iiinova — where your digital self keeps evolving

Haemnet @haemnet.bsky.social · 28/09/2026

Results from our FVIID 360 study are published in Haemophilia journal. #FVIID 360 explored the lived experience of #FactorVII deficiency, focusing in particular on psychosocial wellbeing and quality of life. With our thanks to all who participated. #research #Haemnet #HemeSky #MedSky

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Haemnet @haemnet.bsky.social · 21/09/2026

Immune Thrombocytopenia or #ITP is a rare disease causing low platelet counts, making it harder for blood to clot. This can lead to easy bruising, bleeding, and fatigue. This Global ITP Awareness Week, we join the call for education, research & support for ITP. #Global4ITP #ITPawareness #HemeSky

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Haemnet @haemnet.bsky.social · 16/09/2026

On UK National #FitnessDay we’re thinking about #exercise! Physical activity can have positive benefits for people with #bleedingdisorders. Haemnet's Project GYM resources provide guidance on safe exercise, expert tips on strength training & advice for trainers. #HemeSky #MedSky

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Haemnet @haemnet.bsky.social · 10/09/2026

💡All new articles in Bleeding Disorders: Care & Practice now include a plain language summary. New and forthcoming in #BDCP... 🔗 loom.ly/uIXcNF8 #BDCP #haemophilia #pharmacokinetics #bleedingdisorders #mentalhealth #surgery #inhibitors #emicizumab #prophylaxis #HemeSky #MedSky

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Haemnet @haemnet.bsky.social · 08/09/2026

Does your child have a #bleedingdisorder? Haemnet has new #research studies starting soon and we’re particularly interested in hearing from people with #haemophiliaB and their carers, living in the UK. Get in touch to find out more : loom.ly/vkd8zoE #HemeSky #MedSky

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Haemnet @haemnet.bsky.social · 04/09/2026

For more on living with a bleeding disorder, why not explore our archives? Haemcast is available across podcast platforms, or you can tune in here: loom.ly/A4UWu6M #Haemophilia #VonWillebrandDisease #GlanzmannThrombasthenia #BleedingDisorders #Podcast #HemeSky #MedSky

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Haemnet @haemnet.bsky.social · 26/08/2026

Do you have a #bleedingdisorder? Have you considered taking part in #research? We have new studies starting soon and are particularly interested in hearing from people with #haemophiliaB living in the UK. Get in touch to find out more: loom.ly/vkd8zoE #HaemSky #MedSky

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Haemnet @haemnet.bsky.social · 18/08/2026

🙏 Everything we do around bleeding disorders ultimately comes down to the people who live with them and their families. A huge thank you to everyone who shares their experiences with us in research studies, blogs, #Haemcast and beyond. #livedexperience #bleedingdisorders #research #podcast

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Haemnet @haemnet.bsky.social · 11/08/2026

The #Haemcast #podcast is taking a summer break, but you can still catch up with all episodes so far in our special collaboration with #LFWBD 🎧 loom.ly/A4UWu6M #haemophilia #VWD #vonWillebrandDisease #BleedingDisorders #families #HemeSky #MedSky

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Haemnet @haemnet.bsky.social · 30/07/2026

New #Haemcast episode out today, focusing on what makes parents of children with #haemophilia feel supported — and when they don't. Part of our special family-focused collaboration with #LFWBD. Available widely or at loom.ly/Ye0KIjo #bleedingdisorders #podcast #HemeSky #MedSky

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Haemnet @haemnet.bsky.social · 28/07/2026

300 million globally live with #hepatitis, and hepatitis B & C kill over 1.3 million each year. This includes people impacted by contaminated blood. We're joining the #WorldHepatitisDay 2026 call to break down barriers that slow the global response to hepatitis. . Let's break it down. #HemeSky

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Haemnet @haemnet.bsky.social · 20/07/2026

