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Bleeding Disorders Manitoba @bleedingdisordrsmb.bsky.social · 12/10/2026

Happy Thanksgiving! We are thankful for all the hard work done by members, past and present, and our amazing volunteers as we continue to improve the lives of Manitobans managing inherited bleeding disorders.

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Bleeding Disorders Manitoba @bleedingdisordrsmb.bsky.social · 17/09/2026

The September Chapter newsletter is now available! tinyurl.com/3bpc2kra

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Bleeding Disorders Manitoba @bleedingdisordrsmb.bsky.social · 14/09/2026

We are settling into the new the school year! What do you do to prepare your child with a bleeding disorder for school? Medical ID jewelry? Treat First/Factor First card? How did that change as they got older? Your answer could help a new family!

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Bleeding Disorders Manitoba @bleedingdisordrsmb.bsky.social · 11/09/2026

The Chapter's 16th annual Grey Cup Pool fundraiser has started! Tickets are now available. Call 204.775.8625 or email info@hemophiliamb.ca. We'd be happy to sell you some! Support Manitobans with bleeding disorders. GO BOMBERS GO

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Bleeding Disorders Manitoba @bleedingdisordrsmb.bsky.social · 15/08/2026

Thank you to all our supporters, members and volunteers who made 2026 our best golf tournament! We have a date for 2027! The Bleeding Disorders Manitoba golf tournament will be at Bel Acres on Thursday, July 29th! Check out the photos: tinyurl.com/yem9rsnz

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Bleeding Disorders Manitoba @bleedingdisordrsmb.bsky.social · 05/08/2026

A week ago today we were gifted the use of the delivery van from Your Grocery People in Niverville to take out all the supplies for the golf tournament. What a game changer! Thanks John and thanks to everyone who helped!! Stay tuned for more from the tournament...

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Bleeding Disorders Manitoba @bleedingdisordrsmb.bsky.social · 29/07/2026

Tomorrow is the big day!! Thank you so much to the planning committee: Aimee Veldkamp, Kevin Dudych, Jacob Figler and Tony Tavares. Thank you to our amazing sponsors and golfers. We have a record number of teams this year! Grateful for the volunteers and Cory in the office.

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Bleeding Disorders Manitoba @bleedingdisordrsmb.bsky.social · 22/07/2026

The Chapter's July e-newsletter is now available! tinyurl.com/CHS-MCJuly2026

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Bleeding Disorders Manitoba @bleedingdisordrsmb.bsky.social · 10/07/2026

We are looking forward to a great day! We still have some spots left. Join us and support Manitobans with inherited bleeding disorders. Register now: tinyurl.com/yem9rsnz

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Bleeding Disorders Manitoba @bleedingdisordrsmb.bsky.social · 02/07/2026

#ThankYouThursday to Katherine and Bruce Cameron for hosting the annual Grey Cup Pool sorting party! It's early but now we can sell tickets at the upcoming golf tournament.

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Bleeding Disorders Manitoba @bleedingdisordrsmb.bsky.social · 30/06/2026

Looking forward to Canada Day and closing a bit early on Friday!

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Bleeding Disorders Manitoba @bleedingdisordrsmb.bsky.social · 24/06/2026

The June CHS-MC newsletter is now available. tinyurl.com/2jz8b676

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Bleeding Disorders Manitoba @bleedingdisordrsmb.bsky.social · 11/06/2026

#ThankYouThursday to Arne's Welding Ltd for supporting the golf tournament with a Gold Sponsorship! Join us and all our great sponsors in helping Manitobans with inherited bleeding disorders at our upcoming tournament on July 30th. tinyurl.com/CHSMCGolf

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Reposted by Bleeding Disorders Manitoba

International Society on Thrombosis and Haemostasis @isth.org · 11/06/2026

Award season is here at ISTH! Every breakthrough, discovery and career milestone is built on the dedication of researchers, clinicians, educators and mentors who move our field forward. Join us as we celebrate the individuals whose impact continues to strengthen our community

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Bleeding Disorders Manitoba @bleedingdisordrsmb.bsky.social · 11/06/2026

Chapter mail has a new home! We are making sure we won't miss any correspondence by having mail forwarded. Please update your address book! #winnipeg #manitoba #bleedingdisorders #hemophilia #vonwillebrands #platelettedysfunction #raredisorders

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Bleeding Disorders Manitoba @bleedingdisordrsmb.bsky.social · 03/06/2026

Thank you to the Women's Health team at LifeSmart Medical on Osborne for inviting us to present at your lunch and learn, yesterday. Thank you to Milena Pirnat, for all your hard work on the presentation. We welcome invitations to do presentations.

