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Stage 4 is Caca

@siqueso.bsky.social
131 followers 120 following 160 posts

I love books, weird knowledge, cats, scruffy dogs, & happy beautiful things. I yam what i yam. Lung cancer known since 2019 - both kinds now. Lucky me it just entered my brain. Trying to stay alive till my boy is almost grown, hopefully. He is 10.

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ProPublica @propublica.org · 06/09/2026
ProPublica spoke to dozens of people who had lived in homeless encampments when cities cleared them out in “sweeps.” We distributed notecards so people could tell us about the toll in their own words. ➡️ This is what they wrote:
Handwritten notecard. Prompt at the top asks: What object was most devastating for you to lose, and how have you been coping? Answer below: Dentures. Were thrown away and coping isn't somthing I can do. It’s made me feel ugly, unworthy, can’t go get a job with no teeth. So how can get off the streets until another pair can be made?
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Julie Taylor @snarkymimi.bsky.social · 07/08/2026
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Heidi & Mand @laughbeforedeath.bsky.social · 22/03/2026
#cansky and anyone in the sphere of #MetastaticCancer This article describes our lives so beautifully. I’ve looked for something to describe the uncertainty of living with a terminal diseases and ‘long middle’ captures it perfectly. www.theguardian.com/society/2026...
theguardian.com
I have stage four cancer – there will be no cure, but death isn’t necessarily imminent: this is how it feels to live in the long middle
When you are cured, the world cheers; when you are dying, it mourns. But when you are simply maintaining, the world is at a loss
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Mr Natural @neilmatheson66.bsky.social · 22/03/2026
William Haskell - 'Turmoil' #acrylics
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Rachel Maddow @maddow.bsky.social · 22/03/2026
I know this has circulated with alacrity recently, so you may have already seen it, but if you haven't... WOW BOY HOWDY it's the most useful thing. Thank you cardcatalogforlife.substack.com -- this is a very very very helpful public service: cardcatalogforlife.substack.com/p/google-has...
cardcatalogforlife.substack.com
Google Has a Secret Reference Desk. Here's How to Use It.
40 Google features to find exactly what you need, the alternative search engines that do things Google won't, and the reference desk framework underneath all of it.
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Terre-Strial @terre-strial.bsky.social · 22/03/2026
“When the very rich so controlled the means of communication that it would be almost impossible for ordinary people to make informed decisions and so democracy would then be broken…” - attributed to Albert Einstein We have been here before, and we know what to do. RESIST!
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MoreFor4 @morefor4.org · 21/02/2026
Are you a Stage IV cancer patient looking for your place of belonging... and where you MATTER? Join us! www.npr.org/2026/02/15/n...
npr.org
Psychologists say feeling valued is a core human need. Here's how to meet it
Psychologists say that after the need for food and shelter, humans want to feel valued. But that need usually goes unmet.
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Dominique Ramsey 𓃥 @dominiqueramseyart.bsky.social · 21/02/2026
The past and present
Illustration of a large blue, red, purple, and green cat shining a light on a smaller blue and green cat below. The small cat looks up at the larger cat with it's mouth open in a meow. The script in the top left corner is in Arabic, translating to "DOMINIK".
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Phil Lewis @phillewis.bsky.social · 21/02/2026
Joanne Bland, one of the youngest people to march on “Bloody Sunday,” has died. She was 72. "By the time I was 11-years-old, I had been arrested at least 13 documented times”
wvtm13.com
Joanne Bland, lifelong Civil Rights activist and founder of Selma's Foot Soldiers Park, dies
Bland grew up in Selma and became involved in the Civil Rights Movement as a child foot soldier in the 1960s, participating in the historic Selma voting rights marches, including Bloody Sunday.
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All You Need is Lungs @allyouneedislungs.bsky.social · 15/09/2025
‘For decades, #lungcancer has been viewed as a disease of older men who smoked. Now, cases among young women are on the rise and doctors are baffled. Could air pollution be behind it?’ #LCSM www.theguardian.com/society/2025...
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Alicia Ault @aliciaault.bsky.social · 04/11/2025
Children's in DC is starting to recruit kids with pediatric sarcomas and other solid tumors that have resisted chemotherapy and radiation, using their own T cells as therapy. Effort supported in part by National Cancer Institute. #OncoSky #pediatrics #science #research #cancersucks
washingtonpost.com
Why this clinical trial is offering some young cancer patients hope
Children’s National Hospital is poised to recruit patients for a new clinical trial that will take on an old, implacable foe: children’s solid tumors. Little progress has been made in 30 years.
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Neal Augenstein @nealaugenstein.bsky.social · 06/11/2025
Warm thanks to my friend and colleague @segravesnbc4.bsky.social for his thoughtful interview and reporting, after I spoke at the @lungevity.bsky.social #lungcancer awareness event on the National Mall. #lcsm #oncsky #cansky www.nbcwashington.com/news/health/...
nbcwashington.com
Thousands of flags planted on National Mall to raise lung cancer awareness
This month, tens thousands of white flags have been planted on the National Mall to memorialize the 120,000 Americans who die from lung cancer every year. November is Lung Cancer Awareness Month, and ...
