Reposted by @carolecoulter.bsky.socialBilly Hanlon @bhanlon15.bsky.social · 26/05/2026Excited to dig into the Minnesota Dept. of Health’s Statewide Roadmap to Address Long COVID and Post‑Viral Chronic Conditions, published today It’s a 136‑page effort — deep gratitude to all contributors! Read the full document here: www.health.state.mn.us/diseases/lon... 44015
Reposted by @carolecoulter.bsky.socialCIDRAP @cidrap.bsky.social · 13/04/2026Long COVID costs Organisation for Economic Co-operation and Development (OECD) countries up to $135 billion each year. A report last week by the OECD projects that long COVID’s significant social & financial costs will continue well into the next decade. ow.ly/e35t50YIuaX 03719
Reposted by @carolecoulter.bsky.socialME/CFS Science @mecfsscience.org · 21/02/2026More good news. The Sequence ME & Long Covid study is launching👇 Excellent work by Action for ME for going all in on this important genetic study. Grateful for the financial support of the Schmidt Initiative for Long COVID and CODA 04516
Reposted by @carolecoulter.bsky.socialElana Levin @levin.bsky.social · 19/02/2026If you don’t think you know anyone with long covid what you really mean is that people are uncomfortable sharing their health status with you or there are people who have dropped out of your life (due to illness) that you haven’t checked up on. 5402141
carolecoulter.bsky.social @carolecoulter.bsky.social · 18/02/2026Ugh, see you next week. Not watching with this cohost. #TheView 010
Reposted by @carolecoulter.bsky.socialMelissa Gira Grant @melissagiragrant.com · 16/12/2025the way my mood lifted on hold at the third pharmacy today trying to fill a paxlovid Rx when this was the hold music 111197185
Reposted by @carolecoulter.bsky.socialBreatheTeq KN95s @breatheteq.bsky.social · 06/11/2025We know lots of you have been asking 3M for a Black Aura - like mask for consumer use. Today we're excited to launch a new product to fill that hole in the market! Introducing the headband version of BreatheTeq KN95. Available in black and white. 15364116
Reposted by @carolecoulter.bsky.socialJulie Rehmeyer @julierehmeyer.bsky.social · 30/10/2025How do we love what we can't save — a planet, or a body? I wrote about the connections between severe ME and the climate crisis, and the discipline of continuing. jrehmeyer.substack.com/p/two-system... #MyalgicE #mecfs #ClimateAction #climatecrisisjrehmeyer.substack.comTwo Systems in CollapseWhat illness can teach us about responding to climate change 34720
carolecoulter.bsky.social @carolecoulter.bsky.social · 31/10/2025@zingermans.bsky.social I totally think you could do this in A2 and the surrounding Detroit metro area. 110
Reposted by @carolecoulter.bsky.socialrahaeli @rahaeli.bsky.social · 21/09/2025The updated COVID/histamine link thread because people keep tagging me in to explain it and I keep intending to update the post from 2023 (synecdochic.dreamwidth.org/805203.html) and just not having the capacity because of my own health shit so here is a thread I can pinsynecdochic.dreamwidth.orgCaptcha Check 381211381
Reposted by @carolecoulter.bsky.socialKelly @broadwaybabyto.bsky.social · 28/09/2025Disabled people are particularly vulnerable to abuse under fascism. ICE has been neglecting the medical needs of detainees. One disabled immigrant, Rodney Taylor, needs our help. He's a double amputee who's been in the country since he was two years old. He's being held in solitary:disabledginger.comHelp Rodney Taylor, a Disabled Double Amputee Being Held by ICERodney has been in the country more than 40 years. He's in solitary confinement in Georgia, being denied disability accommodations and having his medical needs ignored. He must be released. 10797559
