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d4itdr.bsky.social

@d4itdr.bsky.social
132 followers 53 following 99 posts

The D4I Tribal Data Repository aims to house data from Indigenous communities to further research that will benefit the Native American participants while protecting the rights of the individuals and respecting sovereignty. Part of @nativebio.bsky.social

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d4itdr.bsky.social @d4itdr.bsky.social · 18/12/2025
Our current funding stream for the D4I Tribal Data Repository project has ended. The last two years have been momentous as our multi-site collaboration has created the first federally funded repository framework and cyberinfrastructure for Indigenous communities by Indigenous teams. (1/4)
youtube.com
D4I TDR
The D4I Tribal Data Repository aims to house data from Indigenous communities to further research that will benefit the Native American and Alaskan Native participants while protecting the rights of t...
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d4itdr.bsky.social @d4itdr.bsky.social · 15/12/2025
You can find the documents D4I created to facilitate decisions of data governance, guide the build of the data portal, and templates for Tribal Nations/communities to use in data management on our website d4itdr.org/resources (1/2)
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d4itdr.bsky.social @d4itdr.bsky.social · 11/12/2025
The D4I TDR has curated list of resources for those interested in Indigenous Data Sovereignty and the intersections with the many areas of public health. Visit our new resource database d4itdr.org/seeds/ #IndigenousDataSovereignty #ResourceDatabase #Indigenous #publichealth #IDsov #datagarden
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d4itdr.bsky.social @d4itdr.bsky.social · 08/12/2025
As part of the D4I's mission to educate the community about data governance, we thought it would be an excellent opportunity to offer a glimpse into the work we've done for the Tribal Data Repository. (1/2)
youtu.be
D4I Mini-Interviews - A glimpse into the work with Dana Howard
YouTube video by D4I TDR
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d4itdr.bsky.social @d4itdr.bsky.social · 02/12/2025
We're excited to release the presentation our team gave at the AISES conference on our Tribal Data Repository Work in MN! This technical work was brought to life through a garden analogy where it helped attendees connect deeply w/ the principles & work of Indigenous Data Sovereignty (IDSov)! (1/2)
youtu.be
D4I Presents the Tribal Data Repository at AISES 2025
YouTube video by D4I TDR
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d4itdr.bsky.social @d4itdr.bsky.social · 21/11/2025
A garden flourishes when maintained by caring gardeners who monitor the plants throughout the entire lifecycle. Our gardeners are the D4I team, being data stewards who monitor the data throughout its lifecycle. #DataSovereignty #Indigenous #IDSov #Data #Repository #TribalSovereignty #DataGarden
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d4itdr.bsky.social @d4itdr.bsky.social · 07/11/2025
Consent isn’t restricted to one type, there are multiple types of consent. Acquiring the right type of consent is critical to conducting ethical research! Learn about the different consent types youtu.be/_4j8kKh4Zjc?...
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d4itdr.bsky.social @d4itdr.bsky.social · 31/10/2025
Happy Halloween from D4I! What we find spooky are cracker-thin fry bread that cuts your mouth (ruh-roh), milk for our lactose intolerant Native babies, and unauthorized use of Tribal derived data.
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Joe Yracheta (A ∩ & ∪ Ω) @joseph-yracheta.bsky.social · 31/10/2025
Come find @nativebio.bsky.social @kstsosie.bsky.social , @judisimcox.bsky.social , Lauren McCallister Davis, Matt Anderson , @d4itdr.bsky.social and me at @sacnas.bsky.social today. Blow your mind and make you laugh! #IDSov is the only thing you should be saying today!
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Krystal Tsosie @kstsosie.bsky.social · 30/10/2025
Some members of the Tsosie Lab for #Indigenous #Genomic #Data Equity & #Justice are so happy to present @sacnas.bsky.social in Columbus, OH #NDiSTEM2025! Here's for an amazing Friday lineup across #IDSov. Hope to see you soon! @d4itdr.bsky.social @caterpillar-coevo.bsky.social #SACNAS #STEM
Presentations at SACNAS #NDiSTEM2025
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d4itdr.bsky.social @d4itdr.bsky.social · 29/10/2025
Another classic from D4I!
