Brett Scholz @wingspan.bsky.social · 01/10/2026Crashed a mums and bubs #wildlife party this morning 010
Reposted by Brett ScholzMarita Hennessy @maritahennessy.bsky.social · 06/07/2026From community engagement to lived experience leadership: a systematic review of HIV services among men who have sex with men @aaronharoldp.bsky.social, Elizabeth Waldron, I Nyoman Sutarsa, Mary Lou Rasmussen, Brett Scholz @wingspan.bsky.social academic.oup.com/heapro/artic...academic.oup.comFrom community engagement to lived experience leadership: a systematic review of HIV services among men who have sex with menAbstract. Community responses are essential to achieving the global goal of Ending AIDS by 2030, yet men who have sex with men (MSM) remain underrepresente 142
Reposted by Brett ScholzDebbie Northway 🇦🇺🦘🐨 @debbienorthway.bsky.social · 01/07/2026Hanson is just the tip of the oligarchs’ far-right iceberg theshot.net.au/uncategorize... #auspol #Australia #OneNationtheshot.net.auHanson is just the tip of the oligarchs’ far-right iceberg - The ShotPauline Hanson is a Sunny Boy. A bright orange triangle of highly flavoured ice that delights immature palates. She is... 053
Brett Scholz @wingspan.bsky.social · 10/01/2026All towns should have poutine! (I wish we could get cheese curds in Australia) 020
Brett Scholz @wingspan.bsky.social · 06/01/2026Feel free to check out this paper about #Aphantasia, @notcorry.sciguys.co.uk & @lukecutforth.bsky.social -- it uses a SciGuys transcript as part of the data. Hope you enjoy how meta that is -- SciGuys being used to produce scientific knowledge -- and thanks for giving us a lot to think about! 020
Brett Scholz @wingspan.bsky.social · 06/01/2026I can't help but think how boring the world would be if our minds all 'saw' things the same way. In turn I see #aphantasia as just part of a kaleidoscope of ways that we can imagine. Personally, having phantasia sounds like it would be terribly chaotic (but I'm glad some of you enjoy it!) (4/4) 050
Brett Scholz @wingspan.bsky.social · 06/01/2026I see a growing number of people talking about finding out they have #aphantasia as feeling like they are less-than or 'robbed' of a "richer" imagination; internalising these disordered/deficient/dehumanised tropes. (3/4) 120
Brett Scholz @wingspan.bsky.social · 06/01/2026The International #MadStudies journal (imsj.org) was such a great outlet for this publication because of the long history of how science has colonised human psychology. Where #Aphantasia is concerned, biomedical and psychological research is now even colonising our imaginations. (2/4)imsj.orgInternational Mad Studies JournalVisit the post for more. 130
Brett Scholz @wingspan.bsky.social · 06/01/2026Check out my recent publication (co-authored with my mum!) which explores how #aphantasia is often widely understood as a deficiency, a disorder, or dehumanising. Such understandings were common in social media posts, but also in scientific literature in the field. (1/4) doi.org/10.58544/ims...doi.org Disordered, deficient, and dehumanised: How biomedical and cognitive approaches are limiting our understandings of aphantasia | International Mad Studies Journal 174
Brett Scholz @wingspan.bsky.social · 31/12/2025I always say 明後日 because I didn't know there was an English word for it. We need a word for 明明後日 though... not sure if overovermorrow or overmorrowmorrow would work best... 020
Brett Scholz @wingspan.bsky.social · 23/12/2025Pretty happy finishing up the working year by being recognised in a group email as a relentless voice for lived experience leadership. Honestly feeling like I can log-off for 2025 satisfied now. 040
Brett Scholz @wingspan.bsky.social · 15/12/2025Hi @notcorry.sciguys.co.uk 👋 I just had a paper published that includes extracts of the SciGuys episode transcript on aphantasia as data. I couldn't find a SciGuys contact but would love to send you a copy! Will be sharing the details on here too in due course. 020
Brett Scholz @wingspan.bsky.social · 04/12/2025The Eurovision vote didn't go the way I expected. Its kind of both incomprehensible but also semi-unsurprising. Honestly just devastating to know 2026 is going to be yet another year we can't enjoy celebrating music together. 000
Brett Scholz @wingspan.bsky.social · 04/12/2025Feeling a little worn out (but perhaps not surprised) that the glass ceiling in lived experience leadership we described almost a decade ago (across a range of orgs) is still going strong (as described here in service orgs)... Doi.org/10.1080/01612840.2017.1280106doi.orgBreaking through the Glass Ceiling: Consumers in Mental Health Organisations' HierarchiesContemporary mental health policies call for consumers to be engaged in all levels of mental health service planning, implementation, and delivery. Critical approaches to traditional healthcare hie... 020
