iiinova — where your digital self keeps evolving

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Michelle Starr MD MPH @mcstarr1.bsky.social · 18/04/2025

A group of @babykidney.bsky.social collaborators are working on a list of useful references in neonatal nephrology which have instrumental in improving care of infants. Help us and complete this survey asking for your opinion on the most important articles! redcap.link/NeoSurvey

redcap.link

Useful References in Neonatal Nephrology

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Josh Leisring @joshleisring.bsky.social · 18/04/2025

At the initial visit for evaluation of HTN BP should be measured in both arms to assess for an inter-arm discrepancy. It's in the guidelines, but implementation in busy clinics is is easier said than done. #nephsky #medsky #hypertension www.ahajournals.org/doi/10.1161/...

ahajournals.org

When Something Does Not Match Up: A Case of Interarm Blood Pressure Discrepancy | Hypertension

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Cathy Quinlan ☘️ 🇦🇺 🌱 @cathyquinlan.bsky.social · 18/04/2025

I can’t decide if this makes me mostly angry or mostly sad. Either way, I’m not travelling to the US anytime soon.

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IPNA Pediatric Nephrology @ped-neph.bsky.social · 07/04/2025

The need for kidney replacement therapy (KRT) is growing among critically ill neonates. Read these Clinical Insights into an extremely preterm infant (25 1/7 weeks) who underwent successful continuous KRT for AKI stage 3. link.springer.com/article/10.1...

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nglarkins.bsky.social @nglarkins.bsky.social · 30/03/2025

BPOzKids #Nephmadness picks. Novel HTN Rx for the win! Closely followed by Obesity in Recipients @cathyquinlan.bsky.social @jonathanmynard.bsky.social @kaulsheena.bsky.social @glenningj.bsky.social

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Tatiane Yanes @tatyanes.bsky.social · 29/03/2025

Genetic counselling considerations are such an important part of delivering genomics healthcare. I strongly believe we need to be empowering genetic counsellors to be more integrated in healthcare to scale up genomics. We wrote about this issue recently on @mja.com.au

onlinelibrary.wiley.com

Genetic counsellors: facilitating the integration of genomics into health care

Click on the article title to read more.

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Cathy Quinlan ☘️ 🇦🇺 🌱 @cathyquinlan.bsky.social · 27/03/2025

But the real bottleneck to scaling this up? ➡️ Our ability to counsel and consent patients properly. ➡️ Ensuring families understand the implications — for themselves & for their wider family - that's why I'm choosing #GeneticCounsellors for the WIN. 🧵 3/3 The science is ready. Are we ready? 👀

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Cathy Quinlan ☘️ 🇦🇺 🌱 @cathyquinlan.bsky.social · 27/03/2025

Genomics has already transformed nephrology. ✅ We know which patients benefit ✅ We’ve got extensive gene panels ✅ Testing is affordable or funded in many countries It’s precision medicine in action — and it's here now. 🧵 2/3

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Cathy Quinlan ☘️ 🇦🇺 🌱 @cathyquinlan.bsky.social · 27/03/2025

🌀 It's that time again #NephMadness! These are my picks as a paediatric nephrologist with a career focus on genetics, blood pressure & prevention 💥🧬💉 Some tight matchups this year — but here's why #geneticcounselling got my vote 🧵 1/3

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Arnold D. @kidneyrebel.bsky.social · 27/03/2025

Another #Nephmadness podcast done. Got my step count in while learning more about Minimal Change Disease. Let’s keep the progress in Minimal Change Disease discovery going.

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Arnold D. @kidneyrebel.bsky.social · 23/03/2025

A lot of Nephmadness podcast listening today. #Nephmadness Genetics: “How should we be counseling patients before and after genetic testing, and are we actually getting the training we need to do so?” Happy the genetics revolution in kidney care is here and rapidly evolving.

