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ANCOR

@therealancor.bsky.social
143 followers 85 following 93 posts

Advancing the future of supports and services for people with intellectual and developmental disabilities.

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ANCOR @therealancor.bsky.social · 07/10/2026
In highlighting The State of America's Direct Support Workforce Crisis, ANCOR's Barbara Merrill and Tom Rice share why underinvestment in disability services and the impact of pending Medicaid cuts are fueling the direct support workforce crisis in the latest from McKnights Home Care.
mcknightshomecare.com
Disability service providers under pressure from staffing shortages, Medicaid cuts
Eighty-five percent of providers of intellectual and developmental disabilities (I/DD) services experienced moderate to severe staffing shortage in the past year, and providers fear the situation coul...
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ANCOR @therealancor.bsky.social · 05/10/2026
Thank you @debbiedingell.house.gov, Reps. Fitzpatrick, Lawler, Kean, @scanlon.house.gov & @replsimon.bsky.social for introducing a resolution recognizing the Olmstead v. Lois Curtis decision & reaffirming the right of people with disabilities to live in their communities.
debbiedingell.house.gov
Press Releases | Congresswoman Debbie Dingell
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ANCOR @therealancor.bsky.social · 01/10/2026
In the latest from @disabilityscoop.bsky.social, ANCOR's Barbara Merrill & Tom Rice share why services for people with disabilities may appear to exist on paper, but will become impossible to access in practice if we don't combat the direct support workforce crisis now.
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ANCOR @therealancor.bsky.social · 01/10/2026
“The most troubling finding in this year’s report is how little has changed," shared Barbara Merrill, ANCOR CEO. Read more about the report in our press release ⬇️
ancor.org
The State of America's Direct Support Workforce Crisis 2026 | ANCOR
The State of America’s Direct Support Workforce Crisis explores challenges and highlights the resulting impacts upon the direct support workforce and the continued ability of people with I/DD to acces...
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ANCOR @therealancor.bsky.social · 01/10/2026
Yesterday, ANCOR released our seventh annual survey of disability service providers, continuing our effort to better understand how providers navigate long-term shortages of direct support professionals (DSPs).
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ANCOR @therealancor.bsky.social · 30/09/2026
“The most troubling finding in this year’s report is how little has changed," shared Barbara Merrill, ANCOR CEO. Read more about the report in our press release ⬇️
ancor.org
The State of America's Direct Support Workforce Crisis 2026 | ANCOR
The State of America’s Direct Support Workforce Crisis explores challenges and highlights the resulting impacts upon the direct support workforce and the continued ability of people with I/DD to acces...
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ANCOR @therealancor.bsky.social · 24/09/2026
Following the issuing of a final order in the Texas v. Kennedy case, ANCOR CEO Barbara Merrill condemns the actions of the DOJ and HHS as they step back from their role as enforcer of the integration mandate. Read her statement ⬇️
ancor.org
ANCOR Condemns Administration for Efforts to Erode Community Inclusion Following Final Order in Texas v. Kennedy | ANCOR
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ANCOR @therealancor.bsky.social · 22/09/2026
StoryCorps, in partnership with @librarycongress.bsky.social, invited two DSPs from EPI, Kimberly Bumgardner Bergman and Danielle Knavel, to share their COVID-19 experiences as part of the COVID-19 American History Project.
archive.storycorps.org
Kimberly Bumgardner Bergman and Danielle Knavel
Kimberly Bumgardner Bergman (48) speaks with colleague Danielle Knavel (42) about their work as Direct Support Professionals (DSP). Kimberly recalls the period she decided to move in with a group to p...
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ANCOR @therealancor.bsky.social · 11/09/2026
ANCOR is proud to join @nhelp.bsky.social, @centerforpublicrep.bsky.social and 68 organizations in filing an amicus brief in Massachusetts v. Oz, detailing how the administration’s Medicaid work requirements rule will threaten coverage for people with serious illnesses & disabilities.
ancor.org
People with Serious Health Conditions Will Lose Medicaid Under Trump Administration Work Requirement Rule | ANCOR
ANCOR joins with 70 other organizations in filing amicus brief on the risk to health coverage for people with disabilities posed by the Trump administration’s Medicaid work requirements
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ANCOR @therealancor.bsky.social · 20/08/2026
TIME published an op-ed from Barbara Merrill and the Honorable Tony Coelho addressing the current attacks on disability rights that threaten the promised right to inclusion for people with disabilities. Read here:
graphic with quote from article: 'The debate over how we invest in Medicaid cannot be separated from the debate over civil rights for people with disabilities.' -Barbara Merrill, ANCOR CEO & The Honorable Tony Coelho

quote is overlayed on a background of a person in a mobility device raising a fist
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ANCOR @therealancor.bsky.social · 11/08/2026
ANCOR CEO Barbara Merrill and the Honorable Tony Coelho share in @time.com why the foundation of our nation’s wide spectrum of community-based services is crumbling & how continued attacks risk the inclusion promised to people with disabilities through the ADA. Read our op-ed ⬇️
time.com
The Promise We Made to Americans with Disabilities Is Under Attack
“The foundation that underpins our nation’s wide spectrum of community-based services is crumbling,” write Barbara Merrill and Tony Coelho.