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d4itdr.bsky.social @d4itdr.bsky.social · 27/10/2025
Conducting research hasn’t always looked the way it does now, which is why it is important to know the history between your participants and research institutions. Find out more here youtu.be/_4j8kKh4Zjc?... #DataSovereignty #Indigenous #IDSov #Data #Repository #TribalSovereignty
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d4itdr.bsky.social @d4itdr.bsky.social · 18/10/2025
Ethical research should always require consent from participants! Come find out more youtu.be/_4j8kKh4Zjc?... #DataSovereignty #Indigenous #IDSov #Data #Repository #TribalSovereignty
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Dana Howard @thedanahoward.bsky.social · 16/10/2025
Any bioethicists at #ASHG This year? I’m a newbie to the conference! come to our D4I session and lets connect.
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NativeBio Data Consortium @nativebio.bsky.social · 16/10/2025
Hello @geneticssociety.bsky.social come see Native Bio and @d4itdr.bsky.social wow your pants off!!!!
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d4itdr.bsky.social @d4itdr.bsky.social · 16/10/2025
Check out our D4I session tomorrow at ASHG! #DataSovereignty #Indigenous #IDSov #Tribal #Data #Conference #ASHG #ASHG25 #ASHG2025
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Krystal Tsosie @kstsosie.bsky.social · 15/10/2025
Out today via @natgenet.nature.com, the first federally funded #Tribal #data repository, a revolutionary approach to data management and applied/operationalization of IDSov @d4itdr.bsky.social. Also, if you are at #ASHG25, come see us this morning in 205ABC www.nature.com/articles/s41...
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Dana Howard @thedanahoward.bsky.social · 15/10/2025
Publication day! So proud to be a small part of this incredible team at @d4itdr.bsky.social. check out what it looks like to build a data repository grounded in #IDSov
nature.com
A Tribal data repository to advance Indigenous health and sovereignty - Nature Genetics
We present the first federally funded Tribal data repository — the Data for Indigenous Implementations, Interventions, and Innovations Tribal Data Repository. This repository takes a revolutionary app...
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Krystal Tsosie @kstsosie.bsky.social · 14/10/2025
For those interested in #Indigenous #Genomics and #ASHG25 in Boston, here are some interested posters/talks/events coming out of the Tsosie Lab, @nativebio.bsky.social, and @d4itdr.bsky.social. For those looking for Friday plans, attend our Ancillary Event, debuting a #Tribal #data repository!
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d4itdr.bsky.social @d4itdr.bsky.social · 15/10/2025
Exciting news!!! Our paper describing our Tribal Data Repository work and its framework has been published today in Nature Genetics! (1/2)
nature.com
A Tribal data repository to advance Indigenous health and sovereignty - Nature Genetics
We present the first federally funded Tribal data repository — the Data for Indigenous Implementations, Interventions, and Innovations Tribal Data Repository. This repository takes a revolutionary app...
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d4itdr.bsky.social @d4itdr.bsky.social · 03/10/2025
Check out our session tomorrow morning titled “Indigenous Data Sovereignty is very DEMURE, very MINDFUL! Saturday 8:30 am in room 205 A conference.aises.org/agenda #DataSovereignty #Indigenous #IDSov #Data #Repository #TribalSovereignty #AISES
conference.aises.org
Agenda | 2025 AISES National Conference
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d4itdr.bsky.social @d4itdr.bsky.social · 26/09/2025
Them: You look so happy! Us: Thanks! We're upholding Indigenous Data Sovereignty! #DataSovereignty #Indigenous #IDSov #Data #TribalSovereignty
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d4itdr.bsky.social @d4itdr.bsky.social · 19/09/2025
Ever wonder what IDSov and related topics could look like as a music album?
