Sign in

CaNDLES+

@candles-plus.bsky.social
1.5K followers 4.5K following 113 posts

Cancer & Neuro Divergent Lived Experiences Support plus Because the #neurodivergent experience with #cancer can be horribly tough and toxic & there are so few #supportive, #caring spaces specifically for #ND cancer patients. DMs welcome. Pls share.

PostsRepliesMedia
CaNDLES+ @candles-plus.bsky.social · 12/01/2025
www.facebook.com/share/r/15AD... A wee video that’s too cute not to share. If you’re struggling, take a few moments with the sound on 💜🫶💜might make you feel better?
facebook.com
Redirecting...
061
Reposted by CaNDLES+
Stardust 🌏🎬 @stardustbluepr.com · 07/12/2024
Amazon, Facebook, and Google all have reams of data about you—including your likes and dislikes, health information and social connections—but they’re not the only ones. Countless murky data brokers that you’ve never heard of collect huge quantities of information about you and sell it on. #TechSky
wired.com
6 Ways to Delete Yourself From the Internet
You’ll never be able to get a clean slate—but you can significantly downsize your digital footprint.
0276
Reposted by CaNDLES+
Bluesky Starter Pack @blueskystarterpack.com · 25/11/2024
Awesome list of builders! go.bsky.app/Miiq9jZ
go.bsky.app
Founders that share value
Join the conversation
23015
Reposted by CaNDLES+
Bluesky Starter Pack @blueskystarterpack.com · 26/11/2024
New FEATURED starter pack by @ianlandsman.com go.bsky.app/E2q6ZKa
go.bsky.app
Podcasters
Join the conversation
63719
Reposted by CaNDLES+
Ilias Ism @il.ly · 26/11/2024
new to bluesky? just wrote the guide i wish i had: - why 20M people are here - what actually works - how to find your people - the secret sauce (custom feeds!) - starter packs that don't suck 👉 il.ly/tech/bluesky ps: yes, you can build bots. yes, the API works. no, there's no ads. wild, right?
il.ly
Bluesky: The Next Big Social Media Platform
Bluesky is a new social media platform that has been gaining popularity in the US. It's similar to Twitter but with some unique features.
2316739
Reposted by CaNDLES+
Bluesky Starter Pack @blueskystarterpack.com · 27/11/2024
⭐ New featured pack by @flatoy.dev go.bsky.app/75HfkVp
146331
Reposted by CaNDLES+
Aaron Jack Arts 🌶️ @aaronjackarts.bsky.social · 03/12/2024
How do you prevent creative burnout?
12176
Reposted by CaNDLES+
Canada Healthwatch 🍁 @canadahealthwatch.ca · 04/12/2024
Need a Family Doctor? Jane Philpott Can Help. macleans.ca/society/heal... @macleans.bsky.social Get weekly updates: CanadaHealthwatch.ca/newsletter 🍁
Glamour shot of Jane Philpott
4216
Reposted by CaNDLES+
Unknown Etiology @viralpersistence.bsky.social · 04/12/2024
if I had a ton of money for #LongCovid research I’d spend at least some of it on post covid visual snow syndrome. 15% of ppl with vss believe they got it from covid (and around half from a tbi). it’s super under researched.
3113
Reposted by CaNDLES+
Ed Zitron @edzitron.com · 03/12/2024
Also, holy shit, Bluesky sends real traffic. Will update this tomorrow with firm numbers but journalism is going to move here for sure. Twitter is a drop in the bucket. It's over, but we are so back, and so on and so forth
270227291686
Reposted by CaNDLES+
Meitheal 🫏🦘🦨🐈☉∇ @somni.luxe · 03/12/2024
My autistic masks were a prison created by my abusers over my entire life. They were the 'me' I would think of, they were a filter every impulse went through. They told me what I could and couldnt think about. But they were not me.
922638
Reposted by CaNDLES+
Cheryl in Nova Scotia 🇨🇦🍁🍁 @minibubbly.bsky.social · 03/12/2024
Future fertility for young cancer patients preserved with procedure from U of C researchers #Calgary Ovarian tissue cryotherapy keeps option open for chemotherapy patients www.cbc.ca/news/canada/...
cbc.ca
Future fertility for young cancer patients preserved with procedure from U of C researchers | CBC News
A medical procedure for children and adolescent chemotherapy and radiation therapy patients in Calgary provides an option to have a biological kid in the future.
15814
Reposted by CaNDLES+
Rivka Solomon @rivkabluesky.bsky.social · 04/12/2024
T cell exhaustion in #MEcfs www.eurekalert.org/news-release...
eurekalert.org
Immune T cells become exhausted in chronic fatigue syndrome patients
Chronic fatigue syndrome creates conditions where pathogen-killing immune T cells become exhausted, according to a new Cornell University study.
24410
Reposted by CaNDLES+
WIRED @wired.com · 04/12/2024