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ANCOR @therealancor.bsky.social · 10/08/2026
ANCOR is proud to support the HCBS Access Act reintroduced by @lujan.senate.gov & @kaine.senate.gov. This bill will make much-needed investments into the Medicaid HCBS system and strengthen access to community-based services for people with disabilities. Learn more ⬇️
lujan.senate.gov
Luján, Kaine Lead Legislation to Expand Access to Home and Community-Based Care for Older Adults and People with Disabilities - Senator Ben Ray Luján
Washington, D.C. – U.S. Senators Ben Ray Luján (D-N.M.) and Tim Kaine (D-Va.) introduced the Home and Community-Based Services (HCBS) Access Act, legislation to ensure older adults and people with dis...
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ANCOR @therealancor.bsky.social · 06/08/2026
Today, the Senate Homeland Security & Governmental Affairs Committee voted the Recognizing the Role of DSPs Act unanimously out of committee. Help us keep up the momentum. Take action today & ask your members of Congress to support the direct support workforce!
ancor.org
Tell Congress to Support the Recognizing the Role of DSPs Act | ANCOR
The bipartisan Recognizing the Role of Direct Support Professionals Act urges the Office of Management and Budget to establish a Standard Occupational Classification (SOC) for direct support professio...
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ANCOR @therealancor.bsky.social · 04/08/2026
In the latest from @washingtonpost.com, Lydia Dawson, ANCOR Vice President of Government Relations, shares why we're concerned about the administration's commitment to community integration. Read more ⬇️
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ANCOR @therealancor.bsky.social · 03/08/2026
Next up for the Recognizing the Role of DSPs Act: a markup in the Senate Homeland Security & Governmental Affairs Committee on 8/5. We need your help to keep up the pressure to pass this bill. Take action & ask your members of Congress to support the direct support workforce!
ancor.org
Tell Congress to Support the Recognizing the Role of DSPs Act | ANCOR
The bipartisan Recognizing the Role of Direct Support Professionals Act urges the Office of Management and Budget to establish a Standard Occupational Classification (SOC) for direct support professio...
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ANCOR @therealancor.bsky.social · 31/07/2026
In politico.com's West Wing Playbook newsletter, ANCOR CEO Barbara Merrill shares why ANCOR is fighting for community living for people with disabilities in light of the U.S. Department of Justice's new guidance. Learn more ⬇️
politico.com
Trump DOJ upends disability rights guidance
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ANCOR @therealancor.bsky.social · 23/07/2026
Each July, Disability Pride Month invites us to celebrate the strength, diversity, and contributions of people with disabilities while recognizing the importance of creating communities where everyone has the opportunity to thrive. by Jordan Baker, Relias www.ancor.org/connections/... #connections
ancor.org
Disability Pride Month: Honoring Progress, Advancing Inclusion Every Day | ANCOR
While tremendous progress has been made over the past three decades, Disability Pride Month reminds us that inclusion is an ongoing commitment — one that requires all of us to continue removing barrie...
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ANCOR @therealancor.bsky.social · 23/07/2026
ANCOR is proud to endorse the Disabled Access Credit Modernization Act introduced by @mcbride.house.gov & Rep. Hill. This bill will expand the Disabled Access Credit, giving small businesses more resources to make workplaces accessible for employees with disabilities. Learn more ⬇️
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ANCOR @therealancor.bsky.social · 22/07/2026
On July 26, the disability community will mark the 36th anniversary of the Americans with Disabilities Act. That makes the weeks following the anniversary an especially important time for advocates to engage with members of Congress. www.ancor.org/connections/...
ancor.org
Honor the ADA by Bringing Advocacy Home This August | ANCOR
August recess offers one of the best opportunities of the year to show lawmakers how decisions about Medicaid, community-based services and the direct support workforce affect people with intellectual...
