iiinova — where your digital self keeps evolving

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Kelly @broadwaybabyto.bsky.social · 04/10/2026

Everyone should be fighting for Universal Healthcare and disability rights. Health is fragile. You can become disabled or chronically ill in an instant. It’s not a moral failing. It can wipe out your savings and leave you destitute. Healthcare is a basic human right.

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Norges ME-forening @meforeningen.bsky.social · 02/10/2026

ME-foreningens assisterende generalsekretær, Trude Schei, har blitt intervjuet i Dagsavisen, etter at george Monbiot skrev om at forholdene for norkse ME-pasienter var dårlige. Trude er enig - tusenvis av svar fra brukerundersøkelser tegner et forferdelig bilde. www.dagsavisen.no/nyheter/leve...

dagsavisen.no

«Levende mareritt» for ME-pasienter i Norge

Voksne venter i snitt 6,3 år på diagnose, barn 10,6. Pasienter og pårørende forteller om et system som gjør mange sykere.

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Nils Henrik @nilshenrik.bsky.social · 28/09/2026

Er det éin ting me kan vere heilt sikre på så er det at å tillate "aktiv dødshjelp" innan kort tid vil føre til ekstremt aktivt dødspress mot langt større grupper enn tilhengjarane av legalisering vil eller evnar å ta inn over seg. Siste spikar i kista for idéen om at eit menneskeliv har eigenverdi.

aftenposten.no

Spørsmålene A-magasinet ikke stilte om dødshjelp

A-magasinets reportasje om en kvinne som reiste til Sveits for å dø ved hjelp av legeassistert selvmord, etterlater mange spørsmål som avisen ikke stiller.

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Kelly @broadwaybabyto.bsky.social · 21/09/2026

“If you were really that sick you would…” Have help Be in a home Not be online Be dead People are incapable of believing that support doesn’t magically show up when you need it You don’t necessarily die just because things become dire Disabled people need more support We deserve to be believed.

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🎃Nattsvart Cath 🧙🏻‍♀️🐈‍⬛ @drumsgard.bsky.social · 15/09/2026

Det verste med å være mammaen til Oscar var at mange i hjelpeapparatet og særlig i kommunen stadig skulle fortelle meg hvor dyrt det var å holde ham i live Samfunnet som helhet må faktisk velge mellom å helhjertet redde disse barna eller å åpent si at det vil vi ikke. Se egen fascisme rett i øyet

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Fuchsia Blix @fuchsiablix.bsky.social · 16/09/2026

Idé til sosiologisk eksperiment: Se hvor mange programmer om ME Harald Eia kan lage før en eller annenredaksjon stopper opp og sier «Haha, kanskje vi skal se litt mer på de tette, langvarige båndene hans til en liten, søppelvitenskapelig lobbygruppe med masse dritt å selge før vi publiserer dette?»

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Kelly @broadwaybabyto.bsky.social · 12/09/2026

When disabled people oppose Assisted Dying, it’s almost never from a religious point of view. It’s not because we’re anti-choice or that we want to force people to suffer. We oppose it because society devalues disabled lives and uses these programs in an unethical manner. They become eugenics. 🧵

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Kelly @broadwaybabyto.bsky.social · 26/08/2026

Disability and homelessness often go hand in hand. Being sick is expensive. The “crip tax” is real. Benefits force you into legislated poverty and make you give up any savings or security. People don’t want to rent to the disabled. It’s suffering as a policy choice.

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Kelly @broadwaybabyto.bsky.social · 12/08/2026

Privilege and luck play a huge role in whether you survive the healthcare system. Bias and misogyny are rampant and frequently cost people their lives. A surgical complication almost killed me when I was 24. Luck, privilege and a 22 year old boy saved my life. 🧵

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Kelly @broadwaybabyto.bsky.social · 10/08/2026

When you’re disabled, people will treat you like you’re broken. They’ll act like you’re in the wrong no matter what you do. They will insinuate you could “try harder”. They will blame you for their discomfort. Your disability is not your fault. People just can’t face it.

