Sign in

Desi Jones

@desirjones.bsky.social
1.7K followers 406 following 31 posts

Assistant Professor at UMD | autism, stigma, intersectionality, and Black neurodivergent experiences | Wellesley College Alumna | #ADHD cat mom

PostsRepliesMedia
Reposted by Desi Jones
Thinking Person's Guide to Autism @thinkingautism.com · 05/12/2025
"We know that autistic people have sensory differences, but we know nothing about how these are influenced by ageing. Why not? Autistics often live with high stress & anxiety—which can intensify some mental & physical health conditions." @cosmichael.bsky.social: journals.sagepub.com/doi/10.1177/...
journals.sagepub.com
Why we need research about autism and ageing - Cos Michael, 2016
14910
Desi Jones @desirjones.bsky.social · 25/11/2025
So excited to share my ✨️new paper✨️ with @noahsasson.bsky.social on how race and gender shape first impressions of autistic adults. You can read it here: journals.sagepub.com... If you don’t have access, feel free to message me for a copy or request it on Researchgate! 1/6
journals.sagepub.com
Intersectional effects of race and gender on first impressions of Black and White autistic adults - Desiree R. Jones, Noah J. Sasson, 2025
Non-autistic adults often harbor negative attitudes about autism and show a reluctance to interact with autistic people. For autistic people with multiple marginalized identities, the compounding e...
1124
Reposted by Desi Jones
Steven Kapp @drstevenkapp.bsky.social · 21/11/2025
Dozens of rigorous studies with millions of children show vaccines don’t cause autism, as health organizations around the world and the leading autism organizations recognize. RFK Jr. and Acting CDC Director Jim O’Neill are a danger to science and public health. autisticadvocacy.org/2025/11/kenn...
autisticadvocacy.org
Kennedy’s lies endanger public health and the disabled community
The science is clear. As the American Academy of Pediatrics stated, “Since 1998, independent researchers across seven countries have conducted more than 40 high-quality studies involving over 5.6 mill...
053
Reposted by Desi Jones
Thinking Person's Guide to Autism @thinkingautism.com · 13/11/2025
So cool: Autism researcher @desirjones.bsky.social talks with the original Steve from Blue's Clues about autism and neurodivergence! Available on YouTube or as a podcast. www.youtube.com/watch?v=TLKV... #autism #neurodiversity #BluesClues
youtube.com
Dr. Desiree Jones on Neurodivergence: Who Decides What’s “Normal”?
YouTube video by Alive with Steve Burns
45815
Reposted by Desi Jones
Thinking Person's Guide to Autism @thinkingautism.com · 13/11/2025
Why it's important to push back against the dangerous #ProfoundAutism label; + CN: Suicide: "Stereotypes created by 'Profound Autism' risk denying suitable support from many Autistic persons, which will predictably result in more Autistic suicides." thinkingautismguide.com/2023/09/grav... #autism
thinkingautismguide.com
Grave Concerns About Profound Autism
The label "Profound autism" bungles the support needs of autistic people with complex disabilities, and will endanger autistic lives.
03211
Desi Jones @desirjones.bsky.social · 12/11/2025
I had an amazing opportunity to talk about autism and neurodiversity with Steve Burns, one of my childhood heroes! You can listen to the full podcast now, or watch on YouTube starting at 4pm today (11/12). I hope you enjoy this as much as I did! lemonada.lnk.to/AlivewithSte...
092
Reposted by Desi Jones
Thinking Person's Guide to Autism @thinkingautism.com · 11/10/2025
On autistic masking: "people can reflect & develop a deep self-awareness and understanding of your own needs, but without society being a safer place for autistic people, the onus on autistic people to unmask is cruel at best & incredibly dangerous at worst." thinkingautismguide.com/2023/11/beyo...
thinkingautismguide.com
Beyond Masking and Towards Supporting Autistic Authenticity — THINKING PERSON'S GUIDE TO AUTISM
Dr. Amy Pearson on why the ability to express one’s authentic autistic self is much more complicated than an individual choice to unmask.
16326
Reposted by Desi Jones
Thinking Person's Guide to Autism @thinkingautism.com · 01/10/2025
The experiences of autistic people with intersecting marginalized identities—especially Black autistic adults—"remain underexplored in research, contributing to a limited understanding of stigma’s impact across diverse communities." @desirjones.bsky.social et al: www.liebertpub.com/doi/epub/10....
liebertpub.com
06028
Reposted by Desi Jones
Melody Schreiber @melodyschreiber.com · 22/09/2025
The thing is, being autistic doesn't need to be "stopped" or "cured" or further demonized. The entire conversation is wrong.
