Reposted by Vanessa CarterAntimicrobial resistance #AMR @antimicrobial.bsky.social · 03/03/2025Patient partners play a vital role in research but face systemic barriers to fair pay. Institutions must match their equity commitments with action—transparent, equitable compensation is long overdue. 0168
Vanessa Carter @vanessacarteramr.bsky.social · 02/03/2025Patient partners aren't study subjects. Patient partner research has a compensation crisis. We must do better to promote equity and ensure that patient partnerships are respected and compensated. Important article below: www.bmj.com/content/388/bmj.r381 #PPIE #PatientsIncluded #AMR 090
Vanessa Carter @vanessacarteramr.bsky.social · 27/02/2025I've said it a few times this week. The new #UNGA political declaration mentions participatory approaches, including patients In the UK, we have the NIHR Involvement Guidance. This should be relevant in all countries Check out their resources: x.com/NIHRinvolvem... #PPIE #PatientsIncluded #AMRx.comLog in to X / XLog in to X to see the latest. Join the conversation, follow accounts, see your Home Timeline, and catch up on posts from the people you know. 1105
Reposted by Vanessa CarterThe British Society for Antimicrobial Chemotherapy @bsacandjac.bsky.social · 25/02/2025Have you heard about the new #TrinityChallenge on #AMR? This time looking for innovative solutions to improve stock control and reduce substandard and falsified oral antibiotics. Apply by 24 April 2025 for a chance to win up to £1 million: solve.mit.edu/challenges/t... #AntibioticEmergencysolve.mit.eduThe Trinity Challenge: Community Access to Effective Antibiotics | MIT Solve 042
Vanessa Carter @vanessacarteramr.bsky.social · 26/02/2025Such a pleasure to join the Biocodex Foundation to share my story about surviving #AMR in November last year. Very interesting presentations around the microbiota and antibiotic resistance from fellow speakers #theAMRnarrative 051
Reposted by Vanessa CarterBiocodex Microbiota Institute @microbiotainst.bsky.social · 25/02/2025Microbiotalk 1st edition on #AMR is online with talks by Vanessa Carter PhD. Elitsa Penkova Prof. Etienne Ruppé Prof. Søren J. Sørensen Edith Odeh Pharma D. Greatman A Owhor In this conference series, experts share insights on #microbiota and this major health challenge Watch👇 bit.ly/3QxLrU4 042
Vanessa Carter @vanessacarteramr.bsky.social · 26/02/2025@bluesky is growing, but I'm worried we lose significant voices on other platforms like X when it comes to reaching patients and the public on matters around #AMR. X=700M users I know SM is a tough battleground, but having a diverse presence is important to patients who are seeking information 221
Reposted by Vanessa CarterWilton Park @wiltonpark.bsky.social · 17/02/2025Thanks so much for joining us, Vanessa. 121
Reposted by Vanessa CarterCARB-X @carb-x.bsky.social · 10/02/2025CARB-X thanks Letícia de Oliveira Batista and Pernilla Rönnholm for sharing their sepsis survivor stories at the CARB-X PD Conference in 2024. Sharing patient stories is key to understanding #AMR and its impact on lives. 🔗 Learn more: SepsisSurvivorWeek.org 011
Reposted by Vanessa CarterWilton Park @wiltonpark.bsky.social · 12/02/2025Antimicrobial Resistance (AMR) is a global health security threat. 🗓️ The fourth dialogue in our AMR series will convene key stakeholders with a focus on actionable steps addressing the health, social, and economic impacts of AMR. 🔗 www.wiltonpark.org.uk/event/reinvi... #AMR #health 112
Reposted by Vanessa Cartersuecharles59.bsky.social @suecharles59.bsky.social · 12/02/2025www.linkedin.com/posts/sue-ch... #amrlinkedin.comSue Charles on LinkedIn: In Conversation with Vanessa Carter and Sue Charles#AMR is an important issue, close to my own heart. Like cancer, we all face antimicrobial resistance impacting us or someone close to us. But what can we do… 011
Reposted by Vanessa CarterPhilip Mathew @pilimat.bsky.social · 28/01/2025New publication in @naturecomms.bsky.social with fantastic co-authors from the Fleming Initiative, @bsacandjac.bsky.social and AMR Narrative Read the comment here: www.nature.com/articles/s41... 094
