iiinova — where your digital self keeps evolving

d4itdr.bsky.social @d4itdr.bsky.social · 18/12/2025

As part of our mission to build educational capacity for Tribal communities, we will not deactivate our social media accounts as we hope our YouTube videos, SEEDs database, and website will continue to educate. These are linked below: (3/4)

youtube.com

D4I TDR

The D4I Tribal Data Repository aims to house data from Indigenous communities to further research that will benefit the Native American and Alaskan Native participants while protecting the rights of t...

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d4itdr.bsky.social @d4itdr.bsky.social · 18/12/2025

We hope the policy and operation procedures we created will continue to inform Tribal communities of the possibilities of data governance policies and what they can do to store, protect, and steward their data. (2/4)

youtube.com

D4I TDR

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d4itdr.bsky.social @d4itdr.bsky.social · 18/12/2025

Our current funding stream for the D4I Tribal Data Repository project has ended. The last two years have been momentous as our multi-site collaboration has created the first federally funded repository framework and cyberinfrastructure for Indigenous communities by Indigenous teams. (1/4)

youtube.com

D4I TDR

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d4itdr.bsky.social @d4itdr.bsky.social · 15/12/2025

You can find the documents D4I created to facilitate decisions of data governance, guide the build of the data portal, and templates for Tribal Nations/communities to use in data management on our website d4itdr.org/resources (1/2)

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d4itdr.bsky.social @d4itdr.bsky.social · 11/12/2025

The D4I TDR has curated list of resources for those interested in Indigenous Data Sovereignty and the intersections with the many areas of public health. Visit our new resource database d4itdr.org/seeds/ #IndigenousDataSovereignty #ResourceDatabase #Indigenous #publichealth #IDsov #datagarden

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d4itdr.bsky.social @d4itdr.bsky.social · 08/12/2025

A couple of members from the team were asked a few questions over zoom, with these questions geared to highlight what it means to work in data governance. Check it out here: youtu.be/jqNJXR-pevM

youtu.be

D4I Mini-Interviews - A glimpse into the work with Dana Howard

YouTube video by D4I TDR

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d4itdr.bsky.social @d4itdr.bsky.social · 08/12/2025

As part of the D4I's mission to educate the community about data governance, we thought it would be an excellent opportunity to offer a glimpse into the work we've done for the Tribal Data Repository. (1/2)

youtu.be

D4I Mini-Interviews - A glimpse into the work with Dana Howard

YouTube video by D4I TDR

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d4itdr.bsky.social @d4itdr.bsky.social · 02/12/2025

We hope this presentation and other materials we plan to release soon will serve as continuous educational resources on IDSov and the work surrounding it!!! Watch the presentation below youtu.be/lYT0OWC7Ds4 (2/2) #DataSovereignty #Indigenous #IDSov #Data #Repository #TribalSovereignty #DataGarden

youtu.be

D4I Presents the Tribal Data Repository at AISES 2025

YouTube video by D4I TDR

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d4itdr.bsky.social @d4itdr.bsky.social · 02/12/2025

We're excited to release the presentation our team gave at the AISES conference on our Tribal Data Repository Work in MN! This technical work was brought to life through a garden analogy where it helped attendees connect deeply w/ the principles & work of Indigenous Data Sovereignty (IDSov)! (1/2)

youtu.be

D4I Presents the Tribal Data Repository at AISES 2025

YouTube video by D4I TDR

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d4itdr.bsky.social @d4itdr.bsky.social · 21/11/2025

A garden flourishes when maintained by caring gardeners who monitor the plants throughout the entire lifecycle. Our gardeners are the D4I team, being data stewards who monitor the data throughout its lifecycle. #DataSovereignty #Indigenous #IDSov #Data #Repository #TribalSovereignty #DataGarden

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d4itdr.bsky.social @d4itdr.bsky.social · 07/11/2025

Consent isn’t restricted to one type, there are multiple types of consent. Acquiring the right type of consent is critical to conducting ethical research! Learn about the different consent types youtu.be/_4j8kKh4Zjc?...

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d4itdr.bsky.social @d4itdr.bsky.social · 31/10/2025

Happy Halloween from D4I! What we find spooky are cracker-thin fry bread that cuts your mouth (ruh-roh), milk for our lactose intolerant Native babies, and unauthorized use of Tribal derived data.