320462
Reposted by Desi Jones
Thinking Person's Guide to Autism @thinkingautism.com · 13/09/2025
OK folks, the Stanford Neurodiversity Summit #SNS25 is underway. We're here to "treasure the strengths" of neurodivergent people. SNS is an outgrowth of the Stanford Neurodiversity Project, founded in 2018, which includes the Adult Neurodevelopment Clinic. The first SNS was in 2020. #neurodiversity
314022
Reposted by Desi Jones
Noah Sasson @noahsasson.bsky.social · 08/09/2025
I'm so proud of @desirjones.bsky.social for this important paper and all the hard work she put into it. I'm also very grateful for @drmbothapsych.bsky.social for their many contributions in shaping this project.
263
Reposted by Desi Jones
Thinking Person's Guide to Autism @thinkingautism.com · 08/09/2025
If Robert F. Kennedy the Lesser's Big September Announcement "does indeed come out favoring folinate or folate as a 'cure' or 'treatment' for autism, then move over ivermectin bc there’s gonna be a new grift in town." @ejwillingham.bsky.social in the TPGA Newsletter: buttondown.com/TPGA/archive...
buttondown.com
RFK Jr's big September autism announcement | What autistic students want
RFK Jr is obsessed with mitochondria, probably thanks to the wellness whisperers around him.
02816
Reposted by Desi Jones
Thinking Person's Guide to Autism @thinkingautism.com · 09/09/2025
"Black autistic adults, along with autistic women and LGBTQ+ autistic people, may encounter compounded barriers to acceptance, identity development, and belonging. [We need] more inclusive research & supports that attend to the diversity of autistic experiences." www.liebertpub.com/doi/epub/10....
liebertpub.com
39534
Reposted by Desi Jones
🦋 Phenomenally Autistic 🦋| Ayanna Sanaa Davis @ayannasanaa.bsky.social · 08/09/2025
phenomenallyautistic.substack.com/p/why-race-a...
phenomenallyautistic.substack.com
Why Race and Autism Cannot Be Separated in Lived Experience
The comment (below from a substack user) suggests that being Black and being autistic are “two different things that don’t have a significant effect on each other.” This statement overlooks the realit...
13015
Desi Jones @desirjones.bsky.social · 08/09/2025
Black autistic adults are too often left out of conversations about stigma and autism. Our new paper shows how stigma is shaped by race, gender, and sexuality, creating unique challenges for Black autistic adults, women, and LGBTQ+ autistic people. www.liebertpub.com/d... 1/2
liebertpub.com
“I’m Kind of Stuck in the Middle. I Don’t Know Where to Go”: Race, Autism, and Intersectional Stigma Among Black and White Autistic Adults | Autism in Adulthood
Background: Autistic adults frequently experience social stigma, which may be compounded by additional marginalized identities such as race, gender, and sexual orientation. Black autistic adults, in particular, may face unique challenges at the intersection of racial bias and autism stigma. However, the experiences of autistic people with intersecting marginalized identities remain underexplored in research, contributing to a limited understanding of stigma’s impact across diverse communities. Methods: We used qualitative methods to explore how intersecting identities shape autistic adults’ experiences of stigma and marginalization, with an emphasis on Black autistic adults. In total, 32 autistic adults (16 Black and 16 White) completed a semi-structured interview regarding their social experiences. Participants shared recent stories of peer exclusion, acceptance, discrimination, and support that they had experienced, as well as their feelings surrounding these events. We recorded and transcribed these interviews and used an inductive, or data-driven, approach to thematic analysis to identify salient themes in the data. Results: We generated three intersectional themes, which encompassed the unique impact of stigma on those with intersecting identities. Specifically, these themes included: (1) identity-based discrimination shaped by race, gender, and LGBTQ+ status; (2) challenges in obtaining and processing an autism diagnosis; and (3) difficulties navigating personal identity, particularly among Black autistic participants. While autistic adults broadly reported stigma experiences, Black participants often described layered forms of exclusion related to both their race and autistic traits. Across racial groups, women and LGBTQ+ participants also reported distinct forms of marginalization and erasure. Conclusion: These findings highlight how autism stigma intersects with other marginalized identities to shape social experiences. Black autistic adults, along with autistic women and LGBTQ+ autistic people, may encounter compounded barriers to acceptance, identity development, and belonging. These results underscore the need for more inclusive research and supports that attend to the diversity of autistic experiences.