Reposted by @carolecoulter.bsky.socialRyan Estrada @ryanestrada.com · 06/09/2025Just a reminder to check for your name in this list of books that OpenAI trained from. If your name is there, they probably owe you several thousand dollars. OpenAI cried that if everyone eligible author files, the company will go bankrupt, so I'm alerting every author I have ever spoken to.theatlantic.comSearch LibGen, the Pirated-Books Database That Meta Used to Train AIMillions of books and scientific papers are captured in the collection’s current iteration. 223118719759
Reposted by @carolecoulter.bsky.socialDavid Kronig @davekronig.bsky.social · 24/07/2025There’s a special kind of grief that chronically ill and disabled folks know of watching huge parts of life pass by while your body, try as it might, simply hurts too much or is too exhausted or dysregulated to do a single thing except try to stay alive from one moment to the next. 531967
Reposted by @carolecoulter.bsky.socialMiles W. Griffis @mileswgriffis.bsky.social · 01/07/2025NEW: Some #LongCOVID and #ME specialists have raised their rates to as high as $8.5k a month, making care even less accessible. Providers say insurance companies are to blame. Contributor @brittashoot.com reports for @thesicktimes.bsky.social. thesicktimes.org/2025/07/01/p...thesicktimes.orgPriced out: Some Long COVID and ME specialists charge high prices for concierge care - The Sick TimesOne specialist is charging up to $8,500 a month. But the providers say insurance companies are to blame. Key points you should know: Prominent specialists treating complex infection-associated chronic... 15214
Reposted by @carolecoulter.bsky.socialrahaeli @rahaeli.bsky.social · 28/06/2025I really need to figure out the right way to get this poem tattooed on me because it has gotten me out of the hole that is not my grave entirely too many times and I think everyone needs to read it this week billmoyers.com/story/poetry...billmoyers.comPoetry Month: WHAT RESEMBLES THE GRAVE BUT ISN’T - BillMoyersAlways falling into a hole, then saying “ok, this is not your grave, get out of this hole,” getting out of the hole which is not the grave... 2531992
carolecoulter.bsky.social @carolecoulter.bsky.social · 12/06/2025@costplusdrugs.com Is your website experiencing difficulties right now? Can't log in. 120
Reposted by @carolecoulter.bsky.socialKaty B @katybrc.bsky.social · 08/06/2025📽️“Chronically Ignored” I really can't recommend this film highly enough to #pwME #ME #LongCovid, Researcher, Dr, HCP & Policy Maker, it's essential viewing Immense gratitude to @sibylledahrendorf.bsky.social for all her incredible hard work & everyone who took part 💙 vimeo.com/ondemand/chr...vimeo.comWatch Chronically Ignored Online | Vimeo On DemandThe medical term myalgic encephalomyelitis/chronic fatigue syndrome – in short ME/CFS – refers to a multi-systemic disease with devastating effects:… 2178
Reposted by @carolecoulter.bsky.socialAlice Wong @sfdirewolf.bsky.social · 28/05/2025Mask up NOW “A new COVID variant, known as NB.1.8.1, has made landfall in the United States, and it's more transmissible than other variants.” www.huffpost.com/entry/the-mo...huffpost.comA New COVID Variant Is Here, And It's More Transmissible — Here Are The Signs And SymptomsA new COVID variant, known as NB.1.8.1, has made landfall in the United States, and it's more transmissible than other variants. 301437949
Reposted by @carolecoulter.bsky.socialDavid Kaufman @kaufmanmd.bsky.social · 31/05/2025Another episode of Unraveled: Understanding Complex Illness just published. If you have or know someone with ME/CFS, Long Covid, POTS, MCAS, SIBO, and more you might want to take a look and even share and subscribe. Thanks. youtu.be/_Squ0_-1kz8youtu.beApproach to the Complex Illness PatientYouTube video by Unraveled: Understanding Complex Illness 02315
Reposted by @carolecoulter.bsky.socialCarl T. Bergstrom @carlbergstrom.com · 18/05/2025Under 65 years old? No Novovax COVID vaccine for you this year. As expected, the Republicans have enabled RFK Jr. and his coterie of antivax grifters to take away your right to make your own medical decisions in consultation with your doctor. Gift Link: www.nytimes.com/2025/05/17/h... 15137411646