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Stage 4 is Caca @siqueso.bsky.social · 27/09/2025
I made it to 48! It’s almost a miracle. I was diagnosed at 41 with young lung cancer and I have been stage 4 for over 5 years and now I’m also stage 4 with small cell lung cancer for over a year and a half. I am lucky.
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Your Local Epidemiologist @ylepidemiologist.bsky.social · 14/08/2025
1/ Hey California! This week I’ve got updates on three #publichealth fronts: measles, wildfire health impacts, COVID-19, and supporting public health workers. Here’s what Californians need to know to stay safe and informed 👇
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Sid Sadler @sadlersnaps.bsky.social · 15/08/2025
The more I think about this quote the more and more I see it applies to my own diagnosis. I find myself too often still trying to appease everyone. Sometimes self care looks like you doing what’s best for you and the ones you love. Don’t forget that. #Cansky
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Kimberley Johnson @kimberleyjohnson.bsky.social · 29/06/2025
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Fredrik @barbiche.eurosky.social · 24/06/2025
Linus and Charlie Brown from Peanuts demonstrating. Linus is holding a sign: "HATE NEVER MADE ANY NATION GREAT"
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Deborah Elizabeth Finn @deborahelizabeth.bsky.social · 24/06/2025
Srdja Popovic has shown us that protesters can draw a line, so that the dictator is isolated on one side, and everyone else is on the other side. Right now, you can download a free copy of one of his books from the Cornell University Press website: www.cornellpress.cornell.edu/book/9781501...
cornellpress.cornell.edu
Pranksters vs. Autocrats by Srdja Popovic and Sophia A. McClennen | eBook | Cornell University Press
The Lawrence and Lynne Brown Democracy Medal, presented by the McCourtney Institute for Democracy at Penn State, recognizes outstanding individuals, groups, and organizations that produce innovations....
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BlueinOhio @sharon43302.bsky.social · 22/06/2025
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Gertie @gertiegreen.bsky.social · 24/06/2025
And insist upon a warrant signed by a judge. None of that ICE Administrative Warrant BS.
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The Tennessee Holler @thetnholler.bsky.social · 23/06/2025
WATCH: “This is f*cking kidnapping! That’s not your badge… I do have a little bit of education… get the f*ck out of here, racial profiling is illegal…” A brave woman melts ice 🧊 💪🏽 www.instagram.com/reel/DLOWbEs...
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Sid Sadler @sadlersnaps.bsky.social · 23/06/2025
Oh whoops. 🥴🤣. #Cansky #Cancer #Cancerhumor
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Hayley Gullen @hayleygullen.com · 23/06/2025
#ChooseBees
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Jon Cooper @joncooper-us.bsky.social · 23/06/2025
Damn right!!!
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ProPublica @propublica.org · 24/06/2025
Refugees in Kenya have died at food distribution centers, officials noted, including a pregnant woman crushed to death during a stampede. Aid workers said they expected more people to get hurt “as vulnerable households become increasingly desperate.”
propublica.org
Death, Sexual Violence and Human Trafficking: Fallout From U.S. Aid Withdrawal Hits the World’s Most Fragile Locations
Exclusive State Department records show: As the Trump administration abandons its humanitarian commitments, diplomats are reporting that the cuts have led to violence and instability while…
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Cancer Coach USA @cancercoachusa.bsky.social · 09/06/2025
Fatigue that rest doesn’t fix. Relationships that feel different. A body you barely recognize. Life after cancer is complicated. And most people don’t talk about this part. Let’s change that. #CancerSurvivor #LifeAfterCancer #YouBeatCancerNowWhat #PostTreatmentHealing #bsky #cansky
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Malignant Militia @malignantmilitia.bsky.social · 11/06/2025
Did I miss something? Does anyone know where @thankscancer.bsky.social has gone? I haven't seen her here lately, and miss her witty posts! 😐 #damncancer #cansky #thankscancer
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Stage 4 is Caca @siqueso.bsky.social · 05/06/2025
This is appalling.
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Stage 4 is Caca @siqueso.bsky.social · 05/06/2025
I feel doomed. I’m sure a lot of us feel that way. It’s hard not to.
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Sid Sadler @sadlersnaps.bsky.social · 02/06/2025
She hits EVERY point, some of which we don’t speak up on being a young adult with cancer. Kudos to you Katie! Thank you for bringing this to the masses at #ASCO25 👏🏻 #Cansky
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Sid Sadler @sadlersnaps.bsky.social · 02/06/2025
Powerful talk from @katiekickscancer.bsky.social speaking on what patients are experiencing and what do they want from their team, oncologist, and the field 🧬. I can’t recommend listening to this presentation if you are an oncologist.
