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Ted Monroe

@tedmonroe91.bsky.social
44 followers 60 following 35 posts

English teacher; writer; impatient Long Covid patient Read: tedmonroe91.substack.com

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Reposted by Ted Monroe
George Monbiot @georgemonbiot.bsky.social · 24/09/2026
Here's today's column on the astonishing, ongoing mistreatment of people with #ME/CFS. Please spread it far and wide: the only thing which can break the media's wall of indifference is seeing an article about the issue go viral. Thank you. 1/2 www.theguardian.com/commentisfre...
theguardian.com
Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George Monbiot
Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot
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Ted Monroe @tedmonroe91.bsky.social · 25/07/2026
10 Most Popular Articles This Year A substack about art, literature and chronic illness. #Chronicillness #LongCovid #MECFS
open.substack.com
10 Most Popular Articles This Year
In Case you Missed Them...
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Reposted by Ted Monroe
Long Covid Advocacy @longcovidadvoc.com · 13/07/2026
Winner of our giveaway is no.91 @alivemiracles.bsky.social on Bluesky. We numbered the entries and @tedmonroe91.bsky.social chose the number by random generator. Congratulations! 🎉
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Ted Monroe @tedmonroe91.bsky.social · 09/07/2026
"It was an unlikely end for a boy who had enjoyed the more pugnacious side of the playground, but Keats would go on to represent the archetypal Romantic sick boy"
open.substack.com
Top Three Worst Literary Convalescents of All Time
#1
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Reposted by Ted Monroe
Long Covid Advocacy @longcovidadvoc.com · 05/07/2026
We have two treats in store: 1. An excellent article by writer @tedmonroe91.bsky.social on Levinovitz & the brain retrainers. 2. A giveaway of 'On Being Ill' by Woolf with 12 new essays by modern writers, including one on Long Covid by Ted! Just like & comment VIRGINIA to enter 🎁 #booksky
Promotional graphic with a muted gray engraving-style background showing an elderly hooded figure embracing a younger person, with a medieval city skyline behind them. In the upper right is the cover of *On Being Ill* by Virginia Woolf with the text: “feat. Ted’s essay!” An arrow points to the book with the words “Signed copy” and “with Giveaway.” The main text reads: “ARTICLE BY TED MONROE: ‘That agony returns’: What Coleridge’s ancient mariner can teach us about the Long Covid brain re-trainers.” At the bottom: “Excellent commentary reflecting on Alan Levinovitz’s WIRED piece.”
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Ted Monroe @tedmonroe91.bsky.social · 02/07/2026
It's time to reveal our Second Worst Literary Convalescent of All Time, Samuel Johnson. "It wasn’t an auspicious start for the greatest literary savant of the age..."
open.substack.com
Top Three Worst Literary Convalescents of All Time
#2
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Ted Monroe @tedmonroe91.bsky.social · 29/06/2026
Top Three Worst Literary Convalescents of All Time #3 Thomas de Quincey tedmonroe91.substack.com/p/top-3-wors... "He secures the spot over Coleridge because of his magnificent autobiography, Confessions of an Opium Eater, and for the sheer commitment he had to his habit."
open.substack.com
Top Three Worst Literary Convalescents of All Time
#3
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Ted Monroe @tedmonroe91.bsky.social · 11/06/2026
Seeing Double – "A few days ago... I had sudden onset diplopia... all now fractured into a great optical orchestra like a cubist painting by Braque or Picasso." #longcovid #MyalgicEncephalomyelitis #chronicillness
open.substack.com
Seeing Double –
Long Covid and Ways of Seeing
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Ted Monroe @tedmonroe91.bsky.social · 26/05/2026
My essay on #LongCovid is published in this delightful edition of On Being Ill, with Woolf’s original essay and essays and poetry from 11 contemporary writers. Book out 2nd June
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Reposted by Ted Monroe
Ted Monroe @tedmonroe91.bsky.social · 19/05/2026
open.substack.com
Virginia Woolf's 'On Being Ill' & other essays on illness
My essay in a new anthology of illness writing alongside Woolf's original masterpiece
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Ted Monroe @tedmonroe91.bsky.social · 19/05/2026
open.substack.com
Virginia Woolf's 'On Being Ill' & other essays on illness
My essay in a new anthology of illness writing alongside Woolf's original masterpiece
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Reposted by Ted Monroe
Ted Monroe @tedmonroe91.bsky.social · 13/05/2026
My essay on #LongCovid is included in a new edition of Virginia Woolf's 'On Being Ill' from The New Menard Press - alongside the works of 11 other contemporary writers. Book out on June 2nd. Pre-order here: www.waterstones.com/book/on-bein...
