iiinova — where your digital self keeps evolving

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Public Health Action Network @publichealthaction.bsky.social · 30/06/2026

Join us on Thurs, July 2, at noon Eastern for a conversation with Megan Carmilani, founder of @longcovidfam.bsky.social to discuss accommodations for kids with long COVID. You will need a Zoom account (free) to register. Sign up here: tinyurl.com/KidsLongCovid

Pale lavender background and a photo of a child at a desk seated in a wheelchair. Event details in text in accompanying post.

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Amanda Finley Digs All the Spooky Things @rubyslippahs.bsky.social · 30/06/2026

Looking forward to this! If you have a child struggling with long COVID, we would love to share this recorded conversation with you.

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The Sick Times @thesicktimes.org · 28/04/2026

Today's the day! We hope to see you at our free webinar on tracking COVID-19 data!

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Amanda Finley Digs All the Spooky Things @rubyslippahs.bsky.social · 31/03/2026

"The site is 'a shiny bauble to distract us from the hard fact that we will not see help or progress in this administration,' she said. 'They have yet to prove otherwise.'" Thank you, @thesicktimes.org and @betsyladyzhets.bsky.social for highlighting this issue. thesicktimes.org/2026/03/31/n...

thesicktimes.org

“Not a whole lot of substance”: HHS posts Long COVID website, six months after making big promises - The Sick Times

New website receives mixed reviews from Long COVID advocates and researchers; some are not interested in any support from the Trump administration.

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Amanda Finley Digs All the Spooky Things @rubyslippahs.bsky.social · 15/03/2026

We need you not to join our ranks: wear a respirator mask, stay home when sick, ventilate to reduce everyone's risk. Do the hard things for all of us, because it's a lot harder when you have #longCOVID. 4/4

X-ray image of a person seated with red semi-transparent text that says long COVID kills, overlaid by white text listing various long COVID issues and symptoms.

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Amanda Finley Digs All the Spooky Things @rubyslippahs.bsky.social · 15/03/2026

On #LongCovidAwarenessDay, we need you to stand with us, as many of us can no longer stand on our own. We need to you speak up, as many of us no longer have the breath to scream. We need you to fight for us, because every ounce of energy we have is spent fighting to stay alive. 3/4

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Amanda Finley Digs All the Spooky Things @rubyslippahs.bsky.social · 15/03/2026

It is also one of job loss and housing instability, food insecurity and medication rationing. Of gaslighting and disbelief. Of being left behind by the world. And slow death. It's preventable. 2/4

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Amanda Finley Digs All the Spooky Things @rubyslippahs.bsky.social · 15/03/2026

There's a liminal area the world ignores after COVID. It's a world of heart disease and neurological damage, of vertigo and vision loss, gastric disorders and endocrine hell. 1/4

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Amanda Finley Digs All the Spooky Things @rubyslippahs.bsky.social · 06/03/2026

Many thanks to @publichealthaction.bsky.social & @airsupportproject.bsky.social for hosting today's Zoom on living with long COVID with @ancirabecky.bsky.social and me. It's been a long six years, but I'm grateful you've been by my side, Becky. Watch here: www.youtube.com/live/NK3-hQN...

youtube.com

PHAN & ASP Present: Living with Long COVID

YouTube video by Public Health Action Network

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COVID-19 Long-Haulers Discussion Group @covidlonghaulers.bsky.social · 26/02/2026

Join us! Becky and I will be talking about living with long COVID, what we're doing about it, what keeps us going. You'll need to have a registered (but free!) Zoom account.

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COVID-19 Long-Haulers Discussion Group @covidlonghaulers.bsky.social · 27/02/2026

Join us! We'll be talking about how long COVID has affected us, what we've done about it, and what keeps us going.

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COVID-19 Long-Haulers Discussion Group @covidlonghaulers.bsky.social · 23/10/2024

We interrupt this otherwise long COVID-devoted feed for a moment of joy.

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COVID-19 Long-Haulers Discussion Group @covidlonghaulers.bsky.social · 27/02/2026

Join us! We'll be talking about how long COVID has affected us, what we've done about it, and what keeps us going.

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Governor Tim Walz @governorwalz.mn.gov · 26/02/2026

If you’re wondering why the Trump Administration is cutting off health care for people across our state - look no further than the President’s own words: “retribution is coming”

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COVID-19 Long-Haulers Discussion Group @covidlonghaulers.bsky.social · 26/02/2026

Join us! Becky and I will be talking about living with long COVID, what we're doing about it, what keeps us going. You'll need to have a registered (but free!) Zoom account.

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Amanda Finley Digs All the Spooky Things @rubyslippahs.bsky.social · 02/02/2026

Really looking forward to this, @chimsween20.bsky.social! Y'all, go sign up for this!