NEW: Bluesky has seen massive growth in the weeks following the US election. There are 24 million users on the social media platform. With great engagement comes great responsibility, which means Bluesky CEO @jay.bsky.team has a lot to do. She sat down with WIRED to talk about it.
wired.com
Bluesky Now Has 24 Million Users. Jay Graber Is Still Vowing to Keep It From Enshittification
At WIRED's The Big Interview event, Bluesky CEO Jay Graber discussed the booming user numbers for the Twitter rival and why giving social media users more control is a recipe for success.
542304674629
Reposted by CaNDLES+
BA Haller @media-disdat.bsky.social · 04/12/2024
apnews.com
Disabled Americans rely on rideshare apps but say they still face discrimination
Disabled rideshare users have for years reported having less access to Lyft and Uber than able-bodied people.
062
Reposted by CaNDLES+
Brain Pain Sheeks 🇭🇹 🇺🇸 @chronicallysheeks.bsky.social · 04/12/2024
Attn : Spoonies with Brain and Spinal Injury A new grant offered by the Brain and Spinal Injury Trust Fund Commission Call: 888-233-5760. More info: bit.ly/3Qs1ZgN Maximum payout $10,000 (Hope this helps!) #chronicalyfabulous #spinalinjury #spooniesky #blacksky #disabled #braininjury #tbi
bit.ly
085
Reposted by CaNDLES+
STL Joe 🌿🇺🇦💖🇺🇸🕊♿ @stljoe02.bsky.social · 04/12/2024
The United Nations (@UN) reminds us that today is ⬇️♿⬇️ #InternationalDayOfPersonswithDisabilities #UnitedNations
022
Reposted by CaNDLES+
Mickey Rottinghaus @golfsobad.bsky.social · 04/12/2024
The biggest barrier of those in the disability community is that which denies them the same quality of life the able-bodieds enjoy. For some reason there is an undercurrent of insistence those whose lives are lived differently should be expected to accept a lower standard of living.
053
Reposted by CaNDLES+
Netherlands Cancer Institute @nkinl.bsky.social · 27/11/2024
Delaying and shortening the duration of treatment with CDK4/6 inhibitors in patients with metastatic breast cancer leads to similar survival outcomes while reducing toxicity and achieving substantial cost savings, the SONIA trial shows. Read more ➡️ bit.ly/3Oqw7aX
04011
Reposted by CaNDLES+
Netherlands Cancer Institute @nkinl.bsky.social · 28/11/2024
🎓 PhD candidate Laurien Zeverijn @hetavl.bsky.social @utrechtuniversity.bsky.social looked at how patients with microsatellite instability could be treated with a drug that matches their unique tumor profile. This treatment is now covered by insurance ➡️ bit.ly/49agoX4
052
Reposted by CaNDLES+
Netherlands Cancer Institute @nkinl.bsky.social · 29/11/2024
📢 Applications for the NKI PhD program open from Jan 1 - Feb 28. Join our international research community in Amsterdam, working in cancer biology, AI research & life sciences with leading scientists and top facilities #PhD #CancerResearch More info: bit.ly/3O4bOjq
02616
Reposted by CaNDLES+
Netherlands Cancer Institute @nkinl.bsky.social · 19/11/2024
Follow our NKI community go.bsky.app/5EK1wtK
64513
Reposted by CaNDLES+
IBDMoms @ibdmoms.bsky.social · 04/12/2024
As we continue Crohn's & Colitis Awareness Week, let’s turn our fears into strength. 💜 You’re not alone—lean on your community, find solutions, and prioritize self-care. You've got this, mama! 🙌✨ #IBDMoms #CrohnsAndColitisAwarenessWeek #IBDWarrior #StrongerTogether #IBDSupport
132
Reposted by CaNDLES+
❣️ @shesapeach.bsky.social · 04/12/2024
Manifesting other PCOS besties that aren’t trying to have biological children and don’t want diet and lifestyle advice based on how to increase fertility. Fertility isn’t our focus/goal, butwe still deserve support and a safe space to build community. #PCOS #SINK #DINK #PCOSsky #SINKsky #DINKsky
media.tenor.com
a group of cats laying on a pink blanket on a bed .
ALT: a group of cats laying on a pink blanket on a bed .
082
Reposted by CaNDLES+
Sophia Wong @sophiawongyn.bsky.social · 04/12/2024
Looking forward to this debate tomorrow here in National Cancer #Singapore with a ⭐️ star-studded line up! 🔥 Register below and see you tomorrow! #CancerImmunotherapy #ESMOAsia #NCCS
132
CaNDLES+ @candles-plus.bsky.social · 04/12/2024
#Cancer #CancerImmunology #StarterPack @skypacks.bsky.social
041
Reposted by CaNDLES+
Tom Kindlon @tomkindlon.bsky.social · 04/12/2024
Press release: Immune T cells become exhausted in chronic fatigue syndrome patients www.eurekalert.org/news-release... Longer piece from same university with more quotes: news.cornell.edu/stories/2024... #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
News Release 3-Dec-2024
Immune T cells become exhausted in chronic fatigue syndrome patients
Peer-Reviewed Publication
Cornell University