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Brain Tumor Social Media Chat @btsmchat.bsky.social · 02/06/2025
We're so excited for our June 8, 2025 #BTSM #skychat on #braintumor Advocacy that we've moved our start time ONE HOUR EARLIER to better accommodate schedules. We'll start at 4 PM Pacific / 7 PM Eastern instead of 5pm/8pm. We hope you can join us! #oncosky #oncsky #medsky #AYACSM #cansky
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Alt National Cancer Institute (NIH/NCI) 🧬 @alt-thenci.bsky.social · 03/06/2025
The study, which is funded by Regeneron Pharmaceuticals of Tarrytown, NY, aims to enroll 10,000 participants, who can be of any gender, and with or without a history of #BreastCancer. Participants will get a “spit kit” mailed to them with return postage paid. #CanSky sas.rutgers.edu/about/news/r...
sas.rutgers.edu
Rutgers Scientists Seeking Thousands of Participants for Major Cancer Study
Rutgers University professors have launched a major study into the underlying genetics of breast cancer that makes it easy for any U.S. resident over the age of 18 to participate. All that’s needed is...
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@doublewhammied @doublewhammied.bsky.social · 03/06/2025
"Industry doesn’t typically fund #basicresearch & it costs more 2 do research in industry in part because companies, unlike university labs, have to pay competitive wages ...'It’s not just the intern'l students, the whole system is on hold because the ..." 1/2 #CanSky #IDSky #research #CancerBS
nytimes.com
U.S. Scientists Warn That Trump’s Cuts Will Set Off a Brain Drain
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Stage 4 is Caca @siqueso.bsky.social · 28/05/2025
I made it through Fair week for my boys 2nd year of 4-H b/w txs. He ended up novice champion & intermediate reserve champion for guinea pigs. And he got a buckle at 10! for the Avian bowl as his team were the junior champions. I had another tx since and I am tired but doing ok. #cansky
Human size letters FA and then I am the human I and then the last letter is R. There are rides in the background.
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@doublewhammied @doublewhammied.bsky.social · 28/05/2025
Incredibly tragic. Isnt this avoidable? "Separate but simultaneous investigatns revealed that the variant, found in a gene called TP53, was present in 23 total childrn, 10 of whom had alrdy been Dx'd w/ #leukemia, non-Hodgkin #lymphoma & other #cancers." #CanSky #MedSky 😞 people.com/10-kids-conc...
people.com
10 Children Conceived with Same Sperm Donor Develop Cancer — and the Man's Sperm Was Used by at Least 67 Families
After 10 children conceived with the same sperm donor were diagnosed with cancer, the sperm bank confirmed the donor had a rare genetic variant. The donor's sperm was used by at least 67 total familie...
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Stage 4 is Caca @siqueso.bsky.social · 12/05/2025
Rough day today. Orange pee and diarrhea. Hydration but never enough plus so hard when it tastes so eh. I did get a bit of a nap which was nice. Spoke to all the moms and my boys and hubby spoiled me with cards, gifts, and a delicious dinner.
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Stage 4 is Caca @siqueso.bsky.social · 11/05/2025
I’m 2 days out from my, I don’t know what number chemo, and I have the do not touch mes. It’s also fair week starting tomorrow so slowly trying to load up the trailer after hubby woke me around 130pm. I sure need to sleep more. I hope it’s not a cumulative load. Scan was Fri! Results Thu. #cansky
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Maximus @maximustm.bsky.social · 08/05/2025
The cost to manufacture a single pill remains just $.25 per pill since its inception. Thanks to the greed of Celgene, and no entity willing to apply the brakes on numerous price hikes over the years, this daily medication is now $19,660 per month. #Cansky www.propublica.org/article/revl...
propublica.org
The Price of Remission
When I was diagnosed with cancer, I set out to understand why a single pill of Revlimid cost the same as a new iPhone. I’ve covered high drug prices as a reporter for years. What I discovered shocked ...
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Sid Sadler @sadlersnaps.bsky.social · 07/05/2025
Honestly… I’m so tired of insurance. I’m tired of worrying about what’s covered, what “code” my doctors uses for a visit. Tired of calling, to be told to call someone else, keep up with this or that. Can we agree insurance is so messed up in this country? #Cansky #Medsky
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@doublewhammied @doublewhammied.bsky.social · 01/05/2025
"You are watching the gradual dissolution of the vaccine infrastructure in this country,” said Paul Offit, director of the Vaccine Education Center at Children’s Hospital of Philadelphia. “The goal is to make vaccines less available and less affordable.” #CanSky #IDSky #MedSky #HealthSky
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Stage 4 is Caca @siqueso.bsky.social · 02/05/2025
Terrible customer service/patient care, whatever the words are. This should never happen to someone yet in 2025 it still does.
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Emily Suess @emilysuess.com · 02/05/2025
May is brain tumor awareness month and the free Zentangle inspired brain images are how I contribute. But anyone can use any image for any purpose. #CancerBS #OncoSky #BTSM emilysuess.com/2024/04/27/f...
emilysuess.com
Free Brain Images for Brain Tumor Awareness Month | Emily Suess
Free Brain Images for Brain Tumor Awareness Month. For use with or without attribution. Just my way of giving back.
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