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Ted Monroe @tedmonroe91.bsky.social · 13/05/2026
My essay on #LongCovid is included in a new edition of Virginia Woolf's 'On Being Ill' from The New Menard Press - alongside the works of 11 other contemporary writers. Book out on June 2nd. Pre-order here: www.waterstones.com/book/on-bein...
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Reposted by Ted Monroe
Ted Monroe @tedmonroe91.bsky.social · 11/05/2026
'Nothing can inspire sympathy for Roald Dahl’s indomitable child-hater, Miss Trunchbull, like teaching in a school.' #LongCovid #ME/CFS
open.substack.com
With Sympathies to Miss Trunchbull
Teaching with Long Covid
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Ted Monroe @tedmonroe91.bsky.social · 11/05/2026
'Nothing can inspire sympathy for Roald Dahl’s indomitable child-hater, Miss Trunchbull, like teaching in a school.' #LongCovid #ME/CFS
open.substack.com
With Sympathies to Miss Trunchbull
Teaching with Long Covid
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Reposted by Ted Monroe
Pip Kazan @pipkazan.bsky.social · 01/05/2026
Life with a chronic illness is crushingly transactional. I had a lovely yesterday with Mrs K - IKEA! Bao buns! Giggling over fake tan in Boots! - but today I pay the price. #MECFS
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Reposted by Ted Monroe
Ted Monroe @tedmonroe91.bsky.social · 23/04/2026
Confessions of a Long Covid Convalescent "Reader, I declined. This was not the kind of symptom relief that I had requested, and I left feeling that there had been a rather profound misunderstanding as what constituted a ‘whole body massage’." #LongCovid #MECFS #pwme #pwlc
open.substack.com
Confessions of a Long Covid Convalescent
The vicissitudes of the search for relief
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Ted Monroe @tedmonroe91.bsky.social · 23/04/2026
Confessions of a Long Covid Convalescent "Reader, I declined. This was not the kind of symptom relief that I had requested, and I left feeling that there had been a rather profound misunderstanding as what constituted a ‘whole body massage’." #LongCovid #MECFS #pwme #pwlc
open.substack.com
Confessions of a Long Covid Convalescent
The vicissitudes of the search for relief
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Reposted by Ted Monroe
Long Covid Advocacy @longcovidadvoc.com · 16/04/2026
👏Excellent commentary to @BBCR4Feedback by Helen Gibson, @tedmonroe91.bsky.social & @nickyproctor.bsky.social 🧪 It also shows the power of @DecodeMEstudy in refuting stigmatising, outdated & false views of people like O'Sullivan.
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Ted Monroe @tedmonroe91.bsky.social · 15/04/2026
‘When from this wreathed tomb shall I awake! / When move in a sweet body fit for life, / And love, and pleasure…’ Keats #LongCovid #ME #MECFS
open.substack.com
Long Covid
A timeline in pictures and quotations
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Ted Monroe @tedmonroe91.bsky.social · 09/04/2026
"Well, that’s Easter gone. Christ rose: Alleluia. No resurrection for this post-viral convalescent took place last weekend, however." #LongCovid #ME #MECFS Miraculous Reawakening in Shakespeare's 'The Winter's Tale' open.substack.com/pub/tedmonro...