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Bleeding Disorders Manitoba @bleedingdisordrsmb.bsky.social · 22/05/2026

Happy Friday! Big thanks to Bev Jones and Donna Wolanski for the CHS-MC Golf tournament prizes. Big thanks to the growing list of volunteers. We are far from done, but we still have lots of time! Can you help us? Here is how you can contribute: tinyurl.com/mwteuyep

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Bleeding Disorders Manitoba @bleedingdisordrsmb.bsky.social · 11/05/2026

Can you help us? We are looking for volunteers for the July 30th golf tournament and for prize donations. Details and prize suggestions can be found at: tinyurl.com/mwteuyep

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Bleeding Disorders Manitoba @bleedingdisordrsmb.bsky.social · 09/05/2026

The May Chapter Update newsletter is now in the NEWS section of the Chapter website. tinyurl.com/3kscy9ar

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Bleeding Disorders Manitoba @bleedingdisordrsmb.bsky.social · 21/04/2026

Thank you to everyone who came to the AGM last Saturday. We are pleased to share with you the Chapter's 2026/2027 Board of Directors. You can find Board profiles at: tinyurl.com/mrytat64 We are looking forward to the coming year!

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Bleeding Disorders Manitoba @bleedingdisordrsmb.bsky.social · 17/04/2026

Join us in celebrating World Hemophilia Day! The 2026 theme reflects the ongoing challenges to accessing a diagnosis all over the world. At home we are working to improve access to women and girls with inherited bleeding disorders.

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Bleeding Disorders Manitoba @bleedingdisordrsmb.bsky.social · 14/04/2026

Join us for the CHS-MC AGM this Saturday! We will be in the Fireside room at the RA Steen Community Centre. Come and make new friends and visit with old friends! Follow the link to the registration. tinyurl.com/mte8rens

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Bleeding Disorders Manitoba @bleedingdisordrsmb.bsky.social · 10/04/2026

Thank you to the members who made volunteer award nominations. We are very lucky to have so many amazing people working on behalf of the bleeding disorders community in Manitoba. Join us at the AGM to celebrate these amazing volunteers! Register: tinyurl.com/mte8rens

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Bleeding Disorders Manitoba @bleedingdisordrsmb.bsky.social · 09/04/2026

#ThankYouThursday to our golf tournament Silver Sponsor, Central Hydronics! We are grateful to Grant and Heather for their long-time support of the Chapter. Central Hydronics will receive the Chapter's Corporate Recognition Award at the July 30th tournament! tinyurl.com/yem9rsnz

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Bleeding Disorders Manitoba @bleedingdisordrsmb.bsky.social · 07/04/2026

CHS-MC is accepting resumes for the position of Office Coordinator & Executive Facilitator. Full job posting and details are found on our website: tinyurl.com/5c227hfv

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Bleeding Disorders Manitoba @bleedingdisordrsmb.bsky.social · 02/04/2026

#ThankYouThursday to our golf tournament Gold Sponsor, PlayNow Manitoba! We are so pleased to have you back for the 2026 tournament. For all the tournament information please visit tinyurl.com/yem9rsnz

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Bleeding Disorders Manitoba @bleedingdisordrsmb.bsky.social · 01/04/2026

Wondering what a CHS-MC Board member will be working on for the next four years? These are exciting times and this is the perfect time for new voices on our Board of Directors. Read the 2026-2030 strategic plan: tinyurl.com/2dxauu7x

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Bleeding Disorders Manitoba @bleedingdisordrsmb.bsky.social · 01/04/2026

CHS-MC Board nominations close at the end of day on Saturday April 4th. Information about Board elections and the nomination form is in the link. tinyurl.com/4p3tam4f Please call the office if you'd like to talk about it! 204.775.8625

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Bleeding Disorders Manitoba @bleedingdisordrsmb.bsky.social · 31/03/2026

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Bleeding Disorders Manitoba @bleedingdisordrsmb.bsky.social · 30/03/2026

Tomorrow, the 31st, is your last chance to show a volunteer some love! Volunteers are essential to providing programs and services to Manitobans with inherited bleeding disorders. tinyurl.com/mv3pnhda

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Bleeding Disorders Manitoba @bleedingdisordrsmb.bsky.social · 27/03/2026

The March Women and Girls with Bleeding Disorders newsletter is now in the NEWS section of the Chapter website. tinyurl.com/m74rw2u4

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Bleeding Disorders Manitoba @bleedingdisordrsmb.bsky.social · 25/03/2026

Summer will come and we are busy getting ready for the 2026 Golf Tournament in support of Manitobans managing inherited bleeding disorders. This year will be bigger and better! Don't miss out and register early! tinyurl.com/yem9rsnz

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Bleeding Disorders Manitoba @bleedingdisordrsmb.bsky.social · 24/03/2026

Nomination Deadline is March 31st! Everything CHS-MC does is fueled by member volunteers, our friends and family. Acknowledge the important work of Chapter volunteers! Please consider making an award nomination. tinyurl.com/mv3pnhda

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Bleeding Disorders Manitoba @bleedingdisordrsmb.bsky.social · 12/03/2026