Brett Scholz @wingspan.bsky.social · 04/12/2025Great work...and also very sad that these glass ceilings are still so present. We looked at the glass ceiling in lived experience roles nearly a decade now and found they were present across a range of roles (i.e., not just in service roles like these but in academic, policy, and other orgs too) 000
Reposted by Brett ScholzPreeti Chhibber @runwithskizzers.bsky.social · 16/10/2025I'd seen the reporting around Keira Knightley's awful response but wow the video makes it... even worse??? It's so dismissive and callous and that horrible little laugh??? like what the hell?? And the smarmy, "I'm very sorry" in the least apologetic tone I've ever heard in my life. Jfc. 19663187
Brett Scholz @wingspan.bsky.social · 14/10/2025I just read a paper I wanted to cite in a grant application, only to get to the reference list and see that it cites what must be an AI hallucinated paper "written" by me. 🙃 020
Brett Scholz @wingspan.bsky.social · 12/09/2025I haven't managed to catch up with Days 1 and 2 of #PXP25 just yet...but it sounds like I'll need to go through some interesting conversations. This quote from Michelle particularly reminds me of some of our earlier work on pushing back on institutional barriers: doi.org/10.1111/inm....doi.org‘There's just no flexibility’: How space and time impact mental health consumer researchNon-consumer researchers collaborating with consumer researchers can benefit from greater relevance of research and improved congruence between research processes and health policy. As with all resea... 131
Brett Scholz @wingspan.bsky.social · 17/08/2025The NHMRC is seeking feedback on its Draft Statement regarding Consumer and Community Involvement. In this article, I discuss how the Statement falls short in incorporating recent research and addressing current best practice for effective consumer participation: open.substack.com/pub/livedexp...open.substack.comMaking a timid statementAnd how the NHMRC Statement on Consumer and Community Involvement could become more bold and live up to its values 021
Brett Scholz @wingspan.bsky.social · 17/08/2025In the meantime, if you haven't yet, you can read the draft statement here: www.nhmrc.gov.au/about-us/pub... But fair warning -- it devalues lived experiential expertise, and I couldn't help but wonder how we're still moving backwards in 2025.nhmrc.gov.au 030
Brett Scholz @wingspan.bsky.social · 17/08/2025I spent my Sunday morning writing about how the NHMRC & CHF draft Statement on Consumer and Community Involvement in Health and Medical Research draws on outdated ideas that limit consumer involvement. I'll be posting it to the Lived Experience Leadership Substack tomorrow.livedexperienceleadership.substack.comLived Experience Leadership | Brett Scholz | SubstackA monthly reflection on the trends and developments in lived experience leadership across the health sector. Click to read Lived Experience Leadership, by Brett Scholz, a Substack publication. Launche... 281
Brett Scholz @wingspan.bsky.social · 25/07/2025Check out the #pechakucha I presented at ISCHP2025 about the exponential increase in patient involvement (and how we're not really as participatory as we'd like to believe) livedexperienceleadership.substack.com/p/the-expone...livedexperienceleadership.substack.comThe exponential growth of patient involvementMuch ado and not doing much 052
Reposted by Brett ScholzMirre aka Foervraengd @lagomcore.bsky.social · 01/06/2024Nothing says US centric social media as when everyone assume pride month is in june. When thats just the case in the US. Sweden has pride month july/august and some countries have it in december. EVERY MONTH is pride month somewhere in the world. 152
Brett Scholz @wingspan.bsky.social · 03/05/2025Bridget Brennan asking the important questions of the treasurer about Labor's commitments to Indigenous communities...to a somewhat lacklustre answer. Australians showed they don't buy into the exclusion sold by conservatives. Let's hope Labor lean in to the mandate they have been handed #AusVotes 010
Reposted by Brett ScholzAnthony Eaton @anthonyeaton.bsky.social · 03/05/2025Hey Albo, how about fixing the universities now, eh? #auspol #ausvotes #binnight 093
Brett Scholz @wingspan.bsky.social · 03/05/2025In honour of the great work of Antony GREEN @antonygreenelec.bsky.social I made a matcha cheesecake to enjoy while sitting back watching #AusVotes outcomes. 020
Brett Scholz @wingspan.bsky.social · 01/05/2025Have a listen to this latest ISCHP podcast! I had great chat with Wendy Stainton-Rogers about where critical health psychology has been and where it might go next... 000
Reposted by Brett ScholzSimon Katterl @simonkkatterl.bsky.social · 30/04/2025Jane is in Victoria and Chinese Victorians may consider making a public complaint to the Victorian Equal Opportunity and Human Rights Commission. 054
