Brain Ablaze @brainablaze.bsky.social · 02/05/2026Those are both great questions for your neurologist. Let us know what they say! In general, your neurologist should know every med you take because even over the counter meds (like Benadryl) can affect one's seizure threshold. 110
Brain Ablaze @brainablaze.bsky.social · 25/04/2026While not all #epilepsy is genetic, genetic testing is transforming how Epilepsy is treated. By identifying specific mutations, doctors can move away from "trial and error" and toward targeted therapies that work for a person’s unique biology. #NationalDNADay #EpilepsyAwareness 150
Brain Ablaze @brainablaze.bsky.social · 24/04/2026Seizures often target the areas of the brain responsible for forming new memories, making daily life with #epilepsy feel like a constant game of catch-up. Do you use specific hacks/routines to help your #memory stay sharp? #EpilepsyAwareness 002
Brain Ablaze @brainablaze.bsky.social · 18/04/2026We hope your weekend is seizure-free. #EpilepsyAwareness 040
Brain Ablaze @brainablaze.bsky.social · 31/03/2026If you post a great #epilepsy story, please mention us. We will help you promote it! Help us help you raise #EpilepsyAwarenessmedia.tenor.coma man is sitting in front of a counter and asking for help .Alt: Tom Cruise from Jerry Maguire pleads "Help me help you." 031
Brain Ablaze @brainablaze.bsky.social · 30/03/2026Effective epilepsy advocacy starts with a strong partnership in the exam room. Today we celebrate the neurologists and epileptologists who don't just treat a condition, but see the person behind the diagnosis. #NationalDoctorsDay #EpilepsyAwareness 030
Brain Ablaze @brainablaze.bsky.social · 26/03/2026Wait, does celebrating #PurpleDay2026 mean we're celebrating #epilepsy? No. Of course not. We're celebrating the community of people who have it, our doctors and caregivers who help us, and the advocates who give their voice. Our strength is in our numbers. #EpilepsyAwareness 033
Brain Ablaze @brainablaze.bsky.social · 14/03/2026We often talk about #Epilepsy as one condition, but it’s actually a vast spectrum. -- How good are you at realizing that your treatment experience could be much different than others who also have Epilepsy? #EpilepsyAwareness 010
Brain Ablaze @brainablaze.bsky.social · 08/03/2026For #InternationalWomensDay, it is vital to shine a light on the intersection of neurology and reproductive health. Catamenial epilepsy, or where seizure patterns are tied to the menstrual cycle, affects ~40% of women with epilepsy. #EpilepsyAwareness brainablaze.com/blog/why-doe...brainablaze.comWhy Does No One Talk About Catamenial Epilepsy? - Katie NunnDespite the prevalence of catamenial epilepsy, with half of women of childbearing age displaying signs of it, it is understudied with no real, tried and true treatment. 021
Brain Ablaze @brainablaze.bsky.social · 05/03/2026Does your #epilepsy make you struggle with the "Spotlight Effect", where we constantly overestimate how much people notice our #seizures? The truth often hits harder; everyone is too worried about themselves to worry about us. #EpilepsyAwareness 020
Brain Ablaze @brainablaze.bsky.social · 03/03/2026Today is #IWantYouToBeHappyDay! Whether it’s a seizure-free day, meaningful EEG data, or just a morning where you feel like yourself again we hope you find something today that puts a smile on your face. #EpilepsyAwareness 020
Reposted by Brain AblazeGreg Grunberg @greggrunberg.bsky.social · 27/02/2026I spill it all on this new episode of the podcast. Answer all your personal questions. Listen now.  podcasts.apple.com/us/podcast/t... 062
Brain Ablaze @brainablaze.bsky.social · 27/02/2026Reasonable accommodations for #epilepsy aren't "extra perks." Flexible start times or seizure-safe lighting are tools that create a level playing field. When barriers are removed, everyone is given the same opportuninity to succeed. #EpilepsyAwareness brainablaze.com/the-brain-ab...brainablaze.com 030
Brain Ablaze @brainablaze.bsky.social · 26/02/2026Still looking for advice on how to thrive with #epilepsy? Our virtual Support Group meets later today. #EpilepsyAwareness Hope to see you there! brainablaze.com/epilepsy-sup...brainablaze.comPST Epilepsy Support Group Session - Brain AblazeIf you are looking for support, we have it. Our PST Support Group Session meets every month on the 26th at 6 PM PST | 9 PM EST. We hope to see you there! 001
Brain Ablaze @brainablaze.bsky.social · 24/02/2026Do you agree that "Jeez, I'm just kidding" is a red flag 🚩? If a "joke" relies on mocking a #seizure or belittling a #disability, it isn't humor and this response is just a way to avoid accountability for being offensive. #EpilepsyAwareness 040
Brain Ablaze @brainablaze.bsky.social · 23/02/2026DYKT #stroke is a leading cause of #epilepsy in adults? The good news is that many strokes are preventable. -- To learn more, ask your medical team: "What specific steps can I take to lower my stroke risk?" #EpilepsyAwareness 020