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Kelly @broadwaybabyto.bsky.social · 04/08/2026

It’s not your fault you’re disabled. It’s not your fault you’re chronically ill. It’s not your fault you’re living in poverty, lacking health insurance, homeless or unemployed. The billionaire class wants us to believe these are moral failings so they don’t have to help people. We should help.

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Kelly @broadwaybabyto.bsky.social · 27/07/2026

Give people the support they need to live a dignified life, and they won’t feel pressured to access Medical Assistance in Dying. Make sure they’re getting the medical care they need. Ensure they’re housed & fed. If you don’t offer the care needed to live, assisted dying becomes coercive:

cbc.ca

Sault Ste. Marie man wants to offer ‘competitive alternatives’ to medical assistance in dying | CBC News

The founder of a start-up called Right to Live Canada, Eric Holmes says MAID could be avoided in some cases if patients had better housing or financial outcomes.

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Anna Fryxelius @annafryxelius.bsky.social · 16/07/2026

Norge har en kultur som forherliger det friske, sterke. Dette koblet med muligheten for å avslutte livet til folk som ikke passer normen, er potensielt svært skadelig. Det åpner for eugenikk.

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Anna Fryxelius @annafryxelius.bsky.social · 16/07/2026

Men med vårt offentlig finansierte og hardt pressede helse- og velferdssystem, er det svært stor risiko for at aktiv dødshjelp vil åpne for press for å avlive kronisk syke og funksjonshemmede som sees som for kostbare.

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Kelly @broadwaybabyto.bsky.social · 15/07/2026

“If you can’t cook there are services” “If you can’t support yourself just tell them & get help” “If it were really that bad support would show up” This is internalized ableism. Most of the time, help isn’t available. Support doesn’t come. Disabled people are on their own.

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Kelly @broadwaybabyto.bsky.social · 10/07/2026

Disability is not a vacation. It’s a 24/7 job You’re forced into legislated poverty You have to endure ableism, abandonment and constant gaslighting You live with pain & suffering that would send most folks to the hospital. You fight for medical care, social supports & dignity. It’s not easy.

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Shanna Katz Kattari, PhD 🍉🏳️‍⚧️🏳️‍🌈♿️ @drshannak.bsky.social · 30/06/2026

Medical aid in dying/assisted suicide options cannot be ethical until we make accessible housing available, pain management for all, universal basic incomes and more

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Kelly @broadwaybabyto.bsky.social · 01/07/2026

Did you know disabled people are far more likely to be the victims of domestic abuse? It’s because we’re trapped. When you can’t perform your own activities of daily living, you endure abuse to survive. Another reason we need better safety nets and social supports.

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Kelly @broadwaybabyto.bsky.social · 21/06/2026

Nothing prepares you for the loneliness that comes with being chronically ill. The grief of realizing the medical system can’t (or won’t) help you. The pain of being abandoned by family & friends. The isolation of knowing we’re in a eugenics nightmare that most don’t see until it’s too late.

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Kelly @broadwaybabyto.bsky.social · 21/06/2026

The moment we start debating the “worth” of others, the fascists win. We all have value. You don’t need to produce for capitalism in order to matter. You don’t need to be healthy, rich or productive. Every person matters. The ruling class benefits when treat people as expendable.

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Kristin @kthftw.bsky.social · 14/05/2026

All den importerte diskursen fra USA om at grunnen til at du er sliten, ulykkelig og/eller syk er fordi du er dårlig til å sette grenser for deg selv og mot andre er bare en ny måte å gi deg skylden og ansvaret for ting som er utenfor din kontroll.

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Luca Dalen Espseth @bestmedbart.bsky.social · 22/05/2026

Jeg forstår ikke. Om jeg kom på jobb og en kollega sa at jeg var feit og stygg, lo rått av meg for en feil jeg gjorde i en presentasjon eller innkalte til et møte uten meg så hadde ingen forventa at jeg kom tilbake på dne arbeidsplassen. Dette utsette barn for daglig på det stedet de må være

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Eirik A @straamann.bsky.social · 15/05/2026

"De nye retningslinjene må sikre grunnlaget for en praksisendring der ME-pasienter og pårørende ikke lenger skal måtte tåle krenkende og skadelig behandling fra de norske helse og velferdstjenestene."

me-foreningen.no

Høringssvar fra Anne Kielland og Arne Grønningsæter fra FAFO

Høringssvar fra FAFO-forskerne Anne Kielland og Arne Grønningsæter, svært kritiske til utkast til nye retningslinjer

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Chronic Illness Humor @chronicillness.bsky.social · 11/05/2026

If you think quarantine traumatized you. Try having a chronic illness or disability that keeps you inside for 90% or more of your life. It's not easy.