Reposted by Vanessa CarterAntimicrobial resistance #AMR @antimicrobial.bsky.social · 10/02/2025The WHO #AMR Survivor Task Force remind us: AMR infections don’t discriminate. Their stories are urgent calls for action: better diagnostics, smarter antibiotic use, global collaboration. @vanessacarteramr.bsky.social @theamrnarrative.bsky.social www.insideprecisionmedicine.com/topics/preci...insideprecisionmedicine.comIn Conversation with Vanessa Carter and Sue CharlesAntimicrobial resistance remains a challenging and life-threatening global health problem, despite some progress in tackling the problem over the last decade. Listening to stories from patients who ha... 02011
Vanessa Carter @vanessacarteramr.bsky.social · 09/02/2025Which conferences or meetings do you think are worth attending this year for #AntimicrobialResistance? Let's keep up the momentum after the UNGA. I'm looking for recommendations as a patient survivor and advocate. #AMR 131
Vanessa Carter @vanessacarteramr.bsky.social · 28/01/2025"Participatory Approaches" as highlighted in the 2024 UN Political Declaration for #AMR matter - that includes listening to patients, carers, and the public. Pleased to contribute to this article as an #AntimicrobialResistance survivor 👇 www.nature.com/articles/s41... #theAMRnarrative #PPIE 020
Vanessa Carter @vanessacarteramr.bsky.social · 09/01/2025As this New Year begins, I'm pleased to feature in this Medscape CME resource as a patient with firsthand experience of #AntimicrobialResistance #AMR Read more: www.medscape.org/viewarticle/... #MedEd #PatientsIncluded #theAMRnarrative 041
Reposted by Vanessa CarterNatalie Bennett @nataliegreenpeer.bsky.social · 23/12/2024#AMR in the environment - we need to know _a lot_ more theconversation.com/how-to-detec...theconversation.comHow to detect more antimicrobial resistant bacteria in our waterwaysAntimicrobial resistance is hard to monitor because there’s no standard way to detect it. Here’s how it could be better identified in rivers, streams and seas. 1198
Reposted by Vanessa Cartersuecharles59.bsky.social @suecharles59.bsky.social · 23/12/2024My 1st post! As a member of the @who.int taskforce of #AMR survivors I am pleased to bring the #AMR threat to life through patient stories & lived experiences, to raise awareness & drive action. Wishing you health through the festive period & many happy & healthy years to come, free of infection. 032
Vanessa Carter @vanessacarteramr.bsky.social · 23/12/2024In our first year as the @who.int Task Force of AMR Survivors, we extend our heartfelt gratitude to everyone who has recognised the importance of participatory approaches, by including the voices of patients, carers, and survivors, in addressing #AntimicrobialResistance #AMR #AMRsurvivors 050
Reposted by Vanessa CarterJanice McCallum @janicemc.bsky.social · 13/12/2024Endearing obit honoring Dr. Thomas O'Brien, who cofounded the #@WHO Collaborating Centre for Surveillance of Antimicrobial Resistance, among many other accomplishments. Also, father of Conan. www.bostonglobe.com/2024/12/12/m... #AMR @vanessacarteramr.bsky.socialbostonglobe.comDr. Thomas O’Brien, visionary who addressed dangers of antimicrobial resistance, dies at 95 - The Boston GlobeA physician of endless curiosity and talents, Dr. O'Brien was “the most interesting person I’ve ever met,” said his son, TV talk show host Conan O'Brien, whose parents both died this week. 042
Reposted by Vanessa CarterJanice McCallum @janicemc.bsky.social · 05/12/2024I met @vanessacarteramr.bsky.social at HIMSS about 10 years ago. I greatly admire how she has developed from a "helpless, uninformed patient" to a fierce and effective advocate for other patients via her #AntimicrobialResistance advocacy work. #epatients #AMR 111
Vanessa Carter @vanessacarteramr.bsky.social · 05/12/2024Not realising what the term #AntibioticResistance meant, I was a helpless, uninformed patient who couldn't play an equal role This #WAAW I was grateful to share my story as Chair of the @who.int Task Force of #AMR Survivors youtu.be/GUw6fRhwt3Y?... #AntimicrobialResistanceyoutu.beVanessa’s antimicrobial resistance story (AMR)YouTube video by World Health Organization (WHO) 042
Vanessa Carter @vanessacarteramr.bsky.social · 04/12/2024@pfanderson.bsky.social Thank you for the follow 🙏 😊 💗 110
Reposted by Vanessa CarterThe AMR Narrative @theamrnarrative.bsky.social · 03/12/2024What is #AntimicrobialResistance or #AMR? Watch our video which explains the basics below! youtu.be/S_0XQ5LhA6o?... #theAMRnarrative #GlobalHealth #Healthcare #OneHealthyoutu.beWhat is Antimicrobial Resistance (AMR)? - The AMR NarrativeYouTube video by The AMR Narrative 093
