iiinova — where your digital self keeps evolving

Huntington's Disease Foundation @hdfcures.bsky.social · 29/09/2026

uniQure issued a press release today announcing additional data from the ongoing Phase I/II clinical studies of AMT-130, their investigational gene therapy for Huntington's disease. Read more: bit.ly/HDF-PR #uniqure #scientificresearch #researchupdatehd #hdresearch #curehd

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Huntington's Disease Foundation @hdfcures.bsky.social · 17/09/2026

Drs. Rachel Harding & Leora Fox from @hdbuzzfeed.bsky.social shared the buzz from HDF’s recent HD2026: 14th Milton Wexler Biennial Symposium. They gave a brief but thorough overview about some of the exciting science from HD2026 & answered many questions. WATCH NOW: www.youtube.com/watch?v=Omvc...

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Huntington's Disease Foundation @hdfcures.bsky.social · 03/09/2026

At HDF's HD2026 Symposium, a record crowd of 300 researchers from around the globe pushed the frontiers of science in their urgent quest for treatments for Huntington's disease, a devastating brain disorder. Read key highlights: hdfoundation.org/hd2026-recap... #cureHD #HuntingtonsDisease #HD2026

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Huntington's Disease Foundation @hdfcures.bsky.social · 01/09/2026

The Huntington's Disease Foundation is currently accepting Letters of Intent for Postdoctoral Fellowships and Grants. We invite you to look at the Apply for Funding page on our website to learn more and submit your application. Letters of Intent are due by October 1, 2026. hdfoundation.org/apply/

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Huntington's Disease Foundation @hdfcures.bsky.social · 28/08/2026

Earlier this month HDF hosted 300 of the world’s experts in HD & other neurological diseases to share their latest discoveries. @hdbuzzfeed.bsky.social posted live updates on BlueSky. On 9/9 they’re joining us to share some highlights. Mark the date! Register Now: us06web.zoom.us/webinar/regi...

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Huntington's Disease Foundation @hdfcures.bsky.social · 25/08/2026

Rachel Harding & Leora Fox from @hdbuzzfeed.bsky.social will join us on 9/9 to share the buzz from HDF’s recent HD2026 Symposium. They'll recap some of the exciting science from the meeting and hold a live Q&A. Register Now: us06web.zoom.us/.../501.../W... #curehd #HD2026 #researchspotlightwebinars

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Huntington's Disease Foundation @hdfcures.bsky.social · 08/07/2026

Your gift of any size will help move the needle in #Huntingtonsdisease research! Donate today to the Nancy S. Wexler Discovery Fund to directly impact a future treatment or cure for HD. We are all in this together. 💙 Make your gift today: hdfoundation.org/nancy-s-wexl... #nancywexler #curehd

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Huntington's Disease Foundation @hdfcures.bsky.social · 18/06/2026

Nancy Wexler's vision continues to inspire the future of Huntington's disease research. The Nancy S. Wexler Discovery Fund supports the next generation of researchers working to advance treatments for HD. Learn more or make a gift here: hdfoundation.org/nancy-s-wexl... #nancywexler #curehd

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Huntington's Disease Foundation @hdfcures.bsky.social · 11/06/2026

Won-Seok Lee @broadinstitute.org, receives the 2026 Nancy S. Wexler Young Investigator Prize, which is awarded annually to an early career researcher whose work reflects the highest caliber of excellence, diligence & creative thinking. Learn more: tinyurl.com/nswprize #curehd #huntingtonsdisease

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Huntington's Disease Foundation @hdfcures.bsky.social · 19/05/2026

Inspired by the advocates, families & HD community, 5 #Huntingtonsdisease orgs came together to champion the future of rare disease innovation at the FDA. Every day matters for HD families. We'll continue advocating together for a brighter future. #RareDisease #PatientAdvocacy #HDCommunity #curehd

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Huntington's Disease Foundation @hdfcures.bsky.social · 14/05/2026

HDF CEO Meghan Donaldson was a guest on @americanbrainco.bsky.social's podcast "AdvocacyChampions: Voices for the Brain." Meghan shares her personal story, HDF's history, and short- and long-term goals for HDF. Listen here: www.americanbraincoalition.org/abc-podcast #curehd #hdawarenessmonth

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Huntington's Disease Foundation @hdfcures.bsky.social · 11/05/2026

Latus raises $97M to expand reach of gene therapy for #Huntingtonsdisease: tinyurl.com/Latus-97M This team got HDF's $1M 2023 Transformative Research Award. This shows the power of investing in bold science early. HDF remains committed to accelerating promising research. #cureHD #latusbio #research

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Huntington's Disease Foundation @hdfcures.bsky.social · 08/05/2026

What books featuring #HuntingtonsDisease have impacted you? Please join our Book Corner conversation and add your recommendations to the HD community in the comments below. #HDAwarenessMonth #HDAwareness #HDAM #CureHD

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Huntington's Disease Foundation @hdfcures.bsky.social · 05/05/2026