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Jonas Ali Ghanizadeh @jonasali.bsky.social · 27/04/2026

hvis man skal omtale Lightning Process på en redelig måte er det jo vanskelig å beskrive det som noe annet enn selvbekreftelses svindel fra griftere som utnytter desperate folk i sårbare situasjoner lightning process folka er rett ut uetisk www.aftenposten.no/meninger/deb...

aftenposten.no

Omtale av Lightning Process bør bygge på redelighet

Les Kristin Blakers innlegg.

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Eirik A @straamann.bsky.social · 12/04/2026

Medical gaslighting does not depend on the beliefs or intentions of the medical practitioner.If a doctor wrongly dismisses or minimizes a patient’s illness it’s gaslighting,regardless of whether the doctor has convinced themself that what they’re saying is true, or believes they are being reassuring

mecfs.substack.com

Medical gaslighting is serious, harmful, and out of control

I’ve been working through what medical gaslighting is, how we should talk about it, and how it should be dealt with. Here’s where I’m at.

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Katie Klocksin, by the wayside @katieklocksin.bsky.social · 07/04/2026

Article: Chronic diseases misdiagnosed as psychosomatic can lead to long term damage This happens to nearly all myalgic encephelomyelitis patients. It’s brutal, but validating and important to see the harm named and studied. #GreatestMEdicalScandal www.cam.ac.uk/research/new...

cam.ac.uk

Chronic diseases misdiagnosed as psychosomatic can lead to long term damage

A ‘chasm of misunderstanding and miscommunication’ is often experienced between clinicians and patients, leading to autoimmune diseases such as lupus and

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David Tuller @davetuller1.bsky.social · 04/04/2026

Now Trudie Chalder says "recovery from CFS" through CBT doesn't mean absence of symptoms and getting back to regular life but is more about accepting and coming to terms with chronic illness. Huh??? Isn't that acknowledging that CBT doesn't really produce "recovery"? virology.ws/2026/04/03/t...

virology.ws

Trial By Error: Professor Chalder Downgrades Definition of "Recovery" | Virology Blog

By David Tuller, DrPH President Trump’s words and actions are routinely mind-boggling but never surprising, given past experience. The same is true of paper ...

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Tom Kindlon @tomkindlon.bsky.social · 04/04/2026

"Medical gaslighting is serious, harmful, and out of control: I’ve been working through what medical gaslighting is, how we should talk about it, & how it should be dealt with. Here’s where I’m at" by @kjohnstone.bsky.social mecfs.substack.com/p/medical-ga... #MedicalGaslighting #invisibleillness

Medical gaslighting occurs when a medical professional wrongly tells a patient that there is nothing wrong with them, or that their medical condition is less severe than it truly is.

Medical gaslighting can be extremely harmful to patients. The effects can include:

PTSD

Loss of self-confidence

Loss of trust in medical professionals

Not seeking needed medical care

Loss of family support (if the doctor doesn’t believe you’re sick, why should your family?)

Loss of support and accommodations at work

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Kelly @broadwaybabyto.bsky.social · 30/03/2026

Disabled people can’t “just try harder” to get better. Being disabled isn’t a choice or a state of mind. It’s not something that you can will your way out of. We deserve and need compassion & support… not people who put us down and demand we play through the pain

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♿ hiding from plagues - Always masked - N95 or bust @smollestbunny2.bsky.social · 29/03/2026

Barely anyone actually cares about thr constant violence against disabled people. Kelly is one of few people who actually talks about it frequently. Truly no one cares about us

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Dr. Soda @sodafountainrag.bsky.social · 27/03/2026

"Men jeg jobba kjempehardt for dette! Det er klart jeg fortjener høy lønn!" App! App! App! App! Det gjorde de på minste ufør også. De jobba drithardt og fikk null uttelling. Folk må slutte å tro på arbeidslivets prosperity gospel altså. Dere Hadde Flaks.