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ANCOR @therealancor.bsky.social · 21/07/2026
Darryl Wood, a DSP & executive director at ANCOR member LEAP in Maine, urged Senators Collins and King, and @pingree.house.gov and Rep. Golden, to reject all proposals that put community-based services for people with disabilities at risk in the Portland Press Herald. Read his LTE ⬇
pressherald.com
Maine’s community-based services need support | Letter
As a registered nurse and a direct support professional myself, I build my life around showing up for others. I’ve been there for early mornings, long nights and moments of real vulnerability. I suppo...
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ANCOR @therealancor.bsky.social · 01/07/2026
ANCOR is proud to support the Supporting Our Direct Care Workforce and Family Caregivers Act reintroduced by @kaine.senate.gov. This bill will improve disability services by making much-needed investments to support the direct care workforce and family caregivers. Learn more ⬇️
kaine.senate.gov
Kaine Introduces Legislation to Support Direct Care Workforce, Family Caregivers | U.S. Senator Tim Kaine of Virginia
WASHINGTON, D.C. – Today, U.S. Senator Tim Kaine (D-VA), a member of the Senate Health, Education, Labor and Pensions (HELP) Committee, introduced the...
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ANCOR @therealancor.bsky.social · 22/06/2026
On the anniversary of the Supreme Court's Olmstead decision, we must reaffirm our commitment to community inclusion. Read ANCOR CEO Barbara Merrill's response to DOJ's harmful memo that would undermine individuals’ access to community-based services.
ancor.org
ANCOR Issues Statement on Department of Justice Integration Mandate Memo | ANCOR
While such a memo does not have the force and effect of law, it represents the latest in a long line of actions subverting dignity, choice and community for people with disabilities—principles that ar...
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ANCOR @therealancor.bsky.social · 19/05/2026
Today in @thehill.com , ANCOR CEO Barbara Merrill, @easterseals.bsky.social President & CEO Kendra Davenport, and UCP Interim President & CEO Diane Wilush highlight the caregiver workforce crisis and why policymakers must invest in community-based services. Read our op-ed ⬇️
thehill.com
The caregivers you’ve never heard of are in crisis
This workforce and the home and community-based care system that supports them is in crisis.
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ANCOR @therealancor.bsky.social · 30/04/2026
ANCOR is proud to support the HCBS Access Act reintroduced by @debbiedingell.house.gov & @schakowsky.house.gov. This bill will make much-needed investments into the Medicaid HCBS system and strengthen access to community-based services for people with disabilities. Learn more ⬇️
debbiedingell.house.gov
Press Releases | Congresswoman Debbie Dingell
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ANCOR @therealancor.bsky.social · 27/04/2026
Thank you @debbiedingell.house.gov, @replsimon.bsky.social & @pettersen.house.gov for honoring the essential work of direct support professionals who empower people with disabilities by introducing a resolution designating April as #CareWorkersRecognitionMonth.
democraticwomenscaucus.house.gov
Dingell, Simon, Pettersen Introduce Resolution Marking Care Workers Recognition Month
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ANCOR @therealancor.bsky.social · 23/04/2026
“They didn’t just denigrate family caregivers, they denigrated the work of the professionals in our fields by suggesting that all HCBS could just be done by family caregivers, and it should all be done for free," said ANCOR CEO Barbara Merrill in @nbcnews.com @mikehixenbaugh.com article. Read more:
nbcnews.com
RFK Jr. draws backlash for ripping Medicaid programs that pay people to care for relatives
Advocates for disabled people and those who care for them said they were insulted by Health Secretary Robert F. Kennedy Jr.’s allegations that the programs are "rife with fraud."
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ANCOR @therealancor.bsky.social · 17/04/2026
“Recent public comments denigrating critical home- and community-based services made by the federal leaders that oversee Medicaid programs are deeply concerning. The undervaluing of HCBS demeans the very real, complex, & difficult work that caregivers—whether paid or unpaid—provide."
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ANCOR @therealancor.bsky.social · 17/04/2026
ANCOR CEO Barbara Merrill issued a statement in response to HHS Secretary Robert F. Kennedy, Jr.'s remarks in front of the House Ways and Means Committee yesterday. Read the full statement below.
ancor.org
ANCOR Issues Response to Robert F. Kennedy, Jr.’s Concerning Remarks About Home- and Community-Based Services | ANCOR
The undervaluing of HCBS demeans the very real, complex, and difficult work that caregivers—whether paid or unpaid—provide.
