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@theresep.bsky.social
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T @theresep.bsky.social · 17/12/2025
My podcast experiences as a #Sjogren's patient advocate sharing my personal journey w/Sjogren's on Table Talk on Health #Sjogrensdisease #chronicillness #autoimmunedisease #Sjogies #spoonies @smartpatients.bsky.social research.smartpatients.com/resources/th...
research.smartpatients.com
The Making of a Podcast — Smart Patients
Ever wonder what it’s really like to record your first podcast? Hear from three Smart Patients community members who did just that—and shared every surprise, tech hiccup, and empowering moment behind...
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T @theresep.bsky.social · 14/10/2025
#SavvyCoop is looking for people to share their experiences with AI & healthcare. Apply with this link. apply.savvy.coop/ai-patient-a...
apply.savvy.coop
We’re looking for people who are interested in sharing their experiences with AI and healthcare.
Your experiences are so valuable and important to creating better products and services, that companies and researchers will pay you just for sharing your experience and opinions!
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T @theresep.bsky.social · 21/09/2025
Beware #Sjogrens & #autoimmunedisease patients! Are You a Victim of the Wellness Industry?” Excellent article by #DrBexiLobo about grifter influencers who peddle harmful misinformation, false cures & preach unqualified wellness advice, including #Sjogrenspatients bexiphd.com/blogs/news/a...
bexiphd.com
Are You a Victim of the Wellness Industry?
Wellness, as used today, was first defined by the biostatistician, Halbert L. Dunn, in the Canadian Journal of Public Health in 1959 as, “an integrated method of functioning which is oriented toward m...
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T @theresep.bsky.social · 16/09/2025
Great paid opportunity for #lupuspatients to share their personal experiences. #SavvyCoop is looking for patients who have been diagnosed with #Lupus for a paid online survey, 18+ Apply with this link apply.savvy.coop/patients-wit...
apply.savvy.coop
We’re looking for people who have been diagnosed with lupus.
Your experiences are so valuable and important to creating better products and services, that companies and researchers will pay you just for sharing your experience and opinions!
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T @theresep.bsky.social · 16/09/2025
Paid patient interviews**#SavvyCoop is looking for diagnosed patients (or caregivers to someone with) one of the following autoimmune diseases: #RheumatoidArthritis (RA) #SystemicScleroderma (SSc) #Sjögrens #Lupus #Sarcoidosis #Myositis 18+ worldwide apply.savvy.coop/awareness-on...
apply.savvy.coop
We’re looking for people who have been diagnosed with a variety of conditions and their caregivers
Your experiences are so valuable and important to creating better products and services, that companies and researchers will pay you just for sharing your experience and opinions!
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T @theresep.bsky.social · 13/09/2025
#SavvyCoop is looking for #Sjogrens & #rheumatoidarthitis etc patients to participate in a paid interview survey. Qualified caregivers can also apply. apply.savvy.coop/awareness-on...
apply.savvy.coop
We’re looking for people who have been diagnosed with a variety of conditions and their caregivers
Your experiences are so valuable and important to creating better products and services, that companies and researchers will pay you just for sharing your experience and opinions!
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T @theresep.bsky.social · 19/08/2025
I was honored to be interviewed for The Table Talk on Health podcast w/Caroline Pardo (last episode on bottom) and shared my journey & patient experience with #sjogrensdisease #sjogrens #tabletalkonhealth Pls share w/other patients & physicians who would benefit! www.tabletalkonhealth.com/tabletalks
tabletalkonhealth.com
Classes — Table Talk on Health
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T @theresep.bsky.social · 30/08/2025
As a #SjD patient this is huge news! International consensus shifts #Sjögren’s from ‘syndrome’ to distinct ‘disease’ www.healio.com/news/rheumat...
healio.com
International consensus shifts Sjögren’s from ‘syndrome’ to distinct ‘disease’
The preferred nomenclature for the condition formerly known as “Sjögren’s syndrome” has been changed to Sjögren’s disease, according to an international consensus statement pub...