110343
Reposted by Desi Jones
Ann Memmott @annmemmott.bsky.social · 26/08/2025
acamh.onlinelibrary.wiley.com/doi/full/10.... Very useful but sobering new research by this fine team, on the upsetting experiences that autistic and ADHD young people endure in e.g. schools...and why the resulting distress/dysregulation isn't because of autism/ADHD.
acamh.onlinelibrary.wiley.com
JCPP Advances | ACAMH Child Development Journal | Wiley Online Library
Background Accounts of emotional dysregulation in autism and attention-deficit/hyperactivity disorder (ADHD) are typically based on external adult observations anchored in neurotypical notions of em...
2258
Desi Jones @desirjones.bsky.social · 15/07/2025
New commentary in JAACAP! Here, we highlight gaps in the literature on Black autistic youths' mental health, and call for research that examines risk and protective factors across individual, family, community, and societal levels. Free access thru 8/31. www.sciencedirect.com/science/arti...
sciencedirect.com
The Critical Need for Research Examining Mental Health Risk and Protective Factors in Black Autistic Youth
031
Reposted by Desi Jones
Alt National Park Service @altnps.bsky.social · 07/05/2025
Think Elon Musk is out of Washington? Think again. DOGE is quietly building a massive data collection system designed to centralize unprecedented access to your personal information Social Security, taxes, medical diagnoses, and more.
17441761417
Reposted by Desi Jones
Alt CDC (they/them) @altcdc.altgov.info · 16/04/2025
Still fuming about that press conference. The way RFK Jr. talks about autism is not just scientifically wrong—it’s deeply offensive. Calling autistic kids "damaged" or implying they’ve been "lost" or "stolen" doesn’t just spread misinformation—it dehumanizes real people.
1203397790
Reposted by Desi Jones
Autistic Self Advocacy Network (ASAN) @autisticadvocacy.org · 02/04/2025
Join us for “Autism Myths and Misconceptions” on Thursday, April 17 at 4:00pm ET! Many people get confused about autism, and there’s a lot of wrong information about autism out there. This panel will talk about many of these ideas — register today!
us02web.zoom.us
Welcome! You are invited to join a webinar: Myths and Misconceptions About Autism. After registering, you will receive a confirmation email about joining the webinar.
Welcome! You are invited to join a webinar: Myths and Misconceptions About Autism. After registering, you will receive a confirmation email about joining the webinar.
01812
Reposted by Desi Jones
Thinking Person's Guide to Autism @thinkingautism.com · 02/04/2025
Here are 10 ways to honor autistic people! While #AutismAwareness has a role, especially in spaces where autism info is bad/absent, autistic people deserve the love & respect that come with #AutismAcceptance — not merely acknowledgment that autism exists: thinkingautismguide.com/2023/10/ten-... 1/
thinkingautismguide.com
Ten Ways to Honor Autistic People Via Autism Acceptance
Autism awareness is passive; autism acceptance is a choice. Here are 10 ways you can honor Autism Acceptance, & autistic people of all ages.
319597
Reposted by Desi Jones
Steven Kapp @drstevenkapp.bsky.social · 02/04/2025
One way to be Autistic and Living the Dream is to have your first first-authored paper published (in the top autism journal @autisminadulthood.bsky.social) on Autism Acceptance Day! Congratulations @kmunday.bsky.social & important research on autistic adults' experiences with substance-use services.
1242
Desi Jones @desirjones.bsky.social · 02/04/2025
This is silly, but just the idea of having my own lab has brought me so much joy. I just got keys to the space and filmed a little walkthrough video for my mom and husband. Can't wait to get things set up 🙂
050
Reposted by Desi Jones
Catherine Crompton @cjcrompton.bsky.social · 22/03/2025
It's #NeurodiversityCelebrationWeek! But what is neurodiversity? We wrote an article for young people explaining what neurodiversity means for different people and day to day life! kids.frontiersin.org/articles/10....
kids.frontiersin.org
Neurodiversity Can Explain Differences in How People Experience Everyday Life
Neurodiversity means that all people’s brains process information differently from each other. In other words, people think and learn in a variety of ways. Being neurodivergent means that the way a pe...
31710
Reposted by Desi Jones
Stand Up for Science! @standupforscience.net · 07/03/2025
TODAY IS THE DAY! 🧪☀️⬇️ Join us at the Lincoln Memorial or your local site to Stand Up for Science!