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Eirik A @straamann.bsky.social · 26/03/2026

Olav Røise skriver i Dagens medisin: www.dagensmedisin.no/pasientsikke...

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Eirik A @straamann.bsky.social · 19/03/2026

prof. emeritus Rolf Rønning: - NAV bryr seg ikke om Stortingets vedtak eller Sivilombudets påpekning, og de bryr seg slettes ikke om at de ME-sjuke blir sjukere.

klassekampen.no

Hvem kan stoppe Nav?

For å få en ME-diagnose i Norge er det ikke nok å ha kronisk utmattelsessyndrom (ME/CFS), en må også ha fått diagnostisert anstrengelsesutløst systemf...

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Frida Danmo @frida.lvup.no · 08/03/2026

Gratulerer med kvinnedagen! Om eg skal trekke fram éin ting i år så faller valget på kvinnehelse: Det tar ~5-7 år å få diagnose på fleire av sjukdommane ~10% av kvinner får. Mange blir ikkje trudd, eller blir avvist. Kvinnesjukd. blir mindre forska på enn mannssjukd. Meir fokus på kvinnehelse NO!

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Kelly @broadwaybabyto.bsky.social · 08/03/2026

Anyone can become disabled at any time. Your life can change in an instant, no matter how strong and healthy you think you are. People will leave you. Funds will dry up. Life will get tougher. It’s not a moral failing. It’s a minority group you can join anytime.

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Eirik A @straamann.bsky.social · 24/02/2026

Interessant artikkel om vårt tids buzzword "nevroplastisitet": "The metaphor turns healing into a moral achievement, and failure into a personal flaw... But science tells a different story: change is possible, yes. But it’s constrained by biology and shaped by context."

aeon.co

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Carlsbj📎 @carlsbj.bsky.social · 21/02/2026

"Regjeringen har lovet at ventetidene i helsevesenet skal ned, og at pasienter ikke skal bli kasteballer mellom ulike deler av helsetjenesten. Ifølge Pasient- og brukerombudet er virkeligheten langt unna disse målene."

altinget.no

Pasientombudet mener reelle ventetider skjules i dagens system - Altinget

Ombudet sier dagens måling av ventetider i helsevesenet gir et misvisende bilde av pasientenes faktiske situasjon. Samtidig advarer de mot en usammenhengende helsetjeneste der pasienter faller mellom ...

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Beate 🖇️ @beate.bsky.social · 20/02/2026

Helsenorge har for lengst hoppet på en rekke "behandlinger" som er mer lyssky, dårligere dokumentert og ofte farligere enn mange alternative terapiformer. Det jeg ikke helt skjønner er hvorfor det går lob til å skje?

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Eirik A @straamann.bsky.social · 19/02/2026

- Det mest provoserende er stigmatiseringen som følger med. Det har vokst fram en hel industri av coacher og kursledere som selger «mestring» uten vitenskapelig belegg. Budskapet deres er like forførende som det er farlig: Hvis du bare endrer tankesettet ditt, blir du frisk.

aftenbladet.no

Jeg sitter i rullestol fordi jeg ble bedt om å kjempe en kamp kroppen min er rigget til å tape

DEBATT: Her i Stavanger-regionen er vi stolte av arbeidsmoralen vår. Vi er flasket opp på tanken om at hvis du bare «står an av» og tar i et tak, så løser det meste seg. Men i møte med den biologiske ...

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Jen Mercieca @jenmercieca.bsky.social · 08/02/2026

"Dorothy saw that Hitler was a loser who appealed to other losers by promising them a better future: “I thought him a Little Man,” she wrote, “but perhaps therein, exactly therein, lies the secret of his enormous success.” jennifermercieca.substack.com/p/fascism-is...

jennifermercieca.substack.com

Fascism is for Losers

A Book TOC, lol/cry

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Vestkantraddis @radwest.bsky.social · 26/01/2026

Husk: Fascisme er ikke noen ideologi. Fascisme er kun vold. Fascister tror ikke på noe annet enn å herske ved bruk av vold. Derfor kan du aldri gå i dialog med fascister.

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