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Deb Collyar

@deborahcollyar.bsky.social
83 followers 131 following 37 posts

PAIR: Patient Advocates In Research where research meets reality. cancer survivor, speaker, writer & past IT exec. Big on family/friends.

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Deb Collyar @deborahcollyar.bsky.social · 28/08/2026
Please share this immunotherapy survey w #cancer #patients & #Caregivers so we can learn more! #cansky #medsky #health #IRB exempt
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Deb Collyar @deborahcollyar.bsky.social · 24/07/2026
This is my bedtime song. Join in! youtu.be/mleWWgcfKkc?...
youtu.be
I Want My Flag Back | Powerful Anti-MAGA Protest Song About Democracy & Freedom
YouTube video by The Resistance
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Deb Collyar @deborahcollyar.bsky.social · 09/07/2026
Please share this immunotherapy cancer #patient survey. w #patients so we can learn from them. #Caregivers too! Happy to discuss. #cansky #medsky #health #IRB exempt
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Deb Collyar @deborahcollyar.bsky.social · 01/07/2026
Thanks @triagecancer.org for providing #cancer #patients & caregivers w/great info for not only surviving cancer but doing it without creating bankruptcy for their families. #medsky #cansky
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SurvivorshipIT @survivorshipit.medsky.social · 27/06/2026
Evidence-based efforts to inform policy re: #rural hospital closures & guide implementation of mitigation strategies should prioritize development of effective referral systems, #telehealth expansion for #oncology care & improved access onlinelibrary.wiley.com/doi/full/10.... #MedSky #CanSky #OncSky
onlinelibrary.wiley.com
Impact of Rural Hospital Closures on Survival Among Medicare Beneficiaries Diagnosed With Colorectal, Lung, Breast, and Prostate Cancer
Purpose To examine the impact of rural hospital closures on mortality among patients with colorectal, lung, breast, and prostate cancer. Methods This retrospective observational cohort study uses ...
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Deb Collyar @deborahcollyar.bsky.social · 30/06/2026
Important info from @sitcancer.bsky.social - we have so much to learn. Please comment on how this might change practice #cansky #medsky We need better answers than steroids!
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Deb Collyar @deborahcollyar.bsky.social · 29/06/2026
Good news! This immunotherapy cancer #patient survey now has #IRB approval. Please share w/#patients so we can learn from them. #cansky #medsky #health
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Deb Collyar @deborahcollyar.bsky.social · 16/06/2026
Great work @triagecancer.org Thanks! Complementary: #immunotherapy #Patient & caregiver survey re side effects/irAEs. Please re-post to spread to #cancer patients & caregivers. Hopefully together, we can help patients live better & not go into debt. Go.osu.edu/pits #oncosky #medsky #cansky
go.osu.edu
The Pair Immunotherapy Patient Survey
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RASopathies Network @rasnet.bsky.social · 16/06/2026
🧪🧠🧬Check out the latest news, events, and some #RASopathies research highlights in our quarterly RASNet-letter #medsky #oncosky #pedsky #raredisease #ras mailchi.mp/3d5a3838bc32...
RASopathies are genetic syndromes caused by variants in components of the RAS/RAF/MEK/ERK signaling pathway
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Deb Collyar @deborahcollyar.bsky.social · 11/06/2026
Please re-post to reach as many #cancer #immunotherapy #patients as possible!
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Deb Collyar @deborahcollyar.bsky.social · 11/05/2026
#cansky, please spread the word to #cancer #patients! We need lots of patients to tell us what's happening so we can do something about it!
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Deb Collyar @deborahcollyar.bsky.social · 05/05/2026
If you are a #cancer #patient, please consider taking this 5-minute survey to help us help people live better lives. Follow this link go.osu.edu/pits or scan QR below - thanks!
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Deb Collyar @deborahcollyar.bsky.social · 05/05/2026
If you are a #cancer #patient, please consider taking this 5-minute survey to help us help people live better lives. Follow this link go.osu.edu/pits or scan QR below - thanks!
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Deb Collyar @deborahcollyar.bsky.social · 21/04/2026
Please spread these through all of your social media accounts. We appreciate your help!