HDF is proud to announce our 2026 postdoctoral fellowships & grants. We've awarded over $2 million to international scientists focused on finding #treatments & #cures for #Huntingtonsdisease. Visit hdfoundation.org/grants-fello... to learn more. #curehd #research #funding

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Huntington's Disease Foundation @hdfcures.bsky.social · 01/05/2026

May is Huntington’s Disease Awareness Month. HDF recognizes the importance of this global awareness campaign to support the HD community, research, & advocacy. We invite you to join us all month long as we bring important HD topics to the forefront. #HDAwarenessMonth #HDAwareness #HDAM #CureHD

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Huntington's Disease Foundation @hdfcures.bsky.social · 27/04/2026

We're thrilled to welcome Erin Tuladzieck as our Director of Development, bringing ~25 years of experience in nonprofit leadership, fundraising, & strategic partnership development. Read her full bio: tinyurl.com/Dir-Devel #curehd

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Huntington's Disease Foundation @hdfcures.bsky.social · 16/04/2026

Jeff Carroll has spent years asking a deceptively easy question: What does it actually take to lower huntingtin effectively? His answer may surprise you! Join us TODAY - 12-1pm ET - to find out! Register now: tinyurl.com/Apr-2026-web... #curehd

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Huntington's Disease Foundation @hdfcures.bsky.social · 15/04/2026

Are Huntingtin-lowering treatments hitting the right targets? Even as the most-pursued strategy in HD drug development, research still reveals surprising findings. Join us TOMORROW (THURSDAY) at 12noon ET as Jeff Carroll shares what he's learning. Register now: tinyurl.com/Apr-2026-web... #curehd

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Huntington's Disease Foundation @hdfcures.bsky.social · 08/04/2026

Jeff Carroll reveals new discoveries from his mouse research. Join us on 4/16 to hear more in his webinar: "The Science (and Surprises) around Lowering the Huntington Protein" Register now: tinyurl.com/Apr-2026-web... #curehd #researchspotlightwebinar

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Huntington's Disease Foundation @hdfcures.bsky.social · 06/04/2026

Watch now or anytime! Our March 24 webinar - What Your Blood Tells Us: The Science Behind HD Biomarkers - with Lauren Byrne and Zanna Voysey is available to watch anytime. youtu.be/llimSe4ebo4?...

youtu.be

What Your Blood Tells Us: The Science Behind HD Biomarkers, 3/24/2026; Lauren Byrne and Zanna Voysey

YouTube video by Huntington's Disease Foundation

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Huntington's Disease Foundation @hdfcures.bsky.social · 20/03/2026

The HD gene was identified through a collaboration of HDF, scientists, & Venezuelan HD families. Factor-H, an org dedicated to supporting these families, launched “Gratitude Day” to honor them. LIVE event THIS SUNDAY, 3/22, 9am PST/12pm EST. Learn more & register: factor-h.org #hdgratitudeday

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Huntington's Disease Foundation @hdfcures.bsky.social · 12/03/2026

Imagine a routine blood draw telling you what's going on in your brain before #HuntingtonsDisease symptoms start? Join our webinar "What Your Blood Tells Us: The Science Behind HD Biomarkers" Tues, 3/24, 12-1pm ET, with Q&A. Register: tinyurl.com/Mar-2026-web... #researchspotlightwebinars #curehd

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Huntington's Disease Foundation @hdfcures.bsky.social · 10/03/2026

We're thrilled to announce that Nancy Wexler's memoir, "My Life, My Science: Pursuing a Cure for #Huntingtonsdisease" is now available! Purchase from the publisher: tinyurl.com/NW-book-CSHL or on Amazon . #nancywexlermemoir #bookrelease #wexlermemoir #coldspringharborlaboratory #curehd

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Huntington's Disease Foundation @hdfcures.bsky.social · 06/03/2026

Sunday is International Women's Day. We are proud to recognize our Scientific Advisory Board, 47% of whom are women. We celebrate the accomplishments and progress of women over time and the power to achieve so much more in the future. #IWD2026 #GiveToGain #InternationalWomensDay #HDF

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Huntington's Disease Foundation @hdfcures.bsky.social · 15/01/2026

There’s still time to join the movement! Add your name to the Hope on Hold petition by THIS SUNDAY, 1/18 to ensure you are included, before HD Reach, HDF, HDSA, Help4HD and HDYO head to DC soon to formally submit this petition to the FDA. ✍️Sign today - bit.ly/Hope4HD #curehd #huntingtondisease

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Huntington's Disease Foundation @hdfcures.bsky.social · 26/12/2025

2025 made meaningful progress in Huntington’s disease research. We celebrate these important milestones & look ahead with optimism to 2026. Wishing a happy & healthy New Year to our very special HD community. Please consider donating today - www.hdfoundation.org/donate #cureHD #HuntingtonsDisease

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Huntington's Disease Foundation @hdfcures.bsky.social · 23/12/2025

We need your support now more than ever. Please consider donating today - hdfoundation.org/donate #cureHD #HuntingtonsDisease

