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ukmsregister @ukmsregister.bsky.social · 15/10/2026

Once again we are proud to be supporting partners of the ECTRIMS Patient Community Day 🌍 Dr Rod Middleton will be attending on behalf of the UK MS Register. The event will be live streamed, so you can take part wherever you are: www.ectrimspatientcommunity.eu

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ukmsregister @ukmsregister.bsky.social · 09/10/2026

The Register are in Llandudno today at the MS Society UK's Community Information Day! Register Senior Data Scientist, Dr Jeff Rodgers, is ready to welcome guests and tell them all about the UK MS Register and how they can support #MS research.

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ukmsregister @ukmsregister.bsky.social · 04/09/2026

🍁 Autumn questionnaires are now ready to complete! If you're part of the UK MS Register, please log in and fill in your latest questionnaires. Thank you for being part of our community: ukmsregister.org/Account/Login

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ukmsregister @ukmsregister.bsky.social · 27/08/2026

Work with the UK MS Register! The Register supports research through access to anonymised data, questionnaire hosting, participant recruitment, and input from our PPIE group of people living with MS. Have a research idea? Start the conversation today: 🔗 www.ukmsregister.org/Research/WorkingWithUs

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ukmsregister @ukmsregister.bsky.social · 12/08/2026

☀️ With the current UK heatwave, people with MS may notice their symptoms worsening. Understanding how factors like hot weather affect daily life is valuable for research. Through the UK MS Register, you can log your experiences and help build a picture of living with MS: ukmsregister.org/AboutUs

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ukmsregister @ukmsregister.bsky.social · 28/07/2026

Welcome to the team Esther! Esther joins the UK MS Register as part of the Health Data Research UK (HDR UK) Black Internship Programme🎉 We are so pleased to have Esther on board, and look forward to working together in the coming weeks. #BlackInternProg #HealthDataScience

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ukmsregister @ukmsregister.bsky.social · 23/07/2026

Women living with MS – the University of Leeds wants to hear from you! 📣 Researchers are exploring how Multiple Sclerosis affects women’s everyday lives, including physical activity, wellbeing, and quality of life. Take part here: forms.cloud.microsoft/e/EcC0RmX7MX

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ukmsregister @ukmsregister.bsky.social · 21/07/2026

The Register team have had a fantastic week at Erasmus University Rotterdam, for the International Population Data Linkage Network conference #IPDLN2026 A great opportunity to share our data linkage work through posters and presentations, as well as network with colleagues from across the sector.

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ukmsregister @ukmsregister.bsky.social · 17/07/2026

New MS study from Imperial College London. Recruiting people with relapsing-remitting MS that are not treated with any disease modifying therapy, or those treated with Ocrelizumab, and people without MS or any other autoimmune condition. ⬇️

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ukmsregister @ukmsregister.bsky.social · 18/06/2026

The team have travelled to Edinburgh this week to take part in the MS Society's MS Frontiers conference - the UK's largest biennial conference for MS research professionals. We were thrilled to have so many of our abstracts accepted this year, creating a whole avenue of UK MS Register research!

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ukmsregister @ukmsregister.bsky.social · 29/05/2026

This #WorldMSDay the theme #MyMSDiagnosis reminds us that behind every diagnosis is a unique experience. By sharing data and lived experiences through the UK MS Register, people with MS are helping researchers uncover new insights and shape the future of treatment and support.

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ukmsregister @ukmsregister.bsky.social · 07/05/2026

This week Dr Rod Middleton and Dr Richard Nicholas travelled to Birmingham for the Association of British Neurologists (ABN) Annual Meeting 2026. This has been a great opportunity to once again showcase the work of the UK MS Register.

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ukmsregister @ukmsregister.bsky.social · 05/05/2026

New Study: Does your menstrual cycle affect your MS symptoms? This study is funded by the MS Society UK and supported by MS Together. To take part, visit ms-menstrualcycle.co.uk/newcastle-la...