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Joe Yracheta (A ∩ & ∪ Ω) @joseph-yracheta.bsky.social · 31/10/2025

Come find @nativebio.bsky.social @kstsosie.bsky.social , @judisimcox.bsky.social , Lauren McCallister Davis, Matt Anderson , @d4itdr.bsky.social and me at @sacnas.bsky.social today. Blow your mind and make you laugh! #IDSov is the only thing you should be saying today!

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Krystal Tsosie @kstsosie.bsky.social · 30/10/2025

Some members of the Tsosie Lab for #Indigenous #Genomic #Data Equity & #Justice are so happy to present @sacnas.bsky.social in Columbus, OH #NDiSTEM2025! Here's for an amazing Friday lineup across #IDSov. Hope to see you soon! @d4itdr.bsky.social @caterpillar-coevo.bsky.social #SACNAS #STEM

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d4itdr.bsky.social @d4itdr.bsky.social · 27/10/2025

Conducting research hasn’t always looked the way it does now, which is why it is important to know the history between your participants and research institutions. Find out more here youtu.be/_4j8kKh4Zjc?... #DataSovereignty #Indigenous #IDSov #Data #Repository #TribalSovereignty

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d4itdr.bsky.social @d4itdr.bsky.social · 18/10/2025

Ethical research should always require consent from participants! Come find out more youtu.be/_4j8kKh4Zjc?... #DataSovereignty #Indigenous #IDSov #Data #Repository #TribalSovereignty

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Reposted by @d4itdr.bsky.social

Dana Howard @thedanahoward.bsky.social · 16/10/2025

Any bioethicists at #ASHG This year? I’m a newbie to the conference! come to our D4I session and lets connect.

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NativeBio Data Consortium @nativebio.bsky.social · 16/10/2025

Hello @geneticssociety.bsky.social come see Native Bio and @d4itdr.bsky.social wow your pants off!!!!

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Reposted by @d4itdr.bsky.social

Krystal Tsosie @kstsosie.bsky.social · 15/10/2025

Out today via @natgenet.nature.com, the first federally funded #Tribal #data repository, a revolutionary approach to data management and applied/operationalization of IDSov @d4itdr.bsky.social. Also, if you are at #ASHG25, come see us this morning in 205ABC www.nature.com/articles/s41...

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Krystal Tsosie @kstsosie.bsky.social · 14/10/2025

For those interested in #Indigenous #Genomics and #ASHG25 in Boston, here are some interested posters/talks/events coming out of the Tsosie Lab, @nativebio.bsky.social, and @d4itdr.bsky.social. For those looking for Friday plans, attend our Ancillary Event, debuting a #Tribal #data repository!

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d4itdr.bsky.social @d4itdr.bsky.social · 03/10/2025

Check out our session tomorrow morning titled “Indigenous Data Sovereignty is very DEMURE, very MINDFUL! Saturday 8:30 am in room 205 A conference.aises.org/agenda #DataSovereignty #Indigenous #IDSov #Data #Repository #TribalSovereignty #AISES

conference.aises.org

Agenda | 2025 AISES National Conference

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d4itdr.bsky.social @d4itdr.bsky.social · 26/09/2025

Them: You look so happy! Us: Thanks! We're upholding Indigenous Data Sovereignty! #DataSovereignty #Indigenous #IDSov #Data #TribalSovereignty

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d4itdr.bsky.social @d4itdr.bsky.social · 19/09/2025

Ever wonder what IDSov and related topics could look like as a music album?

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Krystal Tsosie @kstsosie.bsky.social · 19/09/2025

When Indigenous peoples build our own #Tribal #data repositories, we self-direct #health #research & create #education resources to train next-gen of #Indigenous science From PhD student, Karina Hernandez-Hernandez (P’urhépecha) it is “hope-giving” news.asu.edu/20250917-sci... @d4itdr.bsky.social

news.asu.edu

Professor creates 'a safe harbor' for Indigenous data | ASU News

Among Indigenous populations in the U.S., there is a history of personal data being used without consent. Now, a new digital repository hopes to change both who benefits from biomedical data and who g...