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Krystal Tsosie @kstsosie.bsky.social · 19/09/2025
When Indigenous peoples build our own #Tribal #data repositories, we self-direct #health #research & create #education resources to train next-gen of #Indigenous science From PhD student, Karina Hernandez-Hernandez (P’urhépecha) it is “hope-giving” news.asu.edu/20250917-sci... @d4itdr.bsky.social
news.asu.edu
Professor creates 'a safe harbor' for Indigenous data | ASU News
Among Indigenous populations in the U.S., there is a history of personal data being used without consent. Now, a new digital repository hopes to change both who benefits from biomedical data and who g...
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d4itdr.bsky.social @d4itdr.bsky.social · 12/09/2025
Two weeks ago the D4I team visited the unceded territories of the Coast Salish peoples in the Pacific Northwest Coast. Here our team discussed data sovereignty with the Urban Indian Health Institute director, Abigail Echo Hawk. (1/2)
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d4itdr.bsky.social @d4itdr.bsky.social · 10/09/2025
We uphold Indigenous Data Sovereignty in our repository work youtu.be/twp6lABlTM8?... #DataSovereignty #Indigenous #IDSov #Data #videoseries #TribalSovereignty
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d4itdr.bsky.social @d4itdr.bsky.social · 08/09/2025
If you are attending the ASHG Annual Meeting in Boston this year, and you would like to hear about advances in Indigenous digital sovereignty and Tribal Nation-led health research, please sign up for our limited seating engagement on Friday, Oct 17th. Lunch provided: tinyurl.com/5aj9544f
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d4itdr.bsky.social @d4itdr.bsky.social · 03/09/2025
Have you ever thought about what Tribal derived data is and the big questions surrounding its use? youtu.be/twp6lABlTM8?... #DataSovereignty #Indigenous #IDSov #Data #videoseries #TribalSovereignty #Research
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d4itdr.bsky.social @d4itdr.bsky.social · 29/08/2025
Do you have any questions or thoughts about our work? Feel free to contact us at info@d4itdr.org #DataSovereignty #Indigenous #IDSov #Tribal #Data
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d4itdr.bsky.social @d4itdr.bsky.social · 22/08/2025
What is a Common Data Element (CDE)? And why do we care about them? CDEs are a type of health data standard that is commonly used and reused both in clinical and research settings. (1/3)
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d4itdr.bsky.social @d4itdr.bsky.social · 15/08/2025
Come check out our website! d4itdr.org/were-in-our-...
d4itdr.org
We’re in our IDSov Era: Explore Our New Video Resources on Indigenous Data Sovereignty | D4I Tribal Data Repository
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d4itdr.bsky.social @d4itdr.bsky.social · 13/08/2025
Are you an educator? Want to teach about data sovereignty? Look no further, we have an educational video series explaining several topics of Indigenous Data Sovereignty! youtube.com/@d4itdr?feat... #EducationVideos #DataSovereignty #NativeEducators #Indigenous #IDSov
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d4itdr.bsky.social @d4itdr.bsky.social · 01/08/2025
This video provides an intro to data transfer, ownership, and use agreements (DTOUA) as one way to form mutually respectful collaborations with Tribal Nations that recognizes their legal authority, autonomy, and sovereignty to self-direct research partnerships with Tribal citizens in research (1/2)
youtu.be
D4I Tribal Data Repository - Research Contracts and Partnerships with Tribal Nations
YouTube video by D4I TDR
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d4itdr.bsky.social @d4itdr.bsky.social · 31/07/2025
Dynamic consent can promote Tribal sovereignty, this video provides an overview of different informed consent types. youtu.be/_4j8kKh4Zjc?... #Datasovereignty #Indigenous #IDSov #Data #TribalSovereignty #Consent
youtu.be
D4I Tribal Data Repository - Informed, Broad, and Dynamic Consent in Indigenous Based Research
YouTube video by D4I TDR
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d4itdr.bsky.social @d4itdr.bsky.social · 30/07/2025
When looking for data management solutions, Tribes can consider different models. In this video, D4I provides summaries of decentralized, federated, and centralized data systems. youtu.be/RNvNqoAXSGo?... #Datasovereignty #Indigenous #IDSov #Data #TribalSovereignty
youtu.be
D4I Tribal Data Repository - How Data Sharing Systems Work
YouTube video by D4I TDR
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d4itdr.bsky.social @d4itdr.bsky.social · 29/07/2025