A warm welcome to new members of the Editorial Board of Bleeding Disorders: Care & Practice: Khalid Al Habaybia, Kara Burge, Samantha Carlson, Cyrus Njuguna Githinji, Keri Norris, Lauren Phillips, Dawn Rotellini, Kelly Tickle. #BDCP #bleedingdisorders #haemophilia #research #HemeSky #MedSky

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Haemnet @haemnet.bsky.social · 14/07/2026

More from our posters on display at #ISTH2026 🇫🇷 🔵 PB 3294: Insights from a wide cohort of adults with #haemophilia who participated in our Learning 2 Live study 🔴 PB 2738 & 2743: More results from GT360, on the impact of living with #GlanzmannThrombasthenia #ISTHCongress

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Haemnet @haemnet.bsky.social · 13/07/2026

🇫🇷 Our posters are up at #ISTH2026, including: PB 2050, outlining an approach for integrating psychosocial care into #haemophilia #genetherapy PB 1432, sharing ELEVATE study insights on the lived experience of switching to #EfanesoctocogAlfa #ISTHCongress #HemeSky #MedSky

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Haemnet @haemnet.bsky.social · 09/07/2026

🇫🇷 Just two days to go until #ISTH2026! Our posters include insights from our ELEVATE study, exploring the expectations and experience of people with severe #haemophilia A before and after switching to Efanesoctocog alfa #prophylaxis. #ISTHCongress #Haemnet #HemeSky #MedSky

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Haemnet @haemnet.bsky.social · 08/07/2026

🇫🇷 It's getting closer...! We're making final preparations for #ISTH2026. Our posters include an evidence-based framework for implementing #haemophilia #genetherapy, including psychosocial care, based on Exigency study findings. #ISTHCongress #Haemnet #HemeSky #MedSky

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Haemnet @haemnet.bsky.social · 07/07/2026

🇫🇷 The countdown to #ISTH2026 continues! Posters include insights from our Learning to Live With Severe #Haemophilia study, identifying patterns of disease burden and quality of life impairment. #livedexperience #research #ISTHCongress #Haemnet #HemeSky

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Haemnet @haemnet.bsky.social · 06/07/2026

🇫🇷We're looking forward to #ISTH2026! Among the posters we're showing are two with more results from our GT360 study on the lived experience of #GlanzmannThrombasthenia. #livedexperience #bleedingdisorders #research #HemeSky #MedSky

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Haemnet @haemnet.bsky.social · 03/07/2026

With one week to go, the countdown to #ISTH2026 is on! Who's going? We look forward to seeing you there! #ISTHCongress #Haemnet #bleedingdisorders #research #HemeSky @moderation.medsky.network

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Haemnet @haemnet.bsky.social · 29/06/2026

In the next #Haemcast collaboration with #LFWBD, parents speak about facing challenges with #haemophilia treatment. On #podcast platforms or listen here: loom.ly/FTDxWVQ #bleedingdisorders #families #HemeSky #BloodSky @moderation.medsky.network

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Haemnet @haemnet.bsky.social · 18/06/2026

What were the top ten most accessed articles in #BDCP last month? From patient goals to shared decision-making, the focus is on patient experience, patient-centred care, quality of life, & haemophilia gene therapy. loom.ly/mXo6ubE #bleedingdisorders #research #HemeSky #BloodSky

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Haemnet @haemnet.bsky.social · 15/06/2026

Just under a month until #ISTH2026! As well as showing posters from studies on patient experiences in #Haemophilia and #GlanzmannThrombasthenia, we're looking forward to hearing about the latest cutting edge science and emerging advances in #BleedingDisorders care. #ISTHCongress #HemeSky #BloodSky

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Haemnet @haemnet.bsky.social · 14/06/2026

Volunteering to donate blood is a humane & generous act that can literally save lives. Our #WorldBloodDonorDay blog looks at its importance to those living with rare & chronic conditions, including bleeding disorders. loom.ly/xqH-kv #BleedingDisorders #blood #plasma #HemeSky #BloodSky