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d4itdr.bsky.social @d4itdr.bsky.social · 12/09/2025

We also consulted with Tribal partners to discuss how Tribes can leverage sovereignty to get their data, an ongoing conversation we are always happy to engage in. (2/2) #DataSovereignty #Indigenous #IDSov #Data #TribalSovereignty

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d4itdr.bsky.social @d4itdr.bsky.social · 12/09/2025

Two weeks ago the D4I team visited the unceded territories of the Coast Salish peoples in the Pacific Northwest Coast. Here our team discussed data sovereignty with the Urban Indian Health Institute director, Abigail Echo Hawk. (1/2)

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d4itdr.bsky.social @d4itdr.bsky.social · 10/09/2025

We uphold Indigenous Data Sovereignty in our repository work youtu.be/twp6lABlTM8?... #DataSovereignty #Indigenous #IDSov #Data #videoseries #TribalSovereignty

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d4itdr.bsky.social @d4itdr.bsky.social · 08/09/2025

If you are attending the ASHG Annual Meeting in Boston this year, and you would like to hear about advances in Indigenous digital sovereignty and Tribal Nation-led health research, please sign up for our limited seating engagement on Friday, Oct 17th. Lunch provided: tinyurl.com/5aj9544f

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d4itdr.bsky.social @d4itdr.bsky.social · 03/09/2025

Have you ever thought about what Tribal derived data is and the big questions surrounding its use? youtu.be/twp6lABlTM8?... #DataSovereignty #Indigenous #IDSov #Data #videoseries #TribalSovereignty #Research

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d4itdr.bsky.social @d4itdr.bsky.social · 29/08/2025

Do you have any questions or thoughts about our work? Feel free to contact us at info@d4itdr.org #DataSovereignty #Indigenous #IDSov #Tribal #Data

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d4itdr.bsky.social @d4itdr.bsky.social · 22/08/2025

CDEs provide a way to standardize collected data, ensuring the type & format of data are consistent across projects/sites/studies/trials. This approach minimizes variability between studies. Reusing this data helps future studies & reduce research costs. Learn more at cde.nlm.nih.gov/home (2/3)

cde.nlm.nih.gov

NIH Common Data Elements (CDE) Repository

Repository of Common Data Elements (CDE) and Protocol Forms. Search CDEs. Search Protocol Forms.

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d4itdr.bsky.social @d4itdr.bsky.social · 22/08/2025

What is a Common Data Element (CDE)? And why do we care about them? CDEs are a type of health data standard that is commonly used and reused both in clinical and research settings. (1/3)

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d4itdr.bsky.social @d4itdr.bsky.social · 13/08/2025

Are you an educator? Want to teach about data sovereignty? Look no further, we have an educational video series explaining several topics of Indigenous Data Sovereignty! youtube.com/@d4itdr?feat... #EducationVideos #DataSovereignty #NativeEducators #Indigenous #IDSov

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d4itdr.bsky.social @d4itdr.bsky.social · 01/08/2025

This video provides an intro to data transfer, ownership, and use agreements (DTOUA) as one way to form mutually respectful collaborations with Tribal Nations that recognizes their legal authority, autonomy, and sovereignty to self-direct research partnerships with Tribal citizens in research (1/2)

youtu.be

D4I Tribal Data Repository - Research Contracts and Partnerships with Tribal Nations

YouTube video by D4I TDR

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d4itdr.bsky.social @d4itdr.bsky.social · 30/07/2025

When looking for data management solutions, Tribes can consider different models. In this video, D4I provides summaries of decentralized, federated, and centralized data systems. youtu.be/RNvNqoAXSGo?... #Datasovereignty #Indigenous #IDSov #Data #TribalSovereignty

youtu.be

D4I Tribal Data Repository - How Data Sharing Systems Work

YouTube video by D4I TDR

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d4itdr.bsky.social @d4itdr.bsky.social · 29/07/2025

We explain what a tribal data repository is in our first video. Several members of D4I TDR share the importance of this project. youtu.be/twp6lABlTM8?... #Datasovereignty #Indigenous #IDSov #Data #TribalSovereignty

youtu.be

D4I Tribal Data Repository - Protecting Tribal Data & Why It Matters

YouTube video by D4I TDR

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d4itdr.bsky.social @d4itdr.bsky.social · 28/07/2025

We are excited to release our collaborative efforts with Complex Stories to share with you about what it is we do at D4I and what kinds of topics we tackle in our Tribal Data Repository project. Let us know what you think of the four videos! www.youtube.com/@D4ITDR

lnkd.in

This link will take you to a page that’s not on LinkedIn

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