iiinova — where your digital self keeps evolving

Donald Thomas, MD @lupusencyclopedia.bsky.social · 20/09/2026

@ACRheum @ACR26 Convergence Orlando Social Ambassador REGISTER: rheumatology.org/annual-meeti... I look forward to moderating many of the business of rheumatology sessions (NOV 8-9) and attend the Practice Innovation Summit (NOV 6-7) hope my fellow private practitioners will attend! #ACRambassador

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Donald Thomas, MD @lupusencyclopedia.bsky.social · 21/08/2026

deQuervains tenosynovitis due to an #SLE #lupus flare, clearly showing inflammatory tenosynovitis in the 1st image (the red areas). Image 2: inserting the needle into the tendon sheath, Image 3: the steroid entering the space around the tendon and within the sheath

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Donald Thomas, MD @lupusencyclopedia.bsky.social · 16/08/2026

😍 Living well with #SLE #lupus takes more than drugs. Join us WED, AUG 26 at 7PM ET (4PM PT) for a free virtual Lupus & You event by the Lupus Foundation @LupusOrg filled with practical, everyday tips from me for living as healthy a life as possible with lupus. Register at lupus.org/lupus-and-you

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Donald Thomas, MD @lupusencyclopedia.bsky.social · 01/08/2026

Ultraviolet (UV) light protection all year is important in disorders like #SLE #lupus #Sjogrens. Keep the car windows up. Older car side windows block 70% of UV light while newer cars block around 89%. Even better, get UV tinting: CLICK www.lupusencyclopedia.com/lupus-and-ph...

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Donald Thomas, MD @lupusencyclopedia.bsky.social · 14/07/2026

Interesting article showing that belimumab dosing can be lengthened in select #SLE #lupus patients. I would consider this in patients who are in sustained remission and off steroids. Serologically normal patients would be the best candidates: lupus.bmj.com/content/lupu...

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Donald Thomas, MD @lupusencyclopedia.bsky.social · 06/07/2026

Dr. Ludovic Trefond and Dr. Christophe Richez in France are looking into how to define "Hard-To-Manage Lupus." They are seeking the opinions of patients as well as healthcare providers. Consider participating (it takes only a few minutes). Link: definelupusd2m.limesurvey.net/694249?lang=...

definelupusd2m.limesurvey.net

Create surveys in seconds with LimeSurvey. Easy to use, secure, and trusted by professionals worldwide. Get started free and unlock fresh insights today!

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Donald Thomas, MD @lupusencyclopedia.bsky.social · 05/07/2026

All of us (health care providers, patients, friends, family members, others) are only human and find it difficult knowing the right things to say and do. This goes well beyond just #lupus, #SLE, Sjogrens, etc. Here is a fantastic blog: www.morethanlupus.com/post/how-to-... From @LupusMore

morethanlupus.com

How to Support a Friend Having a Bad Lupus Day (Without Making It About You)

When a friend, partner, or family member is living with lupus, witnessing their flare-ups can leave you feeling incredibly helpless. You want to say the perfect thing to take away their pain, but in o...

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Donald Thomas, MD @lupusencyclopedia.bsky.social · 04/07/2026

Patients and their loved ones: register for the upcoming Sjogren's Symposium by @CrunchyAllergy; Virtual Conference JUL 16-18. Register at the link bottom right of image.

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Reposted by Donald Thomas, MD

Donald Thomas, MD @lupusencyclopedia.bsky.social · 03/07/2026

❤️‍🔥#Sjogrens and #lupus #SLE often coexist. Also, Many SLE patients have Sjögren's but are undiagnosed. Undertreatment can lead to complications like early-onset tooth loss. Learn more here: www.youtube.com/watch?v=zfEZ... by @Kaleidoscope_FL and me

youtube.com

Lupus and Sjögrens Disease

YouTube video by Kaleidoscope Fighting Lupus

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Donald Thomas, MD @lupusencyclopedia.bsky.social · 03/07/2026

youtube.com

Lupus and Sjögrens Disease

YouTube video by Kaleidoscope Fighting Lupus

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Donald Thomas, MD @lupusencyclopedia.bsky.social · 20/05/2026

🔥Dosing hydroxychloroquine by body weight blindly leads to undertreatment in some patients while leading to toxic levels in others with SARDs like #SLE #lupus #Sjogrens. HCQ drug levels should be used to give better care to patients: CLICK HERE 👉 rheumnow.com/news/hydroxy... @rheumnow.bsky.social

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Donald Thomas, MD @lupusencyclopedia.bsky.social · 06/05/2026

🥳For Lupus Awareness Month, excited to share my new #lupus #SLE book: Lupus: The Essential Guide, @hopkinspress.bsky.social is now available for preorder. My goal was to create a shorter, practical, patient-friendly guide for people with lupus and their families. www.press.jhu.edu/books/title/...