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Haemnet @haemnet.bsky.social · 10/06/2026

Caught up on #Haemcast? The latest episode looks at the experiences of partners of people living with a bleeding disorder. Search 'Haemcast' #podcast platforms or listen here: loom.ly/t0lDAvA #LFWBD #families #bleedingdisorders #haemophilia #vonWillebrandDisease #HemeSky #BloodSky

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Haemnet @haemnet.bsky.social · 04/06/2026

Bleeding disorders are a family affair, as we're hearing in the latest series of #Haemcast. Our video 'No Patient is an Island', based real-life stories, explains why #bleedingdisorders care should be family-focused. Full video: loom.ly/XdXPZDU #families #haemophilia #HemeSky #BloodSky

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Haemnet @haemnet.bsky.social · 28/05/2026

From teamwork & living in the moment to what's missing in terms of support, the next episode in our special #Haemcast collaboration with #LFWBD explores the experiences of partners of people with a bleeding disorder. 🎧 loom.ly/Aag-rjQ #bleedingdisorders #relationships #families #HemeSky

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Haemnet @haemnet.bsky.social · 22/05/2026

Interested to hear about family life with a #bleedingdisorder? 3 episodes of our family-focused #Haemcast series with #LFWBD are now available — and the next is coming soon! Search on your on #podcast platforms or link here loom.ly/A4UWu6M #families #HemeSky #FMSky @medsky.social

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Haemnet @haemnet.bsky.social · 20/05/2026

There's a strong #qualityoflife theme in April's top ten most read articles in Bleeding Disorders: Care & Practice, plus #haemophilia, #genetherapy, a #transgender case study, and the cross-generational impact of #ContaminatedBlood. loom.ly/uIXcNF8 #bleedingdisorders #HemeSky

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Haemnet @haemnet.bsky.social · 12/05/2026

Empowered Nurses Save Lives! On #IND2026, who better to talk to about nurses & bleeding disorders care than Dr @katekhair.bsky.social, who this year received a WFH Volunteer Award. On the #Haemnet blog: loom.ly/K4dPAKs #OurNursesOurFuture #HemeSky

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Haemnet @haemnet.bsky.social · 11/05/2026

Did you know about #IHMBDay on 11 May? Living with heavy periods isn't "just one of those things" or "just part of being a woman". It can have huge impacts on health and quality of life. Individualised, life-stage-relevant care can make a huge difference. #BleedBetter #women #HMB #HemeSky

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Haemnet @haemnet.bsky.social · 07/05/2026

We've loved hearing more poetry from the #LFWBD'Bleeding and Belonging' collection, this time on radio: loom.ly/S4kDcyM. Read the collection here: loom.ly/z2x2Wtc #bleedingdisorders #families #HemeSky @mod.medsky.network

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Haemnet @haemnet.bsky.social · 01/05/2026

What matters most when choosing #haemophilia treatment for a child or yourself? New family-focused #Haemcast episode out now, with #LFWBD. Available on podcast platforms or listen here: loom.ly/A-Xo9A0 #families #podcast #HemeSky @medsky.social

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Haemnet @haemnet.bsky.social · 24/04/2026

Topics in the #BDCP top 10 articles for March include patient experiences of treatment, #haemophilia #genetherapy and quality of life. Explore the archives here: loom.ly/uIXcNF8 #bleedingdisorders #livedexperience #HemeSky @medsky.social

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Haemnet @haemnet.bsky.social · 20/04/2026

🇲🇾 Going to #WFH2026? Bleeding Disorders: Care & Practice's Editor-in-Chief, Maria Santaella, will be there. You can connect with Maria to find out more about the journal via the conference app. #BDCP #bleedingdisorders #Haemnet #HemeSky @medsky.social

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Haemnet @haemnet.bsky.social · 17/04/2026