Reposted by Vanessa CarterALS Advocacy @alsadvocacy.bsky.social · 13/11/2024And PLEASE, generous people who are asked to $pon$or health conferences... ask if patients are included before getting out your checkbook. You hold a huge amount of power in getting meeting leaders to see the importance of #patientsincluded ! 053
Vanessa Carter @vanessacarteramr.bsky.social · 03/12/2024Is Patient & Public Involvement on your agenda for #AMR? Useful docs! 👉 #PatientsIncluded Charter: patientsincluded.org @who.int Task Force of AMR Survivors Meaningful Engagement: www.who.int/publications... @nihrarcs.bsky.social INVOLVE: www.nihr.ac.uk/ppi-patient-... #AntimicrobialResistancepatientsincluded.orgPatients Includedcharter archive 000
Vanessa Carter @vanessacarteramr.bsky.social · 03/12/2024Patients helping patients! Thanks to my colleague Joel Nelson, founder of the Psoriatic Disease UK charity, for a lovely interview to share my experience around #AntimicrobialResistance #AMR youtu.be/CGhFOcX-HU8?... ##theAMRnarrative #PatientAdvocacyyoutu.beSurviving Antimicrobial Resistance (AMR)YouTube video by Joel Nelson 031
Vanessa Carter @vanessacarteramr.bsky.social · 03/12/2024When I was 25y, I was a victim of a car accident in #SouthAfrica 🇿🇦 I survived many injuries but the most complex were to my face which resulted in a multidrug-resistant infection Watch my patient story here c/o @stanforduniversity.bsky.social youtu.be/1KyYQfKHLkI?... #AMR #MRSAyoutu.beVanessa Carter: Antibiotic ResistanceYouTube video by Stanford Medicine X 3167
Vanessa Carter @vanessacarteramr.bsky.social · 03/12/2024Antimicrobial Resistance #AMR is a term most people have never heard of before yet it's a global health crisis Our charity, #theAMRnarrative has created a 90-second explainer video to help you grasp the basics youtu.be/S_0XQ5LhA6o?... #AntibioticResistance #AntimicrobialResistance #GlobalHealthyoutu.beWhat is Antimicrobial Resistance (AMR)? - The AMR NarrativeYouTube video by The AMR Narrative 02114
Reposted by Vanessa CarterNatalie Bennett @nataliegreenpeer.bsky.social · 29/11/2024#AMR study a reminder of how little we understand the microbial world. "The study is evidence of an entirely new survival strategy. "E. coli is altering its molecular structures with remarkable precision and in real time. It's a stealthy and subtle way of dodging drugs" phys.org/news/2024-11...phys.org 610818
Reposted by Vanessa CarterNatalie Bennett @nataliegreenpeer.bsky.social · 08/11/2024Introducing myself here - I'm the author of Change Everything with crowdfunding publisher Unbound. If you're in the UK, purchase here supports independent bookshops. Now on second printing www.hive.co.uk/Product/Nata...hive.co.ukChange Everything : How We Can Rethink, Repair and Rebuild SocietyWe are living in a social, political, economic and environmental emergency. The status quo is profoundly unstable; change is inevitable. Now is the time to get together to build a far ... 28377116
Vanessa Carter @vanessacarteramr.bsky.social · 03/12/2024I started on Twitter in 2013, and feel like I'm in a time warp right now on @bsky.app Can anyone share insights around how I link a second account? #BlueSkymedia.tenor.coma man stands in front of a sign that says ' sutton ' on itALT: a man stands in front of a sign that says ' sutton ' on it 020
Reposted by Vanessa CarterAmy Ma - 馬錦華 - Settler on Indigenous land @ctzenimprover.bsky.social · 01/12/2024Some good news for patient and caregiver partners! #PatientEngagement 0144
Vanessa Carter @vanessacarteramr.bsky.social · 03/12/2024As if one microblogging platform wasn't enough. Our work never ends as advocates. In my opinion, if we are going to educate patients and the public about #AntimicrobialResistance, we have to be on both. Although this one was crashing earlier today. #AMR #PatientEngagement #PatientAdvocate 040
Reposted by Vanessa CarterWendy Thompson @wendythedentist.bsky.social · 28/11/2024 @who.int invited us to host a side meeting on AMR at its first global oral health meeting. @vanessacarteramr.bsky.social shared her AMR infection survivor story WHO's Richard Brown Dr Suchit from the Dental Council of Thailand and the Norwegian chief dental officer Dr Stenhagen were inspiring! 062
Reposted by Vanessa Carterdianeashiru.bsky.social @dianeashiru.bsky.social · 20/11/2024Grateful to have @vanessacarteramr.bsky.social speaking at #ESPAUR report webinar. Vanessa highlighted that surveillance reports e.g ESPAUR important for advocates/#AMRSurvivors in discussions w/policy makers. Thank you Vanessa & Fran 4 co-producing the lay summary w/ us: www.gov.uk/government/p... 041