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Arnold D. @kidneyrebel.bsky.social · 23/03/2025

Future Nephrology leaders, apply today and learn from the best! @nephjc.bsky.social www.nephjc.com/intern-app

nephjc.com

NephJC Editorial Internship — NephJC

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Andrea Waner @andreawaner.bsky.social · 17/03/2025

They will not protect you. And the people will suffer. From @nytimes.com: “There is a shortage of American doctors working in Dr. Alawieh’s area of specialty, transplant nephrology. Foreign-born physicians play an important role in the field, according to experts.” www.nytimes.com/2025/03/16/u...

nytimes.com

Brown University Professor and Doctor Is Deported to Lebanon Despite a Judge’s Order

Dr. Rasha Alawieh, a kidney transplant specialist and Brown University professor who had a valid visa, was expelled in apparent defiance of a court order.

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Ronnie Cohen @ronnielcohen.bsky.social · 17/03/2025

There is a shortage of American doctors working in Dr. Alawieh’s area of specialty, transplant nephrology. Foreign-born physicians play an important role in the field, according to experts.

nytimes.com

Brown University Professor and Doctor Is Deported to Lebanon Despite a Judge’s Order

Dr. Rasha Alawieh, a kidney transplant specialist and Brown University professor who had a valid visa, was expelled in apparent defiance of a court order.

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Indivisible Montgomery County PA & Friends @indivisible-mcpanf.bsky.social · 17/03/2025

This doctor has been working in the US for the past 6 years under an H1-B Visa An assistant professor of medicine in the nephrology department at Brown Medicine. She works with transplant patients! **Deporting dangerous criminals???? Pfffft! www.newsweek.com/medical-doct...

newsweek.com

Medical doctor deported from US despite "valid" visa, court order—Lawyer

Dr. Rasha Alawieh, who was in the U.S. on a valid H1-B visa, has been deported back to Lebanon and unable to make contact with her lawyer.

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IPNA Pediatric Nephrology @ped-neph.bsky.social · 12/03/2025

Asymptomatic, mild urinary tract dilatation (UTD) that does not resolve can progress in severity. Read this Original Article on increased kidney length in mild UTD & its prognostic role in non-resolution. link.springer.com/article/10.1...

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Tom Forbes @kidneytom.bsky.social · 12/03/2025

This #WorldKidneyDay 's theme is "Are your kidneys OK? Detect early, protect kidney health.", In this editorial Dave Selewski and I ask the question, how can we best find and screen pediatric populations at risk of CKD? www.sciencedirect.com/science/arti...

sciencedirect.com

World Kidney Day: Case Finding for Kidney Disease in Children – From Neonates to Adolescents

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Michelle Rheault, MD @rheaultm.bsky.social · 12/03/2025

Your gift to the ASPN Foundation helps to support travel grants for trainees to help recruit and retain pediatric nephrologists! Your gift will be matched by ASPN Foundation Board Member Sharon Lagas up to a total of $2500 during National Kidney Month. aspneph.app.neoncrm.com/forms/alport...

Graphic of clock old fashioned alarm clock with text: Still waiting for your pediatric nephrology appointment? There is a shortage of pediatric nephrologists in the US. Your donation to the ASPN Foundation helps to support the recruitment and training of pediatric nephrologists.

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IPNA Pediatric Nephrology @ped-neph.bsky.social · 12/03/2025

Very-low-birth-weight (VLBW) infants have significant risk factors for adverse health outcomes. Read this Original Article comparing kidney function between VLBW preterm & term infants at 5–6 years of age. link.springer.com/article/10.1...

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Sampson Lab for Kidney Genomics @thesampsonlab.bsky.social · 12/03/2025

Are your kidneys OK? This year's #WorldKidneyDay theme highlights the importance of checking in on your kidney health. Our kidneys work hard to make sure our body stays healthy. Remember, early detection is key—take the time to show your kidneys some love today! #AreYourKidneysOK

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Cathy Quinlan ☘️ 🇦🇺 🌱 @cathyquinlan.bsky.social · 12/03/2025

Are your kidneys OK? 10% of adults have CKD, 3% of kids have high BP, and genetic kidney disease is shockingly common. Early diagnosis + BP management + healthy habits = better outcomes. Think about kidney disease—even in kids. www.worldkidneyday.org/2025-campaign/ #WorldKidneyDay

worldkidneyday.org

2025 campaign - World Kidney Day 2025

World Kidney Day – 13 March 2025 Are Your Kidneys OK?Detect early, protectkidney health Are Your Kidneys OK? Take this quiz! Are Your Kidneys OK? Detect early, protect kidney health Chronic kidney dis...