carolecoulter.bsky.social @carolecoulter.bsky.social · 14/05/2025omg, @broadwaybabyto.bsky.social nails it. This cannot be shared enough. 120
carolecoulter.bsky.social @carolecoulter.bsky.social · 09/05/2025This GoFundMe is for my niece. She is an incredibly strong, independent woman, yet life can throw obstacles that require the support of many. Please take a moment to read about her condition and her needs. Donations much appreciated, yet so are thoughts of encouragement. Thanks! gofund.me/c9c902b6gofund.meDonate to Join Us in Supporting Amy's Cancer Battle, organized by Lenore AndujarIn January 2025, Amy Bradshaw, beautiful mother, daughter, granddaughter, sis… Lenore Andujar needs your support for Join Us in Supporting Amy's Cancer Battle 010
carolecoulter.bsky.social @carolecoulter.bsky.social · 24/04/2025www.pharmacytimes.com/view/full-co...pharmacytimes.comFull COVID-19 mRNA Vaccination Course Induces Long-Term Antibody, Memory B-Cell ResponseNew research highlights the long-lasting effectiveness of mRNA COVID-19 vaccines, showing sustained B-cell and antibody responses in health care workers over 3 years. 010
Reposted by @carolecoulter.bsky.socialDr David Joffe MB BS(Hons), PhD, FRACP @davidjoffe64.bsky.social · 31/03/2025🧠 Daily Feed of Brain Damage 🧠 With thanks to @harryspoelstra.bsky.social onlinelibrary.wiley.com/doi/10.1111/...onlinelibrary.wiley.comCognitive Sequelae of COVID‐19: Mechanistic Insights and Therapeutic ApproachesPost-COVID-19 neurological syndrome, marked by cognitive dysfunction, stems from mechanisms like neuroinflammation, cerebrovascular injury, and psychological stress. This review highlights pharmacolo... 05928
carolecoulter.bsky.social @carolecoulter.bsky.social · 19/03/2025www.caregiverwisdom.net/post/who-car...caregiverwisdom.netWho Cares for the Caregivers?I’ve been thinking a lot about the tragic news reports of the deaths of Oscar-winning actor Gene Hackman, 95, and his wife and caregiver, Betsy Arakawa, 65, whose bodies were found in their New Mexico... 000
Reposted by @carolecoulter.bsky.socialThe Massachusetts ME/CFS and FM Association @massmecfs.bsky.social · 15/03/2025Today is International Long COVID Awareness Day. Please take a moment to watch this video from the Long COVID Physio group. www.youtube.com/watch?v=dmxp... Long COVID and ME/CFS share many of the same symptoms. To all the patients and caregivers, we see you. #mecfs #longcovid #longcovidawareness 1104
carolecoulter.bsky.social @carolecoulter.bsky.social · 06/03/2025@biggretchenwhitmer.bsky.social You in? 000
Reposted by @carolecoulter.bsky.socialAngela MV (she.he.they) @angelamswinca.bsky.social · 06/03/2025It’s really hard for me as a disabled person to engage seriously with any of the calls to action around what’s happening bc of the very real trauma of being abandoned by the same people to fend for myself against the conditions that disabled me in the first place. 1027453
Reposted by @carolecoulter.bsky.socialOnisillos @onisillos.bsky.social · 01/03/2025If pubmed is inaccessible at the moment, try @europepmc.org 512774
carolecoulter.bsky.social @carolecoulter.bsky.social · 25/02/2025@peters.senate.gov I do not think your constituents agree with this vote. You are not running for reelection but right now you represent us. 000
carolecoulter.bsky.social @carolecoulter.bsky.social · 22/02/2025Choose 20 books that have stayed with you or influenced you. One book per day for 20 days, in no particular order. Book 8/20. #Books #BookSky #BookChallenge 010
Reposted by @carolecoulter.bsky.socialIftah Aynayk @iftahayounak.bsky.social · 20/02/2025This executive order gets rid of the HHS's advisory committee on Long COVID. @davidjoffe64.bsky.social @zalaly.bsky.social @virusesimmunity.bsky.social @yaneerbaryam.bsky.social 2134
Reposted by @carolecoulter.bsky.socialRachel Graves @rachelgraves.bsky.social · 19/02/2025I'm #ChronicallyIll with a slew of diseases no one really understands. I depend on Medicare and Social Security Disability to get the medical care I need. I need medical research to try to find better treatments for my diseases. #SaveOurServices 27117
