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Autistic Experiences of Breast Cancer research project @aebcstudy.bsky.social · 20/08/2026

This paper explores the lived experience of ten autistic people who have had a diagnosis of breast cancer and treatment in the UK. Findings identified autism-specific barriers to cancer care. These insights provide HCPs with an understanding of the barriers that exist within cancer care.

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Autistic Experiences of Breast Cancer research project @aebcstudy.bsky.social · 06/08/2026

Thank you also to our Lived Experience Advisory Group who have ensured that this project is rooted in lived experience.

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Autistic Experiences of Breast Cancer research project @aebcstudy.bsky.social · 06/08/2026

Thank you to all our participants who have shared their cancer stories with us, providing insight into what it is like to experience breast cancer as an autistic person, and as a non-autistic person.

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Autistic Experiences of Breast Cancer research project @aebcstudy.bsky.social · 06/08/2026

Quick project update: All our work packages have now been completed and we are busy writing up the studies for publication. More details on those when we have them.

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Reposted by Autistic Experiences of Breast Cancer research project

Autistic Experiences of Breast Cancer research project @aebcstudy.bsky.social · 20/04/2026

Recruitment for our survey is now closed. Thank you to everyone who participated, shared or reposted about the survey. The more people are aware and understand autistic experiences of cancer diagnosis and treatment, the better.

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Autistic Experiences of Breast Cancer research project @aebcstudy.bsky.social · 25/04/2026

Recruitment has now closed. Thank you to everyone who participated, shared or liked our survey posts.

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Autistic Experiences of Breast Cancer research project @aebcstudy.bsky.social · 25/04/2026

Thank you for sharing our post. Unfortunately, our recruitment has now finished.

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Autistic Experiences of Breast Cancer research project @aebcstudy.bsky.social · 20/04/2026

We can then begin to make meaningful change and provide the support that autistic individuals need when dealing with a cancer diagnosis and undergoing treatment.

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Autistic Experiences of Breast Cancer research project @aebcstudy.bsky.social · 20/04/2026

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Autistic Experiences of Breast Cancer research project @aebcstudy.bsky.social · 13/04/2026

This survey is part of the wider Autistic Experiences of Breast Cancer research project and funded by Breast Cancer Now. The project is autistic led and the survey questions have been co-designed with our Lived Experience Advisory Group.

Call for participants.

What is the project about?
This survey is part of the wider Autistic Experiences of Breast Cancer research project. With this part of the project, we are exploring the breast cancer experiences of autistic and non-autistic people who have a breast cancer diagnosis to see if there are any similarities or differences in their experiences.

Who are we looking for?
• Autistic people (diagnosed or self-identify)
• Non-autistic people
• Aged 18 years or older
• Been diagnosed with breast cancer (including DCIS and secondary/metastatic breast cancer)
• Diagnosis and treatment of breast cancer in the UK

What would it involve?
• Filling in an online survey
• This could take around 20-30 mins to complete
• A code word is provided to you and you will be asked for the code word at the start of the survey. This is to help reduce the number of non-genuine participants trying to access the survey, including bots.

Code word and More Information
Code word: tiny bottle
For more information, please scan the QR code or visit aebcstudy.co.uk
Or email aebcstudy@exeter.ac.uk

Lead researcher: Dr Char Goodwin.
University of Exeter, FHLS Psychology Ethics Committee ref: 12200553. psychologyethics@exeter.ac.uk

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Autistic Experiences of Breast Cancer research project @aebcstudy.bsky.social · 13/04/2026

The information sheets are available on the first screen of the survey or can be viewed on our website www.aebcstudy.co.uk The link to the survey is: exe.qualtrics.com/jfe/form/SV_... and the code word is: tiny bottle Deadline to recruitment is 17th April 2026.

exe.qualtrics.com

Autistic Experiences of Breast Cancer survey

A survey to explore autistic and non-autistic experiences of breast cancer for the Autistic Experiences of Breast Cancer research project.

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Autistic Experiences of Breast Cancer research project @aebcstudy.bsky.social · 13/04/2026

Survey still open! We are still recruiting for participants to take part in a survey exploring autistic people and non-autistic peoples’ experiences of breast cancer diagnosis and treatment in the UK to see if there are any differences or similarities in their experiences.

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Autistic Experiences of Breast Cancer research project @aebcstudy.bsky.social · 02/04/2026

To gain access to the survey and code word, please email aebcstudy@exeter.ac.uk The project is autistic led and the survey questions have been co-designed with our Lived Experience Advisory Group. @autisticdoctor.bsky.social @autisticdoc.bsky.social

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Autistic Experiences of Breast Cancer research project @aebcstudy.bsky.social · 02/04/2026

This survey is part of the wider Autistic Experiences of Breast Cancer research project, funded by @breastcancernow.bsky.social . To find out more and to read our information sheets please visit our website www.aebcstudy.co.uk The info sheets are also available on the first screen of the survey.

aebcstudy.co.uk

Autistic Experiences of Breast Cancer

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Autistic Experiences of Breast Cancer research project @aebcstudy.bsky.social · 02/04/2026

Call for participants! We are currently recruiting for participants to take part in a survey exploring autistic people and non-autistic peoples’ experiences of breast cancer diagnosis and treatment in the UK to see if there are any differences or similarities in their experiences.

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Autistic Experiences of Breast Cancer research project @aebcstudy.bsky.social · 01/04/2026

Looking forward to connecting, sharing our work, and learning from this community

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Autistic Experiences of Breast Cancer research project @aebcstudy.bsky.social · 01/04/2026

We’ve just made the move over from X and are glad to be here. We’re the Autistic Experience of Breast Cancer (AEBC) research project, exploring the experiences of autistic individuals diagnosed with breast cancer, with a focus on improving understanding, care, and support.

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