Brain Ablaze @brainablaze.bsky.social · 21/02/2026While it is physically impossible to swallow one's tongue during a seizure, tongue bites are common during some seizures. -- Have you ever bitten your tongue during a seizure? #EpilepsyAwareness brainablaze.com/guides/an-ep...brainablaze.comAn Epileptic's Guide to Tongue Injuries - Brain AblazeOne of the common injuries that people with Epilepsy face are wounds to their tongue as a convulsive seizure can sometimes lead to gnashing of the mouth. In this article, I’ll provide some pointers on... 020
Brain Ablaze @brainablaze.bsky.social · 19/02/2026One's neurologist only sees a snapshot of one's life during an appointment. Journaling one's seizures can provide a better extended picture. -- If you tried journaling your seizures, what did you track and was it useful? #EpilepsyAwareness Get started! brainablaze.com/the-brain-ab...brainablaze.com043: Trigger Discovery - The Brain Ablaze Epilepsy PodcastIn this episode, we provide tools anyone can use to discover which Triggers affect their seizures. 120
Brain Ablaze @brainablaze.bsky.social · 18/02/2026Stigma around #epilepsy has survived for thousands of years; proving that it won't just disappear with time. Thank you for doing your duty to dismantle it through continiuously sharing your epilepsy stories and demanding that we all be heard. #EpilepsyAwareness 050
Brain Ablaze @brainablaze.bsky.social · 17/02/2026Happy Lunar New Year! How will you raise #EpilepsyAwareness in the Year of the Horse? 120
Brain Ablaze @brainablaze.bsky.social · 12/02/2026#epilepsy is a constant balancing act. ⚖️ Like being Goldilocks: you can’t have too much, you can’t have too little; everything has to be just right. -- Have you read Jo Mackenzie's take on dealing with the condition, yet? #EpilepsyAwareness brainablaze.com/author/jomac...brainablaze.comJo Mackenzie, Author at Brain Ablaze 130
Brain Ablaze @brainablaze.bsky.social · 11/02/2026For #WomenInSTEMDay we honor the late Dr. Charlotte Dravet, the French psychiatrist and epileptologist who first described #Dravet Syndrome in 1978. Her research allowed for earlier diagnosisis and specialized treatment for thousands of children. #EpilepsyAwareness 010
Reposted by Brain AblazeGreg Grunberg @greggrunberg.bsky.social · 09/02/2026TalkAboutIt.org is the place to watch, learn & come together! 021
Brain Ablaze @brainablaze.bsky.social · 08/02/2026An estimated 3.4 MILLION people in the USA live with #epilepsy. 🧠 To put that in perspective: that’s enough to fill EVERY #NFL stadium in the country all at once 1.5 times over! #EpilepsyAwareness #SuperBowl 041
Reposted by Brain Ablazeedgar wallace presents @ew-presents.bsky.social · 07/02/2026Say it loud! #LGS 011
Brain Ablaze @brainablaze.bsky.social · 07/02/2026February is #RareDiseaseMonth! While #epilepsy itself is not rare (affecting 1 in 26 people), there are hundreds of rare Epilepsies (like #Dravet Syndrome, #LGS, or #CDKL5) that require specialized care and unique research. #EpilepsyAwareness 130
Brain Ablaze @brainablaze.bsky.social · 06/02/2026Have a wonderful Super Bowl weekend everyone! Just remember not to party too hard because we need your help to raise #EpilepsyAwareness on Monday, International #EpilepsyDay.media.tenor.coma man says " have fun ok and be safe " in a gifALT: a man says " have fun ok and be safe " in a gif 000
Brain Ablaze @brainablaze.bsky.social · 05/02/2026Is it time to retire the term "differently abled?" Some say it sugarcoats the reality of being disabled because people with #epilepsy don't have "different" abilities. They say we have a medical condition that creates barriers in a world not built for us. #EpilepsyAwareness 010
Brain Ablaze @brainablaze.bsky.social · 04/02/2026While cannabis (i.e. CBD) has become a vital tool for some people with #epilepsy, it is often surrounded by "miracle cure" rhetoric that doesn't match the reality of living with the condition. -- Has cannabis been suggested for your seizures? #EpilepsyAwareness #NationalHempDay 010
Brain Ablaze @brainablaze.bsky.social · 01/02/2026A very happy birthday to Julia Garner! DYKT the American actress (best known for her critically acclaimed, award-winning roles as Ruth Langmore in the Netflix series Ozark and Anna Delvey in the miniseries Inventing Anna) struggled with #epilepsy as a child? #EpilepsyAwarenessmedia.tenor.coma woman in a purple dress is waving her handALT: a woman in a purple dress is waving her hand 020
Brain Ablaze @brainablaze.bsky.social · 31/01/2026When it comes to #epilepsy, denial is not a viable strategy. Frequent, uncontrolled seizures can further lower the seizure threshold, making future events more likely and harder to treat. -- Have you struggled with denial during your epilepsy adaptation? #EpilepsyAwareness 130
