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Ted Monroe

@tedmonroe91.bsky.social

45 followers 60 following 36 posts

English teacher; writer; impatient Long Covid patient Read: tedmonroe91.substack.com

Posts Replies Media

Ted Monroe @tedmonroe91.bsky.social · 05/10/2026

tedmonroe91.substack.com/p/long-covid... An article about #LongCovid and how art can be a refuge from the exile of #chronicillness Perhaps @georgemonbiot.bsky.social might enjoy after his recent article on ME/CFS

tedmonroe91.substack.com

Long Covid: Exile, Burial & Asylum

On a morning almost exactly four years ago, I woke up to a peculiar sensation.

Reposted by Ted Monroe

George Monbiot @georgemonbiot.bsky.social · 02/10/2026

@davetuller1.bsky.social, a great champion of patients, interviewed me about the massive, ongoing scandal of the neglect, abuse and mistreatment of people with ME/CFS www.youtube.com/watch?v=Maae...

Interview with George Monbiot about Guardian column on ME/CFS

YouTube video by David M Tuller

Reposted by Ted Monroe

George Monbiot @georgemonbiot.bsky.social · 24/09/2026

Here's today's column on the astonishing, ongoing mistreatment of people with #ME/CFS. Please spread it far and wide: the only thing which can break the media's wall of indifference is seeing an article about the issue go viral. Thank you. 1/2 www.theguardian.com/commentisfre...

theguardian.com

Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George Monbiot

Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot

Ted Monroe @tedmonroe91.bsky.social · 25/07/2026

10 Most Popular Articles This Year A substack about art, literature and chronic illness. #Chronicillness #LongCovid #MECFS

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10 Most Popular Articles This Year

In Case you Missed Them...

Reposted by Ted Monroe

Long Covid Advocacy @longcovidadvoc.com · 13/07/2026

Winner of our giveaway is no.91 @alivemiracles.bsky.social on Bluesky. We numbered the entries and @tedmonroe91.bsky.social chose the number by random generator. Congratulations! 🎉

Ted Monroe @tedmonroe91.bsky.social · 09/07/2026

"It was an unlikely end for a boy who had enjoyed the more pugnacious side of the playground, but Keats would go on to represent the archetypal Romantic sick boy"

open.substack.com

Top Three Worst Literary Convalescents of All Time

Reposted by Ted Monroe

Long Covid Advocacy @longcovidadvoc.com · 05/07/2026

We have two treats in store: 1. An excellent article by writer @tedmonroe91.bsky.social on Levinovitz & the brain retrainers. 2. A giveaway of 'On Being Ill' by Woolf with 12 new essays by modern writers, including one on Long Covid by Ted! Just like & comment VIRGINIA to enter 🎁 #booksky

Promotional graphic with a muted gray engraving-style background showing an elderly hooded figure embracing a younger person, with a medieval city skyline behind them. In the upper right is the cover of *On Being Ill* by Virginia Woolf with the text: “feat. Ted’s essay!” An arrow points to the book with the words “Signed copy” and “with Giveaway.” The main text reads: “ARTICLE BY TED MONROE: ‘That agony returns’: What Coleridge’s ancient mariner can teach us about the Long Covid brain re-trainers.” At the bottom: “Excellent commentary reflecting on Alan Levinovitz’s WIRED piece.”

Ted Monroe @tedmonroe91.bsky.social · 02/07/2026

It's time to reveal our Second Worst Literary Convalescent of All Time, Samuel Johnson. "It wasn’t an auspicious start for the greatest literary savant of the age..."

open.substack.com

Top Three Worst Literary Convalescents of All Time

Ted Monroe @tedmonroe91.bsky.social · 29/06/2026

Top Three Worst Literary Convalescents of All Time #3 Thomas de Quincey tedmonroe91.substack.com/p/top-3-wors... "He secures the spot over Coleridge because of his magnificent autobiography, Confessions of an Opium Eater, and for the sheer commitment he had to his habit."

open.substack.com

Top Three Worst Literary Convalescents of All Time

Ted Monroe @tedmonroe91.bsky.social · 12/06/2026

Poor you that sounds so difficult. I’m very sorry and I do realise how lucky I am that got away with just a scare.

