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d4itdr.bsky.social

@d4itdr.bsky.social
132 followers 53 following 99 posts

The D4I Tribal Data Repository aims to house data from Indigenous communities to further research that will benefit the Native American participants while protecting the rights of the individuals and respecting sovereignty. Part of @nativebio.bsky.social

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d4itdr.bsky.social @d4itdr.bsky.social · 15/12/2025
You can find the documents D4I created to facilitate decisions of data governance, guide the build of the data portal, and templates for Tribal Nations/communities to use in data management on our website d4itdr.org/resources (1/2)
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d4itdr.bsky.social @d4itdr.bsky.social · 11/12/2025
The D4I TDR has curated list of resources for those interested in Indigenous Data Sovereignty and the intersections with the many areas of public health. Visit our new resource database d4itdr.org/seeds/ #IndigenousDataSovereignty #ResourceDatabase #Indigenous #publichealth #IDsov #datagarden
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d4itdr.bsky.social @d4itdr.bsky.social · 21/11/2025
A garden flourishes when maintained by caring gardeners who monitor the plants throughout the entire lifecycle. Our gardeners are the D4I team, being data stewards who monitor the data throughout its lifecycle. #DataSovereignty #Indigenous #IDSov #Data #Repository #TribalSovereignty #DataGarden
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d4itdr.bsky.social @d4itdr.bsky.social · 07/11/2025
Consent isn’t restricted to one type, there are multiple types of consent. Acquiring the right type of consent is critical to conducting ethical research! Learn about the different consent types youtu.be/_4j8kKh4Zjc?...
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d4itdr.bsky.social @d4itdr.bsky.social · 29/10/2025
Another classic from D4I!
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d4itdr.bsky.social @d4itdr.bsky.social · 27/10/2025
Conducting research hasn’t always looked the way it does now, which is why it is important to know the history between your participants and research institutions. Find out more here youtu.be/_4j8kKh4Zjc?... #DataSovereignty #Indigenous #IDSov #Data #Repository #TribalSovereignty
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d4itdr.bsky.social @d4itdr.bsky.social · 18/10/2025
Ethical research should always require consent from participants! Come find out more youtu.be/_4j8kKh4Zjc?... #DataSovereignty #Indigenous #IDSov #Data #Repository #TribalSovereignty
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d4itdr.bsky.social @d4itdr.bsky.social · 16/10/2025
Check out our D4I session tomorrow at ASHG! #DataSovereignty #Indigenous #IDSov #Tribal #Data #Conference #ASHG #ASHG25 #ASHG2025
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d4itdr.bsky.social @d4itdr.bsky.social · 26/09/2025
Them: You look so happy! Us: Thanks! We're upholding Indigenous Data Sovereignty! #DataSovereignty #Indigenous #IDSov #Data #TribalSovereignty
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d4itdr.bsky.social @d4itdr.bsky.social · 19/09/2025
Ever wonder what IDSov and related topics could look like as a music album?
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d4itdr.bsky.social @d4itdr.bsky.social · 12/09/2025
Two weeks ago the D4I team visited the unceded territories of the Coast Salish peoples in the Pacific Northwest Coast. Here our team discussed data sovereignty with the Urban Indian Health Institute director, Abigail Echo Hawk. (1/2)
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d4itdr.bsky.social @d4itdr.bsky.social · 10/09/2025
We uphold Indigenous Data Sovereignty in our repository work youtu.be/twp6lABlTM8?... #DataSovereignty #Indigenous #IDSov #Data #videoseries #TribalSovereignty
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d4itdr.bsky.social @d4itdr.bsky.social · 08/09/2025
If you are attending the ASHG Annual Meeting in Boston this year, and you would like to hear about advances in Indigenous digital sovereignty and Tribal Nation-led health research, please sign up for our limited seating engagement on Friday, Oct 17th. Lunch provided: tinyurl.com/5aj9544f
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d4itdr.bsky.social @d4itdr.bsky.social · 03/09/2025
Have you ever thought about what Tribal derived data is and the big questions surrounding its use? youtu.be/twp6lABlTM8?... #DataSovereignty #Indigenous #IDSov #Data #videoseries #TribalSovereignty #Research
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d4itdr.bsky.social @d4itdr.bsky.social · 24/07/2025
What do contracts look like between researchers and Tribal Nations/communities? Hint: we’ll have the answer posted next week in a new short educational video #Datasovereignty #Indigenous #IDSov #Data #communityengagedresearch
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d4itdr.bsky.social @d4itdr.bsky.social · 23/07/2025
Did you know there are multiple forms of consent in community-driven research? Learn more about the different forms next Monday! #Datasovereignty #Indigenous #IDSov #Data
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d4itdr.bsky.social @d4itdr.bsky.social · 22/07/2025
What are the different ways to govern data? Take a guess before we release content next week! #Datasovereignty #Indigenous #IDSov #Data
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d4itdr.bsky.social @d4itdr.bsky.social · 21/07/2025
Have you been wondering, What is a Tribal Data Repository really? 🤔 Stay tuned next Monday for the answer!