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T @theresep.bsky.social · 19/08/2025
I was honored to be interviewed for The Table Talk on Health podcast w/Caroline Pardo (last episode on bottom) and shared my journey & patient experience with #sjogrensdisease #sjogrens #tabletalkonhealth Pls share w/other patients & physicians who would benefit! www.tabletalkonhealth.com/tabletalks
tabletalkonhealth.com
Classes — Table Talk on Health
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T @theresep.bsky.social · 05/06/2025
The break up begins
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T @theresep.bsky.social · 19/05/2025
Savvy Coop is looking for women of childbearing age and postmenopausal to better understand women dealing w/rare diseases. This is a paid study apply.savvy.coop/women-childb...
apply.savvy.coop
We’re looking for women of childbearing age or who are postmenopausal.
Your experiences are so valuable and important to creating better products and services, that companies and researchers will pay you just for sharing your experience and opinions!
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T @theresep.bsky.social · 02/05/2025
Excellent #Sjogrens interview by fellow #Sjogrens patient advocate by Cristina Montoya @arthritisdietitian.bsky.social @creakyjoints.bsky.social youtu.be/DpJg62rRkI4?...
youtu.be
S8, Ep 13- What Sjögren’s Really Looks Like: Cristina Montoya on Living, Advocating, and Educating
YouTube video by CreakyJoints
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T @theresep.bsky.social · 17/04/2025
Excellent guest blog post by @sarahschafermd.bsky.social about the ties to #dysautonomia & #Sjogrens dysautonomiainternational.org/blog/wordpre... #sjogrensawareness #aprilsjogrensawareness
dysautonomiainternational.org
The Dysautonomia Dispatch | The blog of Dysautonomia International
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T @theresep.bsky.social · 16/04/2025
Savvy Cooperative is looking for people who have experience with a variety of health conditions and are willing to speak about their experiences via public or virtual platforms apply.savvy.coop/speakers-bur...
apply.savvy.coop
We’re looking for people who have experience with a variety of health conditions and are willing to speak about their experiences
Your experiences are so valuable and important to creating better products and services, that companies and researchers will pay you just for sharing your experience and opinions!
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T @theresep.bsky.social · 14/04/2025
Excellent article by Dr. Bexi Lobo PhD about #Sjogrens misinformation & myths. #sjogrensawareness #sjogrensawareness #rheumatologists Do better ACR! #americancollegeofrheumatology bexiphd.com/blogs/news/t...
bexiphd.com
The American College of Rheumatology, Sjogren’s Disease Experts,
 and
April is Sjogren’s Disease Awareness Month. People with Sjogren's live with a high burden of disease; on average their quality of life and function are worse than that of people with rheumatoid arthri...
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T @theresep.bsky.social · 06/04/2025
April is #Sjogrens Awareness Month. Sjogren’s is a serious, systemic disease that can impact any part of the body. The incorrect portrayal of Sjogren's leads to missed diagnoses, delayed diagnoses & inadequate care. www.sjogrensadvocate.com/simple?utm_c... ​
sjogrensadvocate.com
Sjogren's...Simplified | sjogrensadvocate
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Jon Cooper @joncooper-us.bsky.social · 19/03/2025
Cartoon by @billbramhall.bsky.social.
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Nancy Levine Stearns @nancylevinestearns.bsky.social · 19/03/2025
🚨 Article history detailing Jackie Robinson’s military career has been removed from the Department of Defense website. Purge of articles related to Black people, attack on diversity, equity and inclusion ,DEI continues. I've reached out to @mlb.com for comment www.theguardian.com/sport/2025/m...
theguardian.com
Article on Jackie Robinson’s military career removed from defense department website
An article history detailing Jackie Robinson’s military career has seemingly been taken down on the Department of Defense’s website
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Stephanie Kennedy @wordswithsteph.bsky.social · 07/03/2025
UPDATE: An unvaccinated New Mexico man infected with measles has died. The man died without seeking medical care, and the official cause of death is under investigation. The deceased man was a resident of Lea County, New Mexico, where all 10 of the state’s confirmed measles cases have been…
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Noelle @finallynoelle.bsky.social · 03/03/2025
Tesla just wrapped up its second-worst month ever. Keep protesting at his dealerships and service centers. It’s working!!! finance.yahoo.com/news/tesla-j...
finance.yahoo.com
Tesla just wrapped up its second-worst month ever
Tesla stock rose on the last day of February, but it wasn’t enough to stem losses of nearly 30% for the month.
