iiinova — where your digital self keeps evolving

Cancer52 @cancer52org.bsky.social · 20/08/2026

Cancer52 is pleased to welcome its latest member, the UK Acute Oncology Society (UKAOS). A multidisciplinary group of health professionals with the aim that acute needs of cancer patients are recognised, assessed and managed at the right time & place, and by the appropriate team. See: bit.ly/4xciG36

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Cancer52 @cancer52org.bsky.social · 11/06/2026

ROS1ders UK is the latest charity to join Cancer52. ROS1ders UK support people affected by ROS1-positive cancer. They bring patients together, share practical information, raise awareness, and speak up for better testing, treatment access, and research. See: ros1ders-cancer.uk

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Reposted by Cancer52

Leukaemia UK @leukaemiauk.bsky.social · 10/06/2026

💬 Share your views and help to strengthen the voices of people affected by rare and less common cancers, including leukaemia. Fill in @cancer52org.bsky.social's patient survey and help to shape future policy work to improve diagnosis and access to treatments: www.surveymonkey.com/r/c52patient...

A graphic with an icon of a person holding a tablet in their hands and filling out an online survey. The text reads, ‘Share your views. Help to strengthen the voices of those with rare and less common* cancers'. A disclaimer at the bottom reads, ‘*All cancers other than the four most common: breast, bowel, lung and prostate.’

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Cancer52 @cancer52org.bsky.social · 10/06/2026

Real change starts with real experiences. Have you been affected by a rare and less common cancer (all cancers except breast, bowel, lung, or prostate) either as a patient or a carer? Please take our anonymous online survey to share your experience: bit.ly/43pRy33

Asset that says Cancer52 rare and less common cancers patient survey. Survey closes 10th July 2016.

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Cancer52 @cancer52org.bsky.social · 04/06/2026

We are pleased to welcome Cancer52’s newest member, The Joshua Tree. The charity provides bespoke emotional health and wellbeing support to families affected by childhood cancer across the UK. Learn more: thejoshuatree.org.uk

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Cancer52 @cancer52org.bsky.social · 12/05/2026

Cancer52 has a new member! Cahonas Scotland supports men with testicular cancer and their families, from diagnosis through treatment and beyond. Through education programmes, awareness campaigns, and peer support. Read more: www.cahonasscotland.org

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Cancer52 @cancer52org.bsky.social · 30/04/2026

Great to meet with Minister @sharonhodgsonmp.bsky.social alongside fellow cancer charities yesterday. Topics discussed included implementation of the National Cancer Plan & Rare Cancers Act, importance of reducing late diagnosis, and the distinct challenges faced in rare & less common cancers.

A photo of a group of eight men and women in business attire stood in an office, smiling at the camera. Sharon Hodgson MP is in the centre and the Houses of Parliament is visible through the window in the background.

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Cancer52 @cancer52org.bsky.social · 08/04/2026

Welcome to Cancer52's newest member; Lynch Syndrome UK, a national, patient-led charity committed to improving awareness, advancing equitable access to genetic testing, and supporting individuals and families affected by hereditary cancer risk. Learn more: www.lynch-syndrome-uk.org

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Cancer52 @cancer52org.bsky.social · 25/03/2026

EGFR Positive UK has joined Cancer52! EGFR Positive UK provide trusted information, peer support and advocacy for EGFR positive lung cancer. Raise awareness of biomarker testing and targeted treatments while promoting equitable access to personalised care. Read more: www.egfrpositive.org.uk

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Cancer52 @cancer52org.bsky.social · 17/03/2026

Thank you to our excellent speakers and panellists for sharing valuable insights at the #BigCancer52Conversation, aligned with the commitments in the new Cancer Plan. It was fantastic to come together with a shared goal - improving outcomes for everyone affected by rare and less common cancers

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Cancer52 @cancer52org.bsky.social · 16/03/2026

Today we’re hosting the #BigCancer52Conversation in Manchester focusing on how we can work together to support implementation of the National Cancer Plan, in relation to rare and less common cancers.

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Cancer52 @cancer52org.bsky.social · 12/03/2026

Our newest member, Leiomyosarcoma Research UK’s mission is to support research, provide education, and foster a strong community for leiomyosarcoma patients and their families across the UK. Learn more: lmsruk.org

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Cancer52 @cancer52org.bsky.social · 06/03/2026

Cancer52's newest member, The Bardo Foundation is an international childhood cancer charity founded in memory of Bernardo “Bardo” Eggesbø They fund research, support patients and families, and lead Osteosarcoma Now, accelerating progress through collaboration to improve outcomes for young people.

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Cancer52 @cancer52org.bsky.social · 06/03/2026

Scott Arthur MP's Private Members Bill - supported by many of our member charities, has officially become law! The Rare Cancers Act 2026 will prioritise long overlooked aspects of research, and has the potential to transform outcomes for those affected by rare and less common cancers.