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ANCOR @therealancor.bsky.social · 15/04/2026
ANCOR is proud to support the SSI Savings and Efficiency Act introduced by @davids.house.gov and @scanlon.house.gov . This bill will provide a common-sense fix to enable people with disabilities and older adults to access the support they need to remain in their homes and communities. Learn more⬇️
davids.house.gov
Davids, Scanlon Introduce Bill to Stop Social Security Cuts for Seniors, People with Disabilities
Today, Representatives Sharice Davids (KS-03) and Mary Gay Scanlon (PA-05) introduced new legislation to change a longstanding Supplemental Security Income (SSI) rule that can reduce benefits for seni...
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ANCOR @therealancor.bsky.social · 03/04/2026
“Cutting more funding from Medicaid—after decades of underinvestment and on top of significant cuts included in H.R. 1—creates great uncertainty for people with intellectual and developmental disabilities (I/DD), their families, and the community providers who support them."
ancor.org
ANCOR Issues Statement on President's FY 2027 Budget | ANCOR
Cutting more funding from Medicaid—after decades of underinvestment and on top of significant cuts included in H.R. 1—creates great uncertainty for people with intellectual and developmental disabilit...
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ANCOR @therealancor.bsky.social · 01/04/2026
Ask Congress to cosponsor the Recognizing the Role of DSPs Act: www.ancor.org/actions/tell...
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ANCOR @therealancor.bsky.social · 01/04/2026
DSPs are the backbone of community-based services for people with I/DD. As #CareWorkersRecognitionMonth begins, support the direct support workforce & ensure better data collection.
graphic: There are countless ways DSPs support people with I/DD to lead independent, self-determined lives.

- Transitioning from your bed to your wheelchair in the morning
- Brushing your teeth, taking a shower, and getting dressed
- Getting to work and succeeding while there
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ANCOR @therealancor.bsky.social · 19/03/2026
We also want to thank House Energy & Commerce Committee Ranking Member Rep. Frank Pallone and Health Subcommittee Ranking Member @degette.house.gov for their leadership in emphasizing the importance of home and community-based services and the need to protect Medicaid during the hearing.
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ANCOR @therealancor.bsky.social · 19/03/2026
ICYMI: ANCOR CEO Barbara Merrill testified at a House Energy & Commerce Health Subcommittee hearing yesterday to shine a light on the critical role of community-based services in the lives of people with I/DD, their families & communities. Watch her testimony: www.youtube.com/live/SgsYVQf...
youtube.com
Health Hearing: Lowering Health Care Costs: An Examination of the U.S. Provider Landscape
YouTube video by House Committee on Energy and Commerce
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ANCOR @therealancor.bsky.social · 18/03/2026
ANCOR CEO Barbara Merrill shared the per person cost of HCBS vs large state institutions during today's House hearing on health care affordability. Thank you @repbarragan.bsky.social for highlighting that HCBS is the most impactful AND cost-effective solution for people with disabilities.
Representative Barragán holding up a sheet of paper reading $70,000 v. $395,000 during a House Subcommittee hearing
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ANCOR @therealancor.bsky.social · 18/03/2026
"These I/DD services, which can only be accessed through Medicaid, accomplish all of this at an average cost of $70,000 per years per person. A fraction of the cost of the alternative..." -Barbara Merrill, ANCOR CEO at @housecommerce.bsky.social Health Subcommittee hearing
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ANCOR @therealancor.bsky.social · 18/03/2026
"Home and Community Based Services make it possible for people with I/DD to carry out daily activities of living, build skills, find and keep jobs. They also allow loved ones to remain in the workforce." -Barbara Merrill, ANCOR CEO at @housecommerce.bsky.social Health Subcommittee hearing
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ANCOR @therealancor.bsky.social · 18/03/2026
This is TODAY! Watch on YouTube -> youtu.be/SgsYVQf6QVE
youtu.be
Health Hearing: Lowering Health Care Costs: An Examination of the U.S. Provider Landscape
YouTube video by House Committee on Energy and Commerce
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ANCOR @therealancor.bsky.social · 16/03/2026
On March 18, ANCOR CEO Barbara Merrill will testify in front of the House Energy & Commerce Health Subcommittee during a hearing on health care affordability. The event starts at 10:15am ET, and can be livestreamed here -> energycommerce.house.gov/events/healt... #disability
energycommerce.house.gov
Health Subcommittee: Lowering Health Care Costs for All Americans: An Examination of the U.S. Provider Landscape
The Committee on Energy and Commerce is the oldest standing legislative committee in the U.S. House of Representatives and is vested with the broadest jurisdiction of any congressional authorizing com...