Brain Ablaze @brainablaze.bsky.social · 30/01/2026The doctor/patient is the foundation of care, but it isn't always perfect. Have you ever had a major disagreement with your medical team? How was the disagreement resolved? #EpilepsyAwareness 100
Brain Ablaze @brainablaze.bsky.social · 29/01/2026It’s OK to wonder about a life without #Epilepsy, just don’t dwell on it. Looking at the "alternate timeline" can be a form of grief which needs its time. -- Do you often find yourself grieving a possibly different life? #EpilepsyAwareness 010
Brain Ablaze @brainablaze.bsky.social · 28/01/2026"Normal" is a statistical myth mapped to a theoretical "average" person who doesn't actually exist. Many people with #epilepsy are measured against this non-existant standard. -- Has anyone suggested that you be more "normal"? #EpilepsyAwareness brainablaze.com/the-brain-ab...brainablaze.com032: What is Normal? - The Brain Ablaze Epilepsy PodcastOne thing that hinders us in the search for true acceptance is the idealization of what really is "normal". Is normal what we see on TV, read in magazines, or consume on Social Media? 010
Brain Ablaze @brainablaze.bsky.social · 27/01/2026When a person hears "seizure," we bet they picture a tonic clonic seizure. Seizures are varied though. Some seizures are so subtle that even doctors can't recognize them without the help of testing equipment. -- Do your seizures involve convulsions? #EpilepsyAwareness 010
Brain Ablaze @brainablaze.bsky.social · 27/01/2026Thank you! We're all in this together! Thanks for your support. 💜 010
Brain Ablaze @brainablaze.bsky.social · 26/01/20261/26 is a great day to remind everyone that 1 in 26 people will be diagnosed with #epilepsy sometime in their lifetime. Are you in 1 in 26? #EpilepsyAwareness 040
Brain Ablaze @brainablaze.bsky.social · 24/01/2026It’s #NationalComplimentDay! Advocacy can be exhausting, and a kind word goes a long way. Help us by mentioning an #Epilepsy advocate who inspires you and tell them why their work to raise #EpilepsyAwareness matters. 100
Brain Ablaze @brainablaze.bsky.social · 23/01/2026Ever feel a sudden, but distinctive "rising" feeling in your stomach? It might not be indigestion. Gastric auras (often described as a "rollercoaster drop" feeling) are common focal seizures starting in the temporal lobe. #EpilepsyAwarenessmedia.tenor.coma young boy is crying while riding a roller coaster at an amusement park .ALT: a young boy is crying while riding a roller coaster at an amusement park . 020
Brain Ablaze @brainablaze.bsky.social · 22/01/2026Many people believe that #disability is somehow caused by the person not "trying hard enough". For many in the #Epilepsy community know health isn't always something you "lose." Sometimes one's health is ripped away and one is completely powerless to stop it. #EpilepsyAwareness 050
Brain Ablaze @brainablaze.bsky.social · 21/01/2026A witness should always stay with a person who is experiencing a seizure until they are fully alert. -- If you experience postictal confusion, how long does it usually last? #EpilepsyAwareness brainablaze.com/the-brain-ab...brainablaze.com 000
Brain Ablaze @brainablaze.bsky.social · 20/01/2026If someone has anyone ever suggested you stay silent about having #epilepsy, what was your response? #EpilepsyAwareness 000
Brain Ablaze @brainablaze.bsky.social · 19/01/2026As a person with #epilepsy, does Martin Luther King Jr.'s quote "Of all the forms of inequality, injustice in health is the most shocking and the most inhuman because it often results in physical death." ring true with you? #EpilepsyAwareness #MLKDaymedia.tenor.commartin luther king jr. is giving a speech at a podium in front of a crowd of people .ALT: martin luther king jr. is giving a speech at a podium in front of a crowd of people . 020
Brain Ablaze @brainablaze.bsky.social · 18/01/2026Don't repeatedly press your friend #epilepsy for an excuse for why they didn't show up. It's terribly difficult to face the fact that we cannot control where or when a seizure will hit. #EpilepsyAwareness 020
Brain Ablaze @brainablaze.bsky.social · 17/01/2026Waking up in the ER is one of the most jarring experiences of living with #Epilepsy. The bright lights, the beeping monitors, and that sinking fatigue. -- Have you ever had to visit the ER due to a seizure? #EpilepsyAwareness 120
Brain Ablaze @brainablaze.bsky.social · 16/01/2026Most people might be surprised to hear how many people didn't realize the sensations they were having were seizures. We’re taught to look for "shaking," but not all seizures include them. -- Did you (or your family) immediately recognize your first seizure? #EpilepsyAwareness 020
Brain Ablaze @brainablaze.bsky.social · 15/01/2026Just because the ADA makes it illegal to discriminate against #Epilepsy in the workplace doesn’t mean it has vanished. Legal protection doesn't necessarily mean inclusion. -- Have your seizures ever led to your termination? #EpilepsyAwareness brainablaze.com/the-brain-ab...brainablaze.com 000