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American Institute of Biological Sciences @aibsbiology.bsky.social · 07/01/2026

Firing of #neuroscience institute chief adds to NIH’s leadership vacuum. Trump administration declines to renew appointment of Walter #Koroshetz, against #NIH director’s wishes. www.science.org/content/arti...

science.org

Firing of neuroscience institute chief adds to NIH’s leadership vacuum

Trump administration declines to renew appointment of Walter Koroshetz, against NIH director’s wishes

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COVID-19 Long-Haulers Discussion Group @covidlonghaulers.bsky.social · 31/12/2025

@mollyboom.bsky.social it's hard to believe we're starting a new year without you, Molly. You are loved and missed. That fierce rainbow sunshine.

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Ziyad Al-Aly MD @zalaly.bsky.social · 03/02/2025

New Long Covid policy paper from Norway outlines knowledge gaps and lessons learnt for developing preparedness for future pandemics. Section 5 (pictured below) outlines their recommendations. Led by Sara Illman, PhD and colleagues. www.nordforsk.org/2025/knowled...

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COVID-19 Long-Haulers Discussion Group @covidlonghaulers.bsky.social · 28/08/2025

Looking forward to it, @panagis.bsky.social!

White background with dark blue print and lungs composed of flowers. COVID-19 Long-Haulers. Pulmonary Town Hall with Panagis Galiatsatos MD Mhs, Johns Hopkins. Friday September 19 at 3 pm EDT 2025. Facebook dot com slash COVID 19 long haulers, replay at YouTube dot com slash at sign COVID long haulers. Please submit all questions to COVID Long haulers at Gmail dot com

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COVID-19 Long-Haulers Discussion Group @covidlonghaulers.bsky.social · 07/09/2025

There's a level of COVID denial that led to 400 million people and over 7 million dead. I won't say I told you so when it happens to you -- I'm not cruel like that. Good luck.

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Chantzy @chantzy.bsky.social · 06/09/2025

Conflating COVID activists with anti-vaxxers is ableist garbage. Long COVID has upended ~25 million American lives. Anti-vaxxers fuel outbreaks that cause preventable child deaths. Hope this helps

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Denis - The COVID Info Guy @thecovidinfoguy.bsky.social · 06/09/2025

Long Covid plagues 400 million worldwide. COVID has had more dangerous and widespread effects than flu: Long COVID damages lungs, heart, metabolism, gut, kidneys, brain, and mental health. An estimated 400 million people affected globally, costing $1 trillion, 1% of global GDP. archive.md/eZezE

Long Covid plagues 400 million worldwide, requiring response systems through international cooperation: US expert

기자명 Koh Jung Min Published 2025.09.05 11:14

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COVID-19 Long-Haulers Discussion Group @covidlonghaulers.bsky.social · 04/09/2025

Town Hall: Inside a Long COVID Clinic, with Julie Sullivan, program manager at the Brigham and Womens COVID Recovery Center, Boston. youtu.be/1iskw3zBLpA?...

youtu.be

Inside a Long COVID Clinic: Town Hall with Julie Sullivan, Brigham and Womens COVID Recovery Center

YouTube video by COVID Long Haulers

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COVID-19 Long-Haulers Discussion Group @covidlonghaulers.bsky.social · 08/08/2025

Join us on Fri, Sept 19 at 3 pm EDT for a town hall on pulmonary issues in #longCOVID with @panagis.bsky.social. We won't be able to take your questions live. Please submit in advance to covidlonghaulers@gmail.com. Live stream on FB. Later: YouTube.com/@covidlonghaul…

Green background with green Lily pads and pink lotus flower blooming.

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Amanda Finley Digs All the Spooky Things @rubyslippahs.bsky.social · 14/08/2025

🚨🚨 Help Needed! 🚨🚨 Christine + family are living in a broken tent. The pole can't be fixed. They have a sturdier tent on their wish list, if anyone is looking for an opportunity to do a good deed today. Thanks!

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The National @scotnational.bsky.social · 07/08/2025

BREAKING: Homelessness Minister Rushanara Ali has resigned after she was found to have evicted tenants and hiked rent to £4000 per month More to follow

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COVID-19 Long-Haulers Discussion Group @covidlonghaulers.bsky.social · 08/08/2025

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Amanda Finley Digs All the Spooky Things @rubyslippahs.bsky.social · 08/08/2025

Join us on Fri, Sept 19 at 3 pm EDT for a town hall on pulmonary issues in #longCOVID with @panagis.bsky.social We won't be able to take your questions live. Please submit in advance to covidlonghaulers@gmail.com. Live stream on FB. Later: YouTube.com/@covidlonghaulers

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COVID-19 Long-Haulers Discussion Group @covidlonghaulers.bsky.social · 04/08/2025

"...you don’t need to provide the VA with any additional documentation to prove service connection. If you meet these criteria and are still experiencing long-term symptoms, you may be eligible to file a VA disability claim." @fpwellman.bsky.social themilitarywallet.com/covid-19-va-...

themilitarywallet.com

Covid-19 VA Disability Claims: What You Should Know

Veterans and military members with long covid or post-Covid conditions may qualify for VA disability benefits. Here's what you need to know.