collyar.wordpress.com
Social media kit for Immunotherapy Patient Survey
Thanks for helping us spread the word about the immunotherapy Patient Survey! Please download the Social Media Kit below (it's a .pdf) for information on how to get the text and images from each of the 4 messages. They should work for any social media platform. Please let me know if you have any problems (email Deborah@tumortime.com) and send ideas for more messages/graphics!Survey will be open through at least August 31, 2026 and is global. 2026-04-21 social-media-kit-for-irae-survey-liveDownload
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Deb Collyar @deborahcollyar.bsky.social · 21/04/2026
If you are a #cancer #patient, please consider taking this 5-minute survey to help us help people live better lives. Follow this link go.osu.edu/pits or scan QR below - thanks! @DeborahCollyar
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Deb Collyar @deborahcollyar.bsky.social · 14/04/2026
Immunotherapy & Side Effects Immunotherapy has led to amazing successes for some cancer patients. It is not, however, devoid of issues. For years, the immunotherapy field touted its lower side effects compared to chemotherapy, but didn't own the side effects it can create which can be life-long.…
collyar.wordpress.com
Immunotherapy & Side Effects
Immunotherapy has led to amazing successes for some cancer patients. It is not, however, devoid of issues. For years, the immunotherapy field touted its lower side effects compared to chemotherapy, but didn't own the side effects it can create which can be life-long. We think cancer patients should be able to live longer AND better by resolving side effects quickly and efficiently.
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NPR @npr.org · 10/02/2026
The growing threat of antibiotic resistance has scientists searching for solutions. They may have found it in a newly discovered bacterial behavior: chaotic dormancy.
n.pr
A new way to fight antibiotic resistance : Short Wave
In 1928, a chance contaminant in Scottish physician Alexander Fleming’s lab experiment led to a discovery that would change the field of medicine forever: penicillin. Since then, penicillin and other antibiotics have saved millions of lives. With one problem: the growing threat of antibiotic resistance. Today on Short Wave, host Regina G. Barber talks to biophysicist Nathalie Balaban about the conundrum — and a discovery her lab has made in bacteria that could turn the tides.Check out our episodes on extreme bacteria in Yellowstone and the last universal common ancestor. Interested in more science behind our medicines? Email us your question at shortwave@npr.org.Listen to every episode of Short Wave sponsor-free and support our work at NPR by signing up for Short Wave+ at plus.npr.org/shortwave.This episode was produced by Berly McCoy, edited by our showrunner Rebecca Ramirez and fact checked by Tyler Jones. Jimmy Keeley was the audio engineer.
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Deb Collyar @deborahcollyar.bsky.social · 10/02/2026
Yes to low-dose & shorter #immunotherapy regimens! We need more attention to #irAEs toxicity, including #financial toxicity for all patients. @ascocancer.bsky.social @ascopost.bsky.social @cityofhopecologne.bsky.social Join autoimmunecancer.org to help us do more for #patients!
autoimmunecancer.org
Foundation for Autoimmune Cancer Support - Foundation for Autoimmune Cancer Support
We are coming soon! We’re building something special at FACS. Our goal is to create a space of support, resources, and advocacy for those affected by autoimmune-related cancers.
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Deb Collyar @deborahcollyar.bsky.social · 10/02/2026
Cause of death mistakes happen far too often. How can we get an underlying #disease like #cancer reported as a standard? #patients like #CatherineO'Hara deserve real info & #data. Thanks for the humor, Catherine!
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Deb Collyar @deborahcollyar.bsky.social · 09/02/2026
Olympics & NPR are both amazing! Let's support them both this year.
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Deb Collyar @deborahcollyar.bsky.social · 06/02/2026
Thanks @hankgreen.bsky.social & @johngreensbluesky.bsky.social for this move. I've been so impressed by complexly.org & refer new health-related patient advocates regularly! We should probaby talk about #biomarker/ #genetic testing accessibility & #immune related adverse events (irAEs) sometime!
complexly.org
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Amy Guidry, Artist @amyguidryartist.bsky.social · 05/02/2026
New painting for The Year of the Horse exhibit at Modern Eden Gallery in San Francisco. Symbolizing perseverance and enlightenment. Opening tonight 5-8pm www.moderneden.com/search?q=Amy... "Inner Journey" Acrylic on canvas 4" x 4" #art #painting #surrealism #nature #horses #contemporaryart #snail
Acrylic painting of a horse in a snail shell sitting in the grass under a hazy moon.
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Society for Immunotherapy of Cancer @sitcancer.bsky.social · 05/02/2026
The #SITC Women in Cancer Immunotherapy Network Leadership Institute is an initiative seeking to promote and elevate women in the cancer immunotherapy field. Two options to apply for: July 30–31, in Boston, MA or virtually on Sept. 10–11. www.sitcancer.org/career-developmen…
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Deb Collyar @deborahcollyar.bsky.social · 06/02/2026
"We have been tasked with protecting and promoting health, and instead, we are being asked to facilitate inhumane operations," said Rebekah Stewart, a nurse practitioner who left the service in October.
