iiinova — where your digital self keeps evolving

Brain Ablaze @brainablaze.bsky.social · 25/04/2026

While not all #epilepsy is genetic, genetic testing is transforming how Epilepsy is treated. By identifying specific mutations, doctors can move away from "trial and error" and toward targeted therapies that work for a person’s unique biology. #NationalDNADay #EpilepsyAwareness

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Brain Ablaze @brainablaze.bsky.social · 30/03/2026

Effective epilepsy advocacy starts with a strong partnership in the exam room. Today we celebrate the neurologists and epileptologists who don't just treat a condition, but see the person behind the diagnosis. #NationalDoctorsDay #EpilepsyAwareness

Just think how awesome someone must be if there is an army of doctors lining up to study their brain?

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Brain Ablaze @brainablaze.bsky.social · 26/03/2026

Wait, does celebrating #PurpleDay2026 mean we're celebrating #epilepsy? No. Of course not. We're celebrating the community of people who have it, our doctors and caregivers who help us, and the advocates who give their voice. Our strength is in our numbers. #EpilepsyAwareness

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Brain Ablaze @brainablaze.bsky.social · 17/02/2026

Happy Lunar New Year! How will you raise #EpilepsyAwareness in the Year of the Horse?

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Brain Ablaze @brainablaze.bsky.social · 08/02/2026

An estimated 3.4 MILLION people in the USA live with #epilepsy. 🧠 To put that in perspective: that’s enough to fill EVERY #NFL stadium in the country all at once 1.5 times over! #EpilepsyAwareness #SuperBowl

A football stadium is filled with a purple crowd.

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Brain Ablaze @brainablaze.bsky.social · 07/02/2026

February is #RareDiseaseMonth! While #epilepsy itself is not rare (affecting 1 in 26 people), there are hundreds of rare Epilepsies (like #Dravet Syndrome, #LGS, or #CDKL5) that require specialized care and unique research. #EpilepsyAwareness

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Brain Ablaze @brainablaze.bsky.social · 04/02/2026

While cannabis (i.e. CBD) has become a vital tool for some people with #epilepsy, it is often surrounded by "miracle cure" rhetoric that doesn't match the reality of living with the condition. -- Has cannabis been suggested for your seizures? #EpilepsyAwareness #NationalHempDay

"Still NOT a cure" next to a hand holding a cannabis leaf.

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Brain Ablaze @brainablaze.bsky.social · 26/01/2026

1/26 is a great day to remind everyone that 1 in 26 people will be diagnosed with #epilepsy sometime in their lifetime. Are you in 1 in 26? #EpilepsyAwareness

A purple butterfly flies next to the words "Epilepsy Awareness" on a teal background.

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Brain Ablaze @brainablaze.bsky.social · 12/01/2026

Shoutout to any pharmacist who knows their patients by name and understands that for someone with #Epilepsy, a "delayed refill" isn't just an inconvenience but a safety risk. We appreciate all that you do to help us! #NationalPharmacistDay #EpilepsyAwareness

A purple, heart-shaped pill sits on a stack of white ones.

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Brain Ablaze @brainablaze.bsky.social · 11/01/2026

Living with #Epilepsy means accepting that "zero risk" doesn't exist. If we wait for a 100% guarantee of safety to start living, we would never leave the house. -- How good are you at calculating risks while also living a fulfilling life? #EpilepsyAwareness

The numbers that are usually red on a roulette wheel are purple in a black-and-white world.

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Brain Ablaze @brainablaze.bsky.social · 04/01/2026

It's #NationalTriviaDay! What is a piece of trivia about #epilepsy that most people wouldn't know? #EpilepsyAwareness

National Trivia Day -- A piece from Trivial Pursuit sits on a table of question marks.

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Brain Ablaze @brainablaze.bsky.social · 01/01/2026

Happy Birthday to us! Did you know that Brain Ablaze was created in 2020 out a New Year's resolution? -- What resolutions have you made for 2026? #EpilepsyAwareness

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Brain Ablaze @brainablaze.bsky.social · 25/12/2025

We hope anyone who's celebrating, a very merry and peaceful #Christmas Day! We hope your day is filled with connections and simple joys.

A purple ornament hangs on a decorated xmas tree.

