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The Journal of Rheumatology @jrheumatol.bsky.social · 08/06/2026

Reposted by Mrinalini Dey

Research Article Perceived and Objective Physical Function in 2 United States Population-Based Cohorts of Adults With Systemic Lupus Erythematosus 📖 www.jrheum.org/cgi/content/... #Aging #PhysicalFunction #Lupus

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Reposted by Mrinalini Dey

The Journal of Rheumatology @jrheumatol.bsky.social · 02/06/2026

Hello June! 📈 Explore the latest rheumatology research from @jrheumatol.bsky.social. 🔍 www.jrheum.org/content/53/6... #RheumatoidArthritis #Spondyloarthritis #Lupus #Sjogrens #SystemicSclerosis #Fibromyalgia

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Mrinalini Dey @drminidey.bsky.social · 01/06/2026

Absolutely thrilled to have published some of the key findings from research conducted during my PhD on #HealthLiteracy and #InflammatoryArthritis in @thelancetrheum.bsky.social Read the full paper #OpenAccess in the link below.

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Reposted by Mrinalini Dey

ACR Journals @acr-journals.bsky.social · 20/04/2026

In two distinct cohorts of adults with lupus, several patient-reported outcomes, including fatigue, depression, perceived stress, coping, & self-efficacy, were consistently associated with physical function, reinforcing their relationship with overall health in SLE AC&R doi.org/10.1002/acr....

The association of physical function with psychosocial patient-reported outcomes in people with systemic lupus erythematosus. Graphical abstract created using BioRender

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Reposted by Mrinalini Dey

ACR Journals @acr-journals.bsky.social · 18/04/2026

Psychosocial PROs assoc with physical function in SLE doi.org/10.1002/acr.... Maintaining HCQ levels (750-1150 ng/mL) improves long-term SLE outcomes doi.org/10.1002/acr....

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Mrinalini Dey @drminidey.bsky.social · 12/04/2026

Ahh you’re coming to EULAR!? Best news!!

Mrinalini Dey @drminidey.bsky.social · 11/04/2026

Thank you for introducing me to those cute Boston ducks, @rheumcat.bsky.social! Loved them 😍 Missed you @kristenyoung.bsky.social!

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Mrinalini Dey @drminidey.bsky.social · 11/04/2026

I can absolutely vouch for this sushi, thank you @rheumcat.bsky.social !

Mrinalini Dey @drminidey.bsky.social · 18/11/2025

I somehow managed to miss the puppies! 😩

Mrinalini Dey @drminidey.bsky.social · 03/11/2025

Thank you @rcphysicians.bsky.social for featuring our work on health literacy

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Mrinalini Dey @drminidey.bsky.social · 03/11/2025

My summary on the GLP-1 data presented at #ACR25

Yes absolutely! This was discussed during the session.

🔗 Link to watch the session on-demand: lnkd.in/dPAhAyFK

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🟣 Communication, trust & collaboration across the MDT are necessary. Unless we tackle barriers to SDM, we can't facilitate good outcomes. Huge thanks to #ACR & chairs for the invitation to speak, to mentors and collaborators, & all patients who provided input and inspiration for this presentation.

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🔑 Key messages 🟣 Health literacy underpins SDM: without understanding, there is no true partnership. 🟣 Social context matters: decisions are not made isolated from patients’ daily realities. 🟣 Equity & empathy must guide SDM: tackling bias and barriers ensures everyone can participate meaningfully.

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Implicit bias was another key focus- how unrecognised assumptions about age, race, gender, or socioeconomic background, to name a few factors, can influence clinician–patient dialogue and, ultimately, care. Acknowledging and addressing bias is essential if shared decision making is to be equitable.

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Health literacy is a critical determinant of outcomes and patients’ ability to participate in SDM. Health literacy is not a single skill but a spectrum, influenced by education, social support and opportunity. Recognising this variation allows us to tailor care and communication effectively.

Patients may face barriers such as limited health literacy, competing demands, or cultural & language differences. Clinicians may struggle with time pressures, communication challenges or unconscious bias. At the system level inequities in access and fragmented care can further undermine engagement.

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Chaired by Dr Jillian Rose-Smith & Eileen Davidson, and featuring Dr. Jennifer Barton, Dr. Karine Toupin April, and myself, the discussion explored how SDM can be strengthened across the multidisciplinary team. A recurring theme was SDM depends as much on context as on conversation.

Mrinalini Dey @drminidey.bsky.social · 28/10/2025

At #ACR25, the session “Enhancing Shared Decision Making in Rheumatic Disease Management” brought together clinicians, researchers & patients to reflect on what it means to share decisions in rheumatology, not as an abstract concept, but as lived practice shaped by communication, trust & equity.

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Yes!! Unfortunately I had conflicts during your sessions, but I have the health literacy one to watch on demand. 😀

Mrinalini Dey @drminidey.bsky.social · 27/10/2025

This was the highlight of my day!!

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Reposted by Mrinalini Dey

Rheum Cat @rheumcat.bsky.social · 26/10/2025

👉 5 clusters based on health literacy Q scores: -highest health lit: older, fewer female, more comorbidities -lowest health lit: younger, more anxiety & depression 🤔 Implications: older, more comorbidities were people with more healthcare engagement and pt education? #ACR25

Rheum Cat @rheumcat.bsky.social · 26/10/2025

Reposted by Mrinalini Dey

Abs 0190 @drminidey.bsky.social 📊 Data source: UK NEIAA 👨‍👨‍👦 Survey in 2024, n=995 respondents 💻 Cluster analysis to study relationship of health literacy & comorbidities #ACR25

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Mrinalini Dey @drminidey.bsky.social · 24/10/2025

I get excited for this talk every year- looking forward to hearing Dr Tamika Webb-Detiege’s pearls of wisdom on #WorkLifeBalance to remind us that, as much as we love it, life is more than just about work. A great start to #ACR25! @rheumnow.bsky.social

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Mrinalini Dey @drminidey.bsky.social · 19/10/2025

Yes indeed- a totally surreal but brilliant experience. A great honour! Huge thanks to @kristenyoung.bsky.social for her question, always lovely to hear a familiar voice ☺️ See you all later this week!