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Nephrology Journal Club @nephjc.bsky.social · 11/03/2025

It's March, 2 days before #WorldKidneyDay, so tonight there is the perfect opportunity to celebrate ( 9 pm Eastern, on 🦋)🌺🌻 #NephJC 🎨Until then, take a look at this beautiful and colorful #visualabstract made by Divya Bajpai www.nephjc.com/news/2025/3/...

nephjc.com

Obinutuzumab in lupus nephritis: The REGENCY Trial Visual Abstract — NephJC

Is Obinutuzumab Effective and Safe in Active Lupus Nephritis?  Check out the beautiful VA by NSMC Faculty Dr Divya Bajpai on the REGENCY Trial, answering the same.

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IPNA Pediatric Nephrology @ped-neph.bsky.social · 06/03/2025

Kidney genetic services are being created worldwide, revolutionizing the management of suspected monogenic kidney disease. Read this Educational Review of the global efforts to integrate genomics into nephrology. Open Access. link.springer.com/article/10.1...

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IPNA Pediatric Nephrology @ped-neph.bsky.social · 07/03/2025

Idiopathic nephrotic syndrome in children is the most common glomerular disease & is characterized by recurrent relapses. Read this Original Article on the PIN’SNP cohort & research program & the TwiCs design adapted to INS research in France. Open Access. link.springer.com/article/10.1...

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Joseph Flynn, MD @jostflynnmd.bsky.social · 09/03/2025

Reduced kidney function in very-low-birth-weight preterm infants at preschool age @ped-neph.bsky.social #nephsky #pedsky link.springer.com/article/10.1...

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Michelle Rheault, MD @rheaultm.bsky.social · 03/03/2025

COL4A5 Intronic Variants at Third to Fifth Nucleotides Cause Alport Syndrome pubmed.ncbi.nlm.nih.gov/39990911/

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Matthew Sparks @nephrosparks.bsky.social · 01/03/2025

Can't wait to hear all of these podcasts covering #NephMadness topics

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Matthew Sparks @nephrosparks.bsky.social · 01/03/2025

#NephMadness 2025 is here!!! ajkdblog.org/2025/03/01/w...

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Ryan Feldman PharmD DABAT @empoisonpharmd.bsky.social · 01/03/2025

🚨#ThePoisonLab @nephmadness.bsky.social🚨 @nephrotox.bsky.social + the Bean Doctors at VCU crack the mystery case and dive into nephrotoxic herbals! 🌿⚠️ 🏆 Who will advance in #NephMadness? 💥 Vote for Tubular Toxins vs. Oxalate Offenders Listen: Anywhere you get a pod or thepoisonlab.com #EMIMCC

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Swapnil Hiremath 🍁🇨🇦 @hswapnil.medsky.social · 01/03/2025

Very interesting regions indeed ajkdblog.org/2025/03/01/w... #NephMadness #BlueRibbonFail incoming

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Cathy Quinlan ☘️ 🇦🇺 🌱 @cathyquinlan.bsky.social · 27/02/2025

A key point from the paper: CKD in kids is often invisible until it’s too late. We need to move from late-stage diagnosis to active case-finding and prevention. Genomics, BP screening, early biomarkers—we have the tools. Now we need system-wide change to use them effectively. 🧵4/4 #rarediseaseday

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Cathy Quinlan ☘️ 🇦🇺 🌱 @cathyquinlan.bsky.social · 27/02/2025

Early detection matters - identifying at-risk children early =slower disease progression = improve LT outcomes My colleague @tomforbes.bsky.social just published a great editorial on this case, covering neonatal screening to adolescent risk. 🧵 3/4 🔗 www.sciencedirect.com/science/arti...

sciencedirect.com

World Kidney Day: Case Finding for Kidney Disease in Children – From Neonates to Adolescents

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Cathy Quinlan ☘️ 🇦🇺 🌱 @cathyquinlan.bsky.social · 27/02/2025

