iiinova — where your digital self keeps evolving

CaNDLES+ @candles-plus.bsky.social · 12/01/2025

www.facebook.com/share/r/15AD... A wee video that’s too cute not to share. If you’re struggling, take a few moments with the sound on 💜🫶💜might make you feel better?

facebook.com

Redirecting...

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Stardust 🌏🎬 @stardustbluepr.com · 07/12/2024

Amazon, Facebook, and Google all have reams of data about you—including your likes and dislikes, health information and social connections—but they’re not the only ones. Countless murky data brokers that you’ve never heard of collect huge quantities of information about you and sell it on. #TechSky

wired.com

6 Ways to Delete Yourself From the Internet

You’ll never be able to get a clean slate—but you can significantly downsize your digital footprint.

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CaNDLES+ @candles-plus.bsky.social · 07/12/2024

Couldn’t help but chuckle at that. Oh but it hurts. The stupid. It hurts.

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Ilias Ism @il.ly · 26/11/2024

new to bluesky? just wrote the guide i wish i had: - why 20M people are here - what actually works - how to find your people - the secret sauce (custom feeds!) - starter packs that don't suck 👉 il.ly/tech/bluesky ps: yes, you can build bots. yes, the API works. no, there's no ads. wild, right?

il.ly

Bluesky: The Next Big Social Media Platform

Bluesky is a new social media platform that has been gaining popularity in the US. It's similar to Twitter but with some unique features.

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Bluesky Starter Pack @blueskystarterpack.com · 27/11/2024

⭐ New featured pack by @flatoy.dev go.bsky.app/75HfkVp

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Aaron Jack Arts 🌶️ @aaronjackarts.bsky.social · 03/12/2024

How do you prevent creative burnout?

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Canada Healthwatch 🍁 @canadahealthwatch.ca · 04/12/2024

Need a Family Doctor? Jane Philpott Can Help. macleans.ca/society/heal... @macleans.bsky.social Get weekly updates: CanadaHealthwatch.ca/newsletter 🍁

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Unknown Etiology @viralpersistence.bsky.social · 04/12/2024

if I had a ton of money for #LongCovid research I’d spend at least some of it on post covid visual snow syndrome. 15% of ppl with vss believe they got it from covid (and around half from a tbi). it’s super under researched.

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Ed Zitron @edzitron.com · 03/12/2024

Also, holy shit, Bluesky sends real traffic. Will update this tomorrow with firm numbers but journalism is going to move here for sure. Twitter is a drop in the bucket. It's over, but we are so back, and so on and so forth

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Meitheal 🫏🦘🦨🐈☉∇ @somni.luxe · 03/12/2024

My autistic masks were a prison created by my abusers over my entire life. They were the 'me' I would think of, they were a filter every impulse went through. They told me what I could and couldnt think about. But they were not me.

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WIRED @wired.com · 04/12/2024

NEW: Bluesky has seen massive growth in the weeks following the US election. There are 24 million users on the social media platform. With great engagement comes great responsibility, which means Bluesky CEO @jay.bsky.team has a lot to do. She sat down with WIRED to talk about it.

wired.com

Bluesky Now Has 24 Million Users. Jay Graber Is Still Vowing to Keep It From Enshittification

At WIRED's The Big Interview event, Bluesky CEO Jay Graber discussed the booming user numbers for the Twitter rival and why giving social media users more control is a recipe for success.

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Brain Pain Sheeks 🇭🇹 🇺🇸 @chronicallysheeks.bsky.social · 04/12/2024

Attn : Spoonies with Brain and Spinal Injury A new grant offered by the Brain and Spinal Injury Trust Fund Commission Call: 888-233-5760. More info: bit.ly/3Qs1ZgN Maximum payout $10,000 (Hope this helps!) #chronicalyfabulous #spinalinjury #spooniesky #blacksky #disabled #braininjury #tbi

bit.ly

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Mickey Rottinghaus @golfsobad.bsky.social · 04/12/2024

The biggest barrier of those in the disability community is that which denies them the same quality of life the able-bodieds enjoy. For some reason there is an undercurrent of insistence those whose lives are lived differently should be expected to accept a lower standard of living.

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CaNDLES+ @candles-plus.bsky.social · 04/12/2024

Oh I see. Thanks so much for taking the time to explain that. Learnt something new!

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CaNDLES+ @candles-plus.bsky.social · 04/12/2024

Wow. Ur experiences r heart breaking & outrageous! Did u complain? Pls tell me you’ve got a quality medical team now who really listen to u. How many females have been disregarded = injury or worse? Do their lives mean nothing? This really boils the blood. & many women still believe ‘dr knows best’

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CaNDLES+ @candles-plus.bsky.social · 04/12/2024

@nkinl.bsky.social there is a massive gap in how cancer and its treatments impact the lives of neuro divergent (autism, ADHD etc) patients. ND cancer patients often have pre existing, co-occurring medical conditions & higher sensitivity to the world. Is there any work towards cancer in ND folk?