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Brain Ablaze @brainablaze.bsky.social · 20/12/2025

Do you have any advice for anyone planning to share details about their #epilepsy (or seizures) to their friends and family this holiday season? #EpilepsyAwareness

A person wearing a purple coat talks to another person in a black-and-white world.

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Brain Ablaze @brainablaze.bsky.social · 18/12/2025

Wishing a very Happy Birthday to the late, great Judy Heumann! As the "Mother of the Disability Rights Movement," her fierce advocacy paved the way for laws like Section 504 and the ADA changing the lives of all Americans with #epilepsy. Thanks Judy! #EpilepsyAwareness

A picture of Judy Heumann advocating for disability rights in the 1970s. She says "Change never happens at the pace we think it should. It happens over years of people joining together, strategizing, sharing, and pulling all the levers they possibly can."

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Brain Ablaze @brainablaze.bsky.social · 17/12/2025

A Christmas Carol is the definitive holiday narrative. While there's no direct evidence that Dickens had #epilepsy, many researchers think that he did because of intimate descriptions of seizures in his novels. -- What's your favorite version of this story? #EpilepsyAwareness

The title page for 'A Ghost Story of Christmas' surrounded by purple xmas decorations.

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Brain Ablaze @brainablaze.bsky.social · 14/12/2025

Wishing everyone celebrating a warm and joyous first night of Hanukkah! May the first candle bring light, hope, health, and happiness to your home. #EpilepsyAwareness

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Brain Ablaze @brainablaze.bsky.social · 05/12/2025

Hey, we never said people with #epilepsy should stop using a bathtub, just stop using them alone. 😘 #BathtubPartyDay #EpilepsyAwareness

A purple ribbon superimposed on purple bubble bath water.

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Brain Ablaze @brainablaze.bsky.social · 03/12/2025

As part of the global disability movement, the #Epilepsy community we unite in our celebration of International Day of Persons with Disabilities. -- What simple change would make your life with disability easier? #EpilepsyAwareness #IDPD

International Day of Persons with Disabilities -- silhouettes of people with disabilities hold hands above a purple background. One silhouette uses a wheel chair, while others express invisible disabilities.

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Brain Ablaze @brainablaze.bsky.social · 02/12/2025

Don't be surprised if your doctor prescribes an anti-seizure med for another condition. Many "dual-purpose" meds can be prescribed for Bipolar Disorder, Trigeminal Neuralgia, Migraines, or Anxiety. -- Is your anti-seizure med often used for other conditions? #EpilepsyAwareness

A purple ribbon is super imposed on a pile of pills.

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Brain Ablaze @brainablaze.bsky.social · 17/11/2025

Today is National Epilepsy Day in India. We appreciate the opportunity to help to raise #EpilepsyAwareness globally!

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Brain Ablaze @brainablaze.bsky.social · 11/11/2025

The #Epilepsy community owes an even larger, profound debt to our veterans. The surge of Service Members returning from war with Post-Traumatic Epilepsy (PTE) due to TBI has driven leaps in Epilepsy research funding. #VeteransDay #EpilepsyAwarenessMonth #NEAM

A statue of Vietnam-era soldiers with purple ribbons.

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Brain Ablaze @brainablaze.bsky.social · 29/10/2025

When a stroke damages brain tissue, the resulting scar tissue can become an area of seizure generation. This means stroke survivors, particularly those over 60, face a much higher risk of developing #epilepsy later on. #WorldStrokeDay #EpilepsyAwareness

World Stroke Day - 80% of stroke is preventable. Know the signs and act F.A.S.T - Face drooping. Arm pain. Speech slurring. Time to call 911.

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Brain Ablaze @brainablaze.bsky.social · 20/10/2025

Despite medical advances, there is currently no global cure for #epilepsy. #EpilepsyAwareness

Two speech bubbles. The first "You STILL have that!?". The second "Yeah. I mean Epilepsy is a chronic illness without a known cure."

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Brain Ablaze @brainablaze.bsky.social · 09/10/2025

While diagnosis of #epilepsy is common in children, it is NOT just a childhood disease. It can affect anyone of any age. #EpilepsyAwareness

In a black-and-white world, a mature woman holds a kid in her lap. Both are smiling to the camera while wearing purple dresses.

