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CreakyJoints®

@creakyjoints.bsky.social
345 followers 137 following 378 posts

Community of people living with arthritis & rheumatic disease. EST 1999.

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CreakyJoints® @creakyjoints.bsky.social · 06/08/2026
No one should have to prove their disability to deserve kindness, inclusion, or access. A little empathy can remove barriers that medicine never could. 💜 #DisabilityAwareness #Accessibility #ChronicIllness
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CreakyJoints® @creakyjoints.bsky.social · 04/08/2026
"Imagine sweltering in the summer heat, battling spontaneous menopausal hot flashes, all while searching for a long-sleeved blouse or sweater to conceal my arms. These sores were not just painful; they were highly conspicuous." creakyjoints.org/about-arthri... #RheumatoidArthritis #Arthritis
creakyjoints.org
Sweaters in Summer, Strange Sores, an Everlasting Flare
A personal journey navigating a potential shift from a rheumatoid arthritis diagnosis to possibly having psoriatic arthritis.
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CreakyJoints® @creakyjoints.bsky.social · 03/08/2026
👀 Whether it's a specific eye drop, a lifestyle tweak, a specialist who finally got it right, or just a coping strategy for the hard days, we want to know: What works best for YOU in managing TED? Share below — your answer might be exactly what someone else needs to hear today. #ThyroidEyeDisease
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CreakyJoints® @creakyjoints.bsky.social · 29/07/2026
Support shouldn't begin at a crisis. Everyone deserves to be believed, respected, and have access to timely care, accommodations, and accessibility—before reaching their breaking point. 💜 #DisabilityPrideMonth #ChronicIllness #PatientVoice #Accessibility
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CreakyJoints® @creakyjoints.bsky.social · 27/07/2026
Heat, humidity, wildfire smoke, and even some RA medications can all affect how you feel. Staying hydrated, protecting your skin from the sun, checking air quality, and planning around the hottest hours can help you stay safer and more comfortable. #RheumatoidArthritis #Arthritis
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CreakyJoints® @creakyjoints.bsky.social · 18/07/2026
For many people living with chronic illness or a disability, canceling plans isn't about not wanting to go—it's about recognizing when their body needs something different. Canceling plans isn't selfish. #DisabilityPrideMonth
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CreakyJoints® @creakyjoints.bsky.social · 15/07/2026
For many people living with disabilities and chronic illnesses, rest is part of managing their health—not a luxury. This Disability Pride Month, let's stop treating rest like a reward and start recognizing it as a legitimate medical need. #DisabilityPrideMonth #ChronicIllness #DisabilityPride
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CreakyJoints® @creakyjoints.bsky.social · 14/07/2026
No one should have to prove they're "disabled enough" to be believed or accommodated. This Disability Pride Month, let's choose empathy over assumptions. 💜 #DisabilityPrideMonth #InvisibleDisability #ChronicIllness
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CreakyJoints® @creakyjoints.bsky.social · 10/07/2026
Today is #ChronicDiseaseAwarenessDay. Living with a chronic disease is about so much more than managing symptoms. It’s navigating daily life with resilience while facing challenges that often go unseen. Every story deserves to be seen, heard, and believed. 💜 #ChronicDiseaseAwarenessDay
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CreakyJoints® @creakyjoints.bsky.social · 04/07/2026
🇺🇸 We're reflecting on what independence means for people living with chronic illness. For many, it means finding the right treatment, being heard by your care team, advocating for your health, or simply having a day where symptoms don't stand in the way. Happy Independence Day. ❤️🤍💙 #IndependenceDay
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CreakyJoints® @creakyjoints.bsky.social · 03/07/2026
🇺🇸 America's history is also the story of public health. This special Independence Day episode of The Health Advocates explores the milestones—from vaccines to Medicare and the NIH—that have helped shape healthier lives over the past 250 years. 🎙️ Tune in: youtube.com/watch?v=tF96...