Ted Monroe @tedmonroe91.bsky.social · 12/06/2026

Just dreadful. It’s such a sinister disease that finds a way to tinker with every system - even the ones you thought were safe! I’m sorry to hear about your family member with LC - poor them

Ted Monroe @tedmonroe91.bsky.social · 12/06/2026

Thank you Kate! Again, so kind of you to say!

Ted Monroe @tedmonroe91.bsky.social · 12/06/2026

Thank you so much Kate, for your kind words! They are so much appreciated!

Ted Monroe @tedmonroe91.bsky.social · 11/06/2026

Seeing Double – "A few days ago... I had sudden onset diplopia... all now fractured into a great optical orchestra like a cubist painting by Braque or Picasso." #longcovid #MyalgicEncephalomyelitis #chronicillness

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Seeing Double –

Long Covid and Ways of Seeing

Ted Monroe @tedmonroe91.bsky.social · 26/05/2026

My essay on #LongCovid is published in this delightful edition of On Being Ill, with Woolf’s original essay and essays and poetry from 11 contemporary writers. Book out 2nd June

Reposted by Ted Monroe

Ted Monroe @tedmonroe91.bsky.social · 19/05/2026

open.substack.com

Virginia Woolf's 'On Being Ill' & other essays on illness

My essay in a new anthology of illness writing alongside Woolf's original masterpiece

Ted Monroe @tedmonroe91.bsky.social · 19/05/2026

open.substack.com

Virginia Woolf's 'On Being Ill' & other essays on illness

My essay in a new anthology of illness writing alongside Woolf's original masterpiece

Reposted by Ted Monroe

Ted Monroe @tedmonroe91.bsky.social · 13/05/2026

My essay on #LongCovid is included in a new edition of Virginia Woolf's 'On Being Ill' from The New Menard Press - alongside the works of 11 other contemporary writers. Book out on June 2nd. Pre-order here: www.waterstones.com/book/on-bein...

Ted Monroe @tedmonroe91.bsky.social · 13/05/2026

My essay on #LongCovid is included in a new edition of Virginia Woolf's 'On Being Ill' from The New Menard Press - alongside the works of 11 other contemporary writers. Book out on June 2nd. Pre-order here: www.waterstones.com/book/on-bein...

Reposted by Ted Monroe

Ted Monroe @tedmonroe91.bsky.social · 11/05/2026

'Nothing can inspire sympathy for Roald Dahl’s indomitable child-hater, Miss Trunchbull, like teaching in a school.' #LongCovid #ME/CFS

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With Sympathies to Miss Trunchbull

Teaching with Long Covid

Ted Monroe @tedmonroe91.bsky.social · 11/05/2026

'Nothing can inspire sympathy for Roald Dahl’s indomitable child-hater, Miss Trunchbull, like teaching in a school.' #LongCovid #ME/CFS

open.substack.com

With Sympathies to Miss Trunchbull

Teaching with Long Covid

Reposted by Ted Monroe

Pip Kazan @pipkazan.bsky.social · 01/05/2026

Life with a chronic illness is crushingly transactional. I had a lovely yesterday with Mrs K - IKEA! Bao buns! Giggling over fake tan in Boots! - but today I pay the price. #MECFS

Reposted by Ted Monroe

Ted Monroe @tedmonroe91.bsky.social · 23/04/2026

Confessions of a Long Covid Convalescent "Reader, I declined. This was not the kind of symptom relief that I had requested, and I left feeling that there had been a rather profound misunderstanding as what constituted a ‘whole body massage’." #LongCovid #MECFS #pwme #pwlc

open.substack.com

Confessions of a Long Covid Convalescent

The vicissitudes of the search for relief

Ted Monroe @tedmonroe91.bsky.social · 23/04/2026

Confessions of a Long Covid Convalescent "Reader, I declined. This was not the kind of symptom relief that I had requested, and I left feeling that there had been a rather profound misunderstanding as what constituted a ‘whole body massage’." #LongCovid #MECFS #pwme #pwlc