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Brain Ablaze @brainablaze.bsky.social · 08/10/2025

No one is perfect. What is a mistake you've made while dealing with #epilepsy? #EpilepsyAwareness

A purple shoe is about to step on a banana peel.

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Brain Ablaze @brainablaze.bsky.social · 07/10/2025

On this day in 1849, the world lost the Master of the Macabre, Edgar Allan Poe. While we will never know for sure, some researchers think that Poe may have had #epilepsy based on the descriptions of seizures he added to his works. -- Which is your favorite of his stories? #EpilepsyAwareness

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Brain Ablaze @brainablaze.bsky.social · 19/06/2025

Life with #epilepsy often means the unpredictable can become an emergency in an instant. -- Have you ever had an emergency because of your Epilepsy (or seizures)? #EpilepsyAwareness

A man wearing scrubs stands in front of an glowing EMERGENCY sign.

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Brain Ablaze @brainablaze.bsky.social · 11/06/2025

Living with Temporal Lobe Epilepsy (or #TLE) can mean unique experiences like déjà vu, unusual smells/tastes, or feelings of fear before a seizure. DYK #TLE is the most common form of focal #epilepsy? #EpilepsyAwareness

The temporal lobe is highlighted purple in a black-and-white figure of the brain.

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Brain Ablaze @brainablaze.bsky.social · 09/06/2025

Did you know that 1 in 10 people will have a seizure sometime in their life? Seizures are incredibly common. -- In what year did you have your first seizure? Did doctors think it was Epilepsy right away or something else? #EpilepsyAwareness

Two hands are displayed in front of a 10. One of the fingernails is painted purple.

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Brain Ablaze @brainablaze.bsky.social · 18/05/2025

Ian Curtis, the lead singer for Joy Division, took his own life today in 1980 after struggling with #epilepsy and #depression. Joy Division / New Order have been nominated to the Rock and Roll Hall of Fame in 2025. -- If you're struggling, please reach out. #EpilepsyAwareness #SuicidePrevention

Ian Curtis on the cover of Joy Division album.

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Brain Ablaze @brainablaze.bsky.social · 17/05/2025

Epilepsy is a great friend-filter. If you want to know if someone is looking for a long-term friendship, reveal to them that you have #Epilepsy. If they stay, you'll be friends forever. If they leave, you'll quickly realize they were never friend material in the first place. #EpilepsyAwareness

Two friends lay on the hood of a car. One wears a purple sweater.

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Brain Ablaze @brainablaze.bsky.social · 15/05/2025

We're trying to raise #EpilepsyAwareness on most platforms but prompting the community to speak about their experiences. What aspects of #Epilepsy would you like us to cover?

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Brain Ablaze @brainablaze.bsky.social · 13/05/2025

#Disability is far more common than people may think. One in 4 U.S. adults – 61 million Americans – have a disability that impacts major life activities. -- How does your disability affect your life? #EpilepsyAwareness #DisabilityRights

Two figures. One uses a wheelchair. The other stands but wears a purple ribbon.

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Brain Ablaze @brainablaze.bsky.social · 07/05/2025

Affordable public transport isn't a luxury, it's a lifeline for many with #epilepsy who may have driving restrictions. -- Is public transport widely-available where you live? What advice would you give to another person with #epilepsy about how to best utilize public transport? #EpilepsyAwareness

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Brain Ablaze @brainablaze.bsky.social · 06/05/2025

Nurses are often ignored, but today we celebrate their unwavering commitment to our health and well-being! -- How has a nurse helped your adaptation to #epilepsy? #NationalNursesDay #EpilepsyAwareness

A mosaic of different nurses. "Join un in Thanking all of the nurses that helped so many!"

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Brain Ablaze @brainablaze.bsky.social · 03/05/2025

Happy #NationalFitnessDay! Staying active can be a powerful tool for overall well-being, even with #epilepsy. -- How do you keep fit? #EpilepsyAwareness

A mosaic of purple figures playing different types of sports and exercising.