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Adam Klasfeld @klasfeldreports.com · 04/02/2026
NEWS Elon Musk and others LOSE their bid to duck depositions in DOGE litigation. Judge doubts protections for "high-ranking government officials" for multiple reasons. It's unclear they ever had that status, and Musk "left government service." Doc buff.ly/uhpSOTz
"Even assuming, consistent with the approach taken by certain other circuits, that
depositions of high-ranking government officials should be restricted absent extraordinary circumstances regardless of whether they seek testimony on mental processes, the Court still finds that the protective order is not warranted . At the outset, it is at best unclear whether Musk,
Marocco, and Lewin are properly deemed to be high -ranking government officials for purposes of this doctrine. Notably, in cases in which courts have barred depositions of cabinet secretaries, depositions of senior , Senate-confirmed subcabinet officials have been permitted to proceed. ...Here, USAID was not a cabinet -level agency, none of the designated officials were the head of that
agency, and several were operating in an informal or acting role at the time of the relevant events."
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The Washington Post @washingtonpost.com · 05/02/2026
Virginia Gov. Abigail Spanberger distanced state law enforcement agencies from federal immigration operations, ordering the end of partnership agreements and condemning federal operations in other states as undermining public confidence.
washingtonpost.com
Spanberger takes further steps to remove Virginia from ICE operations
Virginia Gov. Abigail Spanberger (D) on Wednesday ordered state law enforcement agencies to dissolve any partnership agreements with federal immigration enforcement.
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The Washington Post @washingtonpost.com · 31/01/2026
The U.N. is on the verge of “imminent financial collapse,” in large part due to the failure of member states to pay their mandatory dues, its secretary general said. The United States owes the most: nearly $2.2 billion, according to an official.
washingtonpost.com
U.N. secretary general says global body is at risk of fiscal collapse
The United States owes nearly $2.2 billion in overdue and current assessments for the regular U.N. operating budget.
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Deb Collyar @deborahcollyar.bsky.social · 30/01/2026
Time for a DCIS Update Hi all! I'm back and ready to update you on all kinds of projects that I've been involved with. This post is about Ductal Carcinoma In Situ (DCIS), a breast condition that is often called "Noninvasive" or "Stage 0" breast cancer. There is much debate and confusion about this…
collyar.wordpress.com
Time for a DCIS Update
Hi all! I'm back and ready to update you on all kinds of projects that I've been involved with. This post is about Ductal Carcinoma In Situ (DCIS), a breast condition that is often called "Noninvasive" or "Stage 0" breast cancer. There is much debate and confusion about this breast condition because at least 8 out of 10 (80%) of women with DCIS will never have another DCIS or an invasive breast cancer, and yet most are treated as if they have invasive breast cancer.
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Deb Collyar @deborahcollyar.bsky.social · 27/10/2025
Join tonight at 7p ET! www.mobilize.us/nokings/even...
mobilize.us
Unpack the Compact Movement Call: Resisting Trump's Latest Attack on Higher Ed · No Kings
Trump’s new “Compact to All Higher Ed” is a direct attack on students, faculty, and academic freedom. **Join Public Citizen and national partners, for a timely discussion on Trump’s new “Compact to Al...
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Joyce White Vance @joycewhitevance.bsky.social · 15/06/2025
Minnesota's Democrats & Republicans speak with one voice to condemn political violence.
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Deb Collyar @deborahcollyar.bsky.social · 15/06/2025
Thanks @jesse-welles.bsky.social I played it all the way to the #NOKINGS #protest & sending it to all of my friends! youtu.be/kWG0K3Y8ZU8
youtu.be
No Kings
YouTube video by Jesse Welles
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Ken Struck @kenstruck.bsky.social · 13/06/2025
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Deb Collyar @deborahcollyar.bsky.social · 14/06/2025
I'm attending No Kings's event, “NO KINGS Contra Costa County” - sign up now to join me! www.mobilize.us/nokings/even...
mobilize.us
NO KINGS Contra Costa County · No Kings
Rally & March on Saturday 6/14 from 11:30 a.m. to 1 p.m. starting in Broadway Plaza by the fountain behind the Apple Store. More details coming soon. We are also planning overpass visibility actions...
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The National Academies of Sciences, Engineering and Medicine @nationalacademies.org · 06/06/2025
How will advances in #AI impact the labor market? The most relevant concern for workers is not whether AI will eliminate jobs in net, but rather how it will shift demands for certain types of expertise. Learn more about AI and the #FutureOfWork: ow.ly/Wq3750W5NsU
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Deb Collyar @deborahcollyar.bsky.social · 07/06/2025
www.cnn.com/2025/06/06/p... Go @nancypelosi.bsky.social & others in #California!
cnn.com
Trump preparing large-scale cancellation of federal funding for California, sources say | CNN Politics
The Trump administration is preparing to cancel a large swath of federal funding to California, an effort which could begin as soon as Friday, according to multiple sources.