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Reposted by Ted Monroe
Yvonne @emoyvonne.bsky.social · 05/04/2026
“The annual transition from death to rebirth – propelled irrepressibly forwards – deepens the feeling that we are out of sync with the rest of the ecosphere and with our fellow humans now expanding into life as the days lengthen.” Beautiful contemplations in this piece. #LongCovid #mecfs
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Ted Monroe @tedmonroe91.bsky.social · 05/04/2026
"April is the cruellest month." - T.S. Eliot My essay on the dissonance of spring for people with #MECFS and #LongCovid
open.substack.com
A patch of want in a garden of plenty
The Resentment of Spring
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Ted Monroe @tedmonroe91.bsky.social · 25/03/2026
The isle is full of noises: what Shakespeare's The Tempest can teach us about #LongCovid and #MECFS open.substack.com/pub/tedmonro...
open.substack.com
The isle is full of noises
Long Covid and Shakespeare's 'The Tempest'
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Ted Monroe @tedmonroe91.bsky.social · 15/03/2026
@georgemonbiot.bsky.social @longcovidsupport.bsky.social
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Ted Monroe @tedmonroe91.bsky.social · 15/03/2026
#LongCovidAwarenessDay #millionsmissing I was a teacher with a rich and active life. Now, thanks to #LongCovid, my days look like this:
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Ted Monroe @tedmonroe91.bsky.social · 13/03/2026
open.substack.com/pub/tedmonro... #LongCOVID #ME/CFS #chronicillness
open.substack.com
A patch of want in a garden of plenty
The Resentment of Spring
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Ted Monroe @tedmonroe91.bsky.social · 11/03/2026
6 years ago today, Covid-19 was officially declared a pandemic by the WHO. Now, most people have returned to normal. But there are still #millionsmissing with #longCOVID whose lives have been capsized. I wrote an article about it: the-fence.com/a-failure-to... for @thefence.bsky.social
the-fence.com
A Failure to Convalesce
An interminable struggle to put on a jumper.
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Reposted by Ted Monroe
Ted Monroe @tedmonroe91.bsky.social · 03/03/2026
No More Cakes and Ale: Long Covid and the Lenten menu... #longcovid Lean times on the culinary front
open.substack.com
No More Cakes and Ale
Long Covid and the diminished menu
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Ted Monroe @tedmonroe91.bsky.social · 03/03/2026
No More Cakes and Ale: Long Covid and the Lenten menu... #longcovid Lean times on the culinary front
open.substack.com
No More Cakes and Ale
Long Covid and the diminished menu
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Reposted by Ted Monroe
Ted Monroe @tedmonroe91.bsky.social · 18/02/2026
A Year in the life of a #LongCovid patient @longcovidsupport.bsky.social @longcovidadvoc.com
open.substack.com
Long Covid
A timeline in pictures and quotations
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Ted Monroe @tedmonroe91.bsky.social · 18/02/2026
A Year in the life of a #LongCovid patient @longcovidsupport.bsky.social @longcovidadvoc.com
open.substack.com
Long Covid
A timeline in pictures and quotations
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Ted Monroe @tedmonroe91.bsky.social · 14/02/2026
'Let us not seek our disease out of ourselves; ‘tis in us' – Montaigne, one of his less impressive insights #mecfs #chronicillness #longcovid #pwme #pwlc
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Ted Monroe @tedmonroe91.bsky.social · 13/02/2026
A Meditation on Long Covid and the Fear of missing Out, or FOMO #longcovid #mecfs #pwme @longcovidadvoc.com @longcovidsupport.bsky.social open.substack.com/pub/tedmonro...