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Brain Ablaze @brainablaze.bsky.social · 02/05/2025

That post-seizure fog and exhaustion are brutal enough. When a #migraine decides to join the party? It's a reminder of how intertwined neurological conditions can be. -- Do you get migraines? #EpilepsyAwareness

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Brain Ablaze @brainablaze.bsky.social · 01/05/2025

Celebrating #NationalDayofReason by advocating for evidence-based approaches to dispel the myths of #epilepsy. -- What is a myth about Epilepsy you've heard? #EpilepsyAwareness

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Brain Ablaze @brainablaze.bsky.social · 13/04/2025

If you ever witness a convulsive seizure DO NOT put something in the person's mouth. It's physically impossible to swallow our tongue and we need that airway open. -- What's another myth about seizure first aid you've heard? #EpilepsyAwareness More on first aid: brainablaze.com/the-brain-ab...

A black-and-white first aid case has purple lettering.

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Brain Ablaze @brainablaze.bsky.social · 10/04/2025

How good are you about welcoming genuine questions about your #epilepsy (or #seizures)? Curiosity is good, and it is often a gateway to useful discussions about accessibility, rights, and treatments. #EpilepsyAwareness

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Brain Ablaze @brainablaze.bsky.social · 05/04/2025

We all know that people with disabilities are afforded the same equal rights as anyone else, but it wasn't always this way. On this day in 1977 #disabled protesters occupied federal buildings throughout the nation demanding the signing of the 504 Rehabilitation Act. #504SitIn #DisabilityRights

Two black and white shots of disabled protestors demanding the signing of the 504.

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Brain Ablaze @brainablaze.bsky.social · 02/04/2025

Just like #Epilepsy, symptoms of #autism are wide and vary per person. There's little known about why Epilepsy is more prevalent in people with autism. Understanding the complexities of both conditions is a must to support either. -- Has anyone suggested you may have autism? #EpilepsyAwareness

World Autism Awareness Day. -- A group of people form a circle with the text "It's Okay to be Different" in the middle.

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Brain Ablaze @brainablaze.bsky.social · 31/03/2025

We get it: US healthcare costs can drive people to social media for advice. But please, DON'T. Your doctor's expertise is worth it. Social media is NOT a medical expert. -- Do people often send you #epilepsy advice from the Internet? #EpilepsyAwareness

Please don't take medical advice from the internet, social media, or artificial intelligence. -- A purple doctor symbol sits on an array of ones and zeros.

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Brain Ablaze @brainablaze.bsky.social · 26/03/2025

Epilepsy is a common neurological condition where brain activity causes unprovoked seizures. Today, #PurpleDay, is a global event where the estimated 65 MILLION people with Epilepsy worldwide come together to celebrate our community and raise #EpilepsyAwareness.

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Brain Ablaze @brainablaze.bsky.social · 21/03/2025

Did you know? Stroke can damage brain tissue, increasing the risk of developing #epilepsy. Post-stroke seizures are more common than many realize. Remember FAST for #stroke: Face drooping, Arm weakness, Speech difficulty, Time to call 911. Act quickly if you see these signs! #EpilepsyAwareness

The text "FAST" is overlayed on a person on a purple and red motorbike. Purple is the color for Epilepsy. Red is the color for stroke.

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Brain Ablaze @brainablaze.bsky.social · 17/03/2025

A bit o' luck to you today! How are you going to celebrate #stPatricksDay2025? We hope you stay safe and your day remains seizure-free. #EpilepsyAwareness

A purple bow is covered in four-leaf clovers.

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Brain Ablaze @brainablaze.bsky.social · 16/03/2025

On this day in 1751, President James Madison was born. We all know he was a key Founding Father is often called the "Father of the Constitution", but did he have #epilepsy? Don't know, but he did journal his many "epileptic" events. #EpilepsyAwareness More info: brainablaze.com/the-brain-ab...

A purple bow overlays the official portrait of President James Madison next to the cover page of the The Federalist Papers.

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Brain Ablaze @brainablaze.bsky.social · 15/03/2025

Idiopathic #epilepsy means the cause of seizures is unknown. It doesn't mean it's less real or less challenging. It just means that with no known cause, it may harder for a talented neurologist to pinpoint triggers or tailor treatment. -- Is your epilepsy idiopathic? #EpilepsyAwareness

A purple glowing question mark on an abstract background.

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