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Dr. Robert Karl @drkarlauthor.com · 27/02/2025
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Congresswoman Jasmine Crockett @crockett.house.gov · 27/02/2025
This news truly breaks my heart. We are calling on HHS to take immediate action. Secretary Kennedy needs to bring back weekly measles tracking from the CDC, rehire the health experts, and roll out a serious vaccine campaign. Our kids' safety is on the line! abcnews.go.com/Health/1st-m...
abcnews.go.com
Measles death of unvaccinated child in Texas outbreak is 1st fatality in US in a decade
An unvaccinated school-aged child in Texas has died of measles, the first associated with an outbreak that has infected more than 100 people.
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Randi Weingarten 🖇️📚✊🇺🇸 @rweingarten.bsky.social · 22/02/2025
Labor For Higher Education is holding a large rally outside the Department of Health and Human Services on 2/25. Register below to join us in-person (or online for a viewing party and national phone bank)! www.labor4highered.org/home#register
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Liz (or Lizzie) Kim 김혜성 💫 @lizzielizliz.bsky.social · 21/02/2025
What if your mom was diagnosed with breast cancer & Medicaid could have saved her life, but Republicans cut it? This isn't just a budget cut, it's a death sentence for thousands of mom's... #DontCutMyMedicaid
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Liz (or Lizzie) Kim 김혜성 💫 @lizzielizliz.bsky.social · 21/02/2025
Medicaid is NOT just a program, it's a LIFELINE for 80 MILLION Americans! Republicans want to CUT IT TO SHREDS to fund tax cuts for billionaires? NOT ON OUR WATCH! #DontCutMyMedicaid
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T @theresep.bsky.social · 19/02/2025
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T @theresep.bsky.social · 18/02/2025
As a #Sjogrens #autoimmunedisease patient, the impact on the NIH affects me directly based on the unpredictable future of clinical drug trials www.medscape.com/viewarticle/...
medscape.com
What Happens When Science Stops
Funding freezes, legal fights, chaos — no one in medical research knows what will come, except that as of January 22, 2025, science itself may never be the same.
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Kodiak149 @kodiak149.bsky.social · 16/02/2025
It’s sad on the eve of Presidents Day it’s appropriate to have to post this.
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Alt National Park Service @altnps.bsky.social · 16/02/2025
Letters went out to federal workers this morning stating they were fired due to poor performance. However, all employees had been rated as “exceptional” performers by their supervisors. Please keep these records and pursue wrongful termination claims. Let the lawsuits begin.
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The New York Times @nytimes.com · 13/02/2025
A worsening measles outbreak has taken root in Texas, sickening two dozen and hospitalizing nine on the western edge of the state, where childhood vaccination rates have dwindled in recent years.
nytimes.com
Measles Outbreak Hits Town in Texas
As of Tuesday, 22 children and two adults had been infected, all of whom were unvaccinated, local officials said.
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KSlatteryResist @kslatteryresist.bsky.social · 09/02/2025
If you want to make sure you’re spending your hard-earned money with ethical companies, save this Goods Unite Us link to your phone or desktop. You can quickly run a political background check on a company to find out. Let’s grab them by the wallet #Voices4Victory www.goodsuniteus.com
goodsuniteus.com
Home - Goods Unite Us
At Goods Unite Us, we run political background checks on thousands of brands and companies so you can put your money where your vote is.
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KSlatteryResist @kslatteryresist.bsky.social · 09/02/2025
American Medical Association is providing regular updates on bird flu and other infectious diseases on YouTube. I highly recommend subscribing to their page, especially since CDC has been axed by FOTUS #Voices4Victory m.youtube.com/user/AmerMed...
m.youtube.com
American Medical Association (AMA)
The American Medical Association (AMA) is the largest and only national association that convenes 190+ state and specialty medical societies and other critical stakeholders. Our mission is to promote ...
