Design. Longhauler.

#pwME #ME #MEcfs #MEcvs Dutch Retired Granddad

Retired maths teacher. ME/CFS 35 years. Volunteer staff member on Science for ME international forum, www.s4me.info

I occasionally try to explain and comment on ME research, or even contribute to it. And I advocate for more and better research.

ME sufferer from Sweden. Interested in everything that can make us/our situation better. #ME #ME/CFS

Living with ME/CFS since 1983. An advocate since my diagnosis in 1988.

Living with Long Covid. Doing my bit to support UK healthcare workers with Long Covid. Chair of Supporting Healthcare Heroes UK. Associate Member Long Cov

Disabled. Living with severe M.E. Watching the world from the window while bedbound. Excuse typos etc, sometimes the cognitive bits don’t work. Also posting on

Philosophy graduate | former science event organiser | former performance artist | ‘former’ and ‘ex’ at most of everything due to #MEcfs

95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness. With ME/CFS 37 years, severe ME 32 years. @IrishMECFSAssoc trustee 29 years 26 publ

Severe #MECFS for a very long time. Loves nature poetry children hope. Hates arrogance dishonesty injustice.

🍋eugenics leads to fascism🍋LC/ME/MCAS/lupus/endo🍋still with her🍋OG khive🍋smash the motherfucking white supremacist patriarchy on the right AND the left🍋

Biomedical engineer, mathematician, equestrian, thru-hiker and generally outdoorsy - now 99% bedbound with #severeME. I like posts on science, literature, world

Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos. https://linktr.ee/abrokenbattery

Disabled by very Severe Post-COVID ME/CFS. Not always able to use phone. Bedridden. Unable to Speak. I care. Ⓐ💚, (FR/DE/EN, but posts in english) Clinging

ME/CFS and related things. (she/her) I'm also trying out a more lighthearted personal account: @lighterkatiej.bsky.social

We're an independent, patient-led, international discussion forum (www.s4me.info) for people with ME/CFS and carers, clinicians, scientists and advocates who su