ITHACA, N.Y. – Chronic fatigue syndrome creates conditions where pathogen-killing immune T cells become exhausted, according to a new Cornell University study.

The study’s authors knew the immune system was dysregulated in patients with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) but wondered which parts shift with the condition. A systematic exploration revealed that key CD8+ T cells displayed one of the most pronounced signatures of dysregulation, with signs of constant stimulation that lead to an exhausted state, a condition that is well-studied in cancer.

“This is an important finding for ME/CFS because now we can examine the T cells more carefully, and hopefully by looking in the exhausted cells we can start to get hints as to what they are responding to,” said Andrew Grimson, professor of molecular biology and co-corresponding author of the study. Maureen Hanson, professor of molecular biology and genetics, is the other corresponding author.
56118
CaNDLES+ @candles-plus.bsky.social · 04/12/2024
This👇👇👇 esp when you consider the severe lack of #medical #research specifically into the #female body & mind. #ChronicIllness #ChronicPain #Anxiety #healthCare #Disability #Disabled #HiddenDisability #Accessibility #Doctor
1113
CaNDLES+ @candles-plus.bsky.social · 04/12/2024
#LongCovid #ChronicPain #ChronicIllness #Disabled #Disability #HiddenDisability #CFS #POTS #RareIllness #Health #HealthAndWellbeing #Infection #Cancer u never know what someone’s going through. Consequences of #Covid are unknown. #BeKind. Understand #pain is real & so is hidden illness
162
Reposted by CaNDLES+
Kat @1bendykat.bsky.social · 04/12/2024
Nothing in my life is scarier than when I move wrong and sublux a vertebrae in my neck. #EDS #ehlersdanlos #chronicpain #chroniclife
151
CaNDLES+ @candles-plus.bsky.social · 04/12/2024
#ChronicPain #ChronicIllness #YourPainIsValid #RareIllness #Disabled #Disability #Cancer #Pain #Accessibility #Health #MedicalCare #NHS #medical #Ableist
072
Reposted by CaNDLES+
Tom Kindlon @tomkindlon.bsky.social · 29/11/2024
The Baker Institute/University (VIC) are recruiting for their study. You might be suitable if you are: • Aged 18+ years • Are living with ME/CFS or orthostatic intolerance. For more information visit: vist.ly/3mmwmga #MEcfs #CFS #PwME