Flyer for stand up for science--more information available at www.standupforscience2025.org
151165401
Desi Jones @desirjones.bsky.social · 06/03/2025
Sigh. I KNEW this was coming. Someone wrote an anti-DEI article about my postdoc program and linked a spreadsheet with all of our demographics and contact information.
570
Reposted by Desi Jones
Dr. Lucky Tran @luckytran.com · 04/03/2025
FRIDAY: Join @standupforscience.bsky.social rallies around the US to protest funding cuts, illegal firings, and censorship of scientists. In response to the attacks, the most important thing we can do is to visually show that science has strong support in this country, so please show up if you can!
2265109
Reposted by Desi Jones
Steven Kapp @drstevenkapp.bsky.social · 25/02/2025
New studies on how rapport differs between autistic & non-autistic ppl suggest having other autistic interactants is more important for autistics' ease, enjoyment: journals.sagepub.com/doi/10.1177/..., & social-motor synchrony is more important for non-autistics: journals.sagepub.com/doi/10.1177/...
journals.sagepub.com
Sage Journals: Discover world-class research
Subscription and open access journals from Sage, the world's leading independent academic publisher.
0218
Reposted by Desi Jones
Alt NIH Bluesky 🧪 @altnih4science.bsky.social · 24/02/2025
Very much so. The courts will not save us. We need to shift public opinion by spreading the word about what is really happening, and we need to push Congress members to act like this is an emergency. Which it is.
431566
Reposted by Desi Jones
Anna Gifty @itsafronomics.blacksky.app · 18/02/2025
In today's episode of doomerism isn't a strategy, here's a list of things you can do today to make the world around you suck a little bit less: Pick ONE thing and do it. bsky.app/profile/itsa...
What are some actions you can take TODAY?

Become a “Friend of the Library”
Call your state representatives 
Boycott businesses rolling back DEI
Read & fund independent journalists and magazines
Join a Mutual Aid network  
Donate to environmental justice organizations
Support minority authors and artists 
Pass out Know Your Rights cards to the undocumented
Organize a local or school-based protest
Follow, elevate, and fund minority voices online
Donate to reproductive justice organizations
Volunteer at homeless or DV shelters
Send money to your local food banks 
Join the local school board 
Attend town hall meetings and voice your opinion
Start book clubs centered on Black history
Fundraise for supplies K-12 teachers may need
Donate to legal funds that protect LGBTQ+ people
Start a scholarship for underserved students
Host community action conversations 
Work on research about the marginalized
Integrate DEI into every part of your business
Migrate from Twitter to Bluesky (it’s so good)
Support businesses that stand by humanity
Stand up to people bullying the vulnerable
Donate to Public Citizen and federal worker unions
Find joy in the in between and don’t lose hope
91096629
Reposted by Desi Jones
Society for Personality and Social Psychology @spspnews.bsky.social · 21/02/2025
On our way to forward this post to the convention planning committee like
media.tenor.com
a stuffed animal dog is running down a hallway with the words `` it 's go time '' written on the floor .
ALT: a stuffed animal dog is running down a hallway with the words `` it 's go time '' written on the floor .
0101
Desi Jones @desirjones.bsky.social · 21/02/2025
I was having a fantastic time at SPSP during a happy hour with a room full of puppies, until I realized that I was at the completely wrong conference 😅 feeling mortified, but it was also kinda worth it?
4120
Reposted by Desi Jones
Robert Reich @rbreich.bsky.social · 14/02/2025
You might have missed it, but Amazon warehouse workers in Raleigh, NC are voting this week on whether to form a union. If they win, they'll be the first unionized Amazon facility in the South. Remember that we can always find hope in the labor movement.
832366866072
Reposted by Desi Jones
maura quint @mauraquint.bsky.social · 10/02/2025
thank you to Kendrick and the Eagles for making terrible people angry tonight
618784848526
Reposted by Desi Jones
Nancy Kanwisher @nancykanwisher.bsky.social · 28/01/2025
Ashley: Academic workers across the country are organizing to call on our congressional representatives on Thursday, 1/30, at 3pm ET / 12pm PT to demand these restrictions be lifted immediately. There will be a training over zoom at the beginning of the event. form.jotform.com/250226137228...
form.jotform.com
Join researchers across the country in fighting restrictions on the NIH
Please click the link to complete this form.
22015
Desi Jones @desirjones.bsky.social · 27/01/2025
Tbh, I feel like something inside of me broke on November 5th. I'm not sure how, or if, I can heal it.