open.substack.com

Confessions of a Long Covid Convalescent

The vicissitudes of the search for relief

Reposted by Ted Monroe

Long Covid Advocacy @longcovidadvoc.com · 16/04/2026

👏Excellent commentary to @BBCR4Feedback by Helen Gibson, @tedmonroe91.bsky.social & @nickyproctor.bsky.social 🧪 It also shows the power of @DecodeMEstudy in refuting stigmatising, outdated & false views of people like O'Sullivan.

Ted Monroe @tedmonroe91.bsky.social · 15/04/2026

‘When from this wreathed tomb shall I awake! / When move in a sweet body fit for life, / And love, and pleasure…’ Keats #LongCovid #ME #MECFS

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A timeline in pictures and quotations

Ted Monroe @tedmonroe91.bsky.social · 09/04/2026

"Well, that’s Easter gone. Christ rose: Alleluia. No resurrection for this post-viral convalescent took place last weekend, however." #LongCovid #ME #MECFS Miraculous Reawakening in Shakespeare's 'The Winter's Tale' open.substack.com/pub/tedmonro...

Reposted by Ted Monroe

Yvonne @emoyvonne.bsky.social · 05/04/2026

“The annual transition from death to rebirth – propelled irrepressibly forwards – deepens the feeling that we are out of sync with the rest of the ecosphere and with our fellow humans now expanding into life as the days lengthen.” Beautiful contemplations in this piece. #LongCovid #mecfs

Ted Monroe @tedmonroe91.bsky.social · 05/04/2026

"April is the cruellest month." - T.S. Eliot My essay on the dissonance of spring for people with #MECFS and #LongCovid

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A patch of want in a garden of plenty

The Resentment of Spring

Ted Monroe @tedmonroe91.bsky.social · 25/03/2026

The isle is full of noises: what Shakespeare's The Tempest can teach us about #LongCovid and #MECFS open.substack.com/pub/tedmonro...

open.substack.com

The isle is full of noises

Long Covid and Shakespeare's 'The Tempest'

Ted Monroe @tedmonroe91.bsky.social · 15/03/2026

@georgemonbiot.bsky.social @longcovidsupport.bsky.social

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Ted Monroe @tedmonroe91.bsky.social · 15/03/2026

#LongCovidAwarenessDay #millionsmissing I was a teacher with a rich and active life. Now, thanks to #LongCovid, my days look like this:

Ted Monroe @tedmonroe91.bsky.social · 13/03/2026

open.substack.com/pub/tedmonro... #LongCOVID #ME/CFS #chronicillness

open.substack.com

A patch of want in a garden of plenty

The Resentment of Spring

Ted Monroe @tedmonroe91.bsky.social · 11/03/2026

6 years ago today, Covid-19 was officially declared a pandemic by the WHO. Now, most people have returned to normal. But there are still #millionsmissing with #longCOVID whose lives have been capsized. I wrote an article about it: the-fence.com/a-failure-to... for @thefence.bsky.social

A Failure to Convalesce

An interminable struggle to put on a jumper.

Reposted by Ted Monroe

Ted Monroe @tedmonroe91.bsky.social · 03/03/2026

No More Cakes and Ale: Long Covid and the Lenten menu... #longcovid Lean times on the culinary front

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No More Cakes and Ale

Long Covid and the diminished menu

Ted Monroe @tedmonroe91.bsky.social · 04/03/2026

Thanks, Anna!

