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Adam R Jones

@adamrobertjones.bsky.social
50 followers 30 following 7 posts

Medical communicator helping to make science easier for people to understand. Primarily focused in physiology, haemophilia & related bleeding disorders, clinical trials, & patient advocacy for bleeding disorders, cardiomyopathy, & gene therapy.

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Adam R Jones @adamrobertjones.bsky.social · 13/09/2026
Gandhi was right when he said: “Become the change you want to see”. To create our future we must first align our mindset and habits so that the outcome becomes a natural extension of who we are. Sometimes our bodies fail us but that does not alter the goal, merely the journey toward it.
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Adam R Jones @adamrobertjones.bsky.social · 25/02/2025
What’s the worst thing about living with a #BleedingDisorder? I don’t think there is one thing above all else, but: 1. #SurvivorGuilt 2. #Depression 3. The long, debilitating march of #Arthritis and #PainManagement Are all right up there…
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Reposted by Adam R Jones
Haemnet @haemnet.bsky.social · 04/02/2025
@sawherry.bsky.social is presenting findings on the intergenerational impact of the contaminated blood scandal at the #EAHAD2025 AHP Day Nurses Slam session, 15.30 local time. Read her article in The Journal of Haemophilia Practice: doi.org/10.2478/jhp-... #HemeSky #MedSky #BloodSky
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Adam R Jones @adamrobertjones.bsky.social · 03/02/2025
If you live with a #BleedingDisorder like #Haemophilia, #VWD, etc., then trying to have a “normal” job, education, relationship, or life in general is an up hill struggle every day of your life.
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Reposted by Adam R Jones
Haemnet @haemnet.bsky.social · 03/02/2025
Will you be at #EAHAD2025 Allied Health Professionals Day tomorrow? @katekhair.bsky.social will present results from our GT360 and VWD360 studies. #EAHADCongress #GlanzmannThrombasthenia #vonWillebrandDisease #HemeSky #MedSky #BloodSky
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Adam R Jones @adamrobertjones.bsky.social · 03/02/2025
The world of #UK #HigherEducation at the moment is dancing on a precipice of disaster. Whole departments closing, subjects wiped from existence, staff lay offs everywhere you look. Hold tight everyone, it’s going to be a bumpy ride!
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Reposted by Adam R Jones
Jon Lim, FRCP PhD @drjonlim.bsky.social · 23/11/2024
🎨 In case anyone need… The NIH BioArt Source is an awesome library of *free* professionally drawn illustrations for scientific presentations or figures. Downloadable in HD. Thank you NIH for this invaluable tool 🙏! Check it out 👇 bioart.niaid.nih.gov
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Reposted by Adam R Jones
Haemnet @haemnet.bsky.social · 01/12/2024
Solidarity, support, advocacy #WorldAIDSDay2024
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