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ANCOR @therealancor.bsky.social · 10/03/2026
ANCOR is proud to support the bipartisan SSI Restoration Act. Introduced by @warren.senate.gov, Reps. Grijalva, Schakowsky & Moylan, this bill will strengthen critical SSI benefits that support people with disabilities and update the program to meet current needs. Learn more:
warren.senate.gov
Warren, Grijalva, Schakowsky, Moylan, 30+ Lawmakers Introduce Bipartisan Bill to Update, Expand Lifeline Benefits for Seniors, Americans with Disabilities | U.S. Senator Elizabeth Warren of Massachuse...
The Official U.S. Senate website of Senator Elizabeth Warren of Massachusetts
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ANCOR @therealancor.bsky.social · 06/02/2026
Thanks to the advocacy of ANCOR advocates & leadership of Representative Ciscomani, access to essential coverage is secure!
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ANCOR @therealancor.bsky.social · 06/02/2026
This week Congress passed a law to remove age limits on Medicaid Buy-In programs. This is a big win for people with disabilities age 65+ who can keep their jobs without losing Medicaid.
Dome of the U.S. Capitol on a blue sky background beside text: 'Advocacy Update: Age limits removed on Medicaid Buy-In Programs'
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ANCOR @therealancor.bsky.social · 15/01/2026
Access the latest Case for Inclusion Data Snapshot here -> caseforinclusion.org
caseforinclusion.org
Home :: Case for Inclusion
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ANCOR @therealancor.bsky.social · 15/01/2026
'Called the Case for Inclusion Data Snapshot, the report is an annual assessment of the effectiveness of state programs, with the aim of providing targeted insights about the challenges facing community-based IDD services.' www.mcknightshomecare.com/news/report-... #disability #IDD #medicaid
mcknightshomecare.com
Report shows workforce gains for disability services, but Medicaid cuts threaten progress
A new report released by United Cerebral Palsy and ANCOR, a community of providers for people with disabilities, looks at the impact of funding cuts on access to community-based services for those wit...
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ANCOR @therealancor.bsky.social · 14/01/2026
*NEW* Analysis from ANCOR & UCP uncovers modest but meaningful improvements in the workforce that supports people with IDD, & proposes policy solutions to ensure that progress is sustainable while facing looming federal funding cuts. Learn more: caseforinclusion.org #disability #medicaid #data
colorful graphic with thumbnail of the cover of a report:

Case for Inclusion 2026 Data Snapshot - The Looming Impact of Funding Cuts on Access to Community Services
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ANCOR @therealancor.bsky.social · 12/12/2025
New data from ANCOR’s sixth annual survey of community providers highlights key challenges providers and people with intellectual and developmental disabilities (I/DD) face as a result of Medicaid eligibility and renewal policies. Take a look in our new fact sheet: www.ancor.org/wp-content/u...
report icon next to text that reads 'New Fact Sheet - Medicaid Eligibility & Renewals for People with I/DD'
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ANCOR @therealancor.bsky.social · 31/10/2025
"Add to [the ongoing workforce crisis] the nearly $1 trillion in funding cuts passed earlier this year in the budget bill, and it’s not hard to understand why people with disabilities are gravely concerned about the future of their services.” www.mcknightshomecare.com/news/survey-...
mcknightshomecare.com
Survey: Staffing challenges afflict nearly 9 in 10 HCBS providers serving people with disabilities
While the direct care worker staffing situation is improving slowly, the vast majority of providers still report being unable to fill vacancies.
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ANCOR @therealancor.bsky.social · 29/10/2025
This fall, ANCOR fielded our sixth annual survey of community providers of I/DD services, continuing our effort to better understand how providers navigate long-term shortages of direct support professionals (DSPs). Here’s what we learned: www.ancor.org/resources/th...
front cover page of the State of America's Direct Support Workforce Crisis 2025
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ANCOR @therealancor.bsky.social · 23/09/2025
Autism is not a crisis. It does not destroy families. Help us tell federal policymakers to invest in community-based services and ensure people with Autism have access to critical supports to participate in our communities: www.ancor.org/actions/advo...
ancor.org
Advocate for the HCBS Relief Act: Strengthen Community Services | ANCOR
The HCBS Relief Act would provide a 10-percentage-point increase in Federal Medical Assistance Percentage (FMAP) for HCBS in 2026 and 2027.
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Reposted by ANCOR
NJ Department of Human Services @njhumanservices.bsky.social · 08/09/2025
@GovMurphy has declared this week to be #DirectSupportProfessionalsWeek! @NJDHS thanks all DSPs who make a difference in the lives of so many by providing necessary supports that enable them to live, work & enjoy life as independently as possible in their community. #DSPRW2025
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