Ted Monroe @tedmonroe91.bsky.social · 03/03/2026

No More Cakes and Ale: Long Covid and the Lenten menu... #longcovid Lean times on the culinary front

open.substack.com

No More Cakes and Ale

Long Covid and the diminished menu

Reposted by Ted Monroe

Ted Monroe @tedmonroe91.bsky.social · 18/02/2026

A Year in the life of a #LongCovid patient @longcovidsupport.bsky.social @longcovidadvoc.com

open.substack.com

A timeline in pictures and quotations

Ted Monroe @tedmonroe91.bsky.social · 18/02/2026

A Year in the life of a #LongCovid patient @longcovidsupport.bsky.social @longcovidadvoc.com

open.substack.com

A timeline in pictures and quotations

Ted Monroe @tedmonroe91.bsky.social · 16/02/2026

Thanks, Kate, Sending solidarity back!✊I hope you enjoy it when you get to it.

Ted Monroe @tedmonroe91.bsky.social · 16/02/2026

Thank you, Martin. And you put it so well: 'Illness not as dissonance, an affront to living, but indeed harmonious, inherent to life' - I wish I'd thought of that!

Ted Monroe @tedmonroe91.bsky.social · 14/02/2026

'Let us not seek our disease out of ourselves; ‘tis in us' – Montaigne, one of his less impressive insights #mecfs #chronicillness #longcovid #pwme #pwlc

Ted Monroe @tedmonroe91.bsky.social · 13/02/2026

Thank you so much!

Ted Monroe @tedmonroe91.bsky.social · 13/02/2026

A Meditation on Long Covid and the Fear of missing Out, or FOMO #longcovid #mecfs #pwme @longcovidadvoc.com @longcovidsupport.bsky.social open.substack.com/pub/tedmonro...

open.substack.com

'Well, they are gone, and here must I remain'

A meditation on FOMO and Long Covid

Reposted by Ted Monroe

Long Covid Kids @longcovidkids.bsky.social · 02/02/2026

Funded by the Buckinghamshire-based ME Association, external and carried out at Imperial College London, the Rosetta Stone study hopes to look for biomarkers and "decode the immunological profile" of both ME and Long Covid. www.bbc.co.uk/news/article... #OverlappingIllness #ME #LongCovid

Reposted by Ted Monroe

Ted Monroe @tedmonroe91.bsky.social · 15/03/2025

For us the pandemic never finished. We watch on in slumbery agitation as an amnesiac world carries on. We see, in W.H. Auden’s words, ‘how everything turns away / Quite leisurely from the disaster’. www.the-fence.com/a-failure-to... My article for @thefence.bsky.social on #longcovid.

A Failure to Convalesce

An interminable struggle to put on a jumper.

Reposted by Ted Monroe

Ted Monroe @tedmonroe91.bsky.social · 27/01/2026

A Substack about post-viral illness and the poetry of T.S. Eliot #longcovid #mecfs #chronicillness Pinned and Wriggling open.substack.com/pub/tedmonro...

open.substack.com

Pinned and Wriggling

Post-viral illness and the poetry of T.S. Eliot

Ted Monroe @tedmonroe91.bsky.social · 27/01/2026

A Substack about post-viral illness and the poetry of T.S. Eliot #longcovid #mecfs #chronicillness Pinned and Wriggling open.substack.com/pub/tedmonro...

open.substack.com

Pinned and Wriggling

Post-viral illness and the poetry of T.S. Eliot

Ted Monroe @tedmonroe91.bsky.social · 08/01/2026

Check out 'The Art of Convalescence', a Substack with some teething issues about how art and literature can help people with chronic illness through the dark times... open.substack.com/pub/tedmonro... @longcovidadvoc.com @longcovidsos.bsky.social @longcovidsupport.bsky.social

open.substack.com

The Art of Convalescence

How art and literature can guide us through the dark times of chronic illness

Reposted by Ted Monroe

George Monbiot @georgemonbiot.bsky.social · 08/10/2025

ME/CFS is a devastating condition that has long been denied, dismissed, psychologised and underdiagnosed. Research is at last starting to catch up with it, with glimmers of hope for those who have been left untreated for so long. There's a huge BUT coming ...🧵 www.theguardian.com/society/2025...

theguardian.com

Scientists develop first ‘accurate blood test’ to detect chronic fatigue syndrome

Research could offer hope for ME patients – but some experts urge caution and say more studies needed