Last week at #IPNA2025 in Cape Town, I ran a renal genetics workshop with an incredible group of paediatric nephrologists. The enthusiasm was amazing—but so were the challenges. The global disparity in access to genetic testing is stark. Kids in some regions still can’t get a diagnosis. 🧵 2/4

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Cathy Quinlan ☘️ 🇦🇺 🌱 @cathyquinlan.bsky.social · 27/02/2025

💙 Rare Disease Day 2025 💙 Rare kidney diseases may be individually uncommon, but together they affect thousands of children. 🧬Genomics is changing the game—early diagnosis means better care, targeted treatments, and hope. 🧵 1/4 #RareDiseaseDay #Genetics #KidneyHealth #RareButNotAlone

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Cathy Quinlan ☘️ 🇦🇺 🌱 @cathyquinlan.bsky.social · 21/02/2025

❤️Sphyg too high on the wall ⭐️Unable to support their back when sitting if <9-ish yo ❌Freq crossed legs 💬Paeds just keep chatting 💪No arm support

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Cathy Quinlan ☘️ 🇦🇺 🌱 @cathyquinlan.bsky.social · 21/02/2025

This is one of my biggest bugbears with how our clinic rooms are set up - it is actually impossible to do an accurate blood pressure on most of our patients.

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Tom Forbes @kidneytom.bsky.social · 20/02/2025

Matko Marlais presenting on RPGN in paediatrics in the glomerular disease update. #IPNA2025

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Tom Forbes @kidneytom.bsky.social · 20/02/2025

Tammy Brady just gave the most outstanding interactive workshop on blood pressure measurement at #IPNA2025. Things you mightn’t know can increase the blood pressure, crossed legs, watching the phone, TALKING!!

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Tom Forbes @kidneytom.bsky.social · 21/02/2025

Gaya Raman presenting at the Bladder and Continence Grand Round. Rushing for the 7am start of this session I could certainly benefit from optimising my bladder capacity right now! #IPNA2025

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Michelle Rheault, MD @rheaultm.bsky.social · 21/02/2025

Dr Julien Hogan presents results of RCT in children with FR nephrotic syndrome treated with Rituximab +/- IVIG. Result: Addition of IVIG showed no benefit on relapse free survival. #IPNA2025

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Michelle Rheault, MD @rheaultm.bsky.social · 19/02/2025

Dr Moin Saleem: What are the main hurdles to success for gene therapy of monogenic nephrotic syndromes? #IPNA2025

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Michelle Rheault, MD @rheaultm.bsky.social · 19/02/2025

Next up @kidneytom.bsky.social on Hyperoxaluria. #IPNA2025 Type 1 PH is most common.

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Dr Louise Oni @louiseoni.bsky.social · 17/02/2025

Lovely paper. Well done team Oz !

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Dr Louise Oni @louiseoni.bsky.social · 19/02/2025

A great evening meeting the phenomenal @kidneyomicsamps.bsky.social & our great Oz colleagues including @cathyquinlan.bsky.social #IPNA2025

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Cathy Quinlan ☘️ 🇦🇺 🌱 @cathyquinlan.bsky.social · 19/02/2025

Fantastic to be joined by such #Nephmadness paediatric aristocracy as Matt Sampson, Clodagh Sweeney and of course Michelle Rheault!

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Cathy Quinlan ☘️ 🇦🇺 🌱 @cathyquinlan.bsky.social · 17/02/2025

5️⃣ Could this apply beyond nephrology? Absolutely! This is a blueprint for using digital health and AI in proactive medicine. So proud of Gráinne & our team! 💡 including Sana, Josiah, Ahuva, Joshua, Ella, Yoni, & Jim.

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Cathy Quinlan ☘️ 🇦🇺 🌱 @cathyquinlan.bsky.social · 17/02/2025

3️⃣ Early diagnosis = better outcomes – These kids are now on nephroprotective treatments years earlier, potentially delaying kidney failure. 🚀 4️⃣ But EMR integration is still a challenge – This study highlights both the promise and barriers of using digital tools for early disease detection.

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