youtube.com
S9, Ep 14- How America Learned to Live Longer: 250 Years of U.S. Health Policy
YouTube video by CreakyJoints
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CreakyJoints® @creakyjoints.bsky.social · 29/06/2026
This is the symptom nobody talks about — but so many people with HS experience. The odor linked to HS comes from drainage and inflammation. It is not a hygiene issue. You deserve answers and proper care. Learn more 👉 ghlf.org/hscheck/?utm... #HSAwareness #HidradenitisSuppurativa
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CreakyJoints® @creakyjoints.bsky.social · 16/06/2026
HS doesn't just affect you during flares. The scars, discoloration, and skin tightness it leaves behind can last long after the inflammation fades. If your skin has changed in ways you can't explain, it's worth checking. 👉 ghlf.org/hscheck/?utm... #HidradenitisSuppurativa
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CreakyJoints® @creakyjoints.bsky.social · 16/06/2026
For many people living with chronic illness, those words don't feel reassuring—they feel dismissive. Not every symptom can be seen. Pain. Fatigue. Brain fog. Flare-ups. Invisible illness is still illness. Believe people when they tell you what they're experiencing. #ChronicIllness
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CreakyJoints® @creakyjoints.bsky.social · 12/06/2026
Did you know? 🤔 Graves’ disease affects more than just your thyroid. Because thyroid hormones influence nearly every system in the body, Graves’ can impact your energy, heart rate, mood, sleep, and overall well-being. Learn more: creakyjoints.org/education/wh... #GravesDisease #ThyroidHealth
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CreakyJoints® @creakyjoints.bsky.social · 05/06/2026
It's #HSAwarenessWeek. 💜 Painful, recurring lumps or boils under the skin may be more than "just a skin problem." Our free, anonymous HS Symptom Check can help you better understand your symptoms and prepare for a conversation with your healthcare provider. 🔗 ghlf.org/hscheck/
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CreakyJoints® @creakyjoints.bsky.social · 03/06/2026
HS pain isn't just uncomfortable — it's disabling. From mild sensitivity to severe, daily discomfort, pain is one of the most impactful symptoms of Hidradenitis Suppurativa. Don't dismiss what your body is telling you. See if you could be at risk 👉 ghlf.org/hscheck/?utm... #HSAwarenessWeek
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CreakyJoints® @creakyjoints.bsky.social · 31/05/2026
But arthritis doesn't end tomorrow. To everyone living with arthritis: You do not need to earn rest. You are allowed to set boundaries, ask for help, protect your energy, and put your health first. See you tomorrow. We'll still be here. 💜 #ArthritisAwarenessMonth
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CreakyJoints® @creakyjoints.bsky.social · 30/05/2026
If you live with arthritis, inflammation may be doing more than causing aches and pains. It can contribute to joint pain, swelling, stiffness, fatigue, and long-term joint damage. Learn what inflammation is, why it happens, and why managing it matters. Read more: creakyjoints.org/about-arthri...
creakyjoints.org
Your Guide to Understanding Arthritis Inflammation
Discover why keeping tabs on inflammation is crucial for managing your condition and overall health and how to be a more proactive patient.
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CreakyJoints® @creakyjoints.bsky.social · 29/05/2026
Tired of waking up exhausted from arthritis pain? 😴 Getting quality sleep with arthritis can feel impossible sometimes — but small changes can make a big difference. Here are 18 tips that may help you according to experts and people living with arthritis: creakyjoints.org/living-with-...
creakyjoints.org
How to Get a Better Night’s Sleep with Arthritis: 18 Tips that Patients Swear By
Arthritis causes sleep problems, but these tips from real patients can help you sleep better and reduce painsomnia.
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CreakyJoints® @creakyjoints.bsky.social · 27/05/2026
“Your labs look normal.” For many people living with Graves’ disease, that doesn’t always mean the symptoms disappear. Learn tips for navigating life with Graves’ disease: creakyjoints.org/GravesDiseaseWellness
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CreakyJoints® @creakyjoints.bsky.social · 26/05/2026
If all you did this weekend was survive, rest, or make it through the flare… that was ENOUGH. Show yourself grace tonight. 🫂🫶
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CreakyJoints® @creakyjoints.bsky.social · 22/05/2026
Gout symptoms can come and go, making it easy to put care off. Genene shares why getting checked early and following up with your doctor matters. Hear more patient experiences: creakyjoints.org/thegoutshow/ #Gout #GoutAwarenessDay #Healthcare
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CreakyJoints® @creakyjoints.bsky.social · 22/05/2026
Managing gout isn’t always as simple as “just take your medication.” Life gets busy. Appointments get pushed off. Questions come up after the visit ends. Check out the Gout Guide: creakyjoints.org/education/go... #Gout #GoutAwarenessDay #Healthcare
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CreakyJoints® @creakyjoints.bsky.social · 22/05/2026
Gout can affect much more than your joints. Genene shares how gout flare-ups impacted work, family life, and everyday activities — and why gout is a serious disease. Learn more: creakyjoints.org/thegoutshow/ #GoutAwarenessDay #GoutAwareness #GoutEducation
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CreakyJoints® @creakyjoints.bsky.social · 22/05/2026
Feeling like your gout is in control instead of you? You’re not alone. If you’re experiencing frequent flares, have high uric acid levels despite treatment, or have developed tophi, it may be a sign that your gout is not well controlled. Learn more: creakyjoints.org/thegoutshow/ #GoutAwarenessDay
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CreakyJoints® @creakyjoints.bsky.social · 22/05/2026
Gout care starts with understanding your options. In this video, Genene shares why knowing about the ACR Gout Guidelines can help patients, families, and healthcare teams navigate diagnosis and treatment. Learn more: creakyjoints.org/education/go... #GoutAwarenessDay #Gout #Health
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CreakyJoints® @creakyjoints.bsky.social · 21/05/2026
Tomorrow is #GoutAwarenessDay. One thing many people don’t realize about gout: even after a flare improves, uric acid crystals can continue building up in the body over time. Understanding gout can help patients take control of their care. Learn more: creakyjoints.org/education/go...