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Reposted by Mrinalini Dey

Rheum Cat @rheumcat.bsky.social · 19/10/2025

#ACR25 From the UK @drminidey.bsky.social has focused on comorbidities & SDOH for people with rheumatic disease, and now focusing quite a bit on health literacy acrabstracts.org/abstract/hea...

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Mrinalini Dey @drminidey.bsky.social · 19/10/2025

Thank you for sharing our work, much appreciated! #ACR25

Mrinalini Dey @drminidey.bsky.social · 08/10/2025

Thank you for amplifying our work! 🙏🏼 #ACR25

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Mrinalini Dey @drminidey.bsky.social · 24/09/2025

Last week, I had the privilege of being invited to speak at the AGORA Annual Conference, bringing together patient organisations from across Southern Europe. Read more about my experience and reflections here 👇🏼 #Multimorbidity #RMDs www.linkedin.com/posts/mrinal...

linkedin.com

#rmds #comorbidities #multimorbidity | Mrinalini Dey

Last week, I was delighted to be invited to speak at the AGORA FEDERATION OF ASSOCIATIONS FOR PATIENTS WITH RMDs Annual Conference in Athens, bringing together patient-led organisations from across So...

Association of health literacy with disease outcomes in inflammatory arthritis: a systematic review

Improving health literacy is likely to contribute to better disease control, mental health & patient experience. Watch this space for further work in this area! Huge thanks to all co-authors. 🔗 www.sciencedirect.com/science/arti... @healthliteracyuk.bsky.social

sciencedirect.com

This study aims to conduct a systematic literature review (SLR) to summarise associations between health literacy and inflammatory arthritis (IA) outc…

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#HealthLiteracy is not just an “add-on”. It shapes every aspect of care and is a core social determinant of health in rheum. There is a need for: ✅ Standardised ways to measure HL ✅ Interventions co-designed with patients ✅ Policy recognising HL as key to reducing inequities

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Low health literacy was consistently linked to worse outcomes: ⬆️ Disease activity ⬆️ Disability ⬆️ Anxiety & depression ⬆️ Healthcare use ⬇️ Medication adherence ⬇️ Use of telehealth & digital tools

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Silvia Aguilera @silvia-aps.bsky.social · 12/07/2025

I'm very happy to share the first full paper from my PhD, published in #ARD! Association of #HealthLiteracy with disease outcomes in #InflammatoryArthritis: a systematic review 🔗 www.sciencedirect.com/science/arti... @kingscollegelondon.bsky.social @kingslsm.bsky.social So, what did we find?

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Reposted by Mrinalini Dey

In Munich 🇩🇪 today with the @eular.org #PARE committee, working already on topics like the November Conference or 2026 EULAR Congress!

Lupus Europe @lupuseurope.bsky.social · 24/06/2025

Reposted by Mrinalini Dey

🦋 Thank you to @drminidey.bsky.social‬ from RheumNow for this great interview on #LupusGPT & #EasyLupus! Don’t miss our Chair, Jeanette Andersen, and Zoe Karakikla-Mitsakou (General Secretary) as they reveal the story behind these innovative AI tools! www.youtube.com/watch?featur...

Mrinalini Dey @drminidey.bsky.social · 18/06/2025

🤩 So excited about this interview! 💻 #LupusGPT was winning awards at #EULAR2025 🎙️ Delighted to meet with Zoe & Jeanette from #LupusEurope to find out about this exciting development in patient information & use of #AI in #rheumatology @rheumnow.bsky.social youtu.be/Iq4w7pwF0f8?...

youtu.be

Lupus Support through AI: Introducing Lupus GPT

YouTube video by RheumNow

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Mrinalini Dey @drminidey.bsky.social · 14/06/2025

Thank you #EULAR #PARE for the invitation to chair this important session. I learnt a lot and we really could have kept the discussions going for a long time! #EULAR2025 @eular.org

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Mrinalini Dey @drminidey.bsky.social · 13/06/2025

Day 3 of #EULAR2025! 😴 We’ll discuss all things related to sleep & fatigue in this fascinating #PARE session 📍 C3 🕰️ 15:45-17:00 🗓️ Today! 👋🏼 See you there!

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Mrinalini Dey @drminidey.bsky.social · 10/06/2025

Gearing up for a busy #EULAR2025! 🔵 1 oral abstract on #HealthLiteracy & clinical outcomes- tomorrow! 🔵 1 poster tour: health literacy & IA 🔵 Two posters 🔵 1 study group presentation 🔵 Chairing #PARE sleep session 🔵 Reporting for @rheumnow.bsky.social And plenty more! 🏃🏻‍♀️✈️ Lets go! @eular.org

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Mrinalini Dey @drminidey.bsky.social · 15/05/2025

These are great photos! ☺️

Mrinalini Dey @drminidey.bsky.social · 15/05/2025

I agree with Kristen.. loving the birdsong in the background, beautiful!

Mrinalini Dey @drminidey.bsky.social · 14/04/2025

Congratulations Dr Mumtaz Patel. Representation matters- it is wonderful to see Dr Patel be voted to be PRCP, and inspiring the next generation in doing so. Thank you for not only being a great physician but also encouraging resident doctors such as myself. #RCP @rcphysicians.bsky.social