iiinova — where your digital self keeps evolving

Alissa Doth @alissadoth.bsky.social · 26/02/2025

Are you looking for social security disability support or private (erisa?) disability support? They might help to narrow down the support or expertise. Best of luck!

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Alissa Doth @alissadoth.bsky.social · 12/02/2025

I am hopeful that some of these trials will yield treatment options for patients with long COVID.

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Eric Topol @erictopol.bsky.social · 12/02/2025

Persistent SARS-CoV-2 virus or its remnants are considered to one of the underpinnings of Long Covid. A new review on the mechanism, candidate treatments, and ongoing trials targeting the virus reservoir www.sciencedirect.com/science/arti...

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Alissa Doth @alissadoth.bsky.social · 02/02/2025

Pubmed returned a 403 error for me and a few colleagues on Tuesday afternoon for about 5 minutes - I hope it was accidental and not related to everything going on with restrictions!

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Alissa Doth @alissadoth.bsky.social · 28/01/2025

My 15 year old is afraid of using AI for school work because their school has equated use AI with cheating. No discussion of appropriate use. It will be hard to unlearn that and consider where it is appropriate to use when the message they are getting is that students can be expelled if they use AI.

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Alissa Doth @alissadoth.bsky.social · 27/01/2025

A home combo test was able to identify a family member's case of Influenza A, and they were able to get a Tamiflu Rx early. Check that "cold" early to see if it's more than that!

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Joyce White Vance @joycewhitevance.bsky.social · 26/01/2025

This is exactly how I feel. It's a moment to practice radical kindness.

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Casey @mamasissiesays.bsky.social · 24/01/2025

So Target got real comfy thinking us millennial moms won’t take our basic girl bits to Costco & Aldi after they cut DEI programs to satisfy the new administration. Big mistake. Huge.

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Alissa Doth @alissadoth.bsky.social · 22/01/2025

I think more people will find you if you keep ME/CFS in the name. If focusing exclusively on studies and science, #1. If going to expand focus to be beyond just science, #2. #3 wouldn't be clear to me that you focus on ME/CFS, and ME Unravelled might be a broad search string that would miss people.

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Alissa Doth @alissadoth.bsky.social · 20/01/2025

Just came back from a work trip to Asia. I love how many masked people were in Tokyo, and to a lesser extent Seoul. Half the people on the train in Tokyo were masked. Back home, I only saw two other masked families out today in Minneapolis even with the COVID / flu / RSV going around.

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Danielle Beckman @daniellebeckman.bsky.social · 14/01/2025

"Dr. Vernon and her team determined that new incidence cases of ME/CFS were 15 times higher than pre-pandemic levels. These findings provide additional evidence that infections, including those caused by SARS-CoV-2, can lead to Myalgic Encephalomyelitis (ME/CFS)." #MECFS #LongCovid

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Alissa Doth @alissadoth.bsky.social · 19/01/2025

For those not familiar with ME/CFS, this is a good intro overview. There are also very good more detailed accounts and research, but this is a nice digestible high-level intro summary we shared with extended family members who thought having long covid just meant a loss of taste or smell.

self.com

What to Know About ME/CFS, a Complex Condition That Involves Crushing Fatigue and So Much More

Above all, it’s important that you don’t push through your symptoms.

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tern @1goodtern.bsky.social · 11/01/2025

Covid infection can cause lasting cognitive impairment, memory issues, clinical anxiety and depression, obsessive behaviour, brain fog, PTSD-like symptoms, insomnia, increased risk of psychosis, mood swings, heightened stress responses. And that's just a taste. Wear a mask.

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Eric Topol @erictopol.bsky.social · 16/01/2025

Important Covid editorial @science.org by Maria Van Kerkhove www.science.org/doi/10.1126/...

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Alissa Doth @alissadoth.bsky.social · 26/12/2024

Hopefully some of these options will help people with ME/CFS-related mitochondrial disfunction.

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Putrino Lab @putrinolab.bsky.social · 22/12/2024

Thank you so much to @marksylvester for inviting me to contribute to this @TEDx Santa Barbara salon, discussing #LongCOVID, the scope of the problem, and what’s to be done next. Appreciate the opportunity to platform these issues on the (virtual) stage 🙏🏻 youtu.be/4XWHLUu6e38?...

youtu.be

Long Covid’s Invisible Toll on Public Health | David Putrino | TEDxSantaBarbaraSalon

YouTube video by TEDx Talks

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WHO @who.int · 24/12/2024

🆕 Special edition of the epidemiological update on COVID-19 with an overview of the situation since the disease was first reported to WHO nearly five years ago. WHO published the first situation report on COVID-19 in January 2020. Read more: 🔗 www.who.int/publications...

COVID-19 epidemiological update – 24 December 2024

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Alissa Doth @alissadoth.bsky.social · 01/12/2024

I mask to protect myself, my family, and my community. Off to replenish my stock from @bonafidemasks.bsky.social! ☺️😷

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Rachel Fairbank @sweetsciencewriter.bsky.social · 20/11/2024

This is an excellent thread by David Putrino, one that I’d like to add to with my own personal and professional experience.

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Jeff Gilchrist @jeffgilchrist.bsky.social · 26/11/2024

Variant trackers are moving their way over here, and there is now a Starter Pack for COVID Variant Trackers if people are interested: go.bsky.app/GXgmcd1 #COVID #SARS-CoV-2 #Variant #Trackers #Omicron

go.bsky.app

SARS-CoV-2 Variant Trackers

Join the conversation

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Eric Topol @erictopol.bsky.social · 14/11/2024

Economic burden of Long Covid in the UK estimated to be >$20 billion per year from real cohort data bmjopen.bmj.com/content/14/1...

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Denise Dewald, MD @denisedewald.bsky.social · 15/11/2024

PSA: 🚨 DO NOT TAKE YOUR MASK OFF INDOORS, even if there is no one else around.🚨 The virus persists in the air for HOURS because #CovidIsAirborne Only take your mask off outdoors, and preferably use an N95 mask. Important potentially lifesaving thread. Please RT. 1/n

Don't remove your mask indoors. Aerosols < 5 micrometers can persist in the air for hours.

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Alissa Doth @alissadoth.bsky.social · 19/11/2024

One of my favorite emails every week is the Long Covid Weekly Newsletter (Substack). I agree with today's issue: we are indeed waiting for treatments. open.substack.com/pub/longcovi...

open.substack.com

Long Covid Weekly #117: LC causing billions of dollars in productivity losses, further research into exercise intolerance causes

Hi everyone

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Alissa Doth @alissadoth.bsky.social · 17/11/2024

I'm so happy to see so many people from the #longcovid and #MECFS community here, including researchers, patients, caregivers, and advocates. Lots of folks I followed seem to be here now. Let's go!

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