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CreakyJoints® @creakyjoints.bsky.social · 21/05/2026
Something bigger than a single vaccine debate is happening across America’s public health system. This week on #TheHealthAdvocates, we break down growing FDA scrutiny, shifting vaccine recommendations and more. 🎧: www.youtube.com/watch?v=BGMK...
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CreakyJoints® @creakyjoints.bsky.social · 20/05/2026
One of the hardest parts of living with arthritis or an invisible illness isn’t always the symptoms. Sometimes it’s the exhaustion of constantly having to explain them. Invisible ≠ imaginary. 💜 creakyjoints.org/living-with-... #ArthritisAwarenessMonth #InvisibleIllness
creakyjoints.org
People with Invisible Illnesses Are Tired of Explaining Their Conditions — and We Understand Why
“I'm sick of being told to ‘suck it up’ and ‘get over it,’” CreakyJoints member Velma M. says of explaining her invisible illness to the people in her life.
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CreakyJoints® @creakyjoints.bsky.social · 19/05/2026
Crohn’s disease and ulcerative colitis are more than digestive conditions — they can affect every part of life. To everyone living with IBD: we see you, we believe you, and your story matters 💜 #WorldIBDDay #IBD #CrohnsDisease #UlcerativeColitis #InvisibleIllness
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CreakyJoints® @creakyjoints.bsky.social · 19/05/2026
Arthritis can mean redefining what a “good day” looks like. Sometimes the win is making dinner. Finishing laundry. Showing up. Getting through the day. It can also mean canceled plans, disrupted sleep, invisible pain, grief, isolation, and constantly adapting. Arthritis is more than joint pain...
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CreakyJoints® @creakyjoints.bsky.social · 11/05/2026
High-pain days don’t just affect the body. They can impact sleep, stress, anxiety, and mental health, too. A few coping strategies and more here: creakyjoints.org/living-with-...
creakyjoints.org
How to Take Care of Your Mental Health on High-Pain Days or Weeks
Chronic pain demands coping mechanisms that go beyond simple phrases like "breathe deeply" or "just stay positive." Get tips.
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CreakyJoints® @creakyjoints.bsky.social · 09/05/2026
If you've noticed wounds that won't stop draining — you're not alone, and it's not your fault. Ruptured abscesses are a hallmark sign of Hidradenitis Suppurativa (HS), a chronic skin condition that's often misdiagnosed for years. Could this be HS? Take our free check 👉 ghlf.org/hscheck/?utm...
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CreakyJoints® @creakyjoints.bsky.social · 03/05/2026
May highlights a range of chronic conditions— Arthritis, lupus, vasculitis, myositis, gout, osteoporosis. Different diagnoses, shared challenges: • Delayed diagnosis • Invisible symptoms • Unpredictable flares Awareness = earlier care + better outcomes. #ChronicIllness #Autoimmune
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CreakyJoints® @creakyjoints.bsky.social · 30/04/2026
Something is shifting in vaccine policy—and patients are feeling it. From evolving recommendations to declining trust, the result is the same: confusion. In this episode of The Health Advocates, we break down what’s happening and what it means for patients. Watch: youtube.com/watch?v=jHXf...
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CreakyJoints® @creakyjoints.bsky.social · 30/04/2026
Vaccine access shouldn’t depend on how well you can navigate the system. This #WorldImmunizationWeek, we’re connecting trusted vaccine info with real scheduling—directly through our hub. Learn → decide → book: ghlf.org/vaccines/
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CreakyJoints® @creakyjoints.bsky.social · 28/04/2026
Deep, inflamed, fluid-filled — and incredibly painful. Abscesses from HS are far more than a bad breakout. If this sounds familiar, it may be time to get answers. Take the free HS check 👉 ghlf.org/hscheck/?utm... #HidradenitisSuppurativa #HSWarrior
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CreakyJoints® @creakyjoints.bsky.social · 27/04/2026
Living with Polymyalgia Rheumatica can come with a lot of questions. Join our upcoming webinar on May 5th to learn more about PMR, what to expect, and ways to better manage day-to-day life. Register here: creakyjoints.org/pmr-webinar-...