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Huntington's Disease Foundation @hdfcures.bsky.social · 19/12/2025

As this year draws to a close, we want to express our gratitude for your support. Because of you, we could move the needle on important research to advance our mission of finding treatments, & ultimately a cure, for #Huntingtonsdisease. Warmest wishes for the holidays. #cureHD

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Huntington's Disease Foundation @hdfcures.bsky.social · 17/12/2025

These people represent some of the many faces of the families impacted by #Huntingtonsdisease. The community's strength, courage, & resilience fuel our commitment to funding critical research. Now more than ever we need your support: hdfoundation.org/donate #cureHD

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Huntington's Disease Foundation @hdfcures.bsky.social · 12/12/2025

We are so proud of Sarah Tabrizi, a member of our SAB, on being named one of Nature's 10: Ten people who helped shape science in 2025. Sarah is highlighted as a "Huntington’s hero" for "leading the clinical efforts to treat the devastating brain disease." Read it here: tinyurl.com/Nature-10-Ta...

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Huntington's Disease Foundation @hdfcures.bsky.social · 11/12/2025

THANKS to all who signed & lent their voice to this petition. Reaching 35k signatures demonstrates the strength, determination, & heart of our #Huntingtonsdisease community. ⭐️⭐️⭐️Our new goal is 50,000k by 1/1/2026⭐️⭐️⭐️. To reach more families, please LIKE and SHARE this post. bit.ly/Hope4HD #curehd

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Huntington's Disease Foundation @hdfcures.bsky.social · 09/12/2025

Every donation brings us one step closer to a treatment, and ultimately a cure for Huntington’s disease. Please consider donating today - www.hdfoundation.org/donate #cureHD #HuntingtonsDisease

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Huntington's Disease Foundation @hdfcures.bsky.social · 04/12/2025

If you would like to share your perspective on how the FDA's decision about uniQure's AMT-140 impacts individuals and families affected by #HuntingtonsDisease, visit: bit.ly/Hope4HD #curehd

bit.ly

Sign the Petition

Bring Hope to Huntington's Disease Families: Urge the FDA to Uphold Accelerated Approval

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Huntington's Disease Foundation @hdfcures.bsky.social · 04/12/2025

Minutes from uniQure’s AMT-130 application discussion with the FDA were released. This is a key step to understand the regulatory path forward for a therapy holding meaningful potential for the #HuntingtonsDisease community. Read it here: www.uniqure.com/investors-me... #cureHD

uniqure.com

Press Releases | Investors & Media

Reimagining the future of healthcare through the power of gene therapy.

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Huntington's Disease Foundation @hdfcures.bsky.social · 03/12/2025

Congrats, Sarah Tabrizi, for being awarded the British Neuroscience Association Outstanding Contribution to Neuroscience Award for 2025! Dr. Tabrizi said, "This recognition is a testament...to the unwavering support of our collaborators, patients, & families...” www.ucl.ac.uk/news/2025/no...

ucl.ac.uk

Pioneering UCL Huntington’s researcher wins major neuroscience award

Professor Sarah Tabrizi, Director of the UCL Huntington’s Disease Centre, has been awarded the British Neuroscience Association (BNA) Outstanding Contribution to Neuroscience Award for 2025, the association’s top annual prize.

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Huntington's Disease Foundation @hdfcures.bsky.social · 02/12/2025

There have been remarkable breakthroughs in science & clinical trials recently. For the first time, we can envision potential treatments for #Huntingtonsdisease. There's still work to be done. Your gift ensures critical research continues for HD. hdfoundation.org/donate #cureHD

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Huntington's Disease Foundation @hdfcures.bsky.social · 24/11/2025

Our latest webinar featuring HDF-funded Young Investigators is available to watch anytime - on our website or YouTube channel. hdfoundation.org/2025-webinar... #cureHD #HuntingtonsDisease

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Huntington's Disease Foundation @hdfcures.bsky.social · 21/11/2025

Advocacy Matters! HD Reach, Help4HD, HDF, HDYO & HDSA together with the #huntingtonsdisease community! Share your voice! 📝Sign the petition (bit.ly/Hope4HD or scan QR) ✍️Write your representatives & senators 👯‍♀️ Stay connected for future initiatives #StrongerTogether #letstalkabouthd #advocacy #fda

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Huntington's Disease Foundation @hdfcures.bsky.social · 17/11/2025

Bright, young stars of Huntington's disease research are joining us TOMORROW, Tuesday, 11/18, 12-1pm ET, to discuss their work on strategies that could lead to therapeutics for HD. REGISTER NOW to hear more: tinyurl.com/Nov-2025-web...

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Huntington's Disease Foundation @hdfcures.bsky.social · 14/11/2025

The Time is NOW! Join the Fight to Bring Hope to HD Families: Urge the FDA to Uphold Accelerated Approval! HDSA, Help4HD, HD Reach, HDF and HDYO have joined forces on a petition directly to the FDA. bit.ly/Hope4HD 📝Sign Today! Don’t forget to confirm your email to make it count.

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