Reposted by @carolecoulter.bsky.socialNina Turner @ninaturner.bsky.social · 19/02/2025Wisconsin Governor Tony Evers wants his state to become the first state to audit insurance companies over denying coverage. More of this, Democrats. 151238227
carolecoulter.bsky.social @carolecoulter.bsky.social · 17/02/2025So many with Long Covid, ME/CFS, CCI, Tethered Cord, PCS, etc are having surgeries. (Yes, plural). This is good guidance to have. 020
carolecoulter.bsky.social @carolecoulter.bsky.social · 16/02/2025Choose 20 books that have stayed with you or influenced you. One book per day for 20 days, in no particular order. Book 7/20. #Books #BookSky #BookChallenge 020
Reposted by @carolecoulter.bsky.socialAlt National Park Service @altnps.bsky.social · 14/02/2025Heartbreaking news… Tonight, many of our friends were let go, and tomorrow, even more will follow. Word is that all probationary employees at NPS will be let go. 😭 1867306996972
Reposted by @carolecoulter.bsky.socialProf Christina Pagel @chrischirp.bsky.social · 13/02/2025🧵"So this is how liberty dies..." Trump’s first 3 weeks have been a relentless flood of actions. It's incredibly hard to keep up. I’ve gone through 69 actions & mapped out the pattern - showing how they fall within 5 broad domains consistent with authoritarian states 1/9 47999495725
Reposted by @carolecoulter.bsky.socialNate Bear @natebear1.bsky.social · 12/02/2025Loads of high profile experts spent a long time reassuring people that the virus that causes covid can't persistently infect your body and paper after paper keeps proving them wrong and now they've gone all quiet. New paper identifies viral 'reservoirs' www.sciencedirect.com/science/arti...sciencedirect.comTargeting the SARS-CoV-2 reservoir in long COVIDThere are no approved treatments for post-COVID-19 condition (also known as long COVID), a debilitating disease state following SARS-CoV-2 infection t… 212051
Reposted by @carolecoulter.bsky.socialKelly Barnhill @kellybarnhill.bsky.social · 11/02/2025There has been a shift in the Trump team's language in their anti-DEI attacks. All of a sudden they started calling it "DEIA", with the A being "accessibility". If you don't think it's a coordinated effort to remove disabled people from every facet of life, well I have news for you. 402055890
carolecoulter.bsky.social @carolecoulter.bsky.social · 09/02/2025Do you have a housebound/bedbound person in your life? They will be disenfranchised if this passes. 010
carolecoulter.bsky.social @carolecoulter.bsky.social · 09/02/2025Reposting because since Covid, my family has had strong hope that research would bring insight and a cure for Long Covid. Also because we live in a major university town. This is awful. 030
carolecoulter.bsky.social @carolecoulter.bsky.social · 09/02/2025Important. And seems to be underreported. 000
carolecoulter.bsky.social @carolecoulter.bsky.social · 07/02/2025Not sure how I feel about this, but reposting for future reference. 000
Reposted by @carolecoulter.bsky.socialLynn Stahl @msbtterswrth.altgov.info · 06/02/2025Remember Project 2025? Folks are tracking every promise they made and it's current implementation status. They are _well_ on their way to accomplishing their goal within 100 days. docs.google.com/spreadsheets...docs.google.comProject 2025 tracker 42875569
Reposted by @carolecoulter.bsky.socialSocial Security Works @socialsecurityworks.org · 06/02/2025The House Republicans listed below are vulnerable in 2026. They will only vote to cut our benefits if they think no one is watching. If you live in these districts, or know anyone who does, CALL NOW and tell them to keep their hands off Social Security, Medicare, and Medicaid! 21446342750
carolecoulter.bsky.social @carolecoulter.bsky.social · 06/02/2025l@hcrichardson.bsky.social Your thoughts? 000