If you have a bleeding disorder but no diagnosis, how can you access the care & treatment you need? Over 75% of people with bleeding disorders globally aren't diagnosed. On #WorldHemophiliaDay, we're joining the call to improve diagnostic capacity. loom.ly/ZKyP0To #WHD2026 #HemeSky #MedSky

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Haemnet @haemnet.bsky.social · 14/04/2026

‘Diagnosis – First step to care’ is the #WHD2026 theme. Morris Okello was diagnosed with #haemophilia as a teenager. Ahead of #WorldHemophiliaDay on 17 April, find out what diagnosis meant for him: loom.ly/5AMZ2xE #HemeSky @medsky.social

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Haemnet @haemnet.bsky.social · 09/04/2026

We're wishing goodbye & good luck to Mike Holland, who steps down as Haemnet CEO after 13 years. Thank you to Mike for his vision & dedication. We'll continue to work for the benefit of everyone in the #bleedingdisorders community, led by @katekhair.bsky.social

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Haemnet @haemnet.bsky.social · 08/04/2026

New on #Haemcast: members of #LFWBD discuss talking to their children about their #bleedingdisorder — and how their concerns aren't always what you might expect. On podcast platforms, YouTube & here: loom.ly/uvvmvQk #haemophilia #families #children #podcast #HemeSky #MedSky

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Haemnet @haemnet.bsky.social · 03/04/2026

The Haemnet team is taking a short break over Easter. Wishing our clients, colleagues and friends a happy springtime holiday.

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Haemnet @haemnet.bsky.social · 01/04/2026

New episode of #Haemcast out now! Hannah, Mark and Jackie discuss how they talk to their children about their bleeding disorder. In collaboration with Local families with bleeding disorders. 🔗 loom.ly/_Pr-GBk #LFWBD #bleedingdisorders #haemophilia #families #podcast #HemeSky #MedSky

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Haemnet @haemnet.bsky.social · 25/03/2026

Ahead of #WHD2026, we’ve been thinking about its theme: ‘Diagnosis – First step to care’. It put us in mind of our Ugandan friend, Morris Okello, who was diagnosed with haemophilia as a teenager. Find out more about his story here: loom.ly/5AMZ2xE #WorldHemophiliaDay #HemeSky #MedSky

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Haemnet @haemnet.bsky.social · 18/03/2026

Did you tune in to #Haemcast's 'Veins, verse and voices'? Chair of Local families with bleeding disorders, Lisa Steadman, explains more about the poems collected in Bleeding and Belonging, on our blog: loom.ly/8ZBL_9s #LFWBD #bleedingdisorders #families #poetry #podcast #HemeSky #MedSky

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Haemnet @haemnet.bsky.social · 13/03/2026

Presenting the Bleeding Disorders: Care & Practice top 10 articles for February. Patient experience & quality of life continue to feature prominently. Why not explore our archives here: loom.ly/uIXcNF8 #BDCP #bleedingdisorders #research #livedexperience #haemophilia #HemeSky #MedSky

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Haemnet @haemnet.bsky.social · 10/03/2026

The new season of #Haemcast has started! In episode 1, members of Local families with bleeding disorders discuss how poetry helped them explore their experiences, hopes, expectations and worries. 🎧 loom.ly/d6YUipg #LFWBD #bleedingdisorders #families #poetry #podcast #HemeSky #MedSky

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Haemnet @haemnet.bsky.social · 05/03/2026

Out today: the first new #Haemcast, in collaboration with Local families with bleeding disorders! Hear about the poetry workshops that helped #LFWBD members explore their experiences, hopes and fears: 🎧 loom.ly/d6YUipg #bleedingdisorders #families #poetry #podcast #HemeSky #MedSky

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Haemnet @haemnet.bsky.social · 04/03/2026

The new season of #Haemcast is about to launch! We'll be exploring the ups, downs, ins and outs of family life with a rare bleeding disorder in collaboration with Local families with bleeding disorders. loom.ly/ADEZ6qQ #podcast #LFWBD #bleedingdisorders #families #HemeSky #MedSky

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