blue for Huntington’s Disease awareness💜💙 Learn more about HD and the support available through the Huntington’s Disease Association: www.hda.org.uk #InternationalHDAwarenessDay

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EHDN News @ehdn-news.bsky.social · 22/04/2026

The European Academy of Neurology (EAN) will host its 12th annual Congress in Geneva from 27-30 June 2026, bringing together thousands of neurologists, scientists, educators, and healthcare professionals from around the world to discuss the latest developments in neurology: www.ean.org/congress2026

ean.org

12th Congress of the European Academy of Neurology - Geneva 2026

The 12th European Academy of Neurology congress will be on 27-30 June 2026, in Geneva, Switzerland

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Reposted by EHDN News

SocialHDLancos @socialhdlancos.bsky.social · 23/03/2026

Today is #hdgratitudeday ❤️ We are proud to stand with the global #HuntingtonsDisease community in recognising the unique and ongoing collaboration between HD families, clinicians, and scientists.

EHDN News @ehdn-news.bsky.social · 02/03/2026

Our latest issue of EHDN News brings a wealth of updates from across EHDN and the wider #HDcommunity. Highlights include the Path4HD-ISS2 initiative and the latest developments from EHDN-endorsed studies as well as Enroll-HD and HDClarity: ehdn.org/wp-content/u... #HuntingtonsDisease #Research

EHDN News @ehdn-news.bsky.social · 02/12/2025

The EHDN Platform Meeting 𝐮𝐧𝐢𝐐𝐮𝐫𝐞 𝐭𝐨𝐩𝐥𝐢𝐧𝐞 𝐫𝐞𝐬𝐮𝐥𝐭𝐬: 𝐮𝐧𝐩𝐚𝐜𝐤𝐢𝐧𝐠 𝐭𝐡𝐞 𝐨𝐮𝐭𝐜𝐨𝐦𝐞𝐬 𝐬𝐨 𝐟𝐚𝐫 took place on 18 November. We are very grateful to our amazing speakers and panellists. Catch up by watching the recording: www.youtube.com/watch?v=wKj1... & reading the full report: ehdn.org/wp-content/u...

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EHDN News @ehdn-news.bsky.social · 01/11/2025

The 56th issue of EHDN News is now online: ehdn.org/wp-content/u... Highlights include an interview with EHDN's Chief Operating Officer, Jamie Levey, and coverage of the European Huntington Association conference in Bucharest!

EHDN News @ehdn-news.bsky.social · 01/10/2025

Reposted by EHDN News

🌟 HD clinical fellowship programme is open 🌟 The EHDN and MDS-ES Huntington's Disease Fellowship Programme 2026 is now open for applications! 📅 Application Deadline: December 15, 2025, 17:00 CET 📧 Further information: ehdn.org/hd-clinician...

EHDN News @ehdn-news.bsky.social · 27/10/2025

EHDN is hosting a Platform Meeting in collaboration with HDYO and EHA titled 𝑢𝑛𝑖𝑄𝑢𝑟𝑒 𝑡𝑜𝑝𝑙𝑖𝑛𝑒 𝑟𝑒𝑠𝑢𝑙𝑡𝑠: 𝑢𝑛𝑝𝑎𝑐𝑘𝑖𝑛𝑔 𝑡𝘩𝑒 𝑜𝑢𝑡𝑐𝑜𝑚𝑒 𝑠𝑜 𝑓𝑎𝑟 on 𝟏𝟖 𝐍𝐨𝐯𝐞𝐦𝐛𝐞𝐫 at 𝟏𝟕:𝟎𝟎-𝟏𝟖:𝟑𝟎 𝐂𝐄𝐓. Åsa Petersén will chair the event and include presentations by Anne Rosser and Sarah Tabrizi. Register here: lnkd.in/dNdPNwxJ

lnkd.in

Welcome! You are invited to join a webinar: EHDN Platform meeting in collaboration with HDYO and EHA - uniQure topline results: Unpacking the outcomes so far. After registering, you will receive a con...

We would like to invite you to our upcoming EHDN Platform Meeting in collaboration with HDYO and EHA. UniQure topline results: unpacking the outcome so far. The Platform Meeting will take place on Tu...

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EHDN News @ehdn-news.bsky.social · 13/10/2025

Exciting opportunity at EHDN for a Clinical Research Associate/Language Area Coordinator – Netherlands and Flanders part-time: 60-80% Find out more here: ehdn.org/about-ehdn/c...