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d4itdr.bsky.social @d4itdr.bsky.social · 14/07/2025
Disasters can strike and wipe out data in repositories, learn how we safeguard our data below
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d4itdr.bsky.social @d4itdr.bsky.social · 02/07/2025
D4I's presenting at the AISES National Conference 2025 in MN! Our presentation titled “Not Like Us: Indigenous-Led Solutions for a Tribal Data Repository” will describe what D4I is doing for Indigenous data sovereignty with our repository work. Will you be at #AISESNC25? conference.aises.org/agenda
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d4itdr.bsky.social @d4itdr.bsky.social · 30/06/2025
#CAREprinciples #DataSovereignty
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d4itdr.bsky.social @d4itdr.bsky.social · 24/06/2025
Me: Told him I worked in data sovereignty and protection policy work “Oh so you work for palantir” Me:
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d4itdr.bsky.social @d4itdr.bsky.social · 23/06/2025
Holding space for community-driven research that is beneficial to both researchers and the community #Datasovereignty #Indigenous #IDSov #Data
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d4itdr.bsky.social @d4itdr.bsky.social · 20/06/2025
Science Girl Summer from the D4I team!!! #Datasovereignty #Indigenous #IDSov #Data
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d4itdr.bsky.social @d4itdr.bsky.social · 19/06/2025
If I won the lottery, I wouldn’t tell people but there would be signs (Expanding resources and capacity for Natives to conduct research on Tribal lands)
Proposed NativeBio Data Consortium research campus
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d4itdr.bsky.social @d4itdr.bsky.social · 17/06/2025
#Datasovereignty #Indigenous #IDSov #Data
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d4itdr.bsky.social @d4itdr.bsky.social · 16/06/2025
“All data should be freely available to access” #Datasovereignty #Indigenous #IDSov #Data
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d4itdr.bsky.social @d4itdr.bsky.social · 13/06/2025
Last week at Indigidata, Rebecca Dickinson from our D4I team and others shared their thoughts about the current data landscape in various contexts and the needs for data capacity building, training and education. See below for more!
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d4itdr.bsky.social @d4itdr.bsky.social · 11/06/2025
Why don't Indigenous peoples just give up their data?
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d4itdr.bsky.social @d4itdr.bsky.social · 10/06/2025
Data access is a very important consideration for a repository, D4I TDR upholds Tribal sovereignty by having Tribes decide!
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d4itdr.bsky.social @d4itdr.bsky.social · 07/06/2025
Some of our D4I team members were spearheading the training too! It’s great to see the upcoming generation of Indigenous Scholars!! #Datasovereignty #Indigenous #IDSov #Tribal #Data
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d4itdr.bsky.social @d4itdr.bsky.social · 07/06/2025
Indigidata 2025 has wrapped up! This week the trainees learned about genomic data & applications in infectious disease surveillance, navigating servers & repositories, performing machine learning based bioinformatics, & much more.