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CreakyJoints® @creakyjoints.bsky.social · 22/04/2026
One of the lesser-known — but most serious — signs of HS is the formation of tunnels under the skin that connect lesions together. If you've experienced this, early diagnosis matters. Take the free HS symptom check today 👉 ghlf.org/hscheck/?utm... #HidradenitisSuppurativa
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CreakyJoints® @creakyjoints.bsky.social · 22/04/2026
Dim lights early. Use heat for pain. Write it out. Breathe slow. Can’t sleep? Reset. Wake up same time. Rest still counts. Even when sleep doesn’t come. #ChronicPain
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CreakyJoints® @creakyjoints.bsky.social · 16/04/2026
Healthcare cuts aren’t theoretical—they’re already impacting coverage, access, and state budgets. New episode of The Health Advocates breaks down: • Medicaid funding cuts • HHS restructuring • What it means for patients right now 🎧 ghlf.org/the-health-a... #HealthPolicy #Medicaid #PatientAccess
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CreakyJoints® @creakyjoints.bsky.social · 15/04/2026
Do you still have symptoms from Graves' disease — even with treatment? You're not alone, and your experience matters. We're looking for people living with difficult-to-treat Graves' disease to take a short poll. Get started: www.research.net/r/P2ZNC3G?SV
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CreakyJoints® @creakyjoints.bsky.social · 14/04/2026
Think it's just an ingrown hair... again? If bumps keep coming back in the same spot, grow larger over time, and never fully heal — that's not typical. It could be a sign of HS. Find out if you could be at risk 👉 ghlf.org/hscheck/?utm... #HSAwareness #HidradenitisSuppurativa #SkinHealth
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CreakyJoints® @creakyjoints.bsky.social · 10/04/2026
One of the hardest parts of living with a chronic illness? Saying no to plans—even when you really want to go. You’re not alone—and there are ways to navigate it without guilt. Here’s how to say no without guilt: creakyjoints.org/living-with-... #chronicillness #spoonie #invisibleillness
creakyjoints.org
Here’s Some Much-Needed Advice for Saying No to Plans When You Have a Chronic Illness (Without Feeling Totally Lame)
Canceling plans to take care of yourself can be one of the hardest parts about coping with a chronic disease like arthritis. These tips can make it easier.
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CreakyJoints® @creakyjoints.bsky.social · 10/04/2026
COVID Antivirals: Are High-Risk Patients Missing the Window? Dr. Robert Popovian and Angela Degrassi discuss new CDC findings, GHLF survey data, and why high-risk patients may still be missing timely COVID treatment. Listen now: ghlf.org/healthcarema...
ghlf.org
Healthcare Matters Podcast
A podcast dedicated to bringing you a simplified rundown of not-so-simple matters in healthcare economic and policy issues.
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CreakyJoints® @creakyjoints.bsky.social · 10/04/2026
Calling all myositis warriors 💙 Get a free Myositis Wellness Guide with resources to help you manage flares, support your energy, and navigate daily life. 🔗 creakyjoints.org/education/my... #myositis #raredisease #chronicillness
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CreakyJoints® @creakyjoints.bsky.social · 10/04/2026
Managing Graves’ disease isn’t always straightforward. Get a free Graves’ Disease Wellness Guide with: • Day-to-day symptom tips • Nutrition support • Mental health resources • Practical strategies for daily life 🔗 creakyjoints.org/education/gr... #gravesdisease
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CreakyJoints® @creakyjoints.bsky.social · 09/04/2026
We want to hear from you. If you’ve experienced: • Frequent painful attacks • Tophi (lumps under the skin) • Joint damage Your story can help improve care for others. ⏱️ Takes 2 minutes: www.surveymonkey.com/r/goutjourney #Gout #ChronicIllness #PatientVoice #Healthcare
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CreakyJoints® @creakyjoints.bsky.social · 08/04/2026
Graves’ disease is more than an overactive thyroid—it can impact your vision, energy, sleep, and more. Learn the symptoms, causes, and treatment options so you can better understand what’s happening and what to do next. 🔗 Read more: creakyjoints.org/education/what-is-graves-disease/ #GravesDisease
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