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CaNDLES+ @candles-plus.bsky.social · 04/12/2024

@nkinl.bsky.social what about cancer patients who were already disabled/had other medical conditions that reduce exercise ability or prevent it? Exercise isn’t an available option for everyone. What’s the alt for those who can’t exercise even if they wanted to? They’re always left behind in advice

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Netherlands Cancer Institute @nkinl.bsky.social · 27/11/2024

Delaying and shortening the duration of treatment with CDK4/6 inhibitors in patients with metastatic breast cancer leads to similar survival outcomes while reducing toxicity and achieving substantial cost savings, the SONIA trial shows. Read more ➡️ bit.ly/3Oqw7aX

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Netherlands Cancer Institute @nkinl.bsky.social · 28/11/2024

🎓 PhD candidate Laurien Zeverijn @hetavl.bsky.social @utrechtuniversity.bsky.social looked at how patients with microsatellite instability could be treated with a drug that matches their unique tumor profile. This treatment is now covered by insurance ➡️ bit.ly/49agoX4

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Netherlands Cancer Institute @nkinl.bsky.social · 29/11/2024

📢 Applications for the NKI PhD program open from Jan 1 - Feb 28. Join our international research community in Amsterdam, working in cancer biology, AI research & life sciences with leading scientists and top facilities #PhD #CancerResearch More info: bit.ly/3O4bOjq

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Netherlands Cancer Institute @nkinl.bsky.social · 19/11/2024

Follow our NKI community go.bsky.app/5EK1wtK

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IBDMoms @ibdmoms.bsky.social · 04/12/2024

As we continue Crohn's & Colitis Awareness Week, let’s turn our fears into strength. 💜 You’re not alone—lean on your community, find solutions, and prioritize self-care. You've got this, mama! 🙌✨ #IBDMoms #CrohnsAndColitisAwarenessWeek #IBDWarrior #StrongerTogether #IBDSupport

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CaNDLES+ @candles-plus.bsky.social · 04/12/2024

I’m so very sorry. There are just no words. 🫶🫶🫶

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❣️ @shesapeach.bsky.social · 04/12/2024

Manifesting other PCOS besties that aren’t trying to have biological children and don’t want diet and lifestyle advice based on how to increase fertility. Fertility isn’t our focus/goal, butwe still deserve support and a safe space to build community. #PCOS #SINK #DINK #PCOSsky #SINKsky #DINKsky

media.tenor.com

a group of cats laying on a pink blanket on a bed .

ALT: a group of cats laying on a pink blanket on a bed .

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Sophia Wong @sophiawongyn.bsky.social · 04/12/2024

Looking forward to this debate tomorrow here in National Cancer #Singapore with a ⭐️ star-studded line up! 🔥 Register below and see you tomorrow! #CancerImmunotherapy #ESMOAsia #NCCS

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CaNDLES+ @candles-plus.bsky.social · 04/12/2024

Who is eligible for your starter pack pls? I’m raising awareness of and support for neuro divergent cancer patients like me, as we are often unsupported and have co-occurring medical conditions that complicate cancer treatments @drjonlim.bsky.social DM is open if it’s easier for you TIA

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CaNDLES+ @candles-plus.bsky.social · 04/12/2024

I read somewhere the symptoms are very similar to cancer patients. As a cancer patient, I’d like to learn more but need the simplistic version! (Have CFS too)

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Tom Kindlon @tomkindlon.bsky.social · 04/12/2024

Press release: Immune T cells become exhausted in chronic fatigue syndrome patients www.eurekalert.org/news-release... Longer piece from same university with more quotes: news.cornell.edu/stories/2024... #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

News Release 3-Dec-2024
Immune T cells become exhausted in chronic fatigue syndrome patients
Peer-Reviewed Publication
Cornell University

ITHACA, N.Y. – Chronic fatigue syndrome creates conditions where pathogen-killing immune T cells become exhausted, according to a new Cornell University study.

The study’s authors knew the immune system was dysregulated in patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) but wondered which parts shift with the condition. A systematic exploration revealed that key CD8+ T cells displayed one of the most pronounced signatures of dysregulation, with signs of constant stimulation that lead to an exhausted state, a condition that is well-studied in cancer.

“This is an important finding for ME/CFS because now we can examine the T cells more carefully, and hopefully by looking in the exhausted cells we can start to get hints as to what they are responding to,” said Andrew Grimson, professor of molecular biology and co-corresponding author of the study. Maureen Hanson, professor of molecular biology and genetics, is the other corresponding author.

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CaNDLES+ @candles-plus.bsky.social · 04/12/2024

Are you able to explain this in lay man’s terms - ie the idiots guide, pls?! Thank you!

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CaNDLES+ @candles-plus.bsky.social · 04/12/2024

Pls explain what visual snow syndrome is?

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CaNDLES+ @candles-plus.bsky.social · 04/12/2024

Agreed. Esp for female patients. The imbalance of the healthcare systems towards female patients is terrible. But then the severe lack of research into the female body is shockingly missing & misunderstood.

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CaNDLES+ @candles-plus.bsky.social · 04/12/2024

Thank you!! Completely agree.

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Kat @1bendykat.bsky.social · 04/12/2024

Nothing in my life is scarier than when I move wrong and sublux a vertebrae in my neck. #EDS #ehlersdanlos #chronicpain #chroniclife

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