Career Opportunities – European Huntington's Disease Network

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EHDN News @ehdn-news.bsky.social · 01/10/2025

Dementia Researcher @dementiaresearcher.bsky.social · 30/09/2025

Reposted by EHDN News

Apply for BBSRC New Investigator funding. Up to £2m FEC over 5 years to support newly appointed lecturers and fellows leading their first major research project. www.dementiaresearcher.nihr.ac.uk/funding/bbsr...

dementiaresearcher.nihr.ac.uk

BBSRC New Investigator Award - DEMENTIA RESEARCHER

Apply for BBSRC New Investigator funding. Up to £2m FEC over 5 years to support newly appointed lecturers and fellows leading their first major research project

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EHDN News @ehdn-news.bsky.social · 30/09/2025

*Statement from EHDN Chairs on uniQure’s Topline Results* EHDN Chairs Patrick Weydt (University of Bonn) and Åsa Petersén (Lund University) share the excitement of the HD community in welcoming the topline results from uniQure’s phase 1/2 study of AMT-130: ehdn.org/statement-fr... #Huntingtons

Statement from EHDN Chairs on uniQure’s Topline Results – European Huntington's Disease Network

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Reposted by EHDN News

Rory Cellan-Jones @rorycj.bsky.social · 28/07/2025

Excited to tell you that the paperback edition of #SophieFromRomania with a new chapter about our second year with her is coming on September 11. And @waterstones.bsky.social has a special offer- 25% off on preorders 28-31 July

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EHDN News @ehdn-news.bsky.social · 24/09/2025

With the #huntingtonsdisease community, we are thrilled to hear uniQure's exciting topline results for their Phase 1/2 study of AMT-130: uniqure.gcs-web.com/node/12261/pdf For information on all ongoing and completed EHDN-endorsed studies click here: ehdn.org/previous-ong...

Research & Publications – European Huntington's Disease Network

EHDN News @ehdn-news.bsky.social · 24/09/2025

Applications for the EHDN & MDS-ES Fellowship Programme '26 open on 1 Oct. Selected fellows will spend 6 weeks in a European multi-disciplinary HD clinic. Priority will be given to applicants from underserved regions with regard to HD care or with specific HD training needs: ehdn.org/hd-clinician...

fellowship programme – European Huntington's Disease Network

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EHDN News @ehdn-news.bsky.social · 11/09/2025

EHDN's Lesley Jones Seed Fund is now open for applications. Find out more here: ehdn.org/hd-clinician...

Lesley Jones Seed Fund Program Applications – European Huntington's Disease Network

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Reposted by EHDN News

UK Dementia Research Institute @ukdri.ac.uk · 10/09/2025

Webinar: Could DNA repair hold the key to treating Huntingtons disease?🧬 Join UK DRI Group Leaders Profs Sarah Tabrizi & Gabriel Balmus as they dig into the latest discoveries and therapeutic breakthroughs from the field 🗓️ Mon 29 Sep 🕓 4-5pm (BST) Register free 👉 www.ukdri.ac.uk/events/rethi...

ukdri.ac.uk

Rethinking neurodegeneration: Could DNA repair hold the key to treating Huntington's disease?

With Prof Sarah Tabrizi & Prof Prof Gabriel Balmus

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Reposted by EHDN News

UK Dementia Research Institute @ukdri.ac.uk · 11/09/2025

❓Where does Alzheimer’s begin? Find out how Dr Marc Busche’s team (UK DRI at UCL) have been using specialised techniques to examine cells deep in the brain, to unlock valuable information as to the earliest stages of Alzheimer’s disease.

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Reposted by EHDN News

Dementia Researcher @dementiaresearcher.bsky.social · 02/09/2025

Apply now for a Churchill Fellowship @churchillfship.bsky.social : a once in a lifetime chance to explore global ideas, grow personally and professionally, and create real change in the UK. www.dementiaresearcher.nihr.ac.uk/funding/chur...

dementiaresearcher.nihr.ac.uk

Churchill Fellowship - DEMENTIA RESEARCHER

Apply now for a Churchill Fellowship: a once in a lifetime chance to explore global ideas, grow personally and professionally, and create real change in the UK.

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EHDN News @ehdn-news.bsky.social · 02/09/2025

The 6th RNA Metabolism in Neurological Disease Conference: San Diego, March 29-31, 2026. This conference will bring together basic, clinical, and industry scientists to discuss the roles of perturbed RNA metabolism in neurological diseases. Abstract deadline: October 31, 2025: bit.ly/RNAMetabolism

bit.ly

RNA Metabolism in Neurological Disease Conference