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Deb Collyar @deborahcollyar.bsky.social · 07/06/2025
@jessewelles.bsky.social outdid himself with this one! Amazing how quickly he can write a classic. 😊 youtu.be/evfYGf4ND8k?...
youtu.be
My Billionaire Daddies Are Fighting
YouTube video by Jesse Welles
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Bookshelfie ⭐️ @bookshelfie.bsky.social · 04/06/2025
#booksky
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Julie Gralow @jrgralow.bsky.social · 03/06/2025
Great discussions between @ascocancer.bsky.social and European Cancer Organization at #asco25. Partnering on issues related to cancer workforce, access, leadership development, policy, research and more!
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Deb Collyar @deborahcollyar.bsky.social · 04/06/2025
This is so true. We have to continually work together to get better #healthcare delivery & #research advances to ALL #patients.
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Deb Collyar @deborahcollyar.bsky.social · 04/06/2025
‘The safety net of the safety net’: Why education and transportation cuts are also public health cuts www.statnews.com/2025/06/03/t... via @statnews.com
statnews.com
‘The safety net of the safety net’: Why education and transportation cuts are also public health cuts
Massachusetts health commissioner Robbie Goldstein says threats to public health funding are being felt nationwide
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OncoDaily @oncodaily.bsky.social · 01/06/2025
MATTERHORN Trial at ASCO 2025: Durvalumab plus FLOT Shows Significant Improvement of EFS in Resectable Gastric and GEJ Cancer Treatment @ascocancer.bsky.social oncodaily.com/oncolibrary/... #ASCO #ASCO2025 #CancerResearch #Duvralumab #GastricCancer #MATTERHORNtrial #OncoDaily #Oncology
oncodaily.com
MATTERHORN Trial at ASCO 2025: Durvalumab plus FLOT Shows Significant Improvement of EFS in Resectable Gastric and GEJ Cancer Treatment - OncoDaily
MATTERHORN trial at ASCO 2025: Durvalumab + FLOT improves event-free survival in resectable gastric cancer, signaling a new standard of care.
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Binaytara @binaytara.bsky.social · 16/05/2025
This Oncology Nursing Month, celebrate the #oncology nurses whose care uplifts cancer patients daily. At the #Binaytara Cancer Center in #Nepal, we train future oncology #nurses to serve underserved communities. 🎯Help us reach our goal to sponsor an oncology nurse's training: buff.ly/Zy0Mv7f
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Kathy Downs @kathykatd.bsky.social · 09/05/2025
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Deb Collyar @deborahcollyar.bsky.social · 12/04/2025
Here is a plain language Word List for people interested in cancer diagnoses! It's part of our Pilot session from The INSTITUTE @ One Cancer Place. More soon!
collyar.wordpress.com
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2025-04-11 OCP Institute Word List - DIAGNOSIS - COMBINED finalDownload
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Mark Cuban @mcuban.bsky.social · 10/04/2025
$721m to help Louisiana protect itself from Natural Disaster, gone Red Rural Recession. www.fox8live.com/2025/04/10/l...
fox8live.com
Louisiana officials lament Trump administration’s cuts to FEMA grant programs for storm impacts
Hundreds of millions in expected project grants evaporating
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Chris Hayes @chrislhayes.bsky.social · 09/04/2025
You set the house on fire, watched it burn, and then lost your nerve and put it out. You now have a partially burned house. Great job.
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NPR @npr.org · 08/04/2025
Asian grocery stores are a lifeline to the communities they serve. But store owners say the prospect of sweeping tariffs are threatening their ability to stock up on goods and keep prices affordable.
npr.org
Asian grocery stores, a lifeline for immigrants, brace for steep new tariffs
Asian grocery stores are a lifeline to the communities they serve. But store owners say the prospect of sweeping tariffs are threatening their ability to stock up on goods and keep prices affordable.
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Andy Revkin 🌎 ✍🏼 🪕 ☮️ revkin.substack.com @revkin.bsky.social · 08/04/2025
Facebook’s still fun sometimes.
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The New York Times @nytimes.com · 09/04/2025
The American Library Association and a union representing more than 42,000 cultural workers in the U.S. have filed a lawsuit contesting the Trump administration’s cuts to the federal agency that supports the nation’s libraries, arguing that the cuts are already causing “irreparable harm.”
nytimes.com
American Library Association Sues to Stop Trump Cuts
The group argues that efforts to dismantle the Institute of Museum and Library Services imperil the nation’s libraries and violate the law.
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Stephanie L. Graff, MD FACP FASCO @drsgraff.bsky.social · 08/04/2025
I am joining over 150 oncologists this week at the #ASCOAdvocacySummit in Washington, D.C. to urge Congress to help address existing #drugshortages and prevent future shortages of lifesaving and life-prolonging cancer drugs. @ascocancer.bsky.social
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