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COVID Long-Haulers Against Fascism @guerillaadvocacy.bsky.social · 22/07/2025

Guerilla Advocacy: No Camps Virtual rally July 19. youtu.be/Z6X_mqmSdgs?...

youtu.be

Guerilla Advocacy: No Camps

YouTube video by COVID Long Haulers

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COVID Long-Haulers Against Fascism @guerillaadvocacy.bsky.social · 19/07/2025

Event will be recorded, and media will be present. Replay: YouTube.com/@covidlongha...

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Amanda Finley Digs All the Spooky Things @rubyslippahs.bsky.social · 08/07/2025

@morgfair.bsky.social Grayson and Hayden are on their way to grab their belongings that were left behind in Topeka. They're going to be okay. I told them I'm proud of them, and everything this Carrie Fisher meme says.

Carrie Fisher meme but it's Morgan Fairchild. It says take your pills, do self care, live to flip off the world another day Make Morgan proud.

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COVID Long-Haulers Against Fascism @guerillaadvocacy.bsky.social · 02/05/2025

We would love to have you join us on Saturday! Space is limited, so register while you can.

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Amanda Finley Digs All the Spooky Things @rubyslippahs.bsky.social · 03/05/2025

Today's Guerilla Advocacy rally with @clhagainstfascism.bsky.social @effies.bsky.social @gregggonsalves.bsky.social @chantzy.bsky.social @beingcharis.bsky.social and poetry by @kristinwrites.bsky.social I hope everyone is able to take at least one nugget from this today. youtu.be/JpYKvimTzXU?...

youtu.be

Guerilla Advocacy Rally 2

YouTube video by COVID Long Haulers

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NICOLE LEBLANC @nicole1985.bsky.social · 13/04/2025

@covidlonghaulers.bsky.social FYI NY Lawmakers need to hear from real people, not billboards. Call now and say #NoNYMaskBan in the state budget! ⚡Join a phone zap this week: bit.ly/budget-mask-... ☎️ Call Anytime Toolkit:

bit.ly

Stop The Budget Mask Ban — Jews for Mask Rights

Join us in opposing anti-mask measures in New York state. Governor Hochul is trying to sneak a mask ban into the state budget. Call now and tell your friends to do the same!

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COVID Long-Haulers Against Fascism @guerillaadvocacy.bsky.social · 06/04/2025

Thank you so much for being there, @metrauxjulia.bsky.social! Everyone who couldn't make it, we are hosting another rally next Saturday. Looking forward to seeing you there.

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COVID Long-Haulers Against Fascism @guerillaadvocacy.bsky.social · 04/04/2025

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COVID-19 Long-Haulers Discussion Group @covidlonghaulers.bsky.social · 21/01/2025

Please help Brittany, a homeless COVID long-hauler in Florida and mom to a toddler. Thanks!

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Danielle Beckman @daniellebeckman.bsky.social · 18/01/2025

Your blood vessels on Covid-19. Image comparison showing a healthy human heart and the heart of someone who died of Covid. Source: Dr. William Li, The Angiogenesis Foundation.

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Darren Parkinson @greendarrenshipley.bsky.social · 19/12/2024

In the New Year @theguardian.com will be putting out a short documentary about my life living with #LongCovid. Please watch it to understand how debilitating this disease is and how urgently we need treatments. Thank you.

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Amanda Finley Digs All the Spooky Things @rubyslippahs.bsky.social · 12/12/2024

Tick tock, still some time left on the clock! You can help families in need affected by long COVID this year with Christmas. Their wish lists are in the link below, wants and needs for everyone in their homes. Thank you for giving and sharing! thevillagechristmas.wordpress.com/2024/11/19/t...

thevillagechristmas.wordpress.com

The Village Christmas Project – 2024

Welcome to this year’s adopt-a-family! Below are Amazon wish lists of families who have been affected by long COVID. They have been asked to include wants and needs. Here is a little bit abou…

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Danielle Beckman @daniellebeckman.bsky.social · 11/12/2024

Remember back in April when the first cats were dying after being fed milk contaminated with #H5N1? Guess what scientists found in their brains? No one could have foreseen this. @tryangregory.bsky.social I think I am learning how to predict the future as well. www.tandfonline.com/doi/full/10....

Manuscript published yesterday with the title: Marked Neurotropism and Potential Adaptation of H5N1 Clade 2.3.4.4.b Virus in Naturally Infected Domestic Cats

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