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d4itdr.bsky.social @d4itdr.bsky.social · 03/06/2025
Happy Bday to our project manager, Kali Dale! She is the Research Director @nativebio.bsky.social ! (White Earth Nation). As the D4I TDR project manager, she’s involved in it all! Catch her smiling, laughing, & finding the best place to eat (wherever she is) #DataSovereignty #Indigenous #IDSov #Data
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d4itdr.bsky.social @d4itdr.bsky.social · 02/06/2025
One set of principles our project is foundational to is the CARE principles #Datasovereignty #Indigenous #IDSov #NativeData #CARE #datagoverenance
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d4itdr.bsky.social @d4itdr.bsky.social · 29/05/2025
#Datasovereignty #Indigenous #IDSov #NativeData
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d4itdr.bsky.social @d4itdr.bsky.social · 28/05/2025
#Datasovereignty #Indigenous #IDSov #NativeData
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d4itdr.bsky.social @d4itdr.bsky.social · 27/05/2025
Meet the PI’s! Soledad Fernández (Uruguayan) may not be a fan of heights but that doesn’t stop her from achieving new heights by bringing knowledge on legal/bioethical support and expertise of data governance to protect AI/AN data. Learn more at d4itdr.org/bios/ #IDSov #DataScientist
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d4itdr.bsky.social @d4itdr.bsky.social · 23/05/2025
Meet the PI’s! Krystal Tsosie (Diné/Navajo Nation) is a professor at Arizona State University and a co-founder of NativeBio Data Consortium. Her work incorporates community engaged models to produce equitable research that directly benefits Tribal communities.
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d4itdr.bsky.social @d4itdr.bsky.social · 22/05/2025
Meet the PI’s! Susan Trinidad worked w/ Tribal communities for ~20 years, bringing strengths-based research expertise at Uni of Washington. Being a part of large national genomics & precision medicine consortia, she focuses on health R&D equitable collaboration, community engagement, & team science
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d4itdr.bsky.social @d4itdr.bsky.social · 21/05/2025
Happy National Rescue dog day! Shoutout to all the Rez puppies making us fast by chasing us down the road 🏃‍♂️🏃‍♀️ 🐕
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d4itdr.bsky.social @d4itdr.bsky.social · 21/05/2025
Meet the PI’s! Ann Mc Cartney earned her PhD in bioinformatics at Dublin City University. From her postdoc work w/ the Māori to create genomic work that were inclusive + responsive, she brings community centered informatics expertise to her Assistant Researcher position at UCSC Genomics Institute.
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d4itdr.bsky.social @d4itdr.bsky.social · 21/05/2025
Meet the PI’s of D4I! Matthew Anderson (Tsalagi) received his training in host-pathogen interactions at Stanford, is a UW-Madison professor, and was instrumental in building out Indigidata with Krystal Tsosie and the Summer internship for INdigenous peoples in Genomics (SING).
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d4itdr.bsky.social @d4itdr.bsky.social · 19/05/2025
Meet Joseph Yracheta! (Purepecha) Just like Yoda, he’s full of wisdom and no one knows his age. He’s the executive director of NativeBio Data Consortium @nativebio and one of the PIs of the D4I TDR project. The bigger question is 100 men vs 1 gorilla or 1 Joe vs theft of Indigenous data???
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d4itdr.bsky.social @d4itdr.bsky.social · 16/05/2025
Indigidata is less than three weeks away! This week-long workshop founded by Krystal Tsosie and Matt Anderson is focusing on AI and Indigenous health with hands-on applications of machine learning this year. Keep up with us as we’ll be posting about what goes on there! indigidata.org
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d4itdr.bsky.social @d4itdr.bsky.social · 15/05/2025
*drum roll* Introducing Data for Indigenous Implementations, Interventions, & Innovation (D4I) project! We're an Indigenous-led team building a Tribal Data Repository (TDR) & policies for Tribal Nations grounded in Indigenous Data Sovereignty principles. Meet some of our team & learn more d4itdr.org
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d4itdr.bsky.social @d4itdr.bsky.social · 09/05/2025
Great things coming your way! Keep an eye out next week folks! 👀
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