060
Desi Jones @desirjones.bsky.social · 01/12/2024
Sprained my ankle dodging a Tesla that was about to hit me in a crosswalk 😭
120
Reposted by Desi Jones
UMD Language Science Center @umd-lsc.bsky.social · 25/11/2024
We're hiring a Language Science postdoc as part of our inaugural Fellowship for Postdoctoral Scholars! Click the link in bio to apply #UniversityofMaryland
"We're Hiring! LSC Postdoc. Apply Today."
098
Reposted by Desi Jones
George Matsumoto @georgeimatsumoto.bsky.social · 20/11/2024
🧪 🍎 📍 🌊 🦑 pathwaystoscience.org Paid Summer 2025 Undergraduate Research Placements; financial support in graduate school; tips on applications and other resources; opportunities in ocean sciences and engineering
pathwaystoscience.org
Pathways To Science | Increasing Diversity in STEM
Offering a directory of 1,000+ scholarships, fellowships, internships, and postdoc positions in STEM, with emphasis on supporting underrepresented students.
55130
Reposted by Desi Jones
FLAVOR FLAV ⏰ @flavorflav.bsky.social · 14/11/2024
Dunno if I’m doing this right,,, but lemme know what accounts need to be added to the #BlackExcellence Starter Pack. Journalists, Professors, Scientists, Musicians, Writers,,,
Flavor Flav’s Black Excellence Starter Pack with LeVar Burton, Questlove, Dionne Warwick, and more.
1923926612
Reposted by Desi Jones
Laura Crane @lauramaycrane.bsky.social · 18/11/2024
There's so many autism research (#AutRes) accounts on Bluesky that I now have two Starter Packs! go.bsky.app/B9XV8UA go.bsky.app/Pfbbvot And HUGE apologies if I'm missing people. I've gone from 300 to 2k followers in a week, and my notifications are out of control 😱
2311935
Reposted by Desi Jones
Dan Handwerker @danielhandwerker.bsky.social · 13/11/2024
Here's a list that includes many paid undergrad research opportunities. Unfortunately, those with the less resources are also less likely to know these opportunities exist, so proactively share with undergrad students and mentees who can most benefit. blackinneuro.com/undergraduates
blackinneuro.com
Undergraduates — Black In Neuro
143
Reposted by Desi Jones
Noah Sasson @noahsasson.bsky.social · 27/12/2023
We have a new paper about double empathy in autism led by @desirjones.bsky.social and Monique Botha! “Non-autistic observers both detect and demonstrate the double empathy problem when evaluating interactions between autistic and non-autistic adults” #AutRes #AutismResearch t.co/lV742ooicL
t.co
Non-autistic observers both detect and demonstrate the double empathy problem when evaluating intera...
Consistent with a “double empathy” framework, autistic adults often experience better interaction with autistic compared with non-autistic partners. Here, we ex...
13615
Reposted by Desi Jones
Noah Sasson @noahsasson.bsky.social · 27/10/2023
I have a new new #AutRes paper with the amazing @desirjones.bsky.social comparing attitudes and stigma towards autism and schizophrenia. It’s open access with an open dataset for anyone to explore. www.frontiersin.org/articles/10....
0156
Reposted by Desi Jones
Noah Sasson @noahsasson.bsky.social · 26/09/2023
We have a new open-access paper out in Neurodiversity comparing how autistic and non-autistic adults view their own personalities and their personality preferences in other people. Descriptors like “awkward” are not socially undesirable for all people! t.co/Z78VWXP5Cn
t.co
Awkward but so what: Differences in social trait preferences between autistic and non-autistic adult...
Autistic and non-autistic observers form less favorable impressions of autistic adults relative to non-autistic adults, yet only non-autistic adults report lowe...
24314
Reposted by Desi Jones
Nick Fears @nickfears.bsky.social · 21/09/2023
Come work with me at LSU School of Kinesiology! We have a tenure-track Open Rank faculty position in Motor Behavior focused on motor learning and/or motor development. I’m happy to chat about LSU, Kinesiology, and living in Louisiana! Job Ad: lsu.wd1.myworkdayjobs.com/en-US/LSU/jo...
Entryway of the newly renovated Huey P Long Field House that houses the LSU School of Kinesiology. Includes a stone tiger head and entryway
0610
Desi Jones @desirjones.bsky.social · 20/08/2023
I went to a networking event for underrepresented STEM researchers today and had such an amazing time! Connected with a very neurodiversity-affirming assistant dean, who gave me some fantastic advice about navigating academia as someone with ADHD. Looking forward to attending more events like this!
040