Brett Scholz @wingspan.bsky.social · 27/04/2025Yes - a great Finnish brand. They have some Fazer cafes around the city too. 100
Brett Scholz @wingspan.bsky.social · 27/04/2025I love Fazer chocolates and they always make a nice gift if you don't scoff them all yourself first. Your accommodation will likely have a sauna but also check what saunas are close by and go enjoy! Fave helsinki restaurant: Farang! Although not Finnish...still very tasty! 110
Brett Scholz @wingspan.bsky.social · 07/04/2025I loved having this chat with Gareth Treharne about all things ISCHP. Have a listen to get into the ISCHP spirit ahead of #ISCHP2025 in Galway in 3 months time!! 000
Reposted by Brett ScholzAmante2 AmeliaBee7 @amante2ameliabee7.bsky.social · 31/03/2025Just as Trump cuts billions from U.S. universities and drives leading academics out of the country, Dutton chooses yet another Trump card from the deck. Cash is spot on; Dutton will aim to deliver “exact same” as Trump 3158
Brett Scholz @wingspan.bsky.social · 24/03/2025I really enjoyed this study. Perhaps not surprising, but good to get some data about how lived experience disclosures can show clients that their therapist is “human,” but this may come at the cost that they are no longer viewed as a “professional. 011
Brett Scholz @wingspan.bsky.social · 16/03/2025How bizarre that there is someone out there who thought men would need their own cakes... 000
Brett Scholz @wingspan.bsky.social · 07/03/2025For those of you -- like me -- enjoying a long weekend, maybe this is a nice way to start off the day with your morning coffee. (Actually this morning I had a malted hojicha latte, but you do you). 000
Brett Scholz @wingspan.bsky.social · 07/03/2025This month, I reflect on the use of "lived experience leader" as an identity, and talk about how it's both positive (making #LivedExperienceLeadership visible) and concerning (in how it relates to central tenets of lived experience leadership) livedexperienceleadership.substack.com/publish/post...livedexperienceleadership.substack.comIs ‘Lived Experience Leader’ an identity?Or is lived experience leadership better understood as an action oriented practice? 110
Brett Scholz @wingspan.bsky.social · 07/03/2025so great to hear, and to connect. My next lived experience leadership substack post is scheduled to be published today, so watch this space!! 010
Brett Scholz @wingspan.bsky.social · 07/03/2025ABOUT ME: I post mostly about lived experience leadership in health policy, services, research and education. I don't work from a lived experience perspective myself, but write a lot of academic articles and substack posts about lived experience leadership. I also post about Eurovision and Matcha. 2100
Brett Scholz @wingspan.bsky.social · 07/03/2025So disappointed in how bland the matcha #MeghanMarkle just made looks. It's barely green! 000
Brett Scholz @wingspan.bsky.social · 06/03/2025Gearing up for #ISCHP2025? Make sure you're subscribed to The Operative Word podcast and listen to the first episode of Season 2. We will be talking about where ISCHP has come from and where it might go... 000
Brett Scholz @wingspan.bsky.social · 04/03/2025With Chimamanda Ngozi Adichie's new book out, I've been thinking about how disappointing it is when you can't enjoy previous favourites once you realise they're ignorant and bigoted. Even if a little of me was tempted to read Dream Count, this is a good reminder that it would fund vile causes. 020
Brett Scholz @wingspan.bsky.social · 04/03/2025Yet another reviewer who clearly doesn't understand #qualitative research but feels confident enough to recommend a study be rejected because it doesn't "test" research questions and its "very small" sample. 020
Brett Scholz @wingspan.bsky.social · 01/03/2025I've just submitted my #ISCHP2025 abstract. If you haven't yet...you have a few more days to do so. Don't forget! And looking forward to connecting with others who take a critical approach to health in Galway in July. 001
Brett Scholz @wingspan.bsky.social · 01/03/2025Chanced upon this while searching for posts about ISCHP. It's a great community and conference -- and it is hybrid. Hopefully see you there! (A few more days left before abstracts are due) 010
Brett Scholz @wingspan.bsky.social · 01/03/2025I've just submitted my abstract. Will I be seeing you there? 😁 110
Brett Scholz @wingspan.bsky.social · 28/02/2025Nobody else in the whole room during this presentation seemed to have a single reaction about this #TerribleMap. Although it was surprising that despite moving the Korean peninsula and a whole chunk of South East Asia further into the Pacific, the map DID include Aoetearoa New Zealand somehow. 010
Brett Scholz @wingspan.bsky.social · 20/02/2025This looks like such a great event. Thanks for sharing -- I'm jealous but vicariously excited about all the great conversations I imagine you all having! 000