The 2026 CHS-MC AGM will be in the Fireside room at the RA Steen Community Centre at 10 am on April 18th. Registration and all the info at: tinyurl.com/mte8rens

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Bleeding Disorders Manitoba @bleedingdisordrsmb.bsky.social · 04/03/2026

The 2026 CHS-MC AGM is April 18th! Follow the link to the registration, description of the Board elections and nomination forms as well as the form for volunteer award nominations. This is an important meeting. Don't miss out! tinyurl.com/mte8rens

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Reposted by Bleeding Disorders Manitoba

North American Society of Pediatric and Adolescent Gynecology @naspag.bsky.social · 12/01/2026

Bleeding disorders are commonly diagnosed in patients presenting with heavy menses at menarche. Check out this month's PAGWebEd Case to review the appropriate work up in the adolescent presenting with heavy menstrual bleeding. #naspag #residenteducation #heavymenses #bleedingdisorder

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Reposted by Bleeding Disorders Manitoba

RAAAAAAHHH-dish Doodles 🔪 @radishdoodles.bsky.social · 21/10/2024

Shouting into the bluesky void to see who else has #hemophilia or #vonwillebrandsdisease or another #bleedingdisorder hi! I have type 3 vWD! I self inject blood products and deal with the usual joint bleeds and soft tissue bleeds. Reach out if you wanna be pals :)

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Bleeding Disorders Manitoba @bleedingdisordrsmb.bsky.social · 02/03/2026

The February Chapter Update e-newsletter was published last Friday. Lots of good information! tinyurl.com/4ahzykap

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Bleeding Disorders Manitoba @bleedingdisordrsmb.bsky.social · 27/02/2026

The membership is lucky to have so many dedicated people who work to help the community. Please consider making an award nomination. Deadline for nominations is Tuesday, March 31st. tinyurl.com/mv3pnhda

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Reposted by Bleeding Disorders Manitoba

MP Ryan Turnbull 🇨🇦🇺🇦 @turnbullwhitby.bsky.social · 26/02/2026

Men’s health matters—and for too long, stigma has kept too many men and boys from getting the support they need. When men’s physical and mental health challenges go unspoken, families, workplaces, and communities feel the impact.

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Shematologist, MD @shematologist.medsky.social · 26/02/2026

PSA: if you have chronic fatigue and have never had your ferritin checked, please do so. And look at the actual value because the reference range is likely trash. It should be at minimum 30 and ideally 50+ Thank you for your attention.

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Bleeding Disorders Manitoba @bleedingdisordrsmb.bsky.social · 25/02/2026

CHS-MC is looking for volunteers with an interest in golf and/or fundraising to help us with the Chapter's 2026 golf tournament, our most significant fundraiser. To continue growing the event, we need more help! Would you join us? Contact the office at info@hemophiliamb.ca.

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Reposted by Bleeding Disorders Manitoba

ProfMakris @profmakris.bsky.social · 20/11/2024

So we now have two "rebalancing" agents, both anti-TFPI products approved for #hemophilia treatment. Both did well in the phase 3 trials. We will need to monitor them closely to see if their safety is maintained in patients undergoing surgery, those with malignancy and those with severe sepsis.

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Hematology Advisor @hematologyadvisor.bsky.social · 13/01/2026

After a single infusion of fidanacogene elaparvovec, a majority of patients with #hemophiliaB reported that their impression of life with #hemophilia was “greatly improved” and demonstrated gains in health-related QoL measures. From @jthjournal.bsky.social. bit.ly/49kPq0D

bit.ly

Patients With Hemophilia B Report Improvement in QoL After Gene Therapy

A majority of patients with hemophilia B reported that their impression of life with hemophilia was “greatly improved” after gene therapy with fidanacogene elaparvovec.

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Reposted by Bleeding Disorders Manitoba

European Haemophilia Consortium @ehc-news.bsky.social · 19/02/2026

📢 The EHC Public Policy Review (PPR) is out! Covering #EUHealthPolicy developments from Jan 2025 to Jan 2026, it breaks down what matters most for the #BleedingDisorders community — pharma reform, #EHDS, #HTA, #CriticalMedicinesAct, EU Biotech Act & social care. 📖 buff.ly/vIIDSak

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Bleeding Disorders Manitoba @bleedingdisordrsmb.bsky.social · 15/01/2026

The CHS-MC January Chapter Update is now available! tinyurl.com/z2amz82a

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Bleeding Disorders Manitoba @bleedingdisordrsmb.bsky.social · 12/01/2026

Please note that while we will have access to email and will do our best to help from afar, expect delays.

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Bleeding Disorders Manitoba @bleedingdisordrsmb.bsky.social · 05/01/2026

Make sure to sign-up for the CHS Town Hall! We have a lot of news to share with you! Join us in a virtual Town Hall on January 22 to hear all about the new initiatives coming up for the CANADIAN HEMOPHILIA SOCIETY. To register: Scan the QR code or: surveymonkey.com/r/CHS-SCH-TownHall

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