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Cancer52 @cancer52org.bsky.social · 02/03/2026

Cancer52 sends our best wishes to Ashley Dalton MP as she steps back from her ministerial duties for health reasons. Our thanks for her brilliant work, alongside her colleagues in the DHSC, in developing the National Cancer Plan for England recently.

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Cancer52 @cancer52org.bsky.social · 27/02/2026

As the voice for rare and less common cancers in the UK, we join the call on Rare Disease Day 2026 for equity in social opportunities, healthcare, and access to diagnosis and therapies.

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Cancer52 @cancer52org.bsky.social · 12/02/2026

MOVE Against Cancer has joined Cancer52! 👏 They deliver evidence-based support through 5k Your Way community groups, tailored online programmes and accessible resources, improving wellbeing and supporting health outcomes during and after treatment. Find out more ➡️ bit.ly/4bMLl6U

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Cancer52 @cancer52org.bsky.social · 04/02/2026

A breakthrough moment; a clear focus with 13 specific commitments on rare and less common cancers in the new National Cancer Plan for England. This plan has the potential to address longstanding issues for these cancers and we look forward to supporting its implementation.

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Cancer52 @cancer52org.bsky.social · 04/02/2026

World Cancer Day is a reminder to come together to take action against cancer. In the UK, 47% of cancer diagnoses are of rare and less common cancers, yet they account for 55% of cancer deaths. We must work collaboratively to overcome this difference. #WorldCancerDay #UnitedByUnique

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Cancer52 @cancer52org.bsky.social · 29/01/2026

We were proud to submit Cancer52's Annual Review to the Charity Commission - outlining what we’d achieved, alongside our members, in the financial year 2024-2025. Read Annual Review: bit.ly/3NBY2HM

Cover of Cancer52 Annual Review 2024-2025.

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Cancer52 @cancer52org.bsky.social · 15/01/2026

This week is Less Survivable Cancers Awareness Week. Five out of the six cancers – brain, liver, oesophageal, pancreatic and stomach – are rare and less common. Like many rare and less common cancers, the less survivable cancers typically have less investment in research. #CloseTheResearchGap

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Cancer52 @cancer52org.bsky.social · 08/01/2026

We have a new member! Lymphoma Out Loud educates and raises awareness of lymphoma. A young charity with a rebel spirit, they're on a mission through educating, empowering & amplifying patient voices through bold campaigns, education and lived experience. See more at: lymphomaoutloud.org

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Cancer52 @cancer52org.bsky.social · 09/12/2025

So pleased to attend #BackTheBreakthroughs today. A powerful panel on the future of cancer research hosted by @crukpolicy.bsky.social in Westminster, sharing fascinating insights on overcoming barriers in #CancerResearch and using #HealthcareInnovation to accelerate life-saving breakthroughs. 👏🏻

Photo is of Victoria Tower in Westminster, against a grey December sky.

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Reposted by Cancer52

Bone Cancer Research Trust @bcrt-uk.bsky.social · 07/11/2025

This week, we were proud to join patients, policymakers and the @cancer52org.bsky.social community in Westminster 💼 The event provided an opportunity to highlight cancer charities in the UK - enabling us to learn from each other and strengthen our efforts to improve outcomes 🧡 #UntilTheresACure

Two women standing on grass in front of a large historic stone archway with intricate carvings, a red double-decker bus passing behind them.

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Cancer52 @cancer52org.bsky.social · 06/11/2025

Inspiring day in Westminster bringing together patients, policymakers and Cancer52 members to present case studies, enabling us to share learnings and drive cross-sector collaboration to improve outcomes in rare & less common cancers. Our thanks to KKI who sponsored this event

Group of people stood outside UK parliament, smiling for the camera.

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Cancer52 @cancer52org.bsky.social · 28/10/2025

Our previous CEO, Jane Lyons recently enjoyed a fabulous day out to Windsor Castle, with her family, to collect her MBE. A much deserved recognition of all her hard work and many achievements. Congratulations Jane!

Jane Lyons wearing a smart blue coat and fascinator, smiling with her family. They are stood outside of Windsor Castle.

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Cancer52 @cancer52org.bsky.social · 30/09/2025

Busy time at #Lab25, connecting with policy makers and member charities. With the National Cancer Plan in the final stages of development, it’s a vital time to collaborate to improve outcomes for people affected by rare & less common cancers.

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Reposted by Cancer52

ALK Positive Lung Cancer UK @alkpositiveuk.bsky.social · 27/08/2025

Today, One Cancer Voice sets out 6 key asks for the National Cancer Plan. As a @cancer52org.bsky.social member, ALK+ UK stands with this call. The National Cancer Plan must deliver for everyone affected by cancer - including those with rare & less common cancers like ALK+ #lungcancer. #LCSM

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Cancer52 @cancer52org.bsky.social · 27/08/2025

2.92 million new cancer cases will be rare & less common. We welcome the six tests nominated by #OneCancerVoice. Focussed and targeted action in the new National Cancer Plan is needed to combat the projected increase to and provide a much-needed boost to survival rates.