Reposted by Donald Thomas, MD

Donald Thomas, MD @lupusencyclopedia.bsky.social · 27/04/2026

😍GREAT NEWS! @FDA approves self-injectable #Saphnelo Pen for #SLE #lupus! Once-weekly dosing: 120 mg per dose. www.astrazeneca.com/media-centre... NOTE: This is NOT sponsored AstraZeneca

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Donald Thomas, MD @lupusencyclopedia.bsky.social · 27/04/2026

😍GREAT NEWS! @FDA approves self-injectable #Saphnelo Pen for #SLE #lupus! Once-weekly dosing: 120 mg per dose. www.astrazeneca.com/media-centre... NOTE: This is NOT sponsored AstraZeneca

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Donald Thomas, MD @lupusencyclopedia.bsky.social · 15/04/2026

😎It is that time of year in the Northern Hemisphere! #SLE #lupus and many #Sjogrens patients should be wearing sunscreen all year round, but especially Spring and Summer! In this article, I simplify things. www.lupusencyclopedia.com/sun-protecti...

lupusencyclopedia.com

Sun Protection for Lupus Made Simple

Live Longer and Better with Lupus! Whether you are a lupus patient seeking practical, easy to understand tips, or a healthcare provider wanting to treat your patients better, The Lupus Encyclopedia pr...

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Donald Thomas, MD @lupusencyclopedia.bsky.social · 15/04/2026

🔥The modern, most accurate method of dosing hydroxychloroquine (HCQ) is by using drug levels and not by body weight. acrjournals.onlinelibrary.wiley.com/doi/10.1002/... www.lupusencyclopedia.com/top-tips-on-... Best way to dose HCQ is to measure whole blood levels, goal: 750 – 1150 ng/mL.

acrjournals.onlinelibrary.wiley.com

Toward Optimal Dosing in Systemic Lupus Erythematosus: The Case for Hydroxychloroquine Blood Level Monitoring

Click on the article title to read more.

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Donald Thomas, MD @lupusencyclopedia.bsky.social · 13/04/2026

🫄Article by Dr. Siegel & Dr. Sammaritano supports #Benlysta & #Saphnelo in pregnancy. www.lupusencyclopedia.com/successful-l... I use biologics, such as Benlysta and Saphnelo, during pregnancy. I try to stop the biologic late in the 2nd trimester in order not to affect the newborn's immune system.

lupusencyclopedia.com

How to have a successful pregnancy when you have lupus

Most patients with lupus can now have a successful pregnancy if they plan for it properly. My new blog post gives an easy-to-follow step-by-step list of recommendations. SHARE with everyone who may be...

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Donald Thomas, MD @lupusencyclopedia.bsky.social · 30/03/2026

There is a strong link between poor sleep and lupus. If you have an autoimmune disease like #SLE, #lupus, or #Sjogrens, getting enough good-quality sleep is really important. Learn more here: www.youtube.com/watch?v=4uP0... Thanks to KALEIDOSCOPE FIGHTING LUPUS

youtube.com

Lupus: Sleep, Rest and Counting Spoons

YouTube video by Kaleidoscope Fighting Lupus

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Donald Thomas, MD @lupusencyclopedia.bsky.social · 28/03/2026

🔥Our goal in treating #SLE #lupus is complete remission from active lupus inflammation and completely OFF steroids! However, that is not possible in many patients. In that case, we low disease activity is second best. www.youtube.com/watch?v=ZFeJ...

youtube.com

Lupus and Low-Disease State

YouTube video by Kaleidoscope Fighting Lupus

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Donald Thomas, MD @lupusencyclopedia.bsky.social · 24/03/2026

😡 Almost all the labs we rely on to diagnose and follow disease activity in #SLE, #lupus, #Sjogrens are over 55 years old! www.youtube.com/watch?v=JWit... This leads to delayed diagnoses, mistakes in diagnosis, and mistakes in properly identifying disease activity and response to medications.

youtube.com

Lupus and the Need for New Lab Tests

YouTube video by Kaleidoscope Fighting Lupus

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Donald Thomas, MD @lupusencyclopedia.bsky.social · 07/03/2026

Link to our PDF article on how to dose hydroxychloroquine. Link to the pdf article: 1drv.ms/b/c/37bf2c37... Online Link: acrjournals.onlinelibrary.wiley.com/doi/epdf/10.... Article published in Arthritis, Care, and Research has not gone through copy editing. This is a "Full Access" article.