We explain what a tribal data repository is in our first video. Several members of D4I TDR share the importance of this project. youtu.be/twp6lABlTM8?... #Datasovereignty #Indigenous #IDSov #Data #TribalSovereignty
youtu.be
D4I Tribal Data Repository - Protecting Tribal Data & Why It Matters
YouTube video by D4I TDR
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d4itdr.bsky.social @d4itdr.bsky.social · 28/07/2025
We are excited to release our collaborative efforts with Complex Stories to share with you about what it is we do at D4I and what kinds of topics we tackle in our Tribal Data Repository project. Let us know what you think of the four videos! www.youtube.com/@D4ITDR
lnkd.in
LinkedIn
This link will take you to a page that’s not on LinkedIn
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d4itdr.bsky.social @d4itdr.bsky.social · 25/07/2025
Come back Monday for the links to our Educational video series (4 videos!) where we answer those burning questions from this week! #Datasovereignty #Indigenous #IDSov #Data #videoseries
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d4itdr.bsky.social @d4itdr.bsky.social · 24/07/2025
What do contracts look like between researchers and Tribal Nations/communities? Hint: we’ll have the answer posted next week in a new short educational video #Datasovereignty #Indigenous #IDSov #Data #communityengagedresearch
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d4itdr.bsky.social @d4itdr.bsky.social · 23/07/2025
Did you know there are multiple forms of consent in community-driven research? Learn more about the different forms next Monday! #Datasovereignty #Indigenous #IDSov #Data
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d4itdr.bsky.social @d4itdr.bsky.social · 22/07/2025
What are the different ways to govern data? Take a guess before we release content next week! #Datasovereignty #Indigenous #IDSov #Data
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d4itdr.bsky.social @d4itdr.bsky.social · 21/07/2025
Have you been wondering, What is a Tribal Data Repository really? 🤔 Stay tuned next Monday for the answer!
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d4itdr.bsky.social @d4itdr.bsky.social · 21/07/2025
Here at D4I, we have a team made of individuals who are trained in vastly different areas. We asked our team members their backgrounds and how they are using their training to uphold Indigenous Data Sovereignty (IDSov). Check out what our team said: (1/3)
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d4itdr.bsky.social @d4itdr.bsky.social · 18/07/2025
D4I has 3 areas of focus for the TDR project. We will be premiering new educational content very soon, keep an eye out for what we have in store! #DataSovereignty #Indigenous #D4ITDR #IDSov #Data #Education #CommunityEngagement #CAREprinciples
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d4itdr.bsky.social @d4itdr.bsky.social · 14/07/2025
Disasters can strike and wipe out data in repositories, learn how we safeguard our data below
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d4itdr.bsky.social @d4itdr.bsky.social · 04/07/2025
Today marks the U.S.A's independence, BUT don't forget Tribal Nations are sovereign nations and political entities within the U.S. that are entitled to the same level of sovereignty over their data! #IDSov #TribalSovereignty #DataBack
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d4itdr.bsky.social @d4itdr.bsky.social · 02/07/2025
D4I's presenting at the AISES National Conference 2025 in MN! Our presentation titled “Not Like Us: Indigenous-Led Solutions for a Tribal Data Repository” will describe what D4I is doing for Indigenous data sovereignty with our repository work. Will you be at #AISESNC25? conference.aises.org/agenda
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d4itdr.bsky.social @d4itdr.bsky.social · 30/06/2025
#CAREprinciples #DataSovereignty
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d4itdr.bsky.social @d4itdr.bsky.social · 27/06/2025
D4I’s Roman empire is how there are no uniform data privacy laws on a federal level that protect Indigenous data! So we’re taking things into our own hands and creating an Indigenous-created and managed data repository! #IDSov #D4ITDR
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d4itdr.bsky.social @d4itdr.bsky.social · 26/06/2025
Them: What are you going to do with a degree in *looks at hand* microbiology to uphold IDSov? Me: Make sure any microbial data from Indigenous communities remain under the authority of those communities! #Datasovereignty #Indigenous #IDSov #Data #STEM #Microbio
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