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Cancer52 @cancer52org.bsky.social · 14/07/2025

We are so pleased that the Rare Cancers Bill passed its 3rd Reading in the House of Commons on Friday. This Bill could mark a significant step forward in addressing the urgent need for increased focus and research in the field of rare cancers.

Rare Cancers Bill has now passed through the House of Commons!
What the Bill wants to achieve for rare cancers.
1. Governmental lead for research.
2. Improve clinical trial access.
3. Incentivise research.

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Cancer52 @cancer52org.bsky.social · 09/07/2025

Cancer52 welcomes the ambitions in the new 10 Year Health Plan for England, especially on tackling health inequalities & innovation. The focus on prevention, AI, genomics, and joined-up care is exciting - we hope that the resources will match the ambition. Read the Plan: bit.ly/46u5sUC

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Reposted by Cancer52

Dr Scott Arthur MP (Edinburgh South West) 🌍🌈🌹 @drscottarthurmp.bsky.social · 25/06/2025

It was a privilege to speak with the UK rare and less common cancer community at the Big Cancer52 Conversation in Canary Wharf yesterday. I shared an update on what’s next for my Rare Cancers Bill—Committee Stage is scheduled for 2 July, with the Third Reading expected on 11 July.

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Cancer52 @cancer52org.bsky.social · 26/06/2025

Thank you for being part of the Big Cancer52 Conversation

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Reposted by Cancer52

Cameron Miller @cameronmillertbtc.bsky.social · 25/06/2025

A real pleasure to introduce @drscottarthurmp.bsky.social at the @cancer52org.bsky.social meeting this week and hear his motivation and hopesfor leading the Rare Cancers Bill. A chance for real change. Proud to have been a part of this.

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Cancer52 @cancer52org.bsky.social · 25/06/2025

A massive thank you to our excellent speakers, panellists, topic experts and attendees who all contributed to the success of our sixth #BigCancer52Conversation yesterday!

A group photo of the attendees of the Big Cancer52 Conversation. Attendees are grouped together, stood or sat on the conference room stage and smiling.

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Cancer52 @cancer52org.bsky.social · 24/06/2025

This afternoon at the #BigCancer52Conversation we’re hearing incredible stories of patients' experiences of rare & less common cancers @clivejonesmp.bsky.social @teenagecancertrust.bsky.social Thank you to AstraZeneca UK & @TNLComFund for making today possible

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Cancer52 @cancer52org.bsky.social · 24/06/2025

We’re proud to bring the rare & less common cancer community together at the #BigCancer52Conversation So far we’ve discussed what’s next in terms of policy for rare and less common cancers with the Rare Cancers Bill and National Cancer Plan @drscottarthurmp.bsky.social @thekingsfund.bsky.social

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Cancer52 @cancer52org.bsky.social · 14/06/2025

Congratulations Jane Lyons MBE!

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Cancer52 @cancer52org.bsky.social · 10/06/2025

At our most recent All Member Meeting, we enjoyed a great presentation from @ipsosintheuk.bsky.social outlining their research on gender bias in cancer care. Read more in their report: bit.ly/3Thqlus

Cover of a report by IPSOS titled Gender Bias: The 'Invisible' Barrier to Equitable Healthcare.

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Cancer52 @cancer52org.bsky.social · 28/05/2025

At Cancer52 we love to get our charity members together with others in the rare & less common cancer community! The photo is of our last #BigCancer52Conversation, held in Manchester. We're now looking forward to our next event in London in June. Watch this space for more info…

Group of people from Cancer52 member charities, stood in a group.

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Cancer52 @cancer52org.bsky.social · 28/05/2025

Cancer52 member charities came together recently at DHSC with Minister @ashleydaltonmp.bsky.social to help develop the new National Cancer Plan to improve outcomes for those affected by rare & less common cancers Huge thanks to DHSC for hosting & all attendees for their engagement and contributions

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Cancer52 @cancer52org.bsky.social · 28/05/2025

Excellent resource from @abpi.bsky.social with @pifonline.bsky.social ‬to support cross-sector collaboration Cancer52+@nras-uk.bsky.social, PIF, @hrci.bsky.social‬, CRIG worked to develop FMV for patient orgs—important for partnership working & recognises expertise of charity sector➡️ bit.ly/3XIG7AB

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Cancer52 @cancer52org.bsky.social · 28/05/2025

Diagnosing cancer at stage I/II is important but doesn't fully capture all rare & less common cancers. Patients & clinicians told us early diagnosis should mean finding cancer when a real difference can be made. Read our report: bit.ly/earlcandiag

Report cover with Cancer52 and GRAIL logos, titled Improving diagnosis. Patient and clinician perspectives on increasing diagnosis in rare and less common cancers.

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Cancer52 @cancer52org.bsky.social · 28/05/2025

Cancer52 is now on Bluesky! Excited to connect with our charity members and others in the rare and less common cancer community on this platform.

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