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Donald Thomas, MD @lupusencyclopedia.bsky.social · 07/03/2026

If you have #Sjogrens, come join us at the 2026 yearly Sjogrens Foundation National Patient Conference. Register at Sjogrens.org/get-involved/national-patient-conference

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Donald Thomas, MD @lupusencyclopedia.bsky.social · 07/03/2026

Do you have #Sjogrens? Come join us at our yearly virtual National Patient Conference, where you will learn a ton about Sjogren's, what it is, how it is treated, and go away with a ton of practical advice you can put to use immediately in your own life: sjogrens.org/get-involved...

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Donald Thomas, MD @lupusencyclopedia.bsky.social · 07/03/2026

😍 Know someone newly diagnosed with #SLE #lupus? Or someone who is unsure how to take the best care of their lupus? Share the link to my article on this topic, which gives practical advice on what to do and I explain in simple terms "What is Lupus" www.lupusencyclopedia.com/how-to-succe...

lupusencyclopedia.com

What to Do after Lupus Diagnosis [March 2026 Update]

Learn what to do after a lupus diagnosis. Get expert advice on treatment, lifestyle modifications, and support for managing lupus effectively.

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Donald Thomas, MD @lupusencyclopedia.bsky.social · 08/02/2026

⚡️Most #SLE patients will have cutaneous #lupus where it attacks their skin. CLICK: www.lupusencyclopedia.com/types-of-ras... I recommend that most lupus patients with cutaneous lupus also see a "medical dermatologist" regularly and especially see them for any unusual, new rash.

lupusencyclopedia.com

Types of Rash in Lupus: A Comprehensive Guide [February 2026 Update]

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Reposted by Donald Thomas, MD

Donald Thomas, MD @lupusencyclopedia.bsky.social · 19/01/2026

😍New AAO recommendations for HCQ screening 👉CLICK: www.aaojournal.org/article/S016... Previously: Optical coherence tomography (OCT) and visual field (VF10-2) 10-2 as the screening tests of choice. NEW RECOMMENDATION: OCT plus a wide-pattern fundus autofluorescence (FAF)

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Donald Thomas, MD @lupusencyclopedia.bsky.social · 19/01/2026

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Donald Thomas, MD @lupusencyclopedia.bsky.social · 18/01/2026

👉 I've known for years that chromatin antibodies fluctuate predictably with #SLE #lupus disease activity in some of my patients. Now a study confirms this: lupus.bmj.com/content/13/1...

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Donald Thomas, MD @lupusencyclopedia.bsky.social · 18/01/2026

💊Study shows adding quinacrine (mepacrine and Atabrine) to hydroxychloroquine, immunosuppressants, steroids improves disease activity and was safe in #SLE #lupus. Link to "How to Prescribe Quinacrine: www.lupusencyclopedia.com/quinacrine/ Link to the study: lupus.bmj.com/content/12/2...

lupusencyclopedia.com

Quinacrine [January 2026 Update]

This article on quinacrine is one of the most practical & complete sources for doctors & patients on how it is RXd and potential side effects

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Donald Thomas, MD @lupusencyclopedia.bsky.social · 18/01/2026

❤️‍🔥 #SLE #lupus: lupus.bmj.com/content/12/2... Moderate disease activity fullfills at least 1 of the following Clinical SLEDAI: score between 4 and 8, excluding C3, C4, dsDNA. Physician Global Assessment: > 1 and up to 2 on a 0–3 scale. + NO Severe SLEDAI and non-SLEDAI manifestations.

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Donald Thomas, MD @lupusencyclopedia.bsky.social · 10/01/2026

👁️ It is Winter time when dry eyes in #Sjogrens #SLE #lupus can worsen. There are many easy tricks to help your dry eyes. If those fail, ask your doctor about the products in the image. See my post here: www.lupusencyclopedia.com/dry-eyes-and...

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Donald Thomas, MD @lupusencyclopedia.bsky.social · 21/12/2025

🩸Be proactive when you have #lupus #SLE #Sjogrens. After lab draws, go online to look at results. Look up each abnormal lab to learn more about how they may relate to your situation. ALWAYS ask your doctor as well. "How do these pertain to my situation?": www.lupusencyclopedia.com/lupus-lab-te...

lupusencyclopedia.com

Lupus Lab Tests Explained: What Blood Tests Mean for Diagnosing and Monitoring Lupus

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