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ukmsregister @ukmsregister.bsky.social · 27/03/2026

Researcher Richard Edwards from University of Wolverhampton is currently looking for participants to take part in his study focusing on time to MS diagnosis. Participants can take part remotely. If this sounds of interest to you, please contact Richard for more information: r.c.edwards@wlv.ac.uk

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ukmsregister @ukmsregister.bsky.social · 25/03/2026

The team are in Sheffield today at the EuroQol UK & Ireland Regional Meeting 2026. UK MS Register clinical lead, Dr Richard Nicholas, is presenting the work we have been doing on the EQ-5D questionnaires.

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ukmsregister @ukmsregister.bsky.social · 24/03/2026

The Register team have just returned from the Multiple Sclerosis Trust conference; we were proud to showcase our research though our posters and presentations, and welcomed so many engaged visitors to our stand. 👋 Thank you MS Trust team for another great conference! 🎉

A member of the Register team presents their work on stage in front of an audience.

Members of the MS Register and MS Pregnancy Register team stand smiling behind a table covered in merchandise and leaflets.

A member of the UK MS Register team stands beside a research poster.

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ukmsregister @ukmsregister.bsky.social · 20/03/2026

Congratulations to UK MS Register senior analyst Dr Jeff Rodgers who is today showcasing his work at Brain Conference 2026 in London🙌 Jeff has been studying Register data and is presenting a poster titled 'Emulating a pseudo-trial of Baclofen and Sativex for MS spasticity using the UK MS Register'.

UK MS Register senior analyst Dr Jeff Rodgers stands next to his poster in a conference hall.

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ukmsregister @ukmsregister.bsky.social · 04/03/2026

🌸 Our Spring questionnaires are now live on the UK MS Register! If you’re living with MS, your experiences matter. By taking part, you’re helping to shape research, improve understanding, and make a real difference to the MS community. Log into your account here: ukmsregister.org/Account/Login

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ukmsregister @ukmsregister.bsky.social · 11/02/2026

This International Day of Women and Girls in Science we celebrate the women and girls shaping the future of science. 🔬✨ At The Register, we’re committed to highlighting the groundbreaking work being carried out by women, and supporting the next generation of female researchers 🙌 #IDWGS2026

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ukmsregister @ukmsregister.bsky.social · 06/02/2026

Help shape the future of MS research in the UK. Join the UK MS Register if you: ✅ Live in the UK ✅ Are 18 or over ✅ Have a confirmed MS diagnosis Find out more: ukmsregister.org/Account/Regi...

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ukmsregister @ukmsregister.bsky.social · 26/01/2026

New study from researchers at University of Birmingham looking into the experiences of pregnant women with MS. More details below 👇

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ukmsregister @ukmsregister.bsky.social · 24/11/2025

PhD researcher Hannah Hollinger, from the University of Highlands and Islands, is currently recruiting to her study. If you have RRMS and currently use a method of cooling yourself please contact hannah.hollinger@uhi.ac.uk directly if you would like more information. Please also feel free to share.

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ukmsregister @ukmsregister.bsky.social · 21/11/2025

Register PI Dr Rod Middleton is in London today at the National meeting of the ACORD Collaboration. The ACORD Collaboration consists of a variety of groups currently developing, running and reporting MAMS platform trials in neurodegenerative conditions : lnkd.in/geKi-Kpu

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ukmsregister @ukmsregister.bsky.social · 26/09/2025

📣 Today we’re at ECTRIMS Patient Day in Barcelona! The Register are proud to be a supporting partners of this important event, which brings people affected by MS together with researchers, clinicians, and organisations from across the world 🌍

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ukmsregister @ukmsregister.bsky.social · 26/09/2025

The Register is at #ECTRIMS in Barcelona this week. Our team has been busy presenting research highlighting the importance of real-world data. Special congratulations to Imogen Collier, who won a prize for her poster on menopause and MS based on data collected through the Register 🏆

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ukmsregister @ukmsregister.bsky.social · 25/09/2025

🎉 What a whirlwind first day at #ECTRIMS2025 in Barcelona! The Register team has been incredibly busy – sharing our research, connecting with global MS experts, and showcasing how patient-powered data is driving real change. 📊 Huge thank you to everyone who has stopped by our stand (N14) so far!

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ukmsregister @ukmsregister.bsky.social · 16/09/2025

🎉 We're exhibiting at #ECTRIMS2025 24th - 26th September! Visit us at Stand N14, NPO Village, to learn more about how we're driving forward MS research through real-world data and collaboration.

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ukmsregister @ukmsregister.bsky.social · 15/09/2025

Could a citrus extract improve Cognition and Fatigue in Multiple Sclerosis? A team from Swansea Uni are conducting research on the effects of citrus extract supplementation on people with RRMS. Register your interest to take part in this study: research.sc/participant/...

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ukmsregister @ukmsregister.bsky.social · 22/07/2025

We are delighted to be one of the supporting partners of this year’s Patient Community Day at ECTRIMS. Join us for this free event: 🗓️ Friday, 26 September 2025 📍 Barcelona International Convention Center, Spain, and online ➡️ Sign up: www.ectrimspatientcommunity.eu/registration

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ukmsregister @ukmsregister.bsky.social · 18/07/2025

We’re thrilled to announce we are once again hosting an intern as part of Health Data Research UK (HDR UK) Black Internship Programme 2025 in partnership with The 10,000 Interns Foundation. Join us in welcoming Olufemi to the team! 👋

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ukmsregister @ukmsregister.bsky.social · 01/07/2025

We are delighted to welcome Rolake to the UK MS Register team 👋 She joins us on an exchange from the University of Houston College of Medicine. We look forward to working together over the coming weeks 😊

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ukmsregister @ukmsregister.bsky.social · 23/06/2025

On Friday some of the Register team travelled to Helsinki to attend the EAN Congress 2025 🛫 The theme this year is neurology within society. We are thrilled to have had a number of abstracts accepted this year and are looking forward to presenting posters showcasing the work of the Register 🙌

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ukmsregister @ukmsregister.bsky.social · 20/06/2025

It’s #Red4Research day! Today we are wearing red to show our recognition and appreciation for all those participating, undertaking and supporting research. The Register wouldn’t exist without our participants, our NHS clinical teams, our network of researchers, and our funders the MS Society 🙏

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ukmsregister @ukmsregister.bsky.social · 08/05/2025

The UK MS Register had the pleasure of attending the 'MS Conversations' event at the Senedd, Cardiff Bay. It was a fantastic opportunity to speak with people with MS in Wales and to promote the work of the Register. Also great to catch up with colleagues from the MS Society.

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ukmsregister @ukmsregister.bsky.social · 07/05/2025

The Register team are in Liverpool today at the Association of British Neurologists Annual Meeting 2025. We are thrilled to be sharing a number of posters at this event, including 'Increased hospital admissions in Wales prior to MS diagnosis; a SAIL Databank study', presented by Dr Rod Middleton.

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ukmsregister @ukmsregister.bsky.social · 25/03/2025

Lovely to catch up with our colleagues Emily and Thamanna from the MS Pregnancy Register at the MS Trust conference. We were also delighted to meet Hannah from Digesting Science, and learn about the fun ways they teach children about MS. 💻 ukmsregister.org/pregnancy 💻 digestingscience.co.uk

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ukmsregister @ukmsregister.bsky.social · 24/03/2025

We are having a busy time at the MS Trust conference 2025. It's been great catching up with our clinical colleagues, hearing about the latest in MS care, and getting to know other MS projects. Thank you to the MS Trust for another fantastic event!

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ukmsregister @ukmsregister.bsky.social · 21/03/2025

We are pleased to share that we are currently hosting intern Tobias who is joining the Register as part of his degree at Swansea University. During his internship he will be supporting the project with a range of marketing and communications projects. Join us in welcoming Tobias 😊👋

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ukmsregister @ukmsregister.bsky.social · 07/03/2025

International Women's Day 2025! The Register are especially grateful for the women we work alongside who have a positive impact on our work and our lives. Read our IWD 2024 blog on inspirational women of the UK MS Register: blog.msregister.org/celebrating-... #AccelerateAction #IWD2025

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ukmsregister @ukmsregister.bsky.social · 06/03/2025

Good turnout today for the Data Science Showcase Event at Swansea University. UK MS Register PI Dr Rod Middleton presenting alongside Dementias Platform UK and SAIL Databank. @dementiasplatform.bsky.social @saildatabank.bsky.social @ukserp.bsky.social @popdatascisu.bsky.social

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ukmsregister @ukmsregister.bsky.social · 11/02/2025

International Day of Women and Girls in Science 👩‍🔬👩‍⚕️ Today the UK MS Register celebrates the amazing contributions of the women we have the privilege of working with, not only within our team but also the researchers we work alongside, and our colleagues at clinical sites 💙 #IDWGS #WomeninScience

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ukmsregister @ukmsregister.bsky.social · 22/11/2024

This week the Register hosted a Data Academy in London. Over two days the team have shared their knowledge and experience of working with health data. Thank you to the MS Society UK for allowing us to host this event at their offices 🙌

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ukmsregister @ukmsregister.bsky.social · 19/11/2024

We are pleased to share that this week Dr Hywel T Evans is attending the ISPOR conference in Barcelona and presenting our work with the SAIL Databank and Merck. Poster title "One Year Healthcare Utilisation with people with Multiple Sclerosis and Controls in Wales"

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ukmsregister @ukmsregister.bsky.social · 18/10/2024

Coming soon! This #WorldMenopauseDay we are pleased to share that we will soon host a guest questionnaire developed by postgraduate researcher Imogen Collier, from Queen Mary University of London, specifically focusing on the impact and experience of menopause for people living with MS.

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ukmsregister @ukmsregister.bsky.social · 22/07/2024

UK MS Register Data Academy If you work in research and want to learn about the tools and techniques for analysing big healthcare data then join us for our next Data Academy! 21st & 22nd November 2024 MS Society offices, London £50 (two days of teaching inc. refreshments) Register lnkd.in/eZR3xsgA

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ukmsregister @ukmsregister.bsky.social · 21/05/2024

The MS Register's Dr Rod Middleton is in Edinburgh today for the Annual Meeting of the Association of British Neurologists. Here he is pictured alongside some of the abstract posters the team have submitted on research into #MS 📸

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ukmsregister @ukmsregister.bsky.social · 14/02/2024

This #LoveDataWeek we're pleased to be able to share a brilliant update from the UK MS Pregnancy Register 🤰 Check it out to hear about the latest insights into how data is shaping the understanding of Multiple Sclerosis and pregnancy. blog.msregister.org/update-from-...

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ukmsregister @ukmsregister.bsky.social · 12/02/2024

📣 Join us in celebrating #LoveDataWeek! 💙📊 We're calling on MS researchers to get in touch and work with us 👋 By collaborating with the UK MS Register, you'll have the opportunity to work with a rich pool of data. This #LoveDataWeek, apply to be part of this exciting journey: lnkd.in/ea9gjaPD

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ukmsregister @ukmsregister.bsky.social · 19/01/2024

🎉 Exciting News! 📚✨ UKMSR team member Sarah has just had her research paper published in the distinguished ‘Annals of Neurology’. "Comparing the Pathology, Clinical, and Demographic Characteristics of Younger and Older-Onset Multiple Sclerosis," 👇 Read here 🔗https://shorturl.at/hsFHQ

Image showing the hands of an older person resting on a walking stick.

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