open.substack.com
'Well, they are gone, and here must I remain'
A meditation on FOMO and Long Covid
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Reposted by Ted Monroe
Long Covid Kids @longcovidkids.bsky.social · 02/02/2026
Funded by the Buckinghamshire-based ME Association, external and carried out at Imperial College London, the Rosetta Stone study hopes to look for biomarkers and "decode the immunological profile" of both ME and Long Covid. www.bbc.co.uk/news/article... #OverlappingIllness #ME #LongCovid
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Reposted by Ted Monroe
Ted Monroe @tedmonroe91.bsky.social · 15/03/2025
For us the pandemic never finished. We watch on in slumbery agitation as an amnesiac world carries on. We see, in W.H. Auden’s words, ‘how everything turns away / Quite leisurely from the disaster’. www.the-fence.com/a-failure-to... My article for @thefence.bsky.social on #longcovid.
the-fence.com
A Failure to Convalesce
An interminable struggle to put on a jumper.
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Reposted by Ted Monroe
Ted Monroe @tedmonroe91.bsky.social · 27/01/2026
A Substack about post-viral illness and the poetry of T.S. Eliot #longcovid #mecfs #chronicillness Pinned and Wriggling open.substack.com/pub/tedmonro...
open.substack.com
Pinned and Wriggling
Post-viral illness and the poetry of T.S. Eliot
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Ted Monroe @tedmonroe91.bsky.social · 27/01/2026
A Substack about post-viral illness and the poetry of T.S. Eliot #longcovid #mecfs #chronicillness Pinned and Wriggling open.substack.com/pub/tedmonro...
open.substack.com
Pinned and Wriggling
Post-viral illness and the poetry of T.S. Eliot
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Ted Monroe @tedmonroe91.bsky.social · 08/01/2026
Check out 'The Art of Convalescence', a Substack with some teething issues about how art and literature can help people with chronic illness through the dark times... open.substack.com/pub/tedmonro... @longcovidadvoc.com @longcovidsos.bsky.social @longcovidsupport.bsky.social
open.substack.com
The Art of Convalescence
How art and literature can guide us through the dark times of chronic illness
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Reposted by Ted Monroe
George Monbiot @georgemonbiot.bsky.social · 08/10/2025
ME/CFS is a devastating condition that has long been denied, dismissed, psychologised and underdiagnosed. Research is at last starting to catch up with it, with glimmers of hope for those who have been left untreated for so long. There's a huge BUT coming ...🧵 www.theguardian.com/society/2025...
theguardian.com
Scientists develop first ‘accurate blood test’ to detect chronic fatigue syndrome
Research could offer hope for ME patients – but some experts urge caution and say more studies needed
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Ted Monroe @tedmonroe91.bsky.social · 13/04/2025
@edyong209.bsky.social
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Ted Monroe @tedmonroe91.bsky.social · 16/03/2025
@meactnet.bsky.social @longcovidadvoc.com @longcovidsupport.bsky.social @longcovidsos.bsky.social @meassociation.bsky.social @mecfsnews.bsky.social @longcovidphysio.bsky.social @putrinolab.bsky.social
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Ted Monroe @tedmonroe91.bsky.social · 15/03/2025
For us the pandemic never finished. We watch on in slumbery agitation as an amnesiac world carries on. We see, in W.H. Auden’s words, ‘how everything turns away / Quite leisurely from the disaster’. www.the-fence.com/a-failure-to... My article for @thefence.bsky.social on #longcovid.
the-fence.com
A Failure to Convalesce
An interminable struggle to put on a jumper.
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Reposted by Ted Monroe
The Fence @thefence.bsky.social · 11/03/2025
'To have Long COVID, then, is to be trapped in paradox. This is no more apparent than in our furious efforts to recover, in which a profane blend of Puritanism and Paltrowism (the Gwyneth variety) do battle.' A beautiful piece from Ted Monroe. www.the-fence.com/a-failure-to...
the-fence.com
A Failure to Convalesce
In his story, ‘Don’t Blame Anyone’, Julio Cortázar depicts one man’s interminable struggle to put on a jumper. The man is supposed to be meeting his wife at a store, and it is cold outside…
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