ME/CFS research opportunity
How is blood flow changed in those with ME/CFS and OI during exercise and how does that impact PEM?
0106
Reposted by CaNDLES+
Da(N95)iella [fka DaniAtomicus] @sharpflower.bsky.social · 29/11/2024
Episode 1 of Public Health is Dead moves between Long COVID researcher @zalaly.bsky.social and @hazie.bsky.social, someone living with Long COVID, about what the condition can look like and the huge impact it has on individuals and populations everywhere. (Images from WUSTL, and Hazie Thompson)
Dr. Al-Aly close up in front of his computer screen, lit up by purple light. Green numbers reflected in his round glasses. 
Image from University of Washington at St. LouisHazie Thompson with curly hair and shadow across their face, hands clasped at chest, wearing a checkered shirt and positioned in front of a white wall. Image from Hazie Thompson
68531
Reposted by CaNDLES+
valebodi.bsky.social @valebodi.bsky.social · 02/12/2024
Going Viral: Exploring Viral Triggers of Autoimmune Disease NIH August, 2024 videocast.nih.gov/watch=54970
videocast.nih.gov
Going Viral: Exploring Viral Triggers of Autoimmune Disease
The purpose of the OADR-ORWH Science Talks series is to examine the state of the science in specific areas impacting research on autoimmune disease and women’s health. This session of Science Talks is...
021
Reposted by CaNDLES+
Center for American Progress @americanprogress.bsky.social · 30/10/2024
First Amendment rights, worker’s rights, LGBTQIA+ rights, reproductive rights... This is just some of what we’re at risk of losing if an authoritarian president takes office and enacts the plans in #Project2025.
americanprogress.org
Project 2025: Exposing the Far-Right Assault on America
810637
Reposted by CaNDLES+
Julia Métraux @juliametraux.bsky.social · 22/11/2024
Hi! My name is Julia Métraux, and I cover disability and its intersection w/ politics at @motherjones.com . My email is jmetraux@motherjones.com my author page is here www.motherjones.com/author/julia... My free monthly newsletter is also here gmail.us9.list-manage.com/subscribe?u=...
motherjones.com
Julia Métraux
410926
Reposted by CaNDLES+
Mother Jones @motherjones.com · 15/11/2024
we just updated our starter pack with more mojo journos! check them out 🫶
1851784596
CaNDLES+ @candles-plus.bsky.social · 04/12/2024
#cancer #Tcells #ImmuneSystem #Exhausted #Exhaustion #proteins #cells
000
Reposted by CaNDLES+
allyann @allyann.bsky.social · 02/12/2024
📌 #ChronicIllness Pinned Post 📌 This feed pulls in posts with the keywords of #ChronicIllness, #ChronicPain, #rareDisease, and #InvisiableIllness This feed can be found at bsky.app/profile/did:... Other keywords the feed pulls in can be found in the following thread below. 1/6
5153267
CaNDLES+ @candles-plus.bsky.social · 04/12/2024
#Disability #Disabled #ChronicIllness #RareIllness #SupportNeeds #LivingCosts #Money #Profits #Health #Banks
030
Reposted by CaNDLES+
Kit AuDHD @jadzia9.bsky.social · 04/12/2024
#ABA #Therapy #ABAtherapy is #abuse of an #autistic person. #Autism doesn’t need a #cure; it’s a valid #neurotype. It’s hard being #neurodivergent in a #neurotypical world. #BeKind. #support needs. Don’t crush them under dangerous & outdated practice. #AuDHD #ND autisticmama.com/big-deal-aba...
autisticmama.com
What’s the Big Deal With ABA Therapy? – Autistic Mama
092
CaNDLES+ @candles-plus.bsky.social · 04/12/2024
Perhaps the cure for #cancer too? What’d you think @godpod.bsky.social ?
000
Reposted by CaNDLES+
Science News @scinews.bsky.social · 30/11/2024
Here is a brief summary of academic journals and news account. Please help me add more accounts to this list! go.bsky.app/hCfhqn
33215121
Reposted by CaNDLES+
OncoDaily @oncodaily.bsky.social · 30/11/2024
Cancer Community about @oncodaily.bsky.social during the European Cancer Summit :)
0152
Reposted by CaNDLES+
OncoDaily @oncodaily.bsky.social · 01/12/2024
No matter how advanced tech gets, healing is still about connection and compassion: Douglas Flora #oncology #cancer #oncodaily #compassion
oncodaily.com
Douglas Flora: No matter how advanced tech gets, healing is still about connection and compassion - OncoDaily
Douglas Flora: No matter how advanced tech gets, healing is still about connection and compassion / AI, cancer, Douglas Flora, OncoDaily, Oncology, St.
0172