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Congresswoman Jasmine Crockett @crockett.house.gov · 10/02/2025
Join us for a “Know Your Rights” Virtual Town Hall, where we’re breaking down the law, answering your questions, and making sure you have the tools to protect yourself and your community. 📅 Thursday, February 20, 2025 ⏰ 6:00 PM 💻 Live Stream – Sign up now : tx30.us/townhall
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T @theresep.bsky.social · 10/02/2025
Not sure how to help & get involved? This is a really helpful website with helpful resources in one place. Join the #resistance2025 resistance2025.info
resistance2025.info
Resistance 2025 | Together we will make a difference!
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Pat Fuller @bannerite.bsky.social · 07/02/2025
Black History Month Langston Hughes!
There is a dream in the land With its back against the wall...
To save the dream for one It must be saved for all.
Langston Hughes Dream of Freedom
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Jill W0409 💙✡️🐙 @jillw1455.bsky.social · 07/02/2025
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Kara Swisher @karaswisher.bsky.social · 07/02/2025
Don’t mess with @ellenlweintraub.bsky.social
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Congresswoman Jasmine Crockett @crockett.house.gov · 05/02/2025
Last week, Elon Musk's staff illegally breached the U.S. Treasury payment system and gained access to millions of Americans' personal data. We're calling out Elon Musk to put on his big boy pants and answer some questions from the Oversight Committee. www.youtube.com/watch?v=gvv-...
youtube.com
Crockett Calls Out COWARD Musk
YouTube video by Rep. Jasmine Crockett
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Mrs. Betty Bowers @mrsbettybowers.bsky.social · 05/02/2025
Jasmine Crockett, after accusing colleagues of castrating their Constitutional duty, said, “My job is to make sure we don’t have any kings or queens in this country, but it seems like you all have decided it’s going to be Mr. King and his queen. And y’all can pick which one is which.”
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insect girl @insectdiaries.bsky.social · 05/02/2025
Austin
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T @theresep.bsky.social · 05/02/2025
Way to go California State Capitol!!! #50501Protest
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50501 Media @the50501movement.bsky.social · 05/02/2025
#Michigan #Protest #50501protest #Musk #Trump #TruePatriots
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Albert Capati @aldentist75.bsky.social · 05/02/2025
Reposting with proper hashtags I drove by the #50501protest in #SpringfieldIL . #50501protests #USprotests #Trump #ElonMusk #project2025 #jointheresistance
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KindLivesMatter @bekindforthefuture.bsky.social · 05/02/2025
Oregon Resists! #50501Protest Hundreds gathered Wednesday at the Oregon State Capitol State Park as part of a nationwide series of protests against actions by President Donald Trump and Project 2025.
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50501 Media @the50501movement.bsky.social · 05/02/2025
#Albany #NewYork #Protest #50501Protest #50states #democracy
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50501 Media @the50501movement.bsky.social · 05/02/2025
#Boston #Protest #50501Protest #Democracy
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Sassy0210 @sassy0210.bsky.social · 05/02/2025
Proud to see my fellow North Carolinians at the state capital In Raleigh today! #USprotests #Musk #protests #50501Protest
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winsome-lurker.bsky.social @winsome-lurker.bsky.social · 23/01/2025
@independentaus.bsky.social @meidastouch.com @thebulwark.bsky.social @mmpadellan.bsky.social @aoc.bsky.social @georgetakei.bsky.social @theguardian.com Tl;Dr direct evidence from an ex employee that proves Felon Rusk interfered with the election and is manipulating elections globally.
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The Concerned Bird - X Whistle Blower @theconcernedbird.bsky.social · 11/01/2025
As a concerned bird I feel like its my duty to inform the world about what we have done. #ElectionInterference #Election2024 #ElonMusk #Politics
substack.com
Elon Musk's and X